How it went
Did it last?
- 5 of 38 said the benefit wore off (including the 2 who relapsed).
- 7 of 38 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 8 | 21% |
| Near-full | 2 | 5% |
| Substantial | 19 | 50% |
| Partial | 7 | 18% |
| Relapsed | 2 | 5% |
| No benefit | 0 | 0% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 4 | 50% | |
| Severe | 19 | 16% | |
| Very severe | 8 | 50% |
7 accounts don’t say how ill the person was.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- Hyperbaric oxygen (HBOT)16 accounts
31% 19%
- Ozone / EBOO / IV vitamin therapy10 accounts
20% 0%
- NAC and glutathione7 accounts
29% 29%
- Low-dose naltrexone5 accounts
60% 40%
- B12 injections and methylation4 accounts
25% 25%
- Meditation, yoga, breathwork4 accounts
25% 0%
- Lyme / co-infection protocols3 accounts
0% 0%
- PDE5 inhibitors (sildenafil, tadalafil)3 accounts
33% 0%
- Carnitine, BCAA, amino acids3 accounts
33% 67%
- CoQ10 / ubiquinol3 accounts
0% 33%
- Selenium, iodine, minerals3 accounts
33% 33%
- Herbal and Chinese medicine3 accounts
0% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
All 38 accounts
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Start here. You shouldn't have to do this alone.
Zeest Khan's post mentions she underwent a hyperbaric chamber treatment, a sleep study, and an unnamed surgical intervention around 2021, but gives no details on protocols, doses, or durations for any of them beyond photo captions. She pushed through…
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Caitlan's 1-2 punch works with her severe ME/CFS
Caitlan was a healthy personal trainer who became bedbound after a vaccination followed by a stomach bug, developing severe neurological and cardiovascular ME/CFS symptoms. She tried IV therapy, hyperbaric oxygen and stem cells without lasting success. She…
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This surgery fuses people's skulls to their spines to treat ME-overlapping condition
Jen Brea underwent craniocervical fusion performed by Dr. Paolo Bolognese, using two 2.5-centimeter titanium bars and six screws to fuse her top two vertebrae to her skull and lift her head by 4 millimeters, followed about two weeks later by tethered cord…
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My Epstein-Barr Virus Reactivation Story
Elizabeth Rider, a wellness author with reactivated EBV antibodies (over 40 vs. a normal <9), reported feeling better than she had in years after a blood-ozone (major autohemotherapy) treatment, with lauricidin, echinacea and lemon balm credited per the…
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I Consistently Feel Immensely Better Doing Daily mHBOT Sessions
A long-term multi-condition patient, now seventy-three, who bought his own mild hyperbaric chamber for about eight thousand dollars and has run near-daily one-to-two-hour sessions for about a year. He feels immensely better during and for hours after each…
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Hyperbaric Oxygen article comments (neighbour)
This commenter's neighbor used a personal hyperbaric oxygen therapy (HBOT) machine, bought for about $5,000, doing 45-minute sessions daily; the specific pressure and total number of sessions are not given on the page. She had been sick since early 2020 but…
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Hyperbaric Oxygen Therapy Turns Mathew's Long COVID / ME/CFS / POTS Around
Mathew developed long COVID with ME/CFS and POTS after a COVID infection in February 2020 and cycled through severe crashes for four years, at times 20 hours a day in bed, despite midodrine, low-dose naltrexone, Abilify and Paxlovid. In late 2023 he…
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Drugs Get Mathew Most of the Way and Hyperbaric Oxygen Does the Rest
Dr Mathew Robinson, a university professor, developed long COVID with ME/CFS and POTS after infection in February 2020 and spent 20-22 hours a day in bed. Midodrine, low-dose Abilify and low-dose naltrexone under Bateman Horne Center care brought him to…
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Melody's ME/CFS, Fibromyalgia and Long COVID Recovery Story
Melody was infected early in the pandemic, hospitalised with double pneumonia, then bedbound for six months and homebound on supplemental oxygen for two and a half years despite thirteen prescription drugs and multiple specialists. She credits a combination…
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the best treatments I've found
Shanti1 credits this vasodilator/oxygen combination with improving brain circulation and says episodes of feeling oxygen-starved, once frequent, are now rare, describing sustained improvement "over time as underlying conditions addressed." No specific doses…
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Healing from Long Covid with water fasting
About a month after a severe bout of COVID that left her hypoxic (93% oxygen saturation), with high blood pressure, fatty liver and high insulin, Michelle began a water fast intended to run 21 days, with some dry-fasting stretches, under a coach's guidance.…
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Chronic Fatigue Gone - After 16 Years Jason Figures It Out
Jason developed ME/CFS after a viral illness in the early 2000s and was ill 16 to 20 years, bedbound for days after any exertion. He systematically tested many therapies and tracked the results in a journal. He credits hydrogen peroxide IVs, nebulised…
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Jason's Eclectic Mix of Treatments Returns Him to Near Normal Health
Jason Boyce fell ill in the early 2000s with what he believes was a flu or EBV infection and spent sixteen years bedbound for days after exertion and unable to play with his kids. He assembled an eclectic mix of treatments, crediting nebulised hydrogen…
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Shannon Sims
She credits her recovery to mind-body practices including meditation, guided imagery, expressive writing, biofeedback, and nature exposure, with no drug, supplement, or named branded program cited on the page. She became ill in March 2020 with a two-week…
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List of ME/CFS Recovery and Improvement Stories (page 4 discussion)
crowtor, who progressed from bed-bound to housebound, used three separate targeted interventions: a low-flow oxygen concentrator for brain fog, a bilevel ResMed AirCurve machine for sleep, and very-high-dose ubiquinol plus CoQ10 to blunt PEM. Each addressed…
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Sarah's Story
Sarah tried an extensive list of treatments without full success: many hyperbaric oxygen sessions (costing "thousands" and giving only temporary relief before triggering relapses), acupuncture, kinesiology, diet changes, breathing exercises with osteopaths,…
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Recovery From Post Covid Lung Fibrosis
Credits time alone. An unnamed patient was ill 72d with severe long COVID and reports a substantial improvement. Hospitalised 72 days, weaned off oxygen, now walking.
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Some Patients Are Reporting Recovery from Long COVID (Sherri)
Sherri Klipowicz used a plant-heavy, low-gluten, low-dairy diet, restorative yoga, magnesium and glutathione supplements, and ozone therapy, and worked with an insomnia specialist to fix her sleep. She had been sick with Long COVID since March 2020, and…
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Improvements Reported by fT3g0/Elizabeth-style Case (unnamed woman)
Relayed secondhand by forum member fT3g0 from a YouTube video, this unnamed woman's recovery was credited to ubiquinol/CoQ10 supplementation, ozone therapy, and removal of infected wisdom teeth. The source video was not fetched directly, so duration of…
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Long-Term Daily mHBOT and Full Recoveries w/ Ongoing Maintenance
used_to_race combined daily hydroxychloroquine with mHBOT sessions 3-4 times a week for 45-90 minutes, plus fludrocortisone for POTS, and reported bad days becoming much less frequent, with capacity for 76-mile cycling weekends and full-time work plus…
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List of ME/CFS Recovery and Improvement Stories
Did daily sessions of mild hyperbaric oxygen therapy (mHBOT) in a home soft chamber, accumulating more than 200 hours of treatment. Their moderate, virus-triggered illness had lasted about 18 months before going into remission, a two-level gain, while doing…
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Good reaction to Cellfood - may be oxygenating the body, helping immune system, apparently boosted thyroid, now helping stroke patient
Tried Cellfood mineral/enzyme drops after 22 years of ME/CFS marked by recurrent weeks-long sinus infections, starting at 4-5 drops a day and working up over about six weeks to 8-10 drops three times daily. Reports a sinus infection clearing within three…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Long-Term daily mHBOT and full recoveries w/ ongoing maintenance
junkcrap50 did around 80 hard-shell HBOT dives and says full remission did not appear until roughly dive #75, at which point he felt "better than when healthy" with big gains in confidence, thinking speed and energy. He reports that continuing dives past…
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Long-Term daily mHBOT and full recoveries (Learner1)
Dealing with ongoing chronic infections, this poster used a soft-sided 1.3-atmosphere hyperbaric chamber with an oxygen mask at a local clinic for about forty dollars a session. It helped combat the infections, but stopping sessions made symptoms and…
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"Death Rider": A (Hopeful) Mold Illness Story
After moving into a moldy house around 2011, former endurance cyclist Chris Graber declined over several years into a wheelchair- and oxygen-dependent state with a central IV line, initially misdiagnosed as Lyme disease. Once Dr. Ritchie Shoemaker identified…
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what has worked for you
Starting from only managing to get dressed once a week, she used an unspecified herbal list, a strict pacing protocol and twice-weekly oxygen therapy at an MS therapy centre. She now works 2.5 days a week doing "easy office stuff," presented as a sustained…
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Feeling amazing after getting out of Mold/Mycotoxin home
After moving out of a mold/mycotoxin-contaminated home and combining methylation supplements, antifungals/antibiotics/antiparasitics, a bentonite clay binder and multiple hyperbaric oxygen sessions, she reports "amazing improvements" over the preceding month…
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The Woman Who Healed Chronic Fatigue Syndrome Naturally
Edie used a wide-ranging natural protocol: topical arnica gel, papaya and devil's claw for inflammation, Cell Food (a liquid oxygen supplement), homeopathic thyroid, adrenal, hypothalamus and pituitary remedies, spirulina, herbal melatonin and 5-HTP for…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
Twenty years into disabling CFS, fibromyalgia and congestive heart failure requiring daily diuretics for 85lbs of water retention, he began an injectable methylcobalamin/adenosylcobalamin/methylfolate/L-carnitine protocol (the "Deadlock Quartet," later…
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Claire Bowen's ME/CFS Recovery Story
Dr. Claire Bowen, completely bedbound and barely able to speak at her worst after a 2002 onset, credits an activated-oxygen (Airnergy) device as pivotal in a recovery that unfolded over roughly 14 years, restoring mental clarity and energy in a "two steps…
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Successfull GcMAF Therapy
Reports 5 months of GcMAF (2 months on a Lyme protocol, then 3 months for XMRV) let him come off supplemental oxygen and Lyme medications, wake near noon instead of 4-6pm, cook meals, take short walks and speak/converse better. He identifies himself in the…
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Freddd - have increased energy on your protocol!
After 13 years of severe exercise intolerance, including 4 years on the Simplified Methylation Protocol with negative effects, she switched to a carnitine-fumarate-centered regimen with methyl-B12 injections and Metafolin. She initially felt "more normal,…
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List of Patients improving with HELP-Apheresis
Katty2k is compiled in this patient-outcomes thread as feeling "amazing" after just one round combining HELP-apheresis, HBOT and IV vitamins - a multi-treatment combination that makes apheresis's specific contribution hard to isolate.
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Long COVID Recovery - 3 Personal Stories of Healing (Heydieh)
Heydieh's protocol combined three EBOO/F (extracorporeal blood oxygenation, ozonation and filtration) sessions with about five high-dose "10 Pass" ozone sessions, hyperbaric oxygen therapy, and IV infusions of high-potency vitamin C, NAD, methylene blue and…
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Long COVID Recovery - 3 Personal Stories of Healing (Cameron)
Cameron received a series of EBOO/F (extracorporeal blood oxygenation, ozonation and filtration) sessions along with hyperbaric oxygen therapy, and was on his third treatment when interviewed. He had been sick with extreme fatigue, brain fog and facial…
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Long COVID Recovery - 3 Personal Stories of Healing (Lauri)
Lauri underwent a nine-day course of EBOO/F (extracorporeal blood oxygenation, ozonation and filtration) combined with a hyperbaric oxygen chamber, high-dose IV vitamin C, and high-potency vitamin IV therapy, then returned for a second nine-day course after…
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My Story of Craniocervical Instability, ME/CFS, and Tethered Cord
Jeff Wood's treatment progressed from a Philadelphia cervical collar (worn over a month) to a halo brace with four skull screws (worn several months) to skull-to-C2 fusion surgery in early 2018, guided by a dynamic CT scan with flexion and extension views;…