How it went
Did it last?
- 27 of 104 said the benefit wore off (including the 14 who relapsed).
- 20 of 104 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 11 | 11% |
| Near-full | 8 | 8% |
| Substantial | 40 | 38% |
| Partial | 29 | 28% |
| Relapsed | 14 | 13% |
| No benefit | 2 | 2% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 23 | 13% | |
| Severe | 35 | 23% | |
| Very severe | 16 | 31% |
30 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
How often it comes up
Posts that mention B12 injections and methylation, per 1,000 posts each year. Hover a point for the count.
Show as a table
| Year | Posts mentioning it | All posts | Per 1,000 |
|---|---|---|---|
| 2009 | 6 | 184 | 32.6 |
| 2010 | 11 | 682 | 16.1 |
| 2011 | 18 | 704 | 25.6 |
| 2012 | 19 | 1,491 | 12.7 |
| 2013 | 16 | 1,708 | 9.4 |
| 2014 | 32 | 2,352 | 13.6 |
| 2015 | 4 | 2,158 | 1.9 |
| 2016 | 4 | 1,431 | 2.8 |
| 2017 | 13 | 3,110 | 4.2 |
| 2018 | 21 | 2,201 | 9.5 |
| 2019 | 22 | 1,075 | 20.5 |
| 2020 | 11 | 2,581 | 4.3 |
| 2021 | 17 | 1,867 | 9.1 |
| 2022 | 4 | 1,166 | 3.4 |
| 2023 | 7 | 1,000 | 7.0 |
| 2024 | 17 | 1,237 | 13.7 |
| 2025 | 8 | 1,019 | 7.9 |
| 2026 (so far) | 5 | 840 | 6.0 |
Posts in the forum threads we archived, 26,806 in all, counted per year. A mention means the post names the treatment, not that the writer took it. These threads all contain a recovery story, so they show what those communities discussed, not everyone with ME/CFS or long COVID. All trends
Side effects and harms people mentioned
Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about B12 injections and methylation itself. Read the story before drawing conclusions.
- Made symptoms worse
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but improved gradually week-by-week using kinesiology, ivermectin, high-dose probiotics, rotating antibiotic combinations and anti-biofilm supplements, then treated presumed Lyme/Bartonella with antibiotics, a simplified methylation protocol, GcMaf/Bravo probiotic and 1st Line/lactoperoxidase-thiocyanate - which he says had "the greatest effect" - taking his Bell's score from 10 to 50.
All 104 accounts
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Recovery Protocol Cheat Sheet
Christy's posted recovery protocol lists an extensive regimen: pre-protocol, three months of Eliquis 5 mg daily and clopidogrel 75 mg daily; from February 2024 a "foundation" of nutritional antivirals including matcha green tea, coconut oil, unpasteurized…
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Relief! I still have CFS but am a MILLION times better, takes a lot of work but worth it
Built an extensive daily regimen around kratom (Green Malay strain), weekly B12 injections, magnesium, psyllium fiber, CPAP therapy, an annual course of Xifaxan and a year-long course of itraconazole, plus NAC, glycine, glutathione and BPC-157, for ME/CFS…
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Relief! I still have CFS but am a MILLION times better
julienl42's own title is his hedge: after 13 years and a long, actively-managed stack of prescription, antifungal, sleep and supplement treatments, he has gone from being in bed all day with 3-4 crashes a month to about one crash every one to two months,…
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Super Gut program finally helped my brain fog
Posting as "brad_," the patient tried Freddd's B12 protocol (2010-2012, including two B12 injections daily), mercury chelation (completed 2015), unsuccessful treatment for mycoplasma and HHV-6 infections, a red-light Vielight neuro helmet added in 2024, and…
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Nearly Recovered Me
Rebuilt her gut microbiome with General Biotics Equilibrium and later Seed probiotics, which she calls a turning point, on top of a two-decade stack that included 41 days of Miracle Mineral Solution in 2008 (a self-described game changer), Fredd's B12…
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A bit of a breakthrough
Posting as "bradmcblain," the patient used chelation therapy for mercury toxicity, Freddd's B12 Protocol with daily methylcobalamin injections, methylene blue (started 3 months before the post), and — added 2 weeks before posting — a Vielight Neuro Gamma…
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Efthymios's Artificial Intelligence-Aided ME/CFS Recovery Story
Efthymios became ill in 1999 after stopping a medication and had full-blown ME/CFS by 2004, functioning at about four out of ten. From late 2012 he logged his symptoms, diet and supplements for 434 days and used machine-learning analysis of his own data to…
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Adam's BCG Vaccination Chronic Fatigue Syndrome (ME/CFS) Recovery Story
Liver derivative complex (Nexavir), given as 2ml per day by subcutaneous injection alongside hydroxocobalamin 10mg intramuscularly twice weekly, was used for about two years. He had been severely ill with ME/CFS for over two decades, at times unable to work…
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Michelle
Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…
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Has anyone recovered from CFS or been able to radically improve?
Posting as FortheBeautyoftheEarth on Mumsnet, this user describes B12 injections given every three months, a double dose of Desunin 800 (vitamin D), and folate supplementation, with vitamin C mentioned as something still to try; no further doses or a…
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Full remission after 7 years of ME/CFS - What worked for me
Followed the Golder Autoimmune Protocol for about three months (roughly 3 liters of water and 650g of raw cruciferous and leafy greens daily, plus chia or flax seed, iodine and B12, on about 1500 calories a day), then added low-dose Abilify at 0.75mg daily…
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List of ME/CFS Recovery and Improvement Stories (page 4-5 discussion)
unicorn7 used a De Meirleir-style multi-part protocol (SIBO antibiotics, LDN, B12, subcutaneous immunoglobulin, mesalazine, plus strict pacing) to move from moderate to mild ME/CFS, and reported repeating that same moderate-to-mild recovery a second time…
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List of ME/CFS Recovery and Improvement Stories (page 4 discussion)
marlunette improved from moderate to mild with mold avoidance, then from mild to remission after adding B12 injections and a B-complex/micronutrient regimen, with a 25-year-old exercise-induced asthma resolving as a bonus. Separately, in the…
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ATP working well for me
After COVID worsened his decades-old condition, Keshav began sublingual ATP and reports dramatic improvement within 3 days, and within 24 hours of his first injectable ATP dose felt his "mind was much sharper," mood and energy much better. Follow-up posts…
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List of ME/CFS Recovery and Improvement Stories (page 7 discussion)
Relayed secondhand by forum member Cipher, Pyrrhus moved from moderately-severe to moderate ME/CFS with objective functional gains after roughly 12 weeks on an NAC-based methylation/glutathione protocol. Being a secondhand account, exact dosing and full…
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CBT for CFS: Luke Shares His Experience and Recovery
Luke combined self-directed CBT (working through his own negative thought patterns rather than with a therapist) with a methylation protocol developed by Rich Von Konynenburg (B vitamins plus folic acid), guidance from two books -- Kristina Downing-Orr's…
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Preliminary result of furthered improvement obviously leading to health
Following years of self-experimentation with a low-manganese diet plus microdosed vitamins and minerals, percyval577 describes a "rather wonderful summer" (May-September 2020) of being consistently active, calling it tentatively "a cure...though complex." By…
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My whole world and understanding of things had been turned upside down, in the best way possible
Alex did a three-day home-visit Lightning Process course with practitioner Kathy Kent, based on Phil Parker's method, after roughly three years of ME/CFS that left him room-bound for about a year, able to reach the bathroom only once a day at his worst, and…
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The Temporary Recovery Stories (Carole)
Commenter Carole Rushing described a 1987 course of immune globulin and hydroxocobalamin B12 injections that improved her condition within three weeks. She reports never recovering to that same level again after her provider switched her to generic versions…
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3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast
Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Very Noticeable Improvements in Brain Fog Using Dr Greg Russell-Jones's Transdermal B12 Oils
Index entry credits Johnmac, alongside Hip, with Dr Greg Russell-Jones's transdermal B12 oil for noticeable brain-fog improvement. The specific post from Johnmac was not captured in what was fetched (only Hip's own account was), so no further detail on his…
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Very noticeable improvements in brain fog using transdermal B12 oils
Hip applied a transdermal B12 oil (2.5mg per dose) every 2-3 days from November 2018, getting increased cognitive clarity within 2-3 hours that lasted about 3 days per dose, managing side effects with potassium and niacinamide. The benefit was purely…
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B12 injections are the bee's knees
shoponl, 15 years into exhaustion, PEM, brain fog and mild chemical sensitivity with normal B12 blood levels, had years of minimal benefit from sublingual B12 before switching to injections. After about six injections over two months she felt "a thousand…
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Nutritional Genomics and My Complete Recovery
Followed Dr. Amy Yasko's protocol, using genetic SNP testing plus stool and urine testing to guide methylation-focused supplementation, for ME/CFS meeting Canadian Consensus Criteria for severe disease. Had been severely ill for 5 years, at a point of…
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Treatments that have worked??
One to two weeks into a strict Fuhrman-style whole-food plant-based diet plus L-tyrosine, B12 and chlorella, reports sleeping well and exercising daily with "NO PEM, none whatsoever," resuming running and gaining muscle after years of losing it despite…
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B12 injections are the bee's knees (Moof)
Moof reports substantial improvement in both classic B12-deficiency symptoms and ME/CFS symptoms after identifying H. pylori-related gastric damage as the cause of B12 malabsorption, then self-injecting B12 sourced from a German pharmacy. He suggests cheap…
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B12 injections are the bee's knees (Chiron)
Chiron reports restless leg syndrome resolved within two weeks of starting B12 injections, with haemoglobin rising even though serum B12 was already normal. He switched from methylcobalamin, which caused adverse over-methylation effects, to hydroxocobalamin,…
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Anyone else here have MCS too?
Followed the Pall Protocol, a methylation-support supplement regimen, then added dysautonomia treatment with fludrocortisone and verapamil, for severe MCS with CFS. Beforehand had near-syncope events, needed an epipen and sudafed, and was essentially…
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Gaps diet put me in direction to recovery
Adopted the GAPS diet, cutting gluten and dairy, alongside detox and methylation-support corrections. Her nervous system calmed by about 50% within five days of starting, and after five years on the approach "all the noxious symptoms have mostly gone,"…
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Gaps diet put me in direction to recovery
Diagnosed with ME/CFS and fibromyalgia and bedbound by April 2012, she began the GAPS introduction diet with VSL#3 probiotic, enemas, CoQ10, B12 and vitamin C. Within two weeks she started improving slowly, and over roughly two years on the diet she went…
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Gaps diet put me in direction to recovery
After ME/CFS following a Levaquin reaction, started the GAPS elimination diet plus VSL#3 probiotic while mostly bedbound and began "improving slowly but surely" within two weeks. Reached part-time work by two years in, and by five years post-diet was "much…
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Success treating multiple infections with Chlorine Dioxide
Took MMS (chlorine dioxide) for 8 months for ME/CFS with mobility limitations. Illness duration before starting is not given. Went from having difficulty walking on many days to being able to grocery shop, visit the library and take 15-20 minute walks.…
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CFS recovery and blood pressure?
A combined methylation / EDTA-chelation / potassium / Pall BH4 / Yasko DMG protocol brought him to roughly "80%+" function over the preceding two years, after 30 years of CFS that included a period bedridden and "near death" about a decade earlier; he can…
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Incredible improvements with Helminthic Therapy
Used helminthic therapy with Necator americanus hookworms, starting at 5 organisms and increasing to 30 over more than nine months, alongside an autoimmune-protocol diet and Freddd's methylation supplement regimen. Reports going from bed/couch-bound to "an…
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My recovery after my one and only crash.
Combined a strict elimination diet (no gluten, dairy, processed food or fructose) with Lyrica at 225mg per day, low-dose naltrexone, ketotifen, antihistamines, B12 with methylfolate, rifaximin plus neomycin for SIBO, hyperbaric oxygen, and later tDCS.…
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How I solved my b12 deficiency mystery
After about a year of heart palpitations, high blood pressure, vertigo, numb extremities and ER visits — with B12 and methyl-B12 tablets repeatedly triggering crashes — she found topical magnesium oil was the missing piece. She was out of bed the next day,…
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I've mostly recovered, but I'm not quite 100% yet. Is the methylation cycle the key?
Eight years after a crash that followed years of exercise intolerance since age 15, he credits cold showers, pantethine and especially adrenal glandular extract — "the most important by far" — with giving him "more or less...a normal life": full-time study…
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Nutritional Genomics and My Complete Recovery
Supplemented B12 and folate to saturation levels for severe, ME-related insomnia that she calls chronic and debilitating since becoming ill. Illness duration is not detailed. Describes the result as bliss, being able to fall asleep easily, stay asleep, and…
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Mike Dessin's Amazing Recovery Story
Started powdered amino acids at about a quarter teaspoon per day, alongside pregnenolone, vitamin D, methyl B12 with methylfolate, and a high-protein diet of about 100 grams a day kept up for more than five years. Had been ill with ME/CFS for 10 years and…
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My CFS Recovery
Began with weekly IV infusions of high-dose vitamin C, magnesium chloride, B-complex and liquid glutathione, then moved to a large daily oral regimen including glutathione, acetyl-L-carnitine, MTHFR-targeted methylation supplements and thyroid medication.…
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how did you get out of "bedridden level" ??(even if you are still sick)
After roughly two years bedridden, this poster gradually stayed out of bed longer using a very restrictive diet, mineral/amino-acid supplementation and lifestyle changes, with hydrocortisone accelerating progress further; she notes in hindsight she hadn't…
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Stinging Her Way Back to Health
Used bee venom therapy along with vitamin B12 supplementation for ME/CFS. Specific dosing and illness duration are not given in the excerpt. The site's own framing is that Nancy relapsed at one point after an earlier improvement, and that bee venom therapy…
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Stinging Her Way Back to Health
Nancy developed chronic fatigue syndrome in 1994 and experienced a relapse along the way. She credits bee venom therapy, which she says is not a cure but helped her get her life back, together with vitamin B12, hypnotherapy, guided meditation and…
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Methylation: From feeling FANTASTIC back to Square One
Took a high-dose B12 protocol and reports it left her hypothyroid after "spending too much energy" on the high doses. Whatever initial benefit there was did not sustain, and she was left addressing a new thyroid problem instead — the treatment causing harm…
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Methylation: From feeling FANTASTIC back to Square One
After years of depression, brain fog and morning "zombie" fatigue since childhood, starting a methylated Thorne B Complex brought what he called "life changing results" within 3-4 days — lifted depression, cleared brain fog, more energy, better memory and…
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Monique finds her rocket fuel
Monique, previously athletic, developed ME/CFS after flu and worsened dramatically after her father's death, by 2004 hardly able to walk and fearing a wheelchair. She pursued an orthomolecular approach, describing two supplements as like rocket fuel,…
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Thirteen years after occupational exposure - Doug is well
Doug developed ME/CFS after occupational exposure to a waterlogged building around 1996-2000, with constant flu-like illness, fever, joint pain and IBS, relapsing three or four times a year during a long partial-recovery phase. Over about thirteen years he…
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Combination of Supplements Allows Me to Work and Exercise - But causes extreme Gastritis
Built a roughly 60-item daily supplement stack (B12, NADH, high-dose antioxidants/glutathione, SAM-e, CoQ10, glandulars, ribose, phosphatidylserine and more) over three-plus years of trial and error for CFS, fibromyalgia and Hashimoto's. Says the combination…
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Methylation success stories
Reports "promising short-term remissions" from methylation treatment but says she is "struggling with finding the right combination" to make the benefit last. No sustained recovery is described — gains so far have been temporary and inconsistent.
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what has worked for you
Combined a gluten-free, dairy-free paleo diet with Nystatin, an S. boulardii probiotic, a Freddd-style methylation protocol, coffee enemas and gentle 30-minute cold-water swims. She reports these "have helped" enough that she is now "able to work part time…
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what has worked for you
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but…
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Boo's Healing with B12 Journal
About two years into B12-deficiency-related neurological symptoms, depression and heart palpitations severe enough to include hospitalization for a suspected cardiac event, she moved to monthly hydroxocobalamin injections alongside potassium, magnesium, iron…
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Feeling amazing after getting out of Mold/Mycotoxin home
After moving out of a mold/mycotoxin-contaminated home and combining methylation supplements, antifungals/antibiotics/antiparasitics, a bentonite clay binder and multiple hyperbaric oxygen sessions, she reports "amazing improvements" over the preceding month…
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Wow, the ENERGY has arrived ! (finally)
After 20-30 years of illness and previously bedridden from MMS ("Miracle Mineral Solution") therapy, months of a methylcobalamin/methylfolate/TMG protocol combined with regular coconut oil brought a breakthrough he announced as "Wow, the energy has finally…
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Methylation recovery survey. Recovery stories here!!
Followed a "Yasko lite" methylation protocol blending Rich Van Konynenburg/Freddd/Ben Lynch approaches for about 1.5 years, including methylcobalamin, adenosylcobalamin, potassium, magnesium, molybdenum and methylfolate. She discontinued long-term antifungal…
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has anyone really benefited ie cured by exercise?
This poster manages about 20 minutes of light weight training without a fatigue crash, but only after first addressing methylation with methylfolate/methylB12 plus L-carnitine fumarate and adenosylB12. He frames exercise as helpful only once the underlying…
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Those who have benefited from B12 and methylation treatment
Injected 4mg of methylcobalamin subcutaneously every day for about five years, which she says took her "from bedbound to working 50-100%." It "stopped working" in 2011, and switching to Freddd's more complete methylation protocol did not help; by the time of…
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Those who have benefited from B12 and methylation treatment
Ran a Freddd-style active methylation stack - L-carnitine fumarate, methylcobalamin, methylfolate and adenosylcobalamin, doses escalated then scaled back to around 2 tablets a day each - in what he called the "very early days" of trying it. He got an initial…
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High-Dose Selenium Significantly Improves My Fatigue and Brain Fog
Hip is a long-standing, moderately ill ME/CFS forum member and prolific self-experimenter who has never found one cure but has documented dozens of individual n=1 supplement/technique trials, each targeting a specific symptom. Notably, high-dose selenium…
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B12 does seem to be helping me :)
Struggling with significant brain fog, depression and word-finding problems, he started Jarrow methylcobalamin lozenges at 1000mcg/day, raising the dose to 2000mcg and then 5000mcg over about 3 months. By 5 months he reported less brain fog, improved writing…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After roughly a decade disabled to the point of managing only 8 minutes of rebounding exercise a day, she followed the Deadlock Quartet methylation protocol and reported "doing so well." A year later, in a separate thread, she described "massive…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After 13+ years of CFS that left her unable to walk well, she added transdermal cyanocobalamin spray and methylcobalamin/methylfolate to her regimen and reported "the first time in over 13 years that my energy has really come back," with markedly improved…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
Twenty years into disabling CFS, fibromyalgia and congestive heart failure requiring daily diuretics for 85lbs of water retention, he began an injectable methylcobalamin/adenosylcobalamin/methylfolate/L-carnitine protocol (the "Deadlock Quartet," later…
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Has anyone on this site cured him or herself of CFS/ME? Did I?
Used a mix of doxycycline (which finally knocked out a persistent fever), roughly 20 doses of dexamethasone borrowed from a friend (temporary but "phenomenal" relief), Isocort, daily hydrocortisone gel, raw herbal teas, green powders, methylation support,…
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Healing results---good news
After more than a year of severe illness (internal tremors, burning/throbbing hands, nerve pain), she followed Freddd's protocol for 5 years total — sublingual methylcobalamin for about 3 years, then near-daily injections for 2 more. She reports "absolutely…
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Finally feeling like my normal (CFS normal) self again after SMP attempt
After about 10 years of suboptimal methylation function, he actually stopped the Simplified Methylation Protocol and switched to low-dose niacin, B1/B2, P5P and minerals, later adding NA-Tyrosine. Within 3 months he was "finally feeling 'my normal' again,"…
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CBS success!
Seven years into ME/CFS with post-exertional fatigue and cognitive dysfunction, she used a CBS-mutation-targeted protocol of activated charcoal, magnesium, molybdenum, manganese and sulfur-food restriction. Cognition "started to clear" within hours of her…
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METHYLATION, B VITAMINS(ETC), SKIN RASH ITCH RESOLVED
A worsening skin rash and itch on his prior NADH/FADH2/methylcobalamin/Peak ATP protocol led him to stop it and switch to dry skin brushing, coffee retention enemas, TMG and potassium as a detox approach. The itch resolved, but he expected to need ongoing…
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Skyline's Journal: Progress & Experiments
About a week into restarting a full methylation protocol (high-dose methylfolate, dual-form B12, folinic acid and potassium alongside L-carnitine and B-vitamins), this poster's self-rated daily tracking shows energy reaching "10," headaches nearly resolved,…
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Abilify and Energy
erist, who described mornings as swimming up "from the bottom of a dark lagoon," took low-dose Abilify (0.5-1mg) and got more energy, better appetite and easier waking, alongside some agitation and a wired/tired feeling similar to methylation-protocol…
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Improved (5yr)-sometimes dont notice it -now new baseline
After 5 years of severe illness with autonomic dysfunction, cognitive problems, sleep apnea and spinal compressions needing three surgeries, he combined a broad stack - Adderall, Celexa, omeprazole, dopamine- and adrenal-support supplements, B12, an…
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progess report..feeling almost normal
About 1.5 years into severe illness (bedridden, lightheaded, shaking, forced to leave her home), she combined cholestyramine and Valtrex for 4 months, methylB12 injections tapering from daily to every other day over 4 months, plus ongoing sublingual…
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Did KDM's treatment help you or did you get worse?
Recently starting a KDM regimen of GcMAF, "4ME," lactoferrin, antibiotics, probiotics and B12, she reports "have seen an improvement" early in the course, though her disease "fluctuates a bit" and she remains financially dependent on family to continue.
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Cheap recovery plan
Combined the Klinghardt parasite protocol, auto-urine therapy, fresh garlic juice with tomato juice twice daily, a homemade MAF-style raw-dairy brew, a raw-sauerkraut/enzyme-rich diet, and (until a few months earlier) the Simplified Methylation Protocol. He…
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anyone find something that significantly improves cognition/memory?
Takes L-glutamine up to 2g a day, along with B12 and occasional low-dose stimulants. Says the L-glutamine "lifted some fog," with the effect reproducibly appearing when she starts it and reversing when she stops -- fairly convincing self-testing -- though…
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Muscle weakness and endurance: Solved (i hope)
Weak enough to struggle lifting a pan while on an Active B12 protocol, he began 2000mg/day of L-carnitine (fumarate/tartrate) and regained strength within 4 days. He deliberately tested the effect by stopping the supplement: weakness returned within days,…
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Dr. success using higher doses of GCMAF
Became ill with CFS the day after a swine flu infection in April 2010, at times needing a wheelchair in public. Escalating GcMAF from 25ng to 80ng over about 18 months, alongside MAF 878, Heppapressin, daily B12/magnesium shots and taurine, she reports she…
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Latested Updated Regimen
Built an elaborate daily/weekly amino-acid, vitamin, mineral and chelation regimen (sodium ascorbate and amino acids with every meal, weekly LDN, sublingual B12 forms, EDTA chelation, periodic Tindamax courses and liver flushes). An earlier version of this…
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I have had good results from acupuncture lately
After increasing community-clinic acupuncture to two-to-three times a week (alongside B12 and apple cider vinegar), says she has been "feeling markedly better" over a couple of months and attributes the change to the acupuncture. Explicitly hedges on…
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Anyone improve from bed/housebound to high level of functionality?
After 16 years of illness, including nearly a year at his most severe level (level 0-3), he began his own "Active B12 Protocol" (sublingual methylcobalamin and methylfolate-based; exact doses not restated in this post). He describes reaching level 10 - fully…
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has anyone stuck religiously to Dr Myhill's protocol and hadsignificant improvements?
Close to a year into combining Dr Myhill's protocol with the Perrin technique, energy work, a methylation protocol and KPU treatment, this poster reports having "improved a lot" and raised her functional level. She stresses "no one person had all the…
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has anyone stuck religiously to Dr Myhill's protocol and hadsignificant improvements?
Following Dr Myhill's protocol for over a year, though not "religiously" due to sensitivities and being vegetarian, this poster reports magnesium clearing cramps and restless legs, vitamin D3 helping cognition, and overall "significant improvements" that…
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3 Things that Help the Most!!
Credits a low-carb, high-protein diet, hydroxocobalamin B12 injections every 3-4 days, and chiropractic care with eliminating her dizziness and constant thirst. The improvement is specific to those symptoms rather than an overall recovery, stated with clear,…
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Feel much better on methylation and pyroluria treatment, but still weird symptoms
After years of chest pain and anxiety severe enough to require benzodiazepines, combining B12 injections, folate, P5P and a kryptopyrroluria (KPU) protocol of high-dose zinc and B6 resolved chest pain he'd had for over 2 years, sharply reduced anxiety, and…
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THE CASE FOR RAPID HEALING WITH METHYLCOBALAMIN, ADENOSYCONBALAMIN AND METAFOLIN
Developing Parkinson's-like tremors alongside fibromyalgia/CFS and neurotransmitter dysfunction, she began methylcobalamin and adenosylcobalamin injections (later adding hydroxocobalamin) plus Metafolin, avoiding folic and folinic acid. She reports the…
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Gut healing - what seems to be helping me
After about 8 years of illness, 9 months of drinking raw-milk kefir resolved her multiple chemical sensitivity ("no longer feel like I'm choking" around perfume), completely cleared longstanding hand eczema, let her cut thyroid medication from 225mcg to…
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Freddd - have increased energy on your protocol!
Added L-carnitine fumarate to her existing simplified methylation protocol and reported "approximately 20% improvement in just a few days," saying she "haven't reacted this positively to a single supplement before." No follow-up post is visible to confirm…
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Freddd - have increased energy on your protocol!
After 13 years of severe exercise intolerance, including 4 years on the Simplified Methylation Protocol with negative effects, she switched to a carnitine-fumarate-centered regimen with methyl-B12 injections and Metafolin. She initially felt "more normal,…
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EECP Treatment is Very Helpful/My Daughter Helped Alot
Had weekly EECP sessions for 5 months alongside a methylation protocol, a Candida protocol and AHCC Gold. After about a month she noticed improved sleep and daytime energy, roughly 20-25% more daily activity, less brain fog and easier waking. She was…
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What treatments HAVE ACTUALLY helped?
Combined a large stack of B12 injections, CoQ10, Fibroenergy, amino acids, SAMe, magnesium, prescription vitamin D, Synthroid, three years of low-dose Minocin, three months of antivirals, and a gluten-free diet, without singling out one component as key. Now…
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What treatments HAVE ACTUALLY helped?
Uses B12 injections twice a week, which she says are essential to her cognition -- "can't function brain wise" without them -- and had been taking undenatured whey protein that gave "much better energy" until GI problems forced her to stop it. The…
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Stages of Recovery - personal experience
Eliminated all grains in favor of soaked seeds, vegetables and fruit, with only occasional B12, amino acids, coconut kefir and macrobiotic foods, deliberately keeping supplements minimal. A year into this she no longer needs bed rest most days, does "much…
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Stages of Recovery - personal experience
Followed Dr Myhill's standard protocol (B3, B12, magnesium, CoQ10, 15g/day L-glutamine, 10g/day BCAAs, 1g/day malic acid) starting Nov/Dec 2007, combined with an elimination diet of mainly white rice and chicken, FIR sauna detox, and Buteyko breathing. Went…
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My complete protocol - recovering well from bad 7 years+ CFS
Ran a broad two-year self-built protocol - high-dose B vitamins, vitamin D3, D-ribose, CoQ10, acetyl-L-carnitine, a sublingual/nasal B12-folate methylation stack, amino acids, Buteyko breathing, infrared sauna and transdermal magnesium - layered onto months…
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Supplements that have helped me
Takes vitamin D ("makes a real difference for me"), B-vitamins, whey protein for GI problems, omega-3 for joint/muscle pain, and topical Traumeel/Lymphagen for chronically swollen throat and ear glands, alongside juicing and a grains/sugar-reduced diet.…
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Resveratrol anyone?
Resveratrol, taken as Doctor's Best Red Wine Extract at 60mg per capsule, 1-2 capsules daily, left this ME/CFS patient feeling "slightly more alert," which they suspected reflected methylation support. Illness duration before starting is not stated. They…
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Fasting - specifically practically with ME/CFS and methylation treatment
snowathlete, the thread's starter, did a 34-hour water fast after checking with their GP. They described it as "fine health wise" though "hard mentally," felt they could have continued longer, and were pleased simply to have completed it, without reporting…
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Fasting - specifically practically with ME/CFS and methylation treatment
Mr. Cat did a 9-day Master Cleanse of water, lemon, cayenne and molasses. Hunger disappeared by day two, but energy fluctuated and his thinking felt impaired through the fast, and his digestive symptoms improved only to return "immediately" once he went back…
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Fasting - specifically practically with ME/CFS and methylation treatment
baccarat tried a water-only fast and woke on the third day with a heart rate over 150 bpm and buzzing in their ears. They broke the fast with honey and bread and symptoms gradually resolved, but no illness benefit is reported.
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Fasting - specifically practically with ME/CFS and methylation treatment
parabola did a 3-day water-only fast as a hospital inpatient, with temperature, blood pressure and blood glucose monitored throughout. They "felt much better" while fasting, but experienced an emotional crash once the fast ended, and no lasting symptom…
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Fasting - specifically practically with ME/CFS and methylation treatment
jengonwin had already tried a 5-day water fast that made their CFS worse and a 14-day juice fast that did nothing before attempting an 11-day Buchinger-style fast on about 250 kcal/day of juice and broth. By days 13-14 they described "the strongest spiritual…
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Anyone on Freddd protocol? (Mary)
Mary's Freddd protocol regimen was methylfolate, started around 1000mcg daily in 2010 and increased to about 3000mcg daily, combined with methylcobalamin liquid sublingual at 5000-10,000mcg daily (which she had already been taking for years), plus potassium…
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Anyone on Freddd protocol? (Riddle)
Riddle followed the Freddd protocol starting around 2013-14: sublingual methylcobalamin, sublingual dibencozide (adenosylcobalamin), and methylfolate, all taken daily at first and later alternated every other day, plus HCl betaine for digestion, omega oil…