How it went
Did it last?
- 71 of 343 said the benefit wore off (including the 33 who relapsed).
- 49 of 343 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 42 | 12% |
| Near-full | 30 | 9% |
| Substantial | 113 | 33% |
| Partial | 117 | 34% |
| Relapsed | 33 | 10% |
| No benefit | 8 | 2% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Mild | 3 | 33% | |
| Moderate | 53 | 21% | |
| Severe | 131 | 29% | |
| Very severe | 36 | 28% |
120 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- B12 injections and methylation89 accounts
17% 24%
- Selenium, iodine, minerals66 accounts
17% 21%
- Probiotics and fermented foods54 accounts
11% 22%
- NAC and glutathione46 accounts
11% 24%
- Carnitine, BCAA, amino acids35 accounts
14% 11%
- Elimination and ketogenic diets30 accounts
30% 10%
- Mold avoidance / CIRS protocol28 accounts
18% 4%
- CoQ10 / ubiquinol27 accounts
11% 30%
- Herbal and Chinese medicine26 accounts
19% 23%
- Vitamin D and sun exposure26 accounts
19% 23%
- Meditation, yoga, breathwork24 accounts
42% 17%
- Low-dose naltrexone23 accounts
35% 30%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
Side effects and harms people mentioned
Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about Supplements itself. Read the story before drawing conclusions.
- Side effects
nescio13 credits a beta-blocker ("basic blood pressure reduction medication," no specific drug name or dose given) with ending their migraine-like long covid symptoms, though as a side effect it also brought back their asthma.
- Withdrawal problems
They had lived with long covid for about four years, severe enough to require nearly complete social withdrawal and tightly controlled environments.
- Side effects
Posting as "bradmcblain," the patient used chelation therapy for mercury toxicity, Freddd's B12 Protocol with daily methylcobalamin injections, methylene blue (started 3 months before the post), and — added 2 weeks before posting — a Vielight Neuro Gamma photobiomodulation helmet plus a red-light therapy device for wrist blood vessels; an antifungal medication caused a severe adverse reaction and was dropped.
- Side effects
By day 5 reported "more energy, less brainfog, less joint pain and just felt better overall," and notes "some of the benefits stuck with me even after I had stopped taking the supplements." Insomnia proved intolerable despite already being on clozapine and fluvoxamine, so the trial was discontinued; planned to retry at a lower, slower-titrated dose.
- Side effects
During the course her energy and blood pressure stabilized around 145/80 and her orthostatic intolerance resolved, though she developed constipation and MCAS flares as side effects.
- Made symptoms worse
After COVID worsened his decades-old condition, Keshav began sublingual ATP and reports dramatic improvement within 3 days, and within 24 hours of his first injectable ATP dose felt his "mind was much sharper," mood and energy much better.
- Side effects
N-Acetyl-DL-Leucine (3-5g) plus calcium and copper let him "get up and move around as if I didn't have ME/CFS." The effect "only works for a few days a week" and comes with a strong appetite-suppressant side effect, so it is a brief, recurring improvement rather than a durable one.
- Herx / die-off reaction
Took quercetin 500mg twice daily plus Metagenics Ultra Potent-C (500mg vitamin C, 35mg niacin) twice daily against very high echovirus 11 titres ("too high for a real number"), which produced an "awful" seven-day Herxheimer-type reaction.
- Side effects
Initially describes it as having "cured my chronic fatigue," but the same preparation is later reported to have caused a psychotic-seeming episode severe enough to land him in a psychiatric ward, and he says later refined versions gave "little results." The account is thus one of dramatic short-term relief followed by a serious adverse reaction and a fading effect, with an explicit warning to others: "you have been forewarned."
- Side effects
Hip applied a transdermal B12 oil (2.5mg per dose) every 2-3 days from November 2018, getting increased cognitive clarity within 2-3 hours that lasted about 3 days per dose, managing side effects with potassium and niacinamide.
- Blood count problems
Tracy has tried valganciclovir (Valcyte) three times for ME/CFS: a six-month course in 2014 (three weeks of induction at two 450mg pills twice daily, then two pills once daily) cut short by an allergic reaction after switching to a generic mid-course; a second course on the same regimen plus famciclovir (Famvir) that she stopped after about 2.5 months due to anemia-related breathing difficulties; and a current, third course of just one 450mg pill a day, taken selectively on days it wasn't causing weakness, now five months in.
- Side effects
The gains have held over the five months so far, though she says she is not back to normal and remains dependent on supplements to function; her first two courses each brought partial, non-durable improvements before being cut short by side effects.
- Hospitalisation
After about a year of heart palpitations, high blood pressure, vertigo, numb extremities and ER visits — with B12 and methyl-B12 tablets repeatedly triggering crashes — she found topical magnesium oil was the missing piece.
- Refeeding or deficiency problems
Within three weeks of refeeding he had regained the weight, and his old headaches returned once he resumed his glutathione and fenbendazole regimen, leaving the benefit only partly sustained.
- Side effects
He now warns others to limit any course to 4 months maximum and get monthly ANA blood tests while using it: a real functional benefit was outweighed by a serious autoimmune adverse event he attributes to the treatment.
- Side effects
Describes it as "not a cure" but beneficial while used; the good effects "began to wear off after a few months," including after she had to stop due to the prohibitive cost, and Enlander's 878 injectable version did not work as well for her.
- Financial cost
He separately paid £150/week for a 3-week trial of Rerum (a Ruggiero-linked GcMAF variant) and felt it "had good effects but couldn't afford it," settling on Bravo yoghurt long-term instead, which he says he still relies on "for maintaining a better level of health."
- Herx / die-off reaction
The improvement was not steady, though: it alternated with a severe flare ("hit like a ton of bricks") of nerve-distribution muscle twitching, malaise and weakness she attributed to a possible Herxheimer-type reaction, describing the overall pattern as fluctuating rather than a clean recovery while continuing the supplement regardless.
- Side effects
As of the post she is trying to fix the gastritis rather than abandon the stack, so the functional gain is real but comes bundled with an unresolved, significant side effect.
- Made symptoms worse
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but improved gradually week-by-week using kinesiology, ivermectin, high-dose probiotics, rotating antibiotic combinations and anti-biofilm supplements, then treated presumed Lyme/Bartonella with antibiotics, a simplified methylation protocol, GcMaf/Bravo probiotic and 1st Line/lactoperoxidase-thiocyanate - which he says had "the greatest effect" - taking his Bell's score from 10 to 50.
- Refeeding or deficiency problems
Daily thiamine injections reportedly resolved nine years of ME/CFS that the patient attributed to "a vitamin deficiency caused by a metabolic error," leaving them "leading a normal life today." This account was reposted secondhand by another member quoting an outside source, with no name, dose, or timeline given, and no durability follow-up -- a strong claim but thin, low-provenance detail.
- Gut side effects
Within a couple of days his IBS was noticeably improved, and over the following year he says he "rarely" gets severe diarrhea days anymore — down to about once every four weeks, a gain that held for over a year of continued use.
- Side effects
With side effects appearing alongside the benefit and no follow-up visible on whether it held, the balance of benefit versus harm is unresolved in the thread.
- Side effects
Took a refrigerated multi-strain probiotic sachet and by the third day found his longstanding food intolerances "improved greatly," with adverse reactions to trigger foods reduced by about 90% and digestion, skin and mood all better.
- Withdrawal problems
Persistent fluid retention was limiting further progress, and he was still tapering off Klonopin/Ativan at time of posting.
- Blood count problems
From a worst point of being bedbound 20 hours a day, she says she now manages 12-hour days that include 1-2 hours of brisk walking, and that her pain resolved and anemia improved.
All 343 accounts
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Improvement story
Across several posts spanning 2023-2026, Gzephyr describes climbing out of EBV-reactivation-driven CFS using valacyclovir as a base, adding NAC and intermittent fasting, and finally a tonsillectomy in early 2025. He says he went from severe (~8/10 fatigue,…
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Has anyone achieved remission or recovery from treatment by any doctor?
Took 25mg of spironolactone plus 4.5mg of low-dose naltrexone (LDN), while already on physiologic cortisol replacement for non-functioning adrenals, following the approach from the Campo and Taylor 2021 clinical trial. The page does not state how long they…
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Experimental peptides are being advertised for Long COVID (Joshua)
Joshua began microdosing tirzepatide about six months before the article was written, though no specific dose is given. The article does not describe how long he had been sick or how severe his Long COVID was, but he reported that within hours of his first…
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Experimental peptides are being advertised for Long COVID
Anca Vrincianu learned about the peptides MOTS-c and KPV, said to help with energy production and gut health respectively, and ordered them online, though the article does not specify the exact peptides she settled on, doses, or duration of use. Over about a…
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A Day in The Life with Long COVID
Credits pacing and environment. Sage was ill 3y with severe long COVID and reports a partial improvement. Improved versus 2024 baseline but still a wheelchair user.
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I'm normal now. Here's my promised update for y'all
Started with IFN lambda combined with GS-441524 for underlying Enterovirus B infections, which brought about 60% improvement, then moved to a multi-drug antiviral regimen described as molnupiravir, GS-441524, Vermurafenib, ribavirin and pleconaril plus…
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Six Things I Did NOT Do to Heal
Credits trauma and somatic work and JournalSpeak. Ariel was ill 2y with severe long COVID and reports a substantial improvement. Rejected diets, supplements and GET; symptoms mostly gone.
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ME/CFS patient substantially improved with spironolactone 100 mg daily
Poster combined spironolactone 25mg/day with LDN, a GLP-1 agonist and NP thyroid and states plainly "My CFS is cured, yes cured...my health is amazing," while noting he still needs cortisol supplementation. Because several drugs were changed together it is…
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On the road to recovery from Long Covid
Lauren combined nicotine patches at one-eighth of a patch daily through December with a broad daily supplement regimen, including CoQ10 100mg, Ionic Fulvic Acid 1ml three times a day, Hawthorn Leaves 5ml, and products like Adrenal Complex, Adreno Active,…
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Recovery Protocol Cheat Sheet
Christy's posted recovery protocol lists an extensive regimen: pre-protocol, three months of Eliquis 5 mg daily and clopidogrel 75 mg daily; from February 2024 a "foundation" of nutritional antivirals including matcha green tea, coconut oil, unpasteurized…
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Relief! I still have CFS but am a MILLION times better
julienl42's own title is his hedge: after 13 years and a long, actively-managed stack of prescription, antifungal, sleep and supplement treatments, he has gone from being in bed all day with 3-4 crashes a month to about one crash every one to two months,…
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HUGE response to Vitamin K2 MK7
roller combined two short courses of aciclovir with high-dose D3 and K2 and reports eyes focusing "dramatically" better, improved hearing, and feeling stronger, describing reading as now "like a breeze." The account is recent and the poster does not yet…
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Long COVID/ME-CFS Patient Goes from Moderate to Remission After Just 4 Days of a Water Fast
This moderate-bordering-on-severe long-COVID/ME-CFS patient did a 4-day water fast (not fully strict, with broth and some supplements) and reached near-remission afterward. As of the report, the improvement had been maintained for over two months post-fast,…
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Mild NAC success story (godlovesatrier)
During a relapse related to antibiotic treatment, this poster says NAC, built up very slowly from 25mg to 1.2g twice daily, was the main thing allowing him to function and helped him recover from the worst post-exertional crashes. He stresses the importance…
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My Recovery from Long Covid PEM: Part 1
In summer 2023 Christy Collins began four months of dual anticoagulant/antiplatelet therapy with apixaban (Eliquis) for long COVID PEM; a planned spring 2024 "three-pillar" protocol (mitochondrial and metabolic support, antivirals, and immune stimulants) is…
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Treatments. Yes, they do exist.
In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…
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Long Covid Healing Resources
Followed a 10-point Mayo Clinic-informed protocol: a TruVaga vagus-nerve-stimulation device for 2 minutes three times a day, guanfacine at 0.5mg twice daily (with room to increase to 1mg twice daily), L-arginine 2000mg twice daily, vitamin C 500mg twice…
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HUGE response to Vitamin K2 MK7
Dysfunkion says a 100mcg dose of K2 gave "more overall physical energy and a little more mental stability," and that she "wasn't as weak anymore" after a crash. She describes it as something she now needs to keep taking to maintain the effect, i.e. ongoing…
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HUGE response to Vitamin K2 MK7
pamojja reports that after 16 years of daily high-dose K2 (MK-7 plus MK-4), the brain fog that used to strike specifically during PEM crashes has been in remission for the last 6 years. This is a long-duration, well-sustained partial benefit (brain fog only,…
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HUGE response to Vitamin K2 MK7
Relatively new to ME/CFS, this poster escalated vitamin K2 MK7 drops to 7mg a day and on only the fourth day reported brain fog hugely clearing, more energy and wakefulness, feeling like a direct street to remission. He immediately hedges that he does not…
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Super Gut program finally helped my brain fog
Posting as "brad_," the patient tried Freddd's B12 protocol (2010-2012, including two B12 injections daily), mercury chelation (completed 2015), unsuccessful treatment for mycoplasma and HHV-6 infections, a red-light Vielight neuro helmet added in 2024, and…
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My Epstein-Barr Virus Reactivation Story
Elizabeth Rider, a wellness author with reactivated EBV antibodies (over 40 vs. a normal <9), reported feeling better than she had in years after a blood-ozone (major autohemotherapy) treatment, with lauricidin, echinacea and lemon balm credited per the…
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Long Covid Diaries, No. 49: the end.
nescio13 credits a beta-blocker ("basic blood pressure reduction medication," no specific drug name or dose given) with ending their migraine-like long covid symptoms, though as a side effect it also brought back their asthma. They had lived with long covid…
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18/6 intermittent fasting has benefitted me greatly
The same EBV-triggered patient at an earlier stage. He started 18/6 intermittent fasting in September 2024 alongside liposomal glutathione, noticing benefit within a week. Self-rated fatigue improved from 7 out of 10 to 5 and brain fog from 8 to 3 or 4, with…
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List of ME/CFS Recovery and Improvement Stories (page 14 discussion)
ixikd2025 credited a broad, kitchen-sink regimen spanning stimulant, mitochondrial, antihistamine/MCAS, and lifestyle interventions (meditation, running, acupuncture) for significant improvement. With so many concurrent changes, no single component could be…
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Dr Chia finds enterovirus ME/CFS patients given remdesivir remain in remission (Teodora)
A long COVID patient with associated enterovirus involvement. A Paxlovid course produced remarkable reductions in pain and improved energy, but stopping it triggered a horrendous symptomatic rebound. A later molnupiravir course gave only modest benefit by…
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Low oxalate diet noticeably improved my fatigue and brain fog after 3 days
Hip started a low-oxalate diet plus calcium-with-meals and daily magnesium and reports significant improvement in fatigue, brain fog and mental/anxiety symptoms appearing within just 3 days. He calls the brain fog and "zombie-like mental vagueness" clearly…
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Why inactive ingredients can be a gamechanger
Christy's treatment here is CoQ10 (Qunol brand): she started with 50 mg gummies (though the bottle recommended 100 mg) last winter, then switched to a liquid "Superior Absorption" formulation that let her tolerate higher doses without side effects, which she…
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Severe ME/CFS 2013, Remission 2017, Relapse, Remission Dec 2022
Treating what she frames as underlying candida/parasite causes with a long, MD/PhD-supervised rotation of antifungals, antiparasitics and herbs, GlacierBloom reached remission by December 2022 after being severe/bedridden from 2013-2017 and again after a…
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Melody's ME/CFS, Fibromyalgia and Long COVID Recovery Story
Melody was infected early in the pandemic, hospitalised with double pneumonia, then bedbound for six months and homebound on supplemental oxygen for two and a half years despite thirteen prescription drugs and multiple specialists. She credits a combination…
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Here's an interesting result from my experience with common EBV treatments
Raised Valtrex from 3g to 4g daily and added short courses of oil of oregano, high-dose monolaurin and high-dose vitamin C, after stress reactivated EBV two years earlier and caused "pure emotional flatness" and neurological problems on top of CFS. Hedges…
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Radical Rest and Beyond
The author of Encephalogirl (who signs as Michelle) treats her ME/CFS-related dysautonomia and POTS with guanfacine and low-dose Abilify (titrated from 0.5mg down to 0.25mg after migraines, then back up to 0.5mg), an increased dose of low-dose naltrexone, a…
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A bit of a breakthrough
Posting as "bradmcblain," the patient used chelation therapy for mercury toxicity, Freddd's B12 Protocol with daily methylcobalamin injections, methylene blue (started 3 months before the post), and — added 2 weeks before posting — a Vielight Neuro Gamma…
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Bromelain+NAC are really helpful to me
On the same NAC-plus-bromelain protocol, initially had a "large improvement in brain fog" and better blood flow, but the effect "regressed within a week." Attributes the fade to underlying immune dysfunction that anti-inflammatory action alone could not…
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Bromelain+NAC are really helpful to me
Took 600mg NAC plus 1000mg bromelain (1200 GDU) twice daily on an empty stomach for pre-COVID-onset ME/CFS, for 12 days before stopping due to insomnia. By day 5 reported "more energy, less brainfog, less joint pain and just felt better overall," and notes…
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My experiences with apoptosis treatment for HHV-6b, EBV subgroup ME/CFS
Built a long-running self-treatment stack over 15 years - artemisinin, galangal and magnolia bark to unblock apoptosis, a sublingual terpene mix (pinene, beta-caryophyllene, limonene) dosed 20-60 drops, curcumin, and doxycycline for the bacterial component -…
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Candida disappearing with Calcium
Calcium citrate initially replicated Hoosierfans' success, stopping his routine sore throat and improving sleep and gut motility. After adding NAC for three months he developed foot pain and agitation, then histamine-type reactions to the calcium itself…
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Success from Probiotics
Took Lane Innovative's Flora3 probiotic (S. boulardii-based) after roughly 2.5 years of chronic diarrhea, reporting simply that "my digestive problem is over." The improvement has been maintained by continuing on a lower maintenance dose rather than stopping…
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Success from Probiotics
Took a 14-strain Jamieson probiotic (2 capsules twice daily) for about two weeks while gradually reintroducing oats after roughly 1.5 years of fermentable-fiber intolerance causing brain fog, aches and malaise. After a few days he could increase oat intake…
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Good signs from coq10 - now what? (Mary)
Mary said 4,000 to 5,000mg of branched-chain amino acids daily, followed since 2014, cut her post-exertional malaise recovery time by more than half and improved her energy, with CoQ10 adding a further noticeable effect. She notes cheaper BCAA brands worked…
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Efthymios's Artificial Intelligence-Aided ME/CFS Recovery Story
Efthymios became ill in 1999 after stopping a medication and had full-blown ME/CFS by 2004, functioning at about four out of ten. From late 2012 he logged his symptoms, diet and supplements for 434 days and used machine-learning analysis of his own data to…
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Mild NAC success story (cfs since 1998)
A long-term (25+ year) ME/CFS patient reports NAC combined with vitamin C helped her recover from a bout of COVID and swine flu, but only "back to where I was before" - i.e., a return to her prior baseline rather than any improvement beyond it. She herself…
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[Case study] CFS/ME remission story severe patient [2008]
A severe ME/CFS patient documented in a 2008 case report used a year of tapering immunoglobulin dosing alongside gut-repair supplements and antibiotic treatment for mycoplasma, progressing from severe to mild over the 12 months of treatment. Immunoglobulin…
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Good signs from coq10 - now what?
Frogsquid13 initially reported good effects from 200mg of ubiquinol, including increased energy and mood. About six weeks later the same poster updated the thread to say the benefit had stopped working after a few weeks, calling it quite cruel to have…
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Mild NAC success story. Anyone else?
Three years after an EBV trigger and already on valacyclovir, adding 600mg of NAC daily for about two months reduced lymph node swelling and tonsil and sinus inflammation and raised the post-exertional malaise threshold tremendously, allowing walks and…
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Several long-COVID patients report improvements from antihistamines
Takes cetirizine nightly (dose not specified) since 2021, along with probiotics, for long-COVID symptoms. They describe the antihistamine as the only thing that quiets what they call a constant cytokine-storm reaction, and say it has also calmed…
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Ten Months of Long COVID
Marie Sanchez Nelson describes taking cetirizine, an antihistamine that calms her nervous system "in minutes," and had started nattokinase just three days before this post, which she hypothesizes may help repair blood vessels; no doses or durations are given…
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My Recovery Journey from Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
Mediterranean diet was adopted as one strand of a broad, multi-modal recovery program that also included intermittent fasting, low-dose naltrexone, structured pacing and vagus nerve stimulation, with no separate dose or duration given for the diet itself. He…
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Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story
Amber had digestive and allergy problems since childhood that became severe MCAS, POTS, MCS and ME/CFS after a marathon at thirty and a bad flu-shot reaction at thirty-one, leaving her homebound and fainting daily despite seeing more than a hundred doctors.…
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AXA1125 had a successful trial in Long Covid patients, I'm trying it on myself
Katabasis, describing long-COVID brain fog, said that after a month or two on guanfacine plus NAC she could read for twenty to thirty minutes at a stretch versus about ten before. She is unsure whether one component or the combination was responsible.
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My gigantic story going back to 1996, treatment plan included
Five days into a thiamine/magnesium/potassium-focused protocol after nearly three decades of worsening illness, TexRob reports restored temperature regulation, normalized sweating, resumed GI and urinary function, and reduced brain fog/neuropathic pain,…
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My gigantic story going back to 1996 (Mary)
Mary, a forum moderator, said thiamine gave her an amazing boost in energy at first, then caused severe fatigue until she realised it was depleting phosphorus and added that back. She is a big fan of thiamine but explicit that it has not solved her illness,…
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My gigantic story going back to 1996 (YippeeKi YOW)
YippeeKi YOW, bedbound and semi-vegetative for over five years and previously suicidal, says magnesium, potassium gluconate, B-complex, electrolytes, ginger, cinnamon and desiccated liver in tea has partly helped, reached only by adding each in tiny,…
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An ME/CFS Expert Helps a Long-COVID Patient Recover
A nineteen-year-old developed POTS and mast cell symptoms after a mild PCR-confirmed COVID infection, leaving him with a wellness score of 45 out of 100 and out of in-person classes for about fifteen months. Under Dr Peter Rowe at Johns Hopkins he was…
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Adam's BCG Vaccination Chronic Fatigue Syndrome (ME/CFS) Recovery Story
Liver derivative complex (Nexavir), given as 2ml per day by subcutaneous injection alongside hydroxocobalamin 10mg intramuscularly twice weekly, was used for about two years. He had been severely ill with ME/CFS for over two decades, at times unable to work…
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Michelle
Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…
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Has anyone recovered from CFS or been able to radically improve?
Posting as FortheBeautyoftheEarth on Mumsnet, this user describes B12 injections given every three months, a double dose of Desunin 800 (vitamin D), and folate supplementation, with vitamin C mentioned as something still to try; no further doses or a…
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Impact of extended-course Paxlovid in established Long COVID (Case 7)
Case 7, a 29-year-old man about 10 months into Long COVID/ME since July 2022 with extreme fatigue, PEM, tachycardia, POTS, persistent headache, brain fog, chest pain and shortness of breath, took a 15-day extended Paxlovid course in May 2023 while also on…
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Impact of extended-course Paxlovid in established Long COVID (Case 4)
Case 4, a 51-year-old man about 6 months into Long COVID with fatigue, daily headaches, brain fog, mental exhaustion, PEM, racing heart, palpitations, tinnitus and visual/sensory disturbances, took a 15-day extended Paxlovid course in March 2023 alongside…
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Impact of extended-course Paxlovid in established Long COVID (Case 2)
Case 2, a 45-year-old woman about 11 months into Long COVID with orthostatic intolerance, tachycardia, short-term memory loss, word-finding trouble, fatigue, PEM and MCAS symptoms, took a 15-day extended course of Paxlovid (nirmatrelvir/ritonavir) in…
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Has anyone recovered from CFS or been able to radically improve? (riotlady)
Treatment was non-pharmaceutical: an initial period of extended rest, followed by graded exercise therapy done very gently under a physiotherapist's guidance, plus vitamin D tablets, with riotlady saying no single measure was a magic bullet. The post does…
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The Guanfacine Gambit: Treating Brain Fog in Long COVID
Trudy takes guanfacine together with NAC, on a modified schedule of half the prescribed guanfacine dose every other day and a full pill on the days between. She had already had fibromyalgia for over 25 years and had been dealing with long COVID for 1.5…
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Digestive enzymes profound positive effect on me
Started Thorne Bio-Gest digestive enzymes after suspecting poor nutrient absorption, later adding zinc carnosine, whey protein, iron with vitamin C, a multivitamin, vitamin D, iodine and NAC, with no doses specified. He says he can now feel his body "healing…
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Full remission after 7 years of ME/CFS - What worked for me
Followed the Golder Autoimmune Protocol for about three months (roughly 3 liters of water and 650g of raw cruciferous and leafy greens daily, plus chia or flax seed, iodine and B12, on about 1500 calories a day), then added low-dose Abilify at 0.75mg daily…
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Chronic Fatigue Gone - After 16 Years Jason Figures It Out
Jason developed ME/CFS after a viral illness in the early 2000s and was ill 16 to 20 years, bedbound for days after any exertion. He systematically tested many therapies and tracked the results in a journal. He credits hydrogen peroxide IVs, nebulised…
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Jason's Eclectic Mix of Treatments Returns Him to Near Normal Health
Jason Boyce fell ill in the early 2000s with what he believes was a flu or EBV infection and spent sixteen years bedbound for days after exertion and unable to play with his kids. He assembled an eclectic mix of treatments, crediting nebulised hydrogen…
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A Rapamycin Resurgence: An MD Moves the Needle on his ME/CFS
Liver derivative complex (Nexavir) was one of more than a dozen treatments he listed trying, alongside antidepressants, antivirals, erythromycin, doxycycline, NAC and others, with no dose or duration specified for it individually. He had been very severely…
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Actual Improvement in PEM with Probiotics - My N=1 Experience
katabasis, previously scoring her disability at 10/100, says roughly six weeks on a specific dual-strain probiotic moved her to about 20/100, enough to do minor chores and read for 30 minutes without triggering PEM, and that she recovered from a dental…
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Bedridden for 1.5 years and still getting worse - IVIG only hope
Howard, exclusively bed-bound since 2015 with post-exertional malaise since 2009, said eight hours a day of outdoor light since the previous November, aimed at raising vitamin D, brought a recent sudden though gradual improvement, alongside tart cherry…
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A treatment that helps me tremendously
Ill since 2012, this poster built daily direct sun exposure from five minutes to several hours a day over a few years, alongside high-dose vitamin D3. In summer he can do housework, see friends, sail and garden, going from roughly thirty per cent to over…
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Dr. Thomas Levy -- How COVID Helped Me Regain Good Health
Took low-dose hydrocortisone at 20mg/day for over 20 years of ME/CFS, raising it to 30-35mg/day during a COVID infection, and added liposome-encapsulated vitamin C at 3-10g/day after reading a book pairing the two. Describes moving from roughly 4% function…
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Substantial improvement with strange dietary adjustments
Wonkmonk built a highly specific elimination/adjustment diet after years of downhill CFS. He says he moved from borderline "very severe" to the lower end of "severe" - pain almost gone, able to get up, cook, and walk a few miles - and calls it "very…
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List of ME/CFS Recovery and Improvement Stories (page 4-5 discussion)
unicorn7 used a De Meirleir-style multi-part protocol (SIBO antibiotics, LDN, B12, subcutaneous immunoglobulin, mesalazine, plus strict pacing) to move from moderate to mild ME/CFS, and reported repeating that same moderate-to-mild recovery a second time…
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List of ME/CFS Recovery and Improvement Stories (page 4 discussion)
marlunette improved from moderate to mild with mold avoidance, then from mild to remission after adding B12 injections and a B-complex/micronutrient regimen, with a 25-year-old exercise-induced asthma resolving as a bonus. Separately, in the…
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List of ME/CFS Recovery and Improvement Stories (page 4 discussion)
crowtor, who progressed from bed-bound to housebound, used three separate targeted interventions: a low-flow oxygen concentrator for brain fog, a bilevel ResMed AirCurve machine for sleep, and very-high-dose ubiquinol plus CoQ10 to blunt PEM. Each addressed…
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Sarah's Story
Sarah tried an extensive list of treatments without full success: many hyperbaric oxygen sessions (costing "thousands" and giving only temporary relief before triggering relapses), acupuncture, kinesiology, diet changes, breathing exercises with osteopaths,…
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Berlin Cures? Could BC 007 Help With Long COVID and ME/CFS? (skier)
This cross-country skier and former Ironman athlete received a single 75-minute IV infusion of the investigational drug BC 007, with three days of hospital monitoring afterward, months after a COVID infection had left him severely debilitated, disoriented…
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Mallory's Dangerous Spinal Treatments Eventually Work
Mallory had ME/CFS with several comorbid conditions and was mostly bedbound for around nine years. He pursued two experimental spine treatments: GHK-Cu peptide injections to stabilise his spine, and frequency specific microcurrent for a tethered cord, which…
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Inspiritol: A New Investigational Drug for ME/CFS and Long COVID
Inspiritol, an investigational supplement, was used for 2 to 5 months by two unnamed long-COVID patients (evaluated alongside a third ME/CFS patient), though the page gives no specific dose or protocol. Researchers reported "dramatic improvement" in these…
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Different recovery stories
Recovered from severe, 6-8-years-mostly-bedridden ME/CFS (out of a 44-year illness history) to "mostly mild" through diet changes, gut treatment, and what they describe only as "a ton of supplements," with no specific doses given. The improvement is…
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My fatigue is gone. My poisoned feeling, gone. PEM, what PEM?
seamyb reports that a teaspoon of ordinary cumin eliminated his fatigue and "poisoned feeling" and blocked PEM, describing himself as "either in remission or super mild," and explicitly states he has no commercial stake in cumin. He notes the effect wears…
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Some Patients Are Reporting Recovery from Long COVID (Sherri)
Sherri Klipowicz used a plant-heavy, low-gluten, low-dairy diet, restorative yoga, magnesium and glutathione supplements, and ozone therapy, and worked with an insomnia specialist to fix her sleep. She had been sick with Long COVID since March 2020, and…
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Recovery stories: parasites cleanse
In 2006, took Paragone (an herbal antiparasitic supplement) for a couple of months alongside a very-low-carb diet, and reports it "cut the brain fog I'd grown up with by about 70%." Explicit that this did not touch the underlying ME/CFS, which they attribute…
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Improvements Reported by fT3g0/Elizabeth-style Case (unnamed woman)
Relayed secondhand by forum member fT3g0 from a YouTube video, this unnamed woman's recovery was credited to ubiquinol/CoQ10 supplementation, ozone therapy, and removal of infected wisdom teeth. The source video was not fetched directly, so duration of…
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How I Found My Long Lost Energy
Relayed by forum member godlovesatrier, this ProHealth-published patient credited 1200mg high-dose thiamine with major energy improvements, reduced PEM, better mental clarity and reduced inflammation. The original article could not be fetched directly (it…
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ATP working well for me
After COVID worsened his decades-old condition, Keshav began sublingual ATP and reports dramatic improvement within 3 days, and within 24 hours of his first injectable ATP dose felt his "mind was much sharper," mood and energy much better. Follow-up posts…
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List of ME/CFS Recovery and Improvement Stories (page 9 discussion)
Woof! moved from severe to moderate ME/CFS through strict avoidance of a long, specific list of dietary and environmental triggers rather than any single drug or supplement. No further detail on duration of illness or long-term durability beyond the…
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List of ME/CFS Recovery and Improvement Stories (page 7 discussion)
Relayed secondhand by forum member Cipher, Pyrrhus moved from moderately-severe to moderate ME/CFS with objective functional gains after roughly 12 weeks on an NAC-based methylation/glutathione protocol. Being a secondhand account, exact dosing and full…
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List of ME/CFS Recovery and Improvement Stories (page 7-8 discussion)
godlovesatrier, previously almost housebound, credited the same HASD protocol (v3.2, with EGCG and a broader supplement stack) as BrightCandle for progressing to tolerating low levels of exercise, with resolution of a sore throat, neck pain,…
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List of ME/CFS Recovery and Improvement Stories (page 7-9 discussion)
BrightCandle went from a self-rated 5% to 60% function (roughly severe to mild) within 25 days of starting "Joshua's HASD protocol v3.2," and in a later update reported reaching 80-85% on the Hummingbird scale, able to do 1.5 hours of resistance training and…
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CBT for CFS: Luke Shares His Experience and Recovery
Luke combined self-directed CBT (working through his own negative thought patterns rather than with a therapist) with a methylation protocol developed by Rich Von Konynenburg (B vitamins plus folic acid), guidance from two books -- Kristina Downing-Orr's…
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Preliminary result of furthered improvement obviously leading to health
Following years of self-experimentation with a low-manganese diet plus microdosed vitamins and minerals, percyval577 describes a "rather wonderful summer" (May-September 2020) of being consistently active, calling it tentatively "a cure...though complex." By…
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Dermorphin Experience - Very Impressive Results
Took dermorphin (an opioid peptide from Amazonian frog skin secretions) at 170mcg subcutaneously every 3-4 days, and over the 9 days documented reports brain fog reduced "almost to pre-ME/CFS levels" along with better energy, unaided sleep, and clearer…
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The Awakening - Bedbound to Housebound (1 Day a week)
N-Acetyl-DL-Leucine (3-5g) plus calcium and copper let him "get up and move around as if I didn't have ME/CFS." The effect "only works for a few days a week" and comes with a strong appetite-suppressant side effect, so it is a brief, recurring improvement…
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Zinc is reducing my hypersensitivity to smells!
After roughly 10 years of chemical/mold hypersensitivity following a copper IUD placement, she took zinc at 50mg/day for two months alongside magnesium. For the first time since her mold exposure, her "instant sense of inflammation and headache" from…
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Cured my Echovirus 11 (pretty sure)
Took quercetin 500mg twice daily plus Metagenics Ultra Potent-C (500mg vitamin C, 35mg niacin) twice daily against very high echovirus 11 titres ("too high for a real number"), which produced an "awful" seven-day Herxheimer-type reaction. Wrote "I believe I…
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Potion that cured my chronic fatigue
After 19 years of severely disabling ME/CFS, formulated and drank a custom trace-mineral preparation (borax around 62mg plus microgram-level lithium, magnesium citrate, potassium, chromium and others, mixed into an 8-liter water tank sipped through the day)…
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The best thing I have done is to say: no way will I accept my daughter will suffer
Aftur, the then-14-year-old daughter in this account, had four weeks of intravenous antibiotics, a biopath-prescribed supplement regimen taken three to four times daily, a strict no-sugar, no-carbohydrate diet, and acupuncture, before doing a 3-day Lightning…
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List of ME/CFS Recovery and Improvement Stories
Maj-Britt is listed as cured of Chlamydia-pneumoniae-associated ME/CFS using IgY antibody supplementation, per the compiled list.
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ME/CFS Patient Goes into Remission After Taking Elixir of Youth (GDF11)
beatsmyth, bedbound for a decade with CFS/fibromyalgia, had already improved his gut and skin issues on an 8-month antibiotic protocol before adding BPC-157 and LL-37 peptides for three months, which he called "absolutely miraculous": remaining stomach…
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ME/CFS patient goes into remission after taking GDF11
Ill for fifteen years and bedbound as recently as 2016, this patient self-injected the GDF11 protein subcutaneously every other day alongside an NMN supplement. After about two months he reported feeling one hundred per cent cured, with dramatic resolution…
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Adrienne Dellwo Shares Her Fibromyalgia Remission Story
Adrienne Dellwo's regimen included low-dose naltrexone at 3mg (compounded, versus a standard 30mg dose per the article), plus rhodiola rosea, L-theanine, vitamin B and D, a custom herbal blend and acupuncture from her rheumatologist, meditation, yoga, a…
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Selenium working for me
Three days into selenium 150mg/day plus zinc, reports a "drastic improvement in my overall energy" and shrinking of longstanding swollen lymph nodes. Posted very early in the trial, mechanism still unclear to her (she was seeking thyroid testing to…
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The Temporary Recovery Stories (Yvonne)
Commenter Yvonne credited the probiotic VSL#3 along with anti-candida supplements with a substantial recovery, preceded by the same characteristic draining sensation other commenters described. Unlike most cases in this post she reports maintaining…
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The Temporary Recovery Stories (Carole)
Commenter Carole Rushing described a 1987 course of immune globulin and hydroxocobalamin B12 injections that improved her condition within three weeks. She reports never recovering to that same level again after her provider switched her to generic versions…
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The Temporary Recovery Stories (Judith)
Commenter Judith described multiple remissions and relapses since childhood, including a Rituximab course that caused complications. She now manages with AHCC, magnesium, Plaquenil and colchicine, and describes the illness as progressive, each relapse…
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The Temporary Recovery Stories (Judi)
Commenter Judi Warner described three separate temporary remissions from her ME/CFS: about a month after starting CPAP, about three months on low-dose naltrexone, and about a month on low-THC CBD oil. Each faded, and no further detail on severity is given.
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How Filmjölk Has Saved My Gut
After 35 years of ME/CFS with erratic bowel movements, he drank filmjölk daily and began having normal bowel movements every day for the first time since childhood, calling it the first consistent digestive improvement of his illness. In a follow-up post 11…
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Reverse therapy is helping me a lot
After several years of mild-to-moderate ME/CFS partly triggered by probiotic use, did two sessions of "Reverse Therapy" (a meditative practice of "talking to" the body) over six weeks. Reports "feeling the best I have since the beginning of my cfs journey,"…
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Mitochondrial and Energy Metabolism Dysfunction in ME/CFS - Myhill, Booth and McLaren-Howard Papers
MrTwoToedSloth, mostly housebound and limited to about one activity a week before a week-long flare-up, assembled a broad mitochondrial-support stack (CoQ10, acetyl-L-carnitine, nicotinamide riboside, creatine, D-ribose and more) and noticed improvement at…
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3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast
Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…
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solution for me
An intensive self-directed visualization technique -- imagining and mentally "attacking" barriers around a visualized immune system through continuous waking-hours practice -- is credited with taking him from severe immune dysfunction to being "fully…
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Hyperalgesia and pain resolved with INOSINE
A combination of inosine and caffeine with calcium glutarate, several minerals/B6 and later ribose produced "complete reversion" of longstanding neuropathic pain and pain-free mornings, plus better tolerance of B-vitamin injections. She is explicit it is not…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Full recovery - is it possible???
Credits undisclosed. femtosecond99 had ME/CFS and is described as fully recovered. Claims recovery with no drugs/supplements/CBT, withholds method.
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Very Noticeable Improvements in Brain Fog Using Dr Greg Russell-Jones's Transdermal B12 Oils
Index entry credits Johnmac, alongside Hip, with Dr Greg Russell-Jones's transdermal B12 oil for noticeable brain-fog improvement. The specific post from Johnmac was not captured in what was fetched (only Hip's own account was), so no further detail on his…
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Very noticeable improvements in brain fog using transdermal B12 oils
Hip applied a transdermal B12 oil (2.5mg per dose) every 2-3 days from November 2018, getting increased cognitive clarity within 2-3 hours that lasted about 3 days per dose, managing side effects with potassium and niacinamide. The benefit was purely…
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B12 injections are the bee's knees
shoponl, 15 years into exhaustion, PEM, brain fog and mild chemical sensitivity with normal B12 blood levels, had years of minimal benefit from sublingual B12 before switching to injections. After about six injections over two months she felt "a thousand…
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ME/CFS, Valcyte, and me: Third time lucky
Tracy has tried valganciclovir (Valcyte) three times for ME/CFS: a six-month course in 2014 (three weeks of induction at two 450mg pills twice daily, then two pills once daily) cut short by an allergic reaction after switching to a generic mid-course; a…
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Choline supplement is working for me
Choline bitartrate (20-25g/day, cut to 15g for nausea) initially brought better sleep and dreaming, less muscle tightness and rising energy over the first eight days. Three-plus months later, in the same thread, he retracted it outright: "Yeah choline didn't…
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First time in remission with ketogenic diet
Adopted a strict ketogenic diet after 5.5 years of moderate ME/CFS with escalating weekly crashes: a 48-hour initial fast, under 25g net carbs a day, roughly 75/20/5 fat/protein/carb macros, electrolyte and baking-soda supplementation, and blood monitoring…
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Beginning of improvement?
Six weeks into a self-directed antiviral/immune-booster stack (famciclovir, amantadine, cimetidine, astragalus, inosine, vitamin C) for CFS that began after an unresolved flu six years earlier, reports "much more energy, no brain fog, no fatigue, no chest…
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Treatments that have worked??
One to two weeks into a strict Fuhrman-style whole-food plant-based diet plus L-tyrosine, B12 and chlorella, reports sleeping well and exercising daily with "NO PEM, none whatsoever," resuming running and gaining muscle after years of losing it despite…
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Iodine - The Biggest Result I've Had So Far (Wishful)
Wishful reports "full remission" with "bouncy energy" the day after his first T2 dose, matching an earlier response he'd had to iodine, and says the effect has repeated reliably on a roughly 21-day cycle ever since. The remission is explicitly tied to…
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Iodine - The Biggest Result I've Had So Far
jtex escalated iodine dosing over 6+ months and says higher doses brought an energy increase "within hours" that let him work out, stay up late and take on more work after roughly a year of severe bed-bound illness. He reports the benefit tracked the dose…
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L-carnitine is working for me.
After years housebound and heat-intolerant, L-carnitine fumarate (1g rising to 1.5g/day) brought her to "definitely feeling better" and making plans again -- an ongoing, partial gain dependent on continued supplementation.
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Full Recovery of 27 Severe Mycotoxicosis Patients (O2 / FIR / Sups / Antifungal / AIET) + POLL
On cholestyramine and two months away from home while addressing a broad B-vitamin deficiency found on testing (which he attributes partly to cholestyramine binding nutrients), he reports improvement has been minimal, "without much improvement," and adjusted…
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Full Recovery of 27 Severe Mycotoxicosis Patients (O2 / FIR / Sups / Antifungal / AIET) + POLL
On a Shoemaker-based CIRS protocol built around cholestyramine (the only conventional medicine she tolerated), plus FIR sauna and liposomal glutathione, and after relocating to a house with an ERMI in the lowest 25th percentile, she reports now passing the…
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From brain fog to clarity in 30 minutes
A five-supplement mitochondrial stack -- ubiquinol, nicotinamide riboside, fursultiamine, dichloroacetate and PQQ -- reportedly clears his brain fog within about 30 minutes of dosing and gets him to "close to normal" function from a mild/SEID baseline. He is…
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Huge energy today with Grapefruit and Ubiquinol (Coenzyme Q10). We'll see about tomorrow.
Adding fresh grapefruit around ubiquinol 300mg twice daily was followed within days by being able to run errands to two stores in a morning, do housework, and raise treadmill tolerance from 2.8mph/10min to 3.0mph in 30-minute increments, after about a decade…
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ME/CFS Patient Makes Major Improvement and Goes Back to Work from C60 Supplement
This anonymous moderate ME/CFS patient (whose identity was withheld and whose story was relayed to the thread author by another forum member) started 1ml of C60 oil daily and within days to weeks felt sharper, brighter, slept better with vivid dreams,…
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B12 injections are the bee's knees (Moof)
Moof reports substantial improvement in both classic B12-deficiency symptoms and ME/CFS symptoms after identifying H. pylori-related gastric damage as the cause of B12 malabsorption, then self-injecting B12 sourced from a German pharmacy. He suggests cheap…
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B12 injections are the bee's knees (Chiron)
Chiron reports restless leg syndrome resolved within two weeks of starting B12 injections, with haemoglobin rising even though serum B12 was already normal. He switched from methylcobalamin, which caused adverse over-methylation effects, to hydroxocobalamin,…
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KDM - success of fixing the gut
Cycled through antibiotics and probiotics for gut dysbiosis; after about three months she went "from moderate to mild," with IBS "almost non-existent," but overexertion caused a relapse and she now needs ongoing rifaximin to control bloating ("when I start…
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Successful Pilot Study Treating PDH Deficiency in ME/CFS (B1 / CoQ10 / ALA / Algae + HOA)
Thiamine injections (with oral benfotiamine also tried), as part of a broader personal supplement stack, improved heavy limbs, muscle twitching, energy, post-meal exhaustion and brain fog. By her own account, "I'm not cured, I just can function better" -- a…
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Cumin (Cuminum cyminum): Possible PEM Blocker
Wishful found that eating about 2-2.5 teaspoons of ground cumin before strenuous exertion (2+ hours of chainsaw work) blocked PEM entirely for roughly 8 days of continued heavy activity, before the effect abruptly stopped working, as it had once before after…
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Starting on Valtrex --feeling die-off -- any positive stories?
Three months into Valtrex, raised from 3g to 4g daily but started "along with a number of other meds and supplements... all around the same time," went from being "bed and recliner ridden," using a wheelchair for all outings, to being able to "use a walker…
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Homeopathy - My Cure after 15 years
Rosco84 developed severe fatigue and brain fog after glandular fever at 17 and struggled for 15 years while still working full-time, trying supplements, antidepressants and acupuncture with little lasting benefit. A homeopath using remedies including…
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Super Immune Activator - GcMAF by Living Technologies
Used the Living Technologies "Super Immune Activator" kit (homemade raw milk/kefir-grain GcMAF ferment with colostrum, probiotics and vitamin D3/K2, 50ml twice daily) plus GcMAF Plus cream, starting October 2017 for gut/bowel symptoms. Within days he could…
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Gaps diet put me in direction to recovery
After repeated antibiotic courses over the years triggered his illness, he adopted a GAPS-like diet along with herbs for dysbiosis and probiotics, describing himself as "making good progress" in his recovery without claiming it complete.
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Gaps diet put me in direction to recovery
Adopted the GAPS diet, cutting gluten and dairy, alongside detox and methylation-support corrections. Her nervous system calmed by about 50% within five days of starting, and after five years on the approach "all the noxious symptoms have mostly gone,"…
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Gaps diet put me in direction to recovery
Diagnosed with ME/CFS and fibromyalgia and bedbound by April 2012, she began the GAPS introduction diet with VSL#3 probiotic, enemas, CoQ10, B12 and vitamin C. Within two weeks she started improving slowly, and over roughly two years on the diet she went…
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Gaps diet put me in direction to recovery
After ME/CFS following a Levaquin reaction, started the GAPS elimination diet plus VSL#3 probiotic while mostly bedbound and began "improving slowly but surely" within two weeks. Reached part-time work by two years in, and by five years post-diet was "much…
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Long-Term daily mHBOT and full recoveries w/ ongoing maintenance
junkcrap50 did around 80 hard-shell HBOT dives and says full remission did not appear until roughly dive #75, at which point he felt "better than when healthy" with big gains in confidence, thinking speed and energy. He reports that continuing dives past…
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M.E., My Mold, and I: A Story of ME/CFS and Toxic Mold
Over nearly seven years of ME/CFS beginning in late summer 2010, she tried pacing with a heart-rate monitor and many supplements, including herbal antivirals, for about a year, then added neurotransmitter support (dopamine, GABA), an ATP Fuel supplement,…
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I get chills for 2 weeks after a single attempt of killing gut microbes; permanent cure found: cod liver/oil or sashimi. See last post.
During a uric-acid flare she started supplementing with glutamine, after which chills she had been experiencing went away. No dose, duration or longer-term follow-up is given, so durability beyond that single report is unknown.
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3 kings to lift you
From sleeping 22 hours a day and considering suicide about six years into illness, this poster describes a large, years-long stack - pulsed steroids, noopept-based nootropics, experimental NSI-189, and roughly twenty daily supplements - restoring the ability…
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Is Mold Making You Sick?
The article gives no specific drugs, supplements, binders, or formal medical protocol that Julie used; the one intervention described is behavioral — she spent two weeks in Death Valley with none of her own belongings to test whether mold exposure was…
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CFS recovery and blood pressure?
A combined methylation / EDTA-chelation / potassium / Pall BH4 / Yasko DMG protocol brought him to roughly "80%+" function over the preceding two years, after 30 years of CFS that included a period bedridden and "near death" about a decade earlier; he can…
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What's worked for me
About a month into an mTORC1-activation supplement regimen, later adding YK-11, tramadol, leucine/glutamine and MYO-X, reports "less PEM, less fatigue, less pain and improved mood." Frames the gains as incremental and additive ("on top of my regimen") rather…
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Serrapeptase gives me more energy and no brain fog, why?
One capsule of 40,000 SPU serrapeptase before meals produced, within 4-5 hours and lasting 2-3 days, a jump in energy, sharper focus, no brain fog, reduced depression, better skin and relief from sinusitis and mold/chemical itching, according to this poster;…
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I get chills for 2 weeks after a single attempt of killing gut microbes; permanent cure found: cod liver/oil or sashimi. See last post.
After years of extreme gut-microbe intolerance triggering two-week chill/flu episodes from nattokinase, probiotics, eucalyptus oil and charcoal-based antimicrobials, she reported that ultra-dilute sauerkraut sap gave her "more good than bad effects" for the…
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My success story. Tons of biotin.
At his lowest, BiotinJunkie says he was "really planning on suicide" before finding that extremely frequent high-dose sublingual biotin, combined with a restrictive diet, gave him stable energy and mental clarity without carbohydrate dependency. He describes…
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GREAT Tips to improve (6 years experience)
Six years in, this poster describes a partial turnaround in energy timing and sleep - waking naturally without an alarm - after combining a supplement stack with a self-imposed "dopamine challenge" restricting stimulation after 6pm. He's explicit this is "my…
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Spironolactone Usage
Rrrr had taken spironolactone for years (originally for PCOS-related hair growth) and reported a good effect on ME/CFS years before its antiviral properties were documented, but was uncertain in a 2017 follow-up whether to resume it after stopping, given…
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Spironolactone Usage
After about a year of serious brain fog, pcmenten started spironolactone at 200mg/day, tapering to roughly 50mg, and reported the fog lifting within about 5 days along with better energy, sleep and fewer unexplained fevers, despite developing orthostatic…
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Incredible improvements with Helminthic Therapy
Used helminthic therapy with Necator americanus hookworms, starting at 5 organisms and increasing to 30 over more than nine months, alongside an autoimmune-protocol diet and Freddd's methylation supplement regimen. Reports going from bed/couch-bound to "an…
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Nutrients from food, paleo 'cheats'. Working for me, at last!!
Reports "good improvement over the past few years" after making large changes to diet, including a nutrient-rich eating pattern, vegetable juices and higher-quality supplements. States explicitly that she is not fully cured; specific supplements and doses…
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Iron Man: How One Young Person Recovered From POTS / ME/CFS
Jack Schlanger fell severely ill with POTS and ME/CFS-like symptoms at 13 after an infection, unable to attend school full-time with near-constant stomach pain and exercise intolerance. Diagnosed with iron deficiency contributing to his POTS, he was treated…
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Biotoxin Journey
Gregory Muske's account names few specifics, but he mentions taking binders and, more recently, VIP (vasoactive intestinal peptide), without giving doses; a commenter asks whether he completed the Shoemaker protocol, which he doesn't clearly confirm. He…
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Whats FINALLY worked for me.
After eight years severe enough that she could stand only minutes and needed help toileting, and with co-diagnoses of babesiosis, candidiasis, leaky gut and POTS, this poster spent about a year on IV/oral artemisinin and curcumin, 4.5mg LDN and 450mg/day…
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How I solved my b12 deficiency mystery
After about a year of heart palpitations, high blood pressure, vertigo, numb extremities and ER visits — with B12 and methyl-B12 tablets repeatedly triggering crashes — she found topical magnesium oil was the missing piece. She was out of bed the next day,…
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My start to healing and how Tendonitis/Tendonosis/Bursitis/Gout can overlap and mimic each other
A longtime ME/CFS poster reframed two years of debilitating bilateral shoulder pain as "atypical gout" tied to a suspected nightshade/solanine sensitivity. Over 6-12+ months on a large supplement stack plus avoiding nightshades, he regained most shoulder…
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I've mostly recovered, but I'm not quite 100% yet. Is the methylation cycle the key?
Eight years after a crash that followed years of exercise intolerance since age 15, he credits cold showers, pantethine and especially adrenal glandular extract — "the most important by far" — with giving him "more or less...a normal life": full-time study…
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How I recovered.
Combined a multi-part protocol -- twelve $325 Oxford "homeostasis" peptide shots starting September 2013, a rotary diversified (Theron Randolph) elimination diet, vitamin D, low-dose naltrexone, Remeron, the Gupta amygdala-retraining program, and removing…
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Mayo Protocol plus Venofer Iron Infusion Helps Teenager Recover
A teenager named Jack developed ME/CFS and POTS with an acute flu-like onset and was mostly homebound for about 20 months, as told by his father. Mayo Clinic's POTS rehabilitation protocol, Venofer iron infusions for low ferritin, midodrine, salt and water…
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The Master Cleanse
Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…
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Monet finds relief from mind/body practices plus homeopathy
Monet developed ME/CFS and fibromyalgia after a reaction to a vaccination, becoming wheelchair-bound within nine months and mostly bedbound for over a decade. She pursued homeopathy, dietary change, herbal supplements and extensive spiritual and…
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Nutritional Genomics and My Complete Recovery
P5P (vitamin B6) was taken occasionally and in low amounts, specifically when lower-back pain or depression flared, as one part of a broader nutritional-genomics-guided supplement stack that also included biotin 5,000mcg two to three times daily, magnesium…
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Possible CFS success story. Got much better after 4-5 years. Here's what has helped.
Never formally diagnosed but self-describing as a mild case, this poster went from an estimated 20% to 70-90% of normal functioning over 4-5 years on a large stack (St. John's Wort, 15g/day D-ribose, melatonin/Seriphos, acetyl-L-carnitine, fish oil) plus a…
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Did Probiotics Cure My Chronic Fatigue Syndrome?
Carol Wolf, who had an autoimmune disease diagnosed in childhood, had been bedridden at times and on eight prescription medications, with MRI evidence of brain lesions, before losing her job to illness. She credits four high-quality probiotics totalling…
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Rimfaximin seems to have helped my gut
After years of rolling gut pain, alternating bowel habits and frequent migraines, she took Rifaximin 400mg three times daily for 10 days, followed by five days of Azithromycin plus a probiotic and enzyme/fiber regimen. Following the Azithromycin course her…
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News about mould. What helped you, can it help me …?
Combining Gupta Retraining, the DNRS/Hooper protocol, and a Klinghardt-style regimen of intranasal myrrh followed by propolis-cream nasal blocking, plus isopropanol spraying and frequent tissue changes for ongoing mould exposure at home, she describes nine…
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A Story of Survival: How Diet Saved a Chronic Fatigue Syndrome (ME/CFS) Patient's Life
Naomi narrowed her diet to ten foods she did not react to and stayed on that restricted diet for five years, alongside deliberate stress reduction and faith practice, a later shift to organic food, and unspecified herbs and vitamins. Her pain and migraines…
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successfully treated SIBO with herbals
Tested positive for SIBO in April 2015 with a lactulose breath test so high the test was stopped early at a reading of 100. After a 6-week course of the herbal antimicrobials FC-Cidal and Dysbiocide (2 tablets of each, twice daily) plus rotating high-strain…
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Bravo GcMAF Probiotic Yogurt
Used sublingual GcMAF for the recommended 6-month period, reporting it "restored immunity and stopped further tooth loss" - but says it also "triggered Systemic Lupus Erythematosis" in him. He now warns others to limit any course to 4 months maximum and get…
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Bravo GcMAF Probiotic Yogurt
Took Bravo yoghurt for 2 weeks while based in Cambodia and reports it "reduced my CFS 25%ish" - a modest, quantified, partial improvement in that short window rather than a cure, with no longer-term follow-up given.
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Bravo GcMAF Probiotic Yogurt
Long-term user of Bravo yoghurt who says she "found it to be invaluable in multiple areas of my physiology and life." No specific dose, duration or symptom-by-symptom detail is given, but the framing is of sustained positive benefit from continued use rather…
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Bravo GcMAF Probiotic Yogurt
Used MAF314 (Bravo) yoghurt and, separately, Dr Enlander's injectable version, responding well to the MAF314 with improved physical functioning and gut symptoms. Describes it as "not a cure" but beneficial while used; the good effects "began to wear off…
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Bravo GcMAF Probiotic Yogurt
Took Bravo yoghurt and GcMAF cream twice daily (morning before food, night after dinner) for his ME/CFS. Reported increased energy, reduced brain fog, deeper/more vivid sleep and more regular digestion, but says plainly "it is by no means a cure" - benefits…
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Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (Alice)
Alice commented that after six years of fibromyalgia she felt much better than she had in years for about six weeks after starting a herbal antimicrobial protocol, a mushroom combination, megadose vitamin C, ashwagandha and L-phenylalanine. The improvement…
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Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (Sandrine)
Commenting on this inquiry post, Sandrine described about two years of severe fibromyalgia so bad she was once unable to brush her teeth and would scream from pain. She credits essential oils taken internally and topically, liposomal vitamin C, MSM, olive…
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My CFS Recovery
Jocelyn became severely ill with CFS more than 25 years before writing, at one point nearly bedridden for over a year with fatigue, muscle and joint aches, brain fog and near-fainting. Intravenous vitamin therapy and dietary change first let her work and…
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Maureen's gradual onset - and her gradual recovery
Maureen developed ME/CFS at 35, waking one day unable to get out of bed with profound exhaustion, followed by recurring exhaustion, rashes, painful joints, constant colds and insomnia. She used Dr Teitelbaum's integrated protocol of diet, vitamins, herbs and…
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Hitting Rock Bottom Leads To Turnaround for Dan
Dan developed ME/CFS after a chickenpox vaccination during an intensely stressful period, and over six and a half mostly homebound years suffered extreme fatigue, bouts of fever, cardiac issues and brain fog. He attributes his recovery to addressing…
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From the Bedside to the Outdoors: Green Girl Goes Green Again
An outdoorsy environmental scientist who blogs as Green Girl contracted Ross River virus in 2009 and relapsed severely in 2010, becoming mostly bedbound with fatigue and brain fog so severe she could only read small amounts. She used pacing, graded exercise,…
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how did you get out of "bedridden level" ??(even if you are still sick)
After roughly two years bedridden, this poster gradually stayed out of bed longer using a very restrictive diet, mineral/amino-acid supplementation and lifestyle changes, with hydrocortisone accelerating progress further; she notes in hindsight she hadn't…
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Diet, Supplements and Pacing Work for Professional Footballer
This page again profiles footballer Alastair Lynch, who developed ME/CFS following a car crash and a family bereavement. His recovery involved strict dietary changes, nutritional and antioxidant supplementation and a doctor-supervised paced exercise program.…
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Spiritual Experience Changes Matt's Life
Matt developed chronic fatigue syndrome after a viral illness in the mid-1990s and by 1998 was severely disabled with fatigue, dizziness, breathing difficulty, muscle pain, night sweats and brain fog that forced him to stop working. He states supplements and…
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Unexpected benefits of piracetam - helps with muscle aches, improves physical function
Taking piracetam on and off for about a year alongside exercise, this poster reports improved circulation and "clearer thinking," but attributes the benefit to the combination of piracetam plus exercise rather than the supplement alone - a modest, qualified…
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Stinging Her Way Back to Health
Nancy developed chronic fatigue syndrome in 1994 and experienced a relapse along the way. She credits bee venom therapy, which she says is not a cure but helped her get her life back, together with vitamin B12, hypnotherapy, guided meditation and…
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Adrienne Delwho's Pathway to Remission
Adrienne, a former full-time TV news producer, developed full-blown fibromyalgia in 2006 that knocked her down hard. Over about four years she pursued endometrial ablation, acupuncture, a range of targeted supplements and a CPAP machine for newly diagnosed…
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Multidimensional program is the ticket for Michelle
Tai chi and qigong practice, described as vital for immune function, balance and heart functioning, was one element of a long-term multidimensional program that also included an elimination diet (no dairy, most grains, fermented foods, alcohol, MSG, sugar or…
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Methylation: From feeling FANTASTIC back to Square One
Took a high-dose B12 protocol and reports it left her hypothyroid after "spending too much energy" on the high doses. Whatever initial benefit there was did not sustain, and she was left addressing a new thyroid problem instead — the treatment causing harm…
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Methylation: From feeling FANTASTIC back to Square One
After years of depression, brain fog and morning "zombie" fatigue since childhood, starting a methylated Thorne B Complex brought what he called "life changing results" within 3-4 days — lifted depression, cleared brain fog, more energy, better memory and…
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Professional Footballer Recovers Health
Alastair Lynch, a professional Australian footballer, had his career threatened by chronic fatigue syndrome for years. He made strict dietary changes, added nutritional and antioxidant supplementation and used a paced exercise program supervised by his…
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Going Under the Knife Does It
Diane had sinus surgery, along with herbs, nutritional supplements, hormone supplements, and "serious meditation"; IVIG was also tried but had no effect. None of these interventions are given specific names, doses, or durations. She fell ill in her mid-30s…
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Monique finds her rocket fuel
Monique, previously athletic, developed ME/CFS after flu and worsened dramatically after her father's death, by 2004 hardly able to walk and fearing a wheelchair. She pursued an orthomolecular approach, describing two supplements as like rocket fuel,…
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Thirteen years after occupational exposure - Doug is well
Doug developed ME/CFS after occupational exposure to a waterlogged building around 1996-2000, with constant flu-like illness, fever, joint pain and IBS, relapsing three or four times a year during a long partial-recovery phase. Over about thirteen years he…
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Significant improvement on MitoQ
MitoQ, taken as 5mg twice daily for 6 days, sharply cut this person's fatigue within hours of the first dose. Illness duration before starting is not stated. Fatigue levels dropped and post-exertional malaise decreased over the 6-day trial, with skin quality…
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Sleep Cycle Inversion (Awake At Night, Sleeping During Day): A Simple Technique Fixed This For Me
For years of severe middle-of-the-night insomnia, built an evening stack of 3mg sublingual Natrol melatonin, 500mg niacin with dinner (300mg more if woken at night), 100mg 5-HTP, 100mg L-theanine, magnesium glycinate, a calcium tablet, Seriphos for cortisol,…
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Something that's helping me.....
Previously bed-bound and on ten years of restrictive eating to avoid trigger foods, this poster reports off-license sodium cromoglycate let her tolerate yeast and sugar without her usual "crushing fatigue," and tolerate probiotics for the first time; her…
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Equilbrant feels like helping me
Twenty-two years into illness and functioning at an estimated 30-40% of former capacity, started Equilibrant (oxymatrine) up to two capsules daily. Over the first ten days to a month reported better and longer sleep, dressing without pain medication,…
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Combination of Supplements Allows Me to Work and Exercise - But causes extreme Gastritis
Built a roughly 60-item daily supplement stack (B12, NADH, high-dose antioxidants/glutathione, SAM-e, CoQ10, glandulars, ribose, phosphatidylserine and more) over three-plus years of trial and error for CFS, fibromyalgia and Hashimoto's. Says the combination…
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Methylation success stories
Reports "promising short-term remissions" from methylation treatment but says she is "struggling with finding the right combination" to make the benefit last. No sustained recovery is described — gains so far have been temporary and inconsistent.
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My Chronic Fatigue Recovery Story
Functioning at an estimated 20-30% with brain fog and activity-triggered crashes, this poster credits about a month of intensive journaling and emotional-processing work (targeting suppressed anger), guided by a self-help book, for a full recovery. Back…
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what has worked for you
After 30 years of illness and no luck with supplements or medications, she finds a dairy-free Primal diet keeps her feeling noticeably better, but the effect is strictly diet-contingent - "every time I go back on carbs I feel worse" - so it functions as…
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what has worked for you
Combined a gluten-free, dairy-free paleo diet with Nystatin, an S. boulardii probiotic, a Freddd-style methylation protocol, coffee enemas and gentle 30-minute cold-water swims. She reports these "have helped" enough that she is now "able to work part time…
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what has worked for you
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but…
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GcMAF spray and bravo yogurt
Used MAF314 (later marketed as Bravo) probiotic yoghurt for about a year, alongside concurrent Lyme treatment. At 6 months Nagalase fell from 3.9 to 2.9 and he felt better; by 12 months he felt "much better." He separately tried a GcMAF spray for 2 months…
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Boo's Healing with B12 Journal
About two years into B12-deficiency-related neurological symptoms, depression and heart palpitations severe enough to include hospitalization for a suspected cardiac event, she moved to monthly hydroxocobalamin injections alongside potassium, magnesium, iron…
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A Proven Treatment-Cure for Chronic Epstein Barr Virus
After 19 years of illness including multiple chronic infections, Abdulrahman self-designed an antibiotic course for mycoplasma followed by a supplement-heavy antiviral protocol for EBV, and reports being "95% cured for 2.5 years," functioning better than the…
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Mind-body Work and Alternative Treatments Kisses 15 Years of ME/CFS Good-Bye
The unnamed subject first fell ill after measles at age 12 and was severely disabled by 1979, losing his balance, unable to stand, with headaches and muscle pain, eventually working part-time before retiring at 50. Over 15 years he pursued self-hypnosis,…
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Feeling amazing after getting out of Mold/Mycotoxin home
After moving out of a mold/mycotoxin-contaminated home and combining methylation supplements, antifungals/antibiotics/antiparasitics, a bentonite clay binder and multiple hyperbaric oxygen sessions, she reports "amazing improvements" over the preceding month…
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Interferential current therapy via electroacupuncture: significant benefits / recovery from ME/CFS
After 23 years of illness and roughly 600 practitioner visits, reports "presently having great success" with spironolactone, saying it let her cut all her pain medications by at least half. No dose is given and the post does not describe overall functional…
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Wow, the ENERGY has arrived ! (finally)
After 20-30 years of illness and previously bedridden from MMS ("Miracle Mineral Solution") therapy, months of a methylcobalamin/methylfolate/TMG protocol combined with regular coconut oil brought a breakthrough he announced as "Wow, the energy has finally…
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Methylation recovery survey. Recovery stories here!!
Followed a "Yasko lite" methylation protocol blending Rich Van Konynenburg/Freddd/Ben Lynch approaches for about 1.5 years, including methylcobalamin, adenosylcobalamin, potassium, magnesium, molybdenum and methylfolate. She discontinued long-term antifungal…
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has anyone really benefited ie cured by exercise?
This poster manages about 20 minutes of light weight training without a fatigue crash, but only after first addressing methylation with methylfolate/methylB12 plus L-carnitine fumarate and adenosylB12. He frames exercise as helpful only once the underlying…
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has anyone really benefited ie cured by exercise?
After about ten years of inactivity, this poster describes over three years of gradual improvement - built on diet and supplementation before any exercise was attempted - giving him "glimpses of normal activity." He's clear his body "still does not react…
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Constant Vigilance: Julie Rehmeyer's Chronic Fatigue Syndrome Recovery Story
Julie Rehmeyer, a science journalist, saw her health decline from 1999, had full-blown ME/CFS by 2006 and by 2011 could barely get from bed to the bathroom. She credits extreme mold avoidance, including a bare-bones retreat to Death Valley and discarding…
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The Woman Who Healed Chronic Fatigue Syndrome Naturally
Edie used a wide-ranging natural protocol: topical arnica gel, papaya and devil's claw for inflammation, Cell Food (a liquid oxygen supplement), homeopathic thyroid, adrenal, hypothalamus and pituitary remedies, spirulina, herbal melatonin and 5-HTP for…
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Probiotic - Streptococcus thermophilus - restores my gut flora to normal - helps irritable bowel
For his ME/CFS-associated IBS, he found that a Streptococcus thermophilus probiotic "immediately" returns his stool to normal consistency and color, and the extra fatigue that accompanies his IBS flares disappears immediately too. He says only a minimal dose…
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Those who have benefited from B12 and methylation treatment
Injected 4mg of methylcobalamin subcutaneously every day for about five years, which she says took her "from bedbound to working 50-100%." It "stopped working" in 2011, and switching to Freddd's more complete methylation protocol did not help; by the time of…
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Those who have benefited from B12 and methylation treatment
Ran a Freddd-style active methylation stack - L-carnitine fumarate, methylcobalamin, methylfolate and adenosylcobalamin, doses escalated then scaled back to around 2 tablets a day each - in what he called the "very early days" of trying it. He got an initial…
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High-Dose Selenium Significantly Improves My Fatigue and Brain Fog
Hip is a long-standing, moderately ill ME/CFS forum member and prolific self-experimenter who has never found one cure but has documented dozens of individual n=1 supplement/technique trials, each targeting a specific symptom. Notably, high-dose selenium…
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From Despair to Life Again: HealClick Founder Joey's ME/CFS Story
Joey Tuan, founder of the patient site HealClick, had been so ill he sometimes needed a wheelchair and once could not walk ten minutes without two days of payback, with severe chemical sensitivities, after spending over $200,000 on treatments. He credits…
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CURED CFS/ME? PLEASE SHARE YOUR STORY HERE.
Unable to work or grocery-shop for about ten years, this poster describes roughly eight years of intensive rest combined with Armour thyroid, herbal hormone support, magnesium and low-dose Effexor, after which she functioned normally for over sixteen years -…
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CURED CFS/ME? PLEASE SHARE YOUR STORY HERE.
After roughly two years housebound with suicidal ideation and organ-shutdown-type symptoms, this poster took a large unspecified daily supplement stack alongside rest and lifestyle changes. He reports regaining the ability to leave the house and travel for…
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CURED CFS/ME? PLEASE SHARE YOUR STORY HERE.
Describes a full recovery from a bedridden crash achieved through rest alone that lasted "many years," followed by a later relapse back to bed-bound. On the second attempt she used unspecified supplements, alternative medicine and medications and reports…
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B12 does seem to be helping me :)
Struggling with significant brain fog, depression and word-finding problems, he started Jarrow methylcobalamin lozenges at 1000mcg/day, raising the dose to 2000mcg and then 5000mcg over about 3 months. By 5 months he reported less brain fog, improved writing…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After roughly a decade disabled to the point of managing only 8 minutes of rebounding exercise a day, she followed the Deadlock Quartet methylation protocol and reported "doing so well." A year later, in a separate thread, she described "massive…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
Twenty years into disabling CFS, fibromyalgia and congestive heart failure requiring daily diuretics for 85lbs of water retention, he began an injectable methylcobalamin/adenosylcobalamin/methylfolate/L-carnitine protocol (the "Deadlock Quartet," later…
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Has anyone on this site cured him or herself of CFS/ME? Did I?
Used a mix of doxycycline (which finally knocked out a persistent fever), roughly 20 doses of dexamethasone borrowed from a friend (temporary but "phenomenal" relief), Isocort, daily hydrocortisone gel, raw herbal teas, green powders, methylation support,…
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Finally feeling like my normal (CFS normal) self again after SMP attempt
After about 10 years of suboptimal methylation function, he actually stopped the Simplified Methylation Protocol and switched to low-dose niacin, B1/B2, P5P and minerals, later adding NA-Tyrosine. Within 3 months he was "finally feeling 'my normal' again,"…
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what seems likely to have improved my gut?
After years of gut pain following nearly every meal, he built up a broad supplement stack and reports his gut pain "starting to improve dramatically in the past week," on top of an earlier partial improvement within the first week of starting magnesium. The…
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Significant Improvement Story -- Focus on Thiamine Deficiency
Daily thiamine injections reportedly resolved nine years of ME/CFS that the patient attributed to "a vitamin deficiency caused by a metabolic error," leaving them "leading a normal life today." This account was reposted secondhand by another member quoting…
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Anyone have any success with GAPS?
After 12 years of CFS/Lyme, he combined GAPS with bone broth, high-dose probiotics, yogurt, kefir, coconut oil, glutamine and cod liver oil, reporting "significant improvement" after just one week. He cautions that one week is "too early to claim a…
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My Air Hunger has improved dramatically !!
Adopting the same betaine HCl/digestive enzyme/probiotic combination as the thread starter, he says it "basically cured my air hunger," calling it a "MIRACLE," though he still sometimes needs a few deep breaths. Presented as a large, sustained gain while…
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Anyone have any success with GAPS?
After 3.5 years of severe ME, she combined a GAPS/Paleo hybrid diet with aloe vera, glutamine, bone broth, juicing, liver-detox herbs and probiotics. She estimates the diet alone took her from "10% with pain to 40% with no pain," describing it as ongoing,…
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CBS success!
Seven years into ME/CFS with post-exertional fatigue and cognitive dysfunction, she used a CBS-mutation-targeted protocol of activated charcoal, magnesium, molybdenum, manganese and sulfur-food restriction. Cognition "started to clear" within hours of her…
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METHYLATION, B VITAMINS(ETC), SKIN RASH ITCH RESOLVED
A worsening skin rash and itch on his prior NADH/FADH2/methylcobalamin/Peak ATP protocol led him to stop it and switch to dry skin brushing, coffee retention enemas, TMG and potassium as a detox approach. The itch resolved, but he expected to need ongoing…
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IBS much improved after removing CHLORAMINE (not the same as chlorine) from tap drinking water
Following Hip's approach, he began treating his drinking water with vitamin C and boiling to remove chloramine and saw a significant reduction in IBS urgency and diarrhea almost immediately. Over two-plus weeks the improvement held, and he also reports…
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IBS much improved after removing CHLORAMINE (not the same as chlorine) from tap drinking water
After roughly 15 years of severe IBS-D, he began dechloraminating his tap water with vitamin C or sodium thiosulfate before drinking or cooking with it. Within a couple of days his IBS was noticeably improved, and over the following year he says he "rarely"…
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My Air Hunger has improved dramatically !!
Betaine HCl, digestive enzymes and a high-CFU probiotic taken around meals brought an estimated "60-70%" improvement in breathing capacity and a big rebound in appetite, easing air hunger she calls "devastating" and "distressing." Presented as an ongoing…
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Supplement that seems to be helping with energy
Took Paradise Herbs' ORAC-Energy Greens, 8 capsules a day, on and off for more than a year. He describes a noticeable lift in mental and physical energy, most obvious by how much worse he feels when he stops, though he is candid he does not know which…
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Our Experience with Antiretrovirals
Dr. Deckoff-Jones, suspecting XMRV involvement, started AZT plus raltegravir in March 2010, added tenofovir two months later, then dropped AZT (2011) and raltegravir (2011) to end on tenofovir alone before stopping all antiretrovirals by late 2012. She…
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Skyline's Journal: Progress & Experiments
About a week into restarting a full methylation protocol (high-dose methylfolate, dual-form B12, folinic acid and potassium alongside L-carnitine and B-vitamins), this poster's self-rated daily tracking shows energy reaching "10," headaches nearly resolved,…
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Amalgam Removal Story - Numerous Symptoms Relieved
Removed amalgam fillings and root canals and did a one-month IV-vitamin-C-plus-"Ultralife" detox program, after which she had 4 years of remission. She writes "sadly it didn't last," and is careful to say the dental work was "obviously a strain on my immune…
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Abilify and Energy
erist, who described mornings as swimming up "from the bottom of a dark lagoon," took low-dose Abilify (0.5-1mg) and got more energy, better appetite and easier waking, alongside some agitation and a wired/tired feeling similar to methylation-protocol…
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Pat Gurnick Learned How to Get Well from CFS
Pat Gurnick's main treatment was the Guaifenesin Protocol (developed by Dr. Paul St. Amand), followed for 1.2 years, alongside the antiviral Kutapressin and pacing and self-regulation techniques from Dr. William Collinge's CFS book, plus staying within her…
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Combination of 3 key treatments has me feeling significantly better
Combined the supplement Equilibrant, far-infrared sauna every other day for 30 minutes, and thymic protein three times daily, for just over two months. He reports a short-term energy and wellbeing bump plus better sleep within two hours of each sauna…
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Improved (5yr)-sometimes dont notice it -now new baseline
After 5 years of severe illness with autonomic dysfunction, cognitive problems, sleep apnea and spinal compressions needing three surgeries, he combined a broad stack - Adderall, Celexa, omeprazole, dopamine- and adrenal-support supplements, B12, an…
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progess report..feeling almost normal
About 1.5 years into severe illness (bedridden, lightheaded, shaking, forced to leave her home), she combined cholestyramine and Valtrex for 4 months, methylB12 injections tapering from daily to every other day over 4 months, plus ongoing sublingual…
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My Story - Dan Neuffer's ME/CFS Fibromyalgia POTS Recovery
Dan Neuffer's page gives only general categories of treatment rather than specific drugs or doses: he says he "healed my gut and changed my diet" under a doctor's guidance, used unnamed supplements to support metabolism, detoxification and oxidative stress,…
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Completely eliminated my severe anxiety symptoms with three supplements!
Hip, an ME/CFS patient, says this three-supplement combination "pretty much eliminated" his severe anxiety symptoms, with the relief sustained as an ongoing regimen rather than a one-off effect. This is a single-symptom (anxiety) improvement within his…
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Did KDM's treatment help you or did you get worse?
Recently starting a KDM regimen of GcMAF, "4ME," lactoferrin, antibiotics, probiotics and B12, she reports "have seen an improvement" early in the course, though her disease "fluctuates a bit" and she remains financially dependent on family to continue.
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NAC helped me sleep?
Started NAC 600mg (alongside B6 begun about a week earlier and eating onions) and got 6-7 hours of straight sleep for three nights running, with 8+ hour totals, less nighttime urination, and an "almost refreshing" quality to the sleep. He flags several…
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Cheap recovery plan
Combined the Klinghardt parasite protocol, auto-urine therapy, fresh garlic juice with tomato juice twice daily, a homemade MAF-style raw-dairy brew, a raw-sauerkraut/enzyme-rich diet, and (until a few months earlier) the Simplified Methylation Protocol. He…
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anyone find something that significantly improves cognition/memory?
Takes L-glutamine up to 2g a day, along with B12 and occasional low-dose stimulants. Says the L-glutamine "lifted some fog," with the effect reproducibly appearing when she starts it and reversing when she stops -- fairly convincing self-testing -- though…
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Cured Myself After 4 Years of CFS
Over about four years and more than $50,000 on doctors and supplements, this poster went from lying "almost paralyzed" to calling himself cured, crediting a stack that included DHEA (100mg/day, 200mg on exercise days), Florinef for low aldosterone,…
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CityChanger's Mold Avoidance Update
An 11-day open-ocean cruise with daily sea air brought him more energy, better sleep and the ability to work out vigorously every other day, which he describes as "significant and noticeable" but "not dramatic" — a modest, one-time observation rather than a…
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CityChanger's Mold Avoidance Update
Camping in a tent on a friend's remote mountain property over several weeks left her hiking, "full of energy" and mentally active, but a single outing into town (including a Whole Foods visit) "slammed" her within hours, triggering orthostatic intolerance,…
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Muscle weakness and endurance: Solved (i hope)
Weak enough to struggle lifting a pan while on an Active B12 protocol, he began 2000mg/day of L-carnitine (fumarate/tartrate) and regained strength within 4 days. He deliberately tested the effect by stopping the supplement: weakness returned within days,…
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Improvement on manganese
Manganese supplementation brought enhanced energy, better sleep and greater overall wellbeing, but also produced a dry, itchy rash across the back of both hands and an unusual acne breakout on the forehead. With side effects appearing alongside the benefit…
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Dr. success using higher doses of GCMAF
Became ill with CFS the day after a swine flu infection in April 2010, at times needing a wheelchair in public. Escalating GcMAF from 25ng to 80ng over about 18 months, alongside MAF 878, Heppapressin, daily B12/magnesium shots and taurine, she reports she…
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Magnesium threonate helping with mood, pain, and sleep!
Took roughly two-thirds of the recommended dose of magnesium L-threonate (Life Extension's Neuro-Mag) morning and early afternoon for almost three weeks. The first week brought "wonderful euphoria and a powerful mood boost," settling into a "subtle, even…
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Improving heaps!
Starting from a self-rated energy level of "probably a 3," he added TMG 500mg with L-methionine 500mg once daily, and B6 50mg with zinc 50mg morning and night (later adding B2), over about two months. Mood "increased 50%," energy rose from 3 to 6, sleep and…
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Improving steadily on Regimen, added hormones to the list
Runs a large daily regimen -- sodium ascorbate, glycine, lysine and proline at 2-5g per meal, 40,000 IU beta carotene per meal, Lugol's iodine, malic acid, DHEA, pregnenolone, weekly minerals/B vitamins, plus Tindamax and Benicar -- along with periodic…
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Latested Updated Regimen
Built an elaborate daily/weekly amino-acid, vitamin, mineral and chelation regimen (sodium ascorbate and amino acids with every meal, weekly LDN, sublingual B12 forms, EDTA chelation, periodic Tindamax courses and liver flushes). An earlier version of this…
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Anybody improve on gcmaf alone (without hepapressin, nexavir, antivirals)?
Took KMAF, a GcMAF variant, for 2-3 months and reports viral antibody titers dropping to near-equivocal and NK-cell function improving. He is explicitly hedged about causation, writing "success is hard to measure" and that he cannot separate KMAF's effect…
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I have had good results from acupuncture lately
After increasing community-clinic acupuncture to two-to-three times a week (alongside B12 and apple cider vinegar), says she has been "feeling markedly better" over a couple of months and attributes the change to the acupuncture. Explicitly hedges on…
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Think I've cured Fructose Malabsorption
After years of severe fructose malabsorption (unable to eat any fruit) and 28 years of yeast intolerance, she combined N-acetyl glucosamine, glucosamine HCl and high-dose niacinamide. After three weeks she could eat two apples or a full glass of fresh orange…
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Anyone improve from bed/housebound to high level of functionality?
After a year completely bedridden in what she calls a "strange comatose condition" - unable to chew or speak, washed by family - she took megadoses of magnesium, zinc and vitamin C while resting in bed doing nothing, and rose to about level 8 functioning.…
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Anyone improve from bed/housebound to high level of functionality?
After 16 years of illness, including nearly a year at his most severe level (level 0-3), he began his own "Active B12 Protocol" (sublingual methylcobalamin and methylfolate-based; exact doses not restated in this post). He describes reaching level 10 - fully…
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Some things that have helped me
A ten-month combination of Lugol's iodine, desiccated thyroid, an elimination diet, monthly liver flushes and an antiparasitic herbal mix brought "much more energy and much less pain" after 9.5 years of CFS/fibromyalgia, with symptoms shifting within a day…
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has anyone stuck religiously to Dr Myhill's protocol and hadsignificant improvements?
Close to a year into combining Dr Myhill's protocol with the Perrin technique, energy work, a methylation protocol and KPU treatment, this poster reports having "improved a lot" and raised her functional level. She stresses "no one person had all the…
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has anyone stuck religiously to Dr Myhill's protocol and hadsignificant improvements?
Following Dr Myhill's protocol for over a year, though not "religiously" due to sensitivities and being vegetarian, this poster reports magnesium clearing cramps and restless legs, vitamin D3 helping cognition, and overall "significant improvements" that…
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Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission
Took a month of Xifaxan for gut dysbiosis after testing positive for leaky gut, enterovirus and H2S overgrowth, and separately tried glutamine, NAG, aloe vera juice, digestive enzymes and zinc. She noticed no changes from the month of Xifaxan alone, and…
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Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission
Took a twice-daily leaky-gut supplement stack (S. boulardii, grape seed extract, zinc carnosine, vitamin E, NAG, triphala, glutamine, slippery elm bark, zinc) after years of severe IBS-D alongside his ME/CFS. Digestion was much improved within 3-4 days and…
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3 Things that Help the Most!!
Credits a low-carb, high-protein diet, hydroxocobalamin B12 injections every 3-4 days, and chiropractic care with eliminating her dizziness and constant thirst. The improvement is specific to those symptoms rather than an overall recovery, stated with clear,…
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Successful Treatment of CFS - Oriental Medicine
After 30 years of illness described as "sheer agony," started a traditional Chinese spleen tonic together with CoQ10 and alpha-lipoic acid. Says that within days she felt "much more energetic" and within one to two weeks felt "the way I'd always thought…
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Anyone improve from bed/housebound to high level of functionality?
With no medication, just strict pacing and aggressive bed rest whenever a crash threatened, she recovered very slowly over roughly 3-5 years from total bedridden severity (about 9 months unable to stand, with periods of unconsciousness) plus fibromyalgia,…
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I found something that makes me feel significantly more energetic and happier
After an earlier, differently-formulated cocoa extract failed him in 2009, he tried a purer cocoa extract capsule (no silica or magnesium stearate fillers), 3 capsules every morning, for about 9 weeks. He reports "significant improvement" in energy and mood…
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Successfull GcMAF Therapy
Reports 5 months of GcMAF (2 months on a Lyme protocol, then 3 months for XMRV) let him come off supplemental oxygen and Lyme medications, wake near noon instead of 4-6pm, cook meals, take short walks and speak/converse better. He identifies himself in the…
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Probiotics and some great improvement
Eating homegrown milk kefir, including the grains, turned his digestion around, he says, describing it as more effective and much less expensive than the various purchased probiotics he had tried, with the benefit persisting roughly two years after he started.
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Probiotics and some great improvement
After being limited to "plain meat and coconut oil for a while" due to food intolerances, he drank water kefir several times a day and reports it eased a lot of his food intolerances, calling it "even more effective than any purchased (pill) probiotics."
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Probiotics and some great improvement
Took a refrigerated multi-strain probiotic sachet and by the third day found his longstanding food intolerances "improved greatly," with adverse reactions to trigger foods reduced by about 90% and digestion, skin and mood all better. He notes an older…
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Feel much better on methylation and pyroluria treatment, but still weird symptoms
After years of chest pain and anxiety severe enough to require benzodiazepines, combining B12 injections, folate, P5P and a kryptopyrroluria (KPU) protocol of high-dose zinc and B6 resolved chest pain he'd had for over 2 years, sharply reduced anxiety, and…
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Gut healing - what seems to be helping me
After about 8 years of illness, 9 months of drinking raw-milk kefir resolved her multiple chemical sensitivity ("no longer feel like I'm choking" around perfume), completely cleared longstanding hand eczema, let her cut thyroid medication from 225mcg to…
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90% cured from bed bound with Histrelief / Histame / Daosin
After being diagnosed with a DAO deficiency, xlynx reports "90% recovery" from being bed/wheelchair-bound, with obvious effects from the first week and full effect by about 3 months, durable for 6 months at the time of posting. She frames it as ongoing…
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Freddd - have increased energy on your protocol!
Added L-carnitine fumarate to her existing simplified methylation protocol and reported "approximately 20% improvement in just a few days," saying she "haven't reacted this positively to a single supplement before." No follow-up post is visible to confirm…
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Freddd - have increased energy on your protocol!
After 13 years of severe exercise intolerance, including 4 years on the Simplified Methylation Protocol with negative effects, she switched to a carnitine-fumarate-centered regimen with methyl-B12 injections and Metafolin. She initially felt "more normal,…
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Diagnosis Unknown - Story of CFS Recovery
Book-excerpt account (from "Diagnosis Unknown") quoted on the forum describing Linda Smith's illness, which had left her unable to walk unassisted, in constant pain, with swollen feet/fingers and largely bedridden after 5+ years. Following an extended…
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EECP Treatment is Very Helpful/My Daughter Helped Alot
As reported by her father: after 1.5 years on LDN, she started EECP sessions in late May (about 5 months of treatment by this post) along with immune-building supplements from Dr. Enlander. Her father describes a "night and day" change -- energy up, blood…
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EECP Treatment is Very Helpful/My Daughter Helped Alot
Had weekly EECP sessions for 5 months alongside a methylation protocol, a Candida protocol and AHCC Gold. After about a month she noticed improved sleep and daytime energy, roughly 20-25% more daily activity, less brain fog and easier waking. She was…
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Anyone recovered after discovering residential toxic mold exposure?
Living with severe mold-induced asthma and food sensitivities more than five years after her exposure, she pursued mold avoidance by living in a tent or van and discarding contaminated belongings. She reports improvement only when she manages to stay in…
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What Treatments Have Cured People?
Doug, misdiagnosed for 7 of his 11 sick years before Chlamydia pneumoniae and EBV were identified, took inosine alone for a couple of short stretches with limited effect, then added DMAE about 1.5 years before posting; he described the fog lifting and…
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What treatments HAVE ACTUALLY helped?
Built a regimen around rotating sleep aids (Imovane/zopiclone), Tramal, 5-HTP, Neurontin, lipoic acid, NAC, a low-carb Atkins-style diet and modified weight training, but singles out Famvir as the biggest driver, saying that without it he "would be…
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What treatments HAVE ACTUALLY helped?
Eliminated grains and complex starches and added probiotic foods. From a worst point of being bedbound 20 hours a day, she says she now manages 12-hour days that include 1-2 hours of brisk walking, and that her pain resolved and anemia improved. Fatigue…
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What treatments HAVE ACTUALLY helped?
Combined a large stack of B12 injections, CoQ10, Fibroenergy, amino acids, SAMe, magnesium, prescription vitamin D, Synthroid, three years of low-dose Minocin, three months of antivirals, and a gluten-free diet, without singling out one component as key. Now…
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What treatments HAVE ACTUALLY helped?
Uses B12 injections twice a week, which she says are essential to her cognition -- "can't function brain wise" without them -- and had been taking undenatured whey protein that gave "much better energy" until GI problems forced her to stop it. The…
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What treatments HAVE ACTUALLY helped?
Took a mitochondrial-support stack of CoQ10, B3, magnesium and zinc after being, in her words, "totally bed ridden with super low ATP." Reports being "much better than I was," a substantial gain, but says she is "still mostly house bound" and was actively…
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Anyone recovered after discovering residential toxic mold exposure?
A naturopath-supervised candida-free diet plus mold avoidance and herbal supplements left her "almost symptom free" for about two years, "though not cured." Major life stresses then triggered a relapse and she "became horribly ill again," so the substantial…
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How to take d-ribose for energy - it really works!
Takes d-ribose one scoop three times a day alongside L-carnitine and other supplements. Titled her update "P.O.T.S. now SO MUCH BETTER!" and says she "can walk much better now" compared to previously being unable to walk more than a few steps, describing the…
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Stages of Recovery - personal experience
Eliminated all grains in favor of soaked seeds, vegetables and fruit, with only occasional B12, amino acids, coconut kefir and macrobiotic foods, deliberately keeping supplements minimal. A year into this she no longer needs bed rest most days, does "much…
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Stages of Recovery - personal experience
Followed Dr Myhill's standard protocol (B3, B12, magnesium, CoQ10, 15g/day L-glutamine, 10g/day BCAAs, 1g/day malic acid) starting Nov/Dec 2007, combined with an elimination diet of mainly white rice and chicken, FIR sauna detox, and Buteyko breathing. Went…
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My complete protocol - recovering well from bad 7 years+ CFS
Ran a broad two-year self-built protocol - high-dose B vitamins, vitamin D3, D-ribose, CoQ10, acetyl-L-carnitine, a sublingual/nasal B12-folate methylation stack, amino acids, Buteyko breathing, infrared sauna and transdermal magnesium - layered onto months…
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IVIG and Xiflaxan: A Dr. Peterson Patient Improves
After a long history of recurrent SIBO culminating in septic shock and 15-20 diarrheal episodes a day, he took Xifaxan 200mg four times daily for 15 days alongside Florastor probiotic. Relief was "dramatic" within about 10 days, leaving no abdominal pain and…
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? for those who feel "totally healthy" out of the blue
Made dietary changes, eliminated food intolerances, and used amino acid supplements, CoQ10 and salt loading (possibly along with Emergen-C or guarana). Experienced repeated episodes of feeling "completely healthy" lasting from hours up to 3 weeks, including…
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Supplements that have helped me
Takes vitamin D ("makes a real difference for me"), B-vitamins, whey protein for GI problems, omega-3 for joint/muscle pain, and topical Traumeel/Lymphagen for chronically swollen throat and ear glands, alongside juicing and a grains/sugar-reduced diet.…
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Recovery from CFS: 50 Personal Stories
This page is a description of the book "Recovery from CFS: 50 Personal Stories," edited by Alexandra Barton, for which Jacob Teitelbaum — Medical Director of the Fibromyalgia and Fatigue Centers and himself a former CFS patient as a medical student — wrote…
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Erik Johnson - Paradigm Change
Erik Johnson's treatment was a strict mold-avoidance protocol he refined in 1998, adapting bioweapons-decontamination techniques he had learned in the US Army to eliminate even trace cross-contamination from mold toxins; no drugs, supplements or devices are…
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List of Patients improving with HELP-Apheresis
Katty2k is compiled in this patient-outcomes thread as feeling "amazing" after just one round combining HELP-apheresis, HBOT and IV vitamins - a multi-treatment combination that makes apheresis's specific contribution hard to isolate.
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List of ME/CFS Recovery and Improvement Stories
Paul is listed reaching near-remission within 4 days of moving to Costa Rica from moderate-severe illness, but relapsing when back in Canada and returning to remission only once back in Costa Rica - an improvement explicitly tied to (and only lasting within)…
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List of ME/CFS Recovery and Improvement Stories
Doug, whose ME/CFS was linked to mold exposure, is listed as "more or less cured" on daily inosine and DMAE plus other supplements, per the compiled list.
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List of ME/CFS Recovery and Improvement Stories
beatsmyth is listed moving from severe to mild over about 3 months on a cycled LL-37/BPC-157 peptide protocol, with IBS also reported fixed, per the compiled list.
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List of ME/CFS Recovery and Improvement Stories
abdul1436, unable to speak or walk and sleeping 17-20 hours a day, is listed reaching remission after about 5 months on a combination of oxymatrine, inosine, dihydroquercetin and quercetin for enterovirus-associated ME/CFS - one of the most severe starting…
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List of ME/CFS Recovery and Improvement Stories
pcmenten is listed reporting brain fog clearing on spironolactone 25mg twice daily, with the case noting benefits persisted even after the drug was later discontinued.
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High-Dose Selenium Significantly Improves My Fatigue and Brain Fog
Index entry credits jmd82 with 400mcg daily selenomethionine, replicating Hip's own high-dose selenium result, for a significant reduction in fatigue and brain fog. No further detail on duration of illness, severity, or durability was available beyond the…
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[BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)
Uses a probiotic MAF (MAF 878, roughly $100/month) alongside dietary changes, describing the combination as putting her "into FULL remission... From bed bound to hiking up mountains." The remission is not permanent: she has "gone off and on everything that…
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Professor Marco Ruggiero on MAF 314 -- video
Took MAF 878 (an oral/probiotic GcMAF product) for about one month, then stopped because of the cost of the product and its shipping. Within 3 days of stopping she "plummeted and am still trying to get back to baseline weeks later" - a sharp relapse on…
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Gcmaf-reactions and side effects
Took 4 injections of GcMAF and had a marked exacerbation of pre-existing burning mouth syndrome, describing the sensation as "like chili on my mouth." Labs showed low 25-OH vitamin D but elevated 1,25 vitamin D; the prescribing clinic (KDM) responded by…
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Fasting - specifically practically with ME/CFS and methylation treatment
snowathlete, the thread's starter, did a 34-hour water fast after checking with their GP. They described it as "fine health wise" though "hard mentally," felt they could have continued longer, and were pleased simply to have completed it, without reporting…
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Fasting - specifically practically with ME/CFS and methylation treatment
Mr. Cat did a 9-day Master Cleanse of water, lemon, cayenne and molasses. Hunger disappeared by day two, but energy fluctuated and his thinking felt impaired through the fast, and his digestive symptoms improved only to return "immediately" once he went back…
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Fasting - specifically practically with ME/CFS and methylation treatment
baccarat tried a water-only fast and woke on the third day with a heart rate over 150 bpm and buzzing in their ears. They broke the fast with honey and bread and symptoms gradually resolved, but no illness benefit is reported.
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Water fasting - Can I take my meds?
pamojja had fasted 21 days without problems at age 20, before becoming ill, but a 7-day water fast attempted after developing ME/CFS in their 40s went badly. It left them prediabetic and triggered a severe magnesium deficiency, with painful muscle cramps…
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Fasting - specifically practically with ME/CFS and methylation treatment
parabola did a 3-day water-only fast as a hospital inpatient, with temperature, blood pressure and blood glucose monitored throughout. They "felt much better" while fasting, but experienced an emotional crash once the fast ended, and no lasting symptom…
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Fasting - specifically practically with ME/CFS and methylation treatment
jengonwin had already tried a 5-day water fast that made their CFS worse and a 14-day juice fast that did nothing before attempting an 11-day Buchinger-style fast on about 250 kcal/day of juice and broth. By days 13-14 they described "the strongest spiritual…
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Long COVID Recovery - 3 Personal Stories of Healing (Heydieh)
Heydieh's protocol combined three EBOO/F (extracorporeal blood oxygenation, ozonation and filtration) sessions with about five high-dose "10 Pass" ozone sessions, hyperbaric oxygen therapy, and IV infusions of high-potency vitamin C, NAD, methylene blue and…
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Long COVID Recovery - 3 Personal Stories of Healing (Lauri)
Lauri underwent a nine-day course of EBOO/F (extracorporeal blood oxygenation, ozonation and filtration) combined with a hyperbaric oxygen chamber, high-dose IV vitamin C, and high-potency vitamin IV therapy, then returned for a second nine-day course after…
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Long Covid, CFS and Fibromyalgia Diagnosis - How Brent Is Recovering
Credits brain retraining and pacing. Brent was ill 2.5y with severe long COVID and reports a substantial improvement. Cut from 20-plus medications and supplements down to 8.
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Cedar Brown's Story
She recovered from ME/CFS, alongside POTS, mold illness, IBS and anxiety, using a combination of Low Dose Naltrexone (LDN), the Edison Effect Program by Anj Garneri, Trauma Healing Accelerated and somatics work, pacing, IFS parts work and mold remediation,…
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Jeri's Amazing Discovery
Filed under the mold and environmental category, the page's title calls Jeri's discovery of mold avoidance amazing, but only a short excerpt could be retrieved. In it she argues that because mold avoidance has been a clue since the syndrome was first…
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Diet, Supplements and Pacing Work for Professional Footballer
Credits diet, supplements and pacing. An unnamed patient had ME/CFS and reports a substantial improvement. Possibly same footballer as another entry.
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A Package Deal Works for Clare
The title states that a combination of supplements, diet, yoga and meditation worked for Clare, but only a brief quotation could be retrieved: that to be well she has to put in as much as she wants to get out. Her illness duration, severity, specific regimen…
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Nutritional Genomics and My Complete Recovery
Credits supplements and nutrigenomics. An unnamed patient had ME/CFS and is described as fully recovered. Title itself claims complete recovery.
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The Lightning Process - His Last-Ditch Effort for M.E.
Simon's recovery centered on the Lightning Process, alongside earlier CBT and a general multivitamin, mineral and vitamin C regimen; beyond noting it teaches relaxation techniques and is more than self-hypnosis, the page gives no detail on the Lightning…
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There Is No Cure for Fibromyalgia? Interview on Recovery from MCS/CFS/FMS
Evelyn's recovery involved meditation, vitamins, saunas, daily walks, and weekly massage with exfoliation for "toxin" removal, plus diet changes, though the page does not give specific supplement names, doses, or sauna type. She had suffered for years with…
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Anyone on Freddd protocol? (Mary)
Mary's Freddd protocol regimen was methylfolate, started around 1000mcg daily in 2010 and increased to about 3000mcg daily, combined with methylcobalamin liquid sublingual at 5000-10,000mcg daily (which she had already been taking for years), plus potassium…
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Anyone on Freddd protocol? (Riddle)
Riddle followed the Freddd protocol starting around 2013-14: sublingual methylcobalamin, sublingual dibencozide (adenosylcobalamin), and methylfolate, all taken daily at first and later alternated every other day, plus HCl betaine for digestion, omega oil…
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Lisa Petrison - Paradigm Change
The page names no drugs, supplements, doses or devices for Lisa Petrison; the only treatment described is avoidance of mold toxins and other environmental exposures, a focus she adopted from 2008 onward. She had been ill with ME since before 1998, became…
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CFS and how i found my way out
Gavin's turning point was Blackmores PPMP (a cellular-dose potassium phosphate/magnesium phosphate supplement), taken alongside years of therapy, meditation, and doctor-prescribed antidepressants; he says he felt well again within 10 seconds of starting it.…
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Andrew Chia
Andrew Chia credits his recovery from ME/CFS to the immunomodulator interferon and the Chinese herb Sophora flavescens (contained in the supplement Equilibrant), though the page gives no specific doses or treatment duration. He developed CFS in 1997, in high…