Bedridden for 1.5 years and still getting worse - IVIG only hope
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 13 years
- Published
- Apr 2022
Summary
Howard, exclusively bed-bound since 2015 with post-exertional malaise since 2009, said eight hours a day of outdoor light since the previous November, aimed at raising vitamin D, brought a recent sudden though gradual improvement, alongside tart cherry powder for sleep and mindfulness. No quantified degree is given and he frames it as recent and still unfolding.
What they credit
Credits CBT & mindset, IVIG, Supplements, IVIG / subcutaneous Ig, Meditation, yoga, breathwork, Vitamin D and sun exposure.
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