Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 20 years
- Published
- Oct 2013
Summary
Twenty years into disabling CFS, fibromyalgia and congestive heart failure requiring daily diuretics for 85lbs of water retention, he began an injectable methylcobalamin/adenosylcobalamin/methylfolate/L-carnitine protocol (the "Deadlock Quartet," later called Freddd's protocol) in May 2003. A decade later he reported losing 100 pounds, coming off diuretics with edema resolved, hiking 1,000-2,000 vertical feet several miles a day, normalized blood pressure/oxygenation, and no relapse of core CFS/fibromyalgia symptoms in 10 years; an earlier 2011 post documents the initial turnaround from severe peripheral/central neuropathy, drop foot and $1,500/month medication bills, and a 2014 follow-up adds normalized vitals (BP 100/65, O2 sat 97% at 4,700ft) with "no sign of heart problems." The recovery required continued daily supplementation throughout (carnitine eventually titrated down from 1000mg to 500mg/day) and is not presented as a cure that could be stopped.
What they credit
Credits Hyperbaric & oxygen, Supplements, B12 injections and methylation, Carnitine, BCAA, amino acids, Selenium, iodine, minerals.
Symptoms mentioned
Symptoms: Neuropathy & tingling, Pain & fibromyalgia.
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