Out of the 146 accounts with a clear outcome; 2 more don’t say how it went.
How it went
Did it last?
- 30 of 148 said the benefit wore off (including the 12 who relapsed).
- 16 of 148 needed to keep up a treatment to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 23 | 16% |
| Near-full | 11 | 8% |
| Substantial | 49 | 34% |
| Partial | 34 | 23% |
| Relapsed | 12 | 8% |
| No benefit | 17 | 12% |
| Outcome unclear | 2 | — |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Mild | 1 | 100% | |
| Moderate | 27 | 30% | |
| Severe | 46 | 30% | |
| Very severe | 19 | 32% |
55 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
What people with gut problems tried
- TreatmentHow it wentRecoveredFaded
- Probiotics and fermented foods33 accounts
18% 15%
- Doxycycline and other antibiotics13 accounts
38% 38%
- B12 injections and methylation13 accounts
23% 38%
- Selenium, iodine, minerals13 accounts
15% 31%
- Elimination and ketogenic diets11 accounts
9% 18%
- Rifaximin / Xifaxan10 accounts
0% 50%
- Meditation, yoga, breathwork9 accounts
89% 22%
- IVIG / subcutaneous Ig8 accounts
0% 62%
- Carnitine, BCAA, amino acids8 accounts
12% 0%
- NAC and glutathione8 accounts
0% 38%
- Herbal and Chinese medicine8 accounts
12% 25%
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)8 accounts
75% 12%
- GcMAF, Goleic and Bravo yoghurt6 accounts
0% 17%
- Low-dose naltrexone6 accounts
33% 50%
- Pacing and the energy envelope6 accounts
50% 17%
- Mold avoidance / CIRS protocol6 accounts
33% 0%
- Bifidobacterium infantis and targeted probiotic strains5 accounts
40% 0%
- Extended water fasting (3+ days)5 accounts
20% 0%
- Antifungals4 accounts
0% 25%
- Lyme / co-infection protocols4 accounts
25% 25%
- Ketotifen / cromolyn4 accounts
0% 25%
- Stem cells and peptides4 accounts
25% 50%
- Omega-3 and fish oil4 accounts
0% 25%
- Vitamin D and sun exposure4 accounts
25% 25%
- Valtrex / valacyclovir3 accounts
33% 0%
- BPC-157 and peptide protocols3 accounts
33% 33%
- CoQ10 / ubiquinol3 accounts
0% 67%
- Thyroid (T3, T4, NDT)3 accounts
0% 0%
- Nattokinase and fibrinolytics3 accounts
33% 33%
- Faecal transplant (FMT)3 accounts
67% 33%
- Lightning Process3 accounts
100% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
All 148 accounts
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Alan Gordon: Fatigue, Pain, Nausea, Anxiety: Here's How to Turn Them Off
Credits PRT and mind body. Alan had ME/CFS and is listed among the recovery accounts. Pain psychologist/PRT expert, not a personal story.
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Experimental peptides are being advertised for Long COVID
Anca Vrincianu learned about the peptides MOTS-c and KPV, said to help with energy production and gut health respectively, and ordered them online, though the article does not specify the exact peptides she settled on, doses, or duration of use. Over about a…
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I'm normal now. Here's my promised update for y'all
Started with IFN lambda combined with GS-441524 for underlying Enterovirus B infections, which brought about 60% improvement, then moved to a multi-drug antiviral regimen described as molnupiravir, GS-441524, Vermurafenib, ribavirin and pleconaril plus…
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Relief! I still have CFS but am a MILLION times better, takes a lot of work but worth it
Built an extensive daily regimen around kratom (Green Malay strain), weekly B12 injections, magnesium, psyllium fiber, CPAP therapy, an annual course of Xifaxan and a year-long course of itraconazole, plus NAC, glycine, glutathione and BPC-157, for ME/CFS…
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Incredible recovery after 30 years of ME/CFS!
Tried a mind-body recovery approach similar to another poster's Be Your Own Medicine program, closely self-tracking pulse, temperature, sleep, digestion, symptoms, mood and menstrual cycle. Illness history and severity are not detailed in the post. Initially…
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Dan Neuffer's Story
Dan developed his own ANS Rewire nervous-system-retraining program and used gut healing, dietary changes, supplements, meditation and pacing as part of a personalized recovery plan, detailed in his book CFS Unravelled. He was ill with ME/CFS, fibromyalgia…
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Super Gut program finally helped my brain fog
Posting as "brad_," the patient tried Freddd's B12 protocol (2010-2012, including two B12 injections daily), mercury chelation (completed 2015), unsuccessful treatment for mycoplasma and HHV-6 infections, a red-light Vielight neuro helmet added in 2024, and…
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Nearly Recovered Me
Rebuilt her gut microbiome with General Biotics Equilibrium and later Seed probiotics, which she calls a turning point, on top of a two-decade stack that included 41 days of Miracle Mineral Solution in 2008 (a self-described game changer), Fredd's B12…
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Buchinger fasting
Ten years into post-infectious ME/CFS so severe that cleaning their flat or studying was "unthinkable," ilivewithcfs ran themself through repeated unsupervised Buchinger-style fasts of about 200-250 kcal/day from juice and broth (later a 2-day prep, 7-day…
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A 16-year journey
The source names no specific treatment. Verena was ill 16y with ME/CFS and is listed among the recovery accounts. Comorbid IBS.
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improvement
Combined itraconazole delivered via a Nasoneb diffuser with famotidine (Pepcid), Zantac, kratom, Alka-Seltzer, Alvesco, albuterol and PYM Attention chews for ME/CFS with PEM, IBS and POTS-type episodes. Had been ill about 13 years. Reports seeing improvement…
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Pepcid and 1 month without an 'episode'
Started taking Pepcid (famotidine) for PEM, IBS and POTS-type episodes and initially went a full month without an episode for the first time in years. Had been ill about 13 years, with roughly 80% of episodes lasting two to three days and some up to two…
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Jennifer's Story
Jennifer followed an anti-inflammatory diet based on Andrew Weil and Patrick Holford's principles, alongside regular massage therapy, acupuncture, deep relaxation and meditation practices, and a custom-designed graded walk-training program, after early…
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Supplementation with L-Arginine + Vitamin C has beneficial effects
L-citrulline powder, 3g per dose with 90mg of vitamin C powder, taken twice daily, was credited by searcher1 with resolving her long COVID symptoms. She had been ill with fatigue, breathing problems, muscle aches and brain fog since September 2022. After…
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Cromolyn side effects
Cromolyn sodium capsules, 4 x 200mg (800mg/day total) mixed into water; duration of illness and severity are not stated. She reported food passing through her digestion largely unprocessed, worse digestion generally, disrupted sleep, reduced capacity, and…
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Candida disappearing with Calcium
Calcium citrate initially replicated Hoosierfans' success, stopping his routine sore throat and improving sleep and gut motility. After adding NAC for three months he developed foot pain and agitation, then histamine-type reactions to the calcium itself…
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Jen's ME/CFS, Anxiety and IBS Success Story
Credits brain retraining. Jen had ME/CFS and reports a substantial improvement. Comorbid anxiety and IBS noted in the title.
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The Nicotine Patch: Long COVID, ME/CFS and Fibromyalgia (Patient 3)
This third case-series patient accidentally used a doubled nicotine-patch dose, about 15 mg/24h, in a single application before stopping due to severe vomiting and diarrhea from the overdose. Despite the adverse reaction, her fatigue disappeared by day four.…
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Success from Probiotics
Took Lane Innovative's Flora3 probiotic (S. boulardii-based) after roughly 2.5 years of chronic diarrhea, reporting simply that "my digestive problem is over." The improvement has been maintained by continuing on a lower maintenance dose rather than stopping…
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[Case study] CFS/ME remission story severe patient [2008]
Treeman describes his daughter reaching roughly 85% function on weekly Cuvitru immunoglobulin, with IgG levels rising from 4.7 to 9.1 and persistent shingles/IBS improving by 3 months. He says gains faded after a subsequent infection, with recovery from that…
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[Case study] CFS/ME remission story severe patient [2008]
A severe ME/CFS patient documented in a 2008 case report used a year of tapering immunoglobulin dosing alongside gut-repair supplements and antibiotic treatment for mycoplasma, progressing from severe to mild over the 12 months of treatment. Immunoglobulin…
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Case study: CFS/ME remission story severe patient (Treeman)
Treeman started weekly 7g subcutaneous immunoglobulin and after about three months reported his persistent shingles had cleared, his IBS improved and his IgG had risen from 4.7 to 9.1. He then caught an infection around the three-month mark lasting over two…
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Several long-COVID patients report improvements from antihistamines
Takes cetirizine nightly (dose not specified) since 2021, along with probiotics, for long-COVID symptoms. They describe the antihistamine as the only thing that quiets what they call a constant cytokine-storm reaction, and say it has also calmed…
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The Strange Syndrome: MCAS, ME/CFS, Fibromyalgia and Long COVID (comment)
Xolair (omalizumab), given as a bi-weekly injection by her GI doctor for mast cell activation syndrome. The patient, described by her father in a comment, had intense MCAS for five years alongside ME/CFS, POTS and gastroparesis, and was very severely ill:…
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Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story
Amber had digestive and allergy problems since childhood that became severe MCAS, POTS, MCS and ME/CFS after a marathon at thirty and a bad flu-shot reaction at thirty-one, leaving her homebound and fainting daily despite seeing more than a hundred doctors.…
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The Remission Biome Project happened to me
Took three separate courses of amoxicillin over about eight weeks total (200mg for 21 days, then 875/125mg for 7 days, then 500mg for 21 days), for unrelated dental and sinus infections, taking daily probiotics throughout. Had struggled with IBS-C and gut…
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Long COVID/ME-CFS Patient Goes into Remission After 3 Weeks on the Antiviral Sofosbuvir
After 2 years of severe, housebound long COVID (POTS, MCAS, brain fog, gut issues, severe weight loss), this patient took standard-dose Harvoni (sofosbuvir/ledipasvir), an antiviral, for 3 weeks and reported the POTS, brain fog and MCAS symptoms resolving to…
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The Remission Biome Project: Two ME/CFS Patients Begin a Gut Reset Effort to Regain Their Health
Bifidobacteria: a multi-strain probiotic blend of Bifidobacterium breve, B. bifidum, B. infantis and B. longum together with Lactobacillus rhamnosus and Saccharomyces boulardii, given as one part of a wider protocol that also included mold avoidance, B…
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Impact of extended-course Paxlovid in established Long COVID (Case 2)
Case 2, a 45-year-old woman about 11 months into Long COVID with orthostatic intolerance, tachycardia, short-term memory loss, word-finding trouble, fatigue, PEM and MCAS symptoms, took a 15-day extended course of Paxlovid (nirmatrelvir/ritonavir) in…
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Digestive enzymes profound positive effect on me (Mary)
After roughly 20 years of gallbladder and digestive problems, she titrated betaine HCl with pepsin up to 3 capsules per meal, alongside Standard Process AF Betafood, a chiropractor-supervised month-long liver detox, and milk thistle. Her gallbladder problems…
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Digestive enzymes profound positive effect on me
Started Thorne Bio-Gest digestive enzymes after suspecting poor nutrient absorption, later adding zinc carnosine, whey protein, iron with vitamin C, a multivitamin, vitamin D, iodine and NAC, with no doses specified. He says he can now feel his body "healing…
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Carnivore Diet Reduces Bloating
GreenEdge, who had spent the prior 2 years of a 26-year illness increasingly bed-bound, felt "totally normal" after 6 months on a carnivore diet, with better eyesight, brain function, sleep and muscle function, and managed significant physical projects…
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Vedicinals-9 for Long Covid - my experiences
Vedicinals-9, taken as one bottle daily for six weeks, three boxes and 42 bottles in total. She had long COVID for more than two years before the trial. Early days brought no change, nausea appeared around days four to eight, energy and ability to go outside…
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List of ME/CFS Recovery and Improvement Stories (page 4-5 discussion)
unicorn7 used a De Meirleir-style multi-part protocol (SIBO antibiotics, LDN, B12, subcutaneous immunoglobulin, mesalazine, plus strict pacing) to move from moderate to mild ME/CFS, and reported repeating that same moderate-to-mild recovery a second time…
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Friendly gut bacteria speeds long Covid recovery
A Lactobacillus probiotic and inulin prebiotic capsule blend from a UK long COVID trial, dose and duration not stated in the account. How long she had been ill and her severity are also not given, beyond noting she already ate a diet rich in herbs and…
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Enhancing Butyrate and Gut Health in ME/CFS, Fibromyalgia, Long COVID and Allied Disorders
A butyrate supplement, along with inulin from Jerusalem artichoke, each tried as a single-capsule test rather than a sustained course. He had been ill with severe CFS for about twenty years before this attempt. After just one capsule of either substance he…
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Fermented Foods Health Louis's Gut and Health
Added fermented foods along with intermittent fasting after 14 years of poor health with fatigue and gut problems, though never formally diagnosed with ME/CFS. Had continued working despite the symptoms. Says his constipation went away immediately with…
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Fermented Foods Heal Louis's Gut and Health
Louis had 14 years of ill health with severe gut pain, occasional bleeding and fatigue, though he was never formally diagnosed with ME/CFS and kept working full-time. Multiple doctors could not resolve it. Drinking kefir and adopting intermittent fasting…
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Different recovery stories
Recovered from severe, 6-8-years-mostly-bedridden ME/CFS (out of a 44-year illness history) to "mostly mild" through diet changes, gut treatment, and what they describe only as "a ton of supplements," with no specific doses given. The improvement is…
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Extremely Severe ME/CFS - A Personal Account
Tube feeding: after roughly a decade of ME/CFS progressing from mild to extremely severe, Whitney Dafoe developed severe gastroparesis and was fed first via a PICC line with IV nutrition, then via a jejunostomy (J-tube) for total enteral nutrition, going six…
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List of ME/CFS Recovery and Improvement Stories (page 7-9 discussion)
BrightCandle went from a self-rated 5% to 60% function (roughly severe to mild) within 25 days of starting "Joshua's HASD protocol v3.2," and in a later update reported reaching 80-85% on the Hummingbird scale, able to do 1.5 hours of resistance training and…
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Since my recovery, I have completed medical school and worked as a doctor – full-time
Thomas Overvik, a medical student, attended a three-day Lightning Process course in London in summer 2011 after about nine months of illness that began roughly eight months into medical school in autumn 2010, bringing repeated infections, headaches,…
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ME/CFS Patient Goes into Remission After Taking Elixir of Youth (GDF11)
beatsmyth, bedbound for a decade with CFS/fibromyalgia, had already improved his gut and skin issues on an 8-month antibiotic protocol before adding BPC-157 and LL-37 peptides for three months, which he called "absolutely miraculous": remaining stomach…
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What changes did you notice during recovery from a diagnosed carnitine deficiency?
Daily carnitine injections titrated to 600mg/day, for a lab-confirmed severe carnitine deficiency, let her do moderate strength training and calisthenics without the post-exertional malaise that even 10 push-ups used to trigger (previously a 2-3 week…
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How Filmjölk Has Saved My Gut
After 35 years of ME/CFS with erratic bowel movements, he drank filmjölk daily and began having normal bowel movements every day for the first time since childhood, calling it the first consistent digestive improvement of his illness. In a follow-up post 11…
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Antiparasitic treatment is working
Took a sequence of antiparasitic drugs for a suspected parasitic infection: praziquantel plus albendazole for 14 days repeated after a two-week gap, then nitazoxanide for 14 days, then metronidazole (Flagyl) for 10 days, with an aluminosilicate toxin binder…
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Fructose Malabsorption
Eliminated high-fructose foods, including apples, suspecting fructose malabsorption. Illness duration and severity are not detailed. Reports still experiencing nasty diarrhea with gut pain and sometimes gut bleeding, oscillating with constipation, despite…
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Fructose Malabsorption
Minimized dietary fructose to trace amounts, such as spinach and kale, after concluding her liver could not process it properly. Illness duration and severity are not detailed. Describes fructose exposure causing nausea, brain fog she calls weight on my…
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GI Results: Need Help With Correct Supplements
Lactobacillus plantarum 299v was tried by Archie for SIBO-related gut symptoms alongside ME/CFS. It initially made her bloating worse, in what she described as her worst episode ever, before the reaction flipped and symptoms began improving. She attributed…
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Surprising amazing response to cinnarizine (vasodilator)
Cinnarizine at half a 25mg tablet twice daily - 12.5mg in total, well under the usual 75mg - produced a response within hours of the first dose, with tingling in the hands, feet and fingers and a sense of life coming back into the body. Pressure in the head…
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My message to all ME/CFS, Fibromyalgia and POTS sufferers is 'don't lose hope!'
Recovered using ANS REWIRE, a method he developed himself combining brain-retraining techniques, DEEP mindfulness meditation, nutrition and physiological and lifestyle changes to calm and retrain the autonomic nervous system, working with an integrative…
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It has been important for me to feel ownership to my own process. I've been my own coach all the way
Torill Sorkmo credits a self-designed recovery approach combining meditation, mindfulness, visualisation and a focus on positive ("endorphin") thinking, developed after seeing a Gestalt therapist and a psychologist and after Dr Paul Kavli in Oslo diagnosed…
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Severe post-Lyme ME/CFS patient achieves full remission after Taymount FMT
Kasia Vermaire, left severely symptomatic with digestive collapse after Lyme disease was declared "cured" by antibiotics, and at one point contemplating euthanasia from desperation, received an FMT at the Taymount Clinic in June 2018. She reported full…
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Emil learnt to control his focus by himself, and then things improved very quickly
Emil did an initial three-day Lightning Process course with a private tutorial, then repeated a second course three months later as an observer, both led by Live Landmark, alongside a parent-led strategy of keeping him engaged in enjoyable activities.…
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The key was realising that my illness and relapses had all happened during times when I didn't have any work to do, usually after a period of stress
Recovered without any named clinic or formal programme, through self-directed changes — leaving a stressful job, moving out of London, moving in with his girlfriend and building his own projects — after doctors diagnosed post-viral fatigue and later…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Oregano Oil Maybe Solved My Anal Itch
Lucky luke, with 6 years of nightly anal itching, took 3 oregano-oil softgels in a single day (targeting suspected SIBO) and got 4 straight itch-free days for the first time in 5 years, though he stopped due to headache and fatigue side effects and had also…
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How I put ME/CFS into remission....& even better
Fecal microbiota transplant using encapsulated stool from his daughter, delivered partway into the small intestine after clearing his own gut flora with antibiotics, combined with a strict prebiotic diet for weeks to months, was credited for his recovery. He…
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How I put ME/CFS into remission....& even better
Cleared gut dysbiosis with antibiotics, then underwent 9-12 encapsulated FMT infusions from his daughter over two months alongside a strict prebiotic diet. Initially estimated "around 65-70% recovered," then reports surpassing his pre-illness baseline --…
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Choline supplement is working for me
Choline bitartrate (20-25g/day, cut to 15g for nausea) initially brought better sleep and dreaming, less muscle tightness and rising energy over the first eight days. Three-plus months later, in the same thread, he retracted it outright: "Yeah choline didn't…
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Antibiotics got rid of malaise
Sulfamethoxazole/trimethoprim (Bactrim), taken twice daily over at least two separate courses roughly nine months apart. She had chronic ME/CFS with severe malaise that began two to three years earlier, on top of gut issues lasting around twenty years.…
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Plaquenil for ME/CFS: work for anybody?
Hydroxychloroquine, started at 200mg daily and increased to 200mg twice daily, was taken for about 18 months after being prescribed for an autoimmune skin condition (granuloma annulare). The person had severe ME at baseline and described the drug as…
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An IVIG ME/CFS / POTS Treatment Success Story
Received a course of IVIG infusions; exact doses aren't given, but after her first infusion caused aseptic meningitis, later infusions were given more slowly over two days each, with the course running from around mid-2016 to June 2017. She had been ill…
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Charcoal increased my energy immediately - what does this mean?
Taking 2.5g of activated charcoal daily for a few months to bind gut-derived lipopolysaccharide, he reports "very fast improvement" when he first started and continued slow improvement months later, describing the gain as sustained with ongoing use rather…
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Has anyone seen improvement on Clostridium Butyricum ?
Took Clostridium butyricum, 2-3 tablets a day for about a month, mainly for restless legs syndrome relief. Her RLS goes away while she keeps taking it but returns if she stops, alongside mild diarrhea and worse sleep as side effects, so the benefit is real…
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KDM - success of fixing the gut
After five years on an unspecified KDM protocol, with some admitted dietary non-adherence, she reports her own leaky gut "is still severe." She knows one other patient whose leaky gut normalized on the same protocol but describes no meaningful improvement in…
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KDM - success of fixing the gut
Cycled through antibiotics and probiotics for gut dysbiosis; after about three months she went "from moderate to mild," with IBS "almost non-existent," but overexertion caused a relapse and she now needs ongoing rifaximin to control bloating ("when I start…
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I was cured with GCMAF
Tried Natural Regenesis colostrum-based GcMAF sublingually (held under the tongue about 10 minutes). Experienced increased gut inflammation, similar to a reaction he'd had to GcMAF cream previously, and concluded plainly "GcMAF is not for me" - a…
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After 26 Years of Hell, the Pridgen Protocol Does it for X
The patient, identified only as "X", used the Pridgen Protocol under Dr. Pridgen — Famvir (an antiviral) combined with Celebrex (an anti-inflammatory) — though the page gives no specific doses or treatment duration. He had been ill for 26 years, dropping…
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Anyone else here have MCS too?
Takes Miyarisan, a Clostridium butyricum probiotic, on an ongoing basis for severe MCS (perfumes, cigarette smoke, kerosene, air fresheners) alongside ME/CFS, POTS, IBS, brain fog and PEM. Says it almost completely stopped her MCS reactions; she still avoids…
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Super Immune Activator - GcMAF by Living Technologies
Used the Living Technologies "Super Immune Activator" kit (homemade raw milk/kefir-grain GcMAF ferment with colostrum, probiotics and vitamin D3/K2, 50ml twice daily) plus GcMAF Plus cream, starting October 2017 for gut/bowel symptoms. Within days he could…
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M.E., My Mold, and I: A Story of ME/CFS and Toxic Mold
Over nearly seven years of ME/CFS beginning in late summer 2010, she tried pacing with a heart-rate monitor and many supplements, including herbal antivirals, for about a year, then added neurotransmitter support (dopamine, GABA), an ATP Fuel supplement,…
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I get chills for 2 weeks after a single attempt of killing gut microbes; permanent cure found: cod liver/oil or sashimi. See last post.
During a uric-acid flare she started supplementing with glutamine, after which chills she had been experiencing went away. No dose, duration or longer-term follow-up is given, so durability beyond that single report is unknown.
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3 kings to lift you
From sleeping 22 hours a day and considering suicide about six years into illness, this poster describes a large, years-long stack - pulsed steroids, noopept-based nootropics, experimental NSI-189, and roughly twenty daily supplements - restoring the ability…
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2 days happiness so far with gut
After peppermint oil failed to help, she tried chewable colostrum for two days and reports her stomach is "much better," with constipation problems seeming to have vanished so far. She also mentions an "oxalate dump" complicating the picture but says she…
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Need to delete this. [Deleted]
Treated a combination of CIRS/mold illness, Lyme, Babesia and antibiotic-resistant MARCONS sinus infection with doxycycline plus Diflucan, then a rotating four-times-daily binder regimen (Takesumi charcoal, diatomaceous earth, zeoBind, citrus pectin), a BEG…
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Rethinking Probiotics
Lactobacillus plantarum 299v is used intermittently by Eastman, on an as-needed basis, specifically for bloating. He describes the use as occasional rather than continuous, implying some symptomatic relief when he takes it. Dose, illness duration and…
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I get chills for 2 weeks after a single attempt of killing gut microbes; permanent cure found: cod liver/oil or sashimi. See last post.
After years of extreme gut-microbe intolerance triggering two-week chill/flu episodes from nattokinase, probiotics, eucalyptus oil and charcoal-based antimicrobials, she reported that ultra-dilute sauerkraut sap gave her "more good than bad effects" for the…
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My recovery after my one and only crash.
Combined a strict elimination diet (no gluten, dairy, processed food or fructose) with Lyrica at 225mg per day, low-dose naltrexone, ketotifen, antihistamines, B12 with methylfolate, rifaximin plus neomycin for SIBO, hyperbaric oxygen, and later tDCS.…
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Improvement after food poisoning
After a mild bout of food poisoning with diarrhea, he noticed from the second day that some ME/CFS symptoms had improved — less brain fog and longer sitting tolerance. The improvement lasted several days but the brain fog "returned as soon as my stool…
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Cromolyn Sodium Powder to make my own Gastrocrom
Cromolyn sodium (GastroCrom), taken at 200-400mg per dose multiple times daily on an ongoing long-term basis; duration of illness and severity are not stated. She called it one of her best medications, saying she has had only a good response and nothing bad…
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Renee Can't Exercise But Otherwise Has A Normal Life
Renee, too weak for moderate exercise and nauseated within months of a December 2002 onset, had her cognitive symptoms resolve within weeks of starting Valtrex, then added Valcyte after 9 months. By 2010 she had reached 8/10 energy and near-normal life,…
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The Flu That Never Ends Finally Does for Heather
After four years of cognitive trouble, digestive problems, body aches and severe fatigue that diet, yoga, acupuncture, chelation and blood irradiation had not touched, Heather was prescribed Valtrex by Dr. Lerner in 2010. By 2012 she reported being fully…
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Whats FINALLY worked for me.
After eight years severe enough that she could stand only minutes and needed help toileting, and with co-diagnoses of babesiosis, candidiasis, leaky gut and POTS, this poster spent about a year on IV/oral artemisinin and curcumin, 4.5mg LDN and 450mg/day…
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Liquid Protein Diet = Big Help With Energy + Digestion + Nausea
After many years of severe nausea and "profound debilitating fatigue" that made eating solid food difficult, switched to 3-4 blended protein shakes a day. Reports feeling "much better," an easier time absorbing nutrition, some energy returning, and less…
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Fructose Malabsorption
Cut fructose out of his diet and separately treated a confirmed case of SIBO, after developing worsening stomach pain and going on to develop full ME/CFS on top of existing fibromyalgia over about a year. Describes going downhill more and more beforehand,…
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Fructose Malabsorption
Tried a low-fructose diet after a gastroscopy found stomach inflammation and ruled out celiac disease, suspecting fructose malabsorption though formal testing was still unaffordable at the time of posting. Illness duration and severity are not detailed. Says…
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Beat Candida Diet Beats Christine's 10 Year Bout with ME/CFS
Tried the same anti-candida approach, using candidarecovery.com as a resource, but struggled with the diet because of her IBS-C, needing to keep fiber intake high. Found the Thorne SF722 (undecenoic acid) supplement helpful when attempting the protocol.…
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Vagus Nerve Stimulation Turns Jean's Life Around
Jean developed fibromyalgia during a pregnancy and gradually became mostly bedbound with severe widespread pain, allodynia, brain fog and IBS. Under Dr Benjamin Natelson's care she had a vagus nerve stimulator surgically implanted. She still has some pain…
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Rimfaximin seems to have helped my gut
After years of rolling gut pain, alternating bowel habits and frequent migraines, she took Rifaximin 400mg three times daily for 10 days, followed by five days of Azithromycin plus a probiotic and enzyme/fiber regimen. Following the Azithromycin course her…
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Mike Dessin's Amazing Recovery Story
Started powdered amino acids at about a quarter teaspoon per day, alongside pregnenolone, vitamin D, methyl B12 with methylfolate, and a high-protein diet of about 100 grams a day kept up for more than five years. Had been ill with ME/CFS for 10 years and…
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successfully treated SIBO with herbals
Tested positive for SIBO in April 2015 with a lactulose breath test so high the test was stopped early at a reading of 100. After a 6-week course of the herbal antimicrobials FC-Cidal and Dysbiocide (2 tablets of each, twice daily) plus rotating high-strain…
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I start to relapse every time I come off equilibrant
Equilibrant, a supplement combining shiitake mushroom with selenium, astragalus, sophora flavescens, olive leaf and licorice, was taken daily for over a year, working up to six pills a day. They had a severe bacterial infection that nearly killed them,…
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Bravo GcMAF Probiotic Yogurt
Used MAF314 (Bravo) yoghurt and, separately, Dr Enlander's injectable version, responding well to the MAF314 with improved physical functioning and gut symptoms. Describes it as "not a cure" but beneficial while used; the good effects "began to wear off…
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Bravo GcMAF Probiotic Yogurt
Took Bravo yoghurt and GcMAF cream twice daily (morning before food, night after dinner) for his ME/CFS. Reported increased energy, reduced brain fog, deeper/more vivid sleep and more regular digestion, but says plainly "it is by no means a cure" - benefits…
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Fasting
ChickenBear tried a 3-day modified cleanse of coconut oil and bone broth rather than a strict water fast. It went badly: they developed hair loss, acne and digestive problems and said they felt "like death" afterward, attributing the crash to adrenal and…
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Hitting Rock Bottom Leads To Turnaround for Dan
Built a gut-healing protocol around digestive enzymes, phosphatidylcholine and L-glutamine, guided by his own hypothesis that the autonomic nervous system was the key link across his symptoms. Illness duration and severity are not detailed in the excerpt.…
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Hitting Rock Bottom Leads To Turnaround for Dan
Dan developed ME/CFS after a chickenpox vaccination during an intensely stressful period, and over six and a half mostly homebound years suffered extreme fatigue, bouts of fever, cardiac issues and brain fog. He attributes his recovery to addressing…
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Anyone else get temporary full remission from phenibut?
Cycling phenibut roughly once a month produces what he calls "full remission" -- clear-headed, able to focus, normalized digestion and energy response. The effect is explicitly temporary and dose-limited: taken more often than monthly, "the effects get…
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LED, Red, Intranasal Light Therapy
ScottTriGuy, housebound with deep fatigue, nausea, brain fog and strong heartbeat about 2.75 years after onset, started an intensive 5-day course of red/infrared laser therapy on the back of his neck, then continued daily. Symptoms eased markedly by day…
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Gut and Mind/Body Work are Key for Long term Severely Ill Patient
Combined gut-focused treatment with mind/body work after being severely ill with ME/CFS long-term. Specific gut protocol details, doses and illness duration before starting are not given in the visible excerpt. At the time her story was told, she had already…
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Thirteen years after occupational exposure - Doug is well
Doug developed ME/CFS after occupational exposure to a waterlogged building around 1996-2000, with constant flu-like illness, fever, joint pain and IBS, relapsing three or four times a year during a long partial-recovery phase. Over about thirteen years he…
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GcMAF spray and bravo yogurt
Used MAF314 (later marketed as Bravo) probiotic yoghurt for about a year, alongside concurrent Lyme treatment. At 6 months Nagalase fell from 3.9 to 2.9 and he felt better; by 12 months he felt "much better." He separately tried a GcMAF spray for 2 months…
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Probiotic - Streptococcus thermophilus - restores my gut flora to normal - helps irritable bowel
For his ME/CFS-associated IBS, he found that a Streptococcus thermophilus probiotic "immediately" returns his stool to normal consistency and color, and the extra fatigue that accompanies his IBS flares disappears immediately too. He says only a minimal dose…
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The Resistant Starch Challenge: Is It the Key We've Been Looking For?
Crux, with a long history of IBS, followed the thread's resistant-starch protocol (raw potato starch, building toward 3-4 tablespoons/day, though he could only tolerate about 2) and reported less fatigue and PEM after 3 weeks, describing it as "a slow…
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High-Dose Selenium Significantly Improves My Fatigue and Brain Fog
Hip is a long-standing, moderately ill ME/CFS forum member and prolific self-experimenter who has never found one cure but has documented dozens of individual n=1 supplement/technique trials, each targeting a specific symptom. Notably, high-dose selenium…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After lifelong gastrointestinal problems, she spent about a year working up to a full dose of a Metafolin-containing B-complex alongside a gluten-free diet. She reports "doing a lot better now," with normal T3 thyroid levels "for the first time ever" and…
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what seems likely to have improved my gut?
After years of gut pain following nearly every meal, he built up a broad supplement stack and reports his gut pain "starting to improve dramatically in the past week," on top of an earlier partial improvement within the first week of starting magnesium. The…
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My Air Hunger has improved dramatically !!
Adopting the same betaine HCl/digestive enzyme/probiotic combination as the thread starter, he says it "basically cured my air hunger," calling it a "MIRACLE," though he still sometimes needs a few deep breaths. Presented as a large, sustained gain while…
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specific type of digestive enzyme has helped a lot
After four years on hydrocortisone for POTS-related symptoms, she began taking four Renew Life Digest More Ultra digestive enzyme capsules with each meal. She was then able to wean her hydrocortisone from 25mg to 12.5mg without her usual dizzy spells, and…
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IBS much improved after removing CHLORAMINE (not the same as chlorine) from tap drinking water
Following Hip's approach, he began treating his drinking water with vitamin C and boiling to remove chloramine and saw a significant reduction in IBS urgency and diarrhea almost immediately. Over two-plus weeks the improvement held, and he also reports…
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IBS much improved after removing CHLORAMINE (not the same as chlorine) from tap drinking water
After roughly 15 years of severe IBS-D, he began dechloraminating his tap water with vitamin C or sodium thiosulfate before drinking or cooking with it. Within a couple of days his IBS was noticeably improved, and over the following year he says he "rarely"…
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My Air Hunger has improved dramatically !!
Betaine HCl, digestive enzymes and a high-CFU probiotic taken around meals brought an estimated "60-70%" improvement in breathing capacity and a big rebound in appetite, easing air hunger she calls "devastating" and "distressing." Presented as an ongoing…
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Significant improvement on Boluoke (due to sticky blood)
cigana reports significantly more energy and stamina while walking, plus resolved stomach bloating, on 6 capsules/day of the branded lumbrokinase product Boluoke, attributing it to improved blood flow to previously under-perfused tissue. He confirmed the…
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Excellent results with LactoFermented Vegetables
After "terrible malabsorption problems," she has eaten fermented organic sauerkraut and other fermented vegetables for several years and now says her gut is "in perfect condition." She plans to keep eating it "for the rest of my life," treating it as…
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Excellent results with LactoFermented Vegetables
After years of severe constipation despite other interventions, she began eating one daily serving of homemade lactofermented sauerkraut or beets alongside L-glutamine and grain elimination. She calls the results "amazing," resolving her long-standing…
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My Story - Dan Neuffer's ME/CFS Fibromyalgia POTS Recovery
Dan Neuffer's page gives only general categories of treatment rather than specific drugs or doses: he says he "healed my gut and changed my diet" under a doctor's guidance, used unnamed supplements to support metabolism, detoxification and oxidative stress,…
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Did KDM's treatment help you or did you get worse?
After 31 weeks of GcMAF injections plus Valacyclovir for reactivated EBV and gut dysbiosis, over more than a year of treatment, he reports "no improvement," a treatment failure in his case.
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Think I've cured Fructose Malabsorption
Following Athene's protocol, he started glucosamine HCl and an alternating digestive-enzyme/fiber regimen while awaiting his N-acetyl glucosamine order. He reports bloating "seems lower" and burping "really reduced," a partial early improvement rather than…
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Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission
Took a month of Xifaxan for gut dysbiosis after testing positive for leaky gut, enterovirus and H2S overgrowth, and separately tried glutamine, NAG, aloe vera juice, digestive enzymes and zinc. She noticed no changes from the month of Xifaxan alone, and…
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Dr Martin Pall supplements
Ecklonia cava was taken at 200 mg as part of the Pall protocol supplement regimen, marketed as FibroBoost. No detail is given on how long she had been ill or how severe her ME/CFS was beforehand. Rather than improving her symptoms, she reported feeling…
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Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission
Tried Xifaxan for IBS about a year and a half before posting but stopped after only four or five days because his diarrhea got considerably worse. He notes the drug "does seem to help a lot of people, just not me," reporting no benefit and a worsened symptom…
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Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission
Took a twice-daily leaky-gut supplement stack (S. boulardii, grape seed extract, zinc carnosine, vitamin E, NAG, triphala, glutamine, slippery elm bark, zinc) after years of severe IBS-D alongside his ME/CFS. Digestion was much improved within 3-4 days and…
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Probiotics and some great improvement
Eating homegrown milk kefir, including the grains, turned his digestion around, he says, describing it as more effective and much less expensive than the various purchased probiotics he had tried, with the benefit persisting roughly two years after he started.
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Probiotics and some great improvement
Took a refrigerated multi-strain probiotic sachet and by the third day found his longstanding food intolerances "improved greatly," with adverse reactions to trigger foods reduced by about 90% and digestion, skin and mood all better. He notes an older…
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Gut healing - what seems to be helping me
After about 8 years of illness, 9 months of drinking raw-milk kefir resolved her multiple chemical sensitivity ("no longer feel like I'm choking" around perfume), completely cleared longstanding hand eczema, let her cut thyroid medication from 225mcg to…
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SAM-e, Acyclovir, Atlas Profilax = Improvement from 3 to 4
After decades with ME/CFS and years stuck at "Activity Level 2-3," combined daily SAM-e (200mg) with very sporadic low-dose Acyclovir (roughly one dose every one to two weeks) plus an Atlas Profilax cervical-alignment procedure done about two years earlier.…
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Learning to Fly Again
Kelvin Lord, "barely able to walk" at the start, took twice-weekly Ampligen infusions for a full year with perfect compliance, enduring about six months of flu-like side effects (tremors, diarrhea, vision loss, depression). He reached roughly 70%…
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IVIG and Xiflaxan: A Dr. Peterson Patient Improves
With severely swollen intestines, inability to eat or sleep without drugs and severe brain fog, he tried Xifaxan (which caused nausea and dizziness), charcoal tablets, pine cone extract and cat's claw, but reports no improvement and ongoing severe symptoms.
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IVIG and Xiflaxan: A Dr. Peterson Patient Improves
After a long history of recurrent SIBO culminating in septic shock and 15-20 diarrheal episodes a day, he took Xifaxan 200mg four times daily for 15 days alongside Florastor probiotic. Relief was "dramatic" within about 10 days, leaving no abdominal pain and…
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IVIG and Xiflaxan: A Dr. Peterson Patient Improves
A long-standing ME/CFS patient of Dr. Peterson improved markedly after resuming IVIG and taking a course of Xifaxan in late June for leaky gut/bacterial overgrowth, eventually starting full-time law school with only minor symptom-related difficulties. The…
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Side effects of Celecoxib?
Has been taking celecoxib as part of the Pridgen Protocol for ME/CFS, alongside a gut-protective supplement, initially Lion's Mane and later switched to deglycyrrhizinated licorice over safety concerns with the first choice. Illness duration and severity are…
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NIMODIPINE use in M.E. / CFS : A comprehensive guide. S. Parker (MBA, BSc) January 2014
Nimodipine, a dihydropyridine calcium channel blocker, was titrated from 15mg up to a maintenance dose of 90mg a day (30mg three times daily) over 7-plus years of treatment described in her own guide. She started at just 20-25% of normal functional capacity,…
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Resveratrol anyone?
Resveratrol, taken as Doctor's Best Red Wine Extract at 60mg per capsule, 1-2 capsules daily, left this ME/CFS patient feeling "slightly more alert," which they suspected reflected methylation support. Illness duration before starting is not stated. They…
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Opioids and Brain Fog
Codeine, 30mg combined with paracetamol, taken once daily, is described by a forum poster as freeing them from distressing brain symptoms and improving cognition on days they take it. Illness duration and severity beforehand are not stated. The benefit is…
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making a PRObiotic chart -- Bifido spp only!!
Bifidobacterium infantis 35624: taken as the Align probiotic brand, starting at one capsule daily for two weeks and then increasing to two capsules daily. She has ME/CFS with symptoms including joint pain, tinnitus and brain fog. The first two weeks produced…
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List of ME/CFS Recovery and Improvement Stories
EddieB is listed reaching near-remission from severe illness for "months" after a colonoscopy-prep laxative, with the effect recurring a second time with a different prep - an unusual, seemingly gut-microbiome-linked improvement that faded and had to be…
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List of ME/CFS Recovery and Improvement Stories
beatsmyth is listed moving from severe to mild over about 3 months on a cycled LL-37/BPC-157 peptide protocol, with IBS also reported fixed, per the compiled list.
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Temporary Improvement After Colonoscopy
EddieB experienced near-complete remission for several weeks after a normal-result colonoscopy in the 1990s, with symptoms returning within a year; a second colonoscopy in 2014 after a severe spell produced the same temporary-improvement pattern. He suspects…
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Fasting - specifically practically with ME/CFS and methylation treatment
Mr. Cat did a 9-day Master Cleanse of water, lemon, cayenne and molasses. Hunger disappeared by day two, but energy fluctuated and his thinking felt impaired through the fast, and his digestive symptoms improved only to return "immediately" once he went back…
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3 day fasting to reset immune system
sb4 went 7 days completely dry, no food or water, then continued 23 more days taking only one or two glasses of water a day, 30 days in total. They felt "horribly sick for the majority of the fast," with nausea, pins and needles, heart palpitations and…
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2 enlightening fasting experiences
cigana, the thread's starter, did two separate 2-day water-only fasts, the second followed by three days eating under 800 kcal. Once ketosis set in their hunger disappeared, energy rose and they said they felt "almost normal," though stomach bloating and…
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Fasting - full water only variety - has anyone here tried it?
GreenEdge, posting as a recovered ME/CFS patient, combined repeated extended water fasts with a very strict Lion Diet (carnivore). They describe three distinct recoveries, crediting two of them specifically to periods of fasting 5 or more days, during which…
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Bad blood? The uncertainty around microclots and Long COVID
Underwent 15 sessions of HELP apheresis and six sessions of plasmapheresis for long-COVID-associated microclots, and remains on anticoagulants years later despite repeated attempts to stop them. He had been severely ill since a COVID-19 infection in late…
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20-Year Battle with CFS: A Journey to Recovery through Mindset and Belief Work
She credits the Medical Medium diet-based protocol, Emotional Freedom Technique (EFT) tapping with affirmations for over an hour daily (later training as an EFT practitioner herself), functional medicine diagnosis, mindset and belief work, self-compassion…
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Cedar Brown's Story
She recovered from ME/CFS, alongside POTS, mold illness, IBS and anxiety, using a combination of Low Dose Naltrexone (LDN), the Edison Effect Program by Anj Garneri, Trauma Healing Accelerated and somatics work, pacing, IFS parts work and mold remediation,…
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Gut and Mind/Body Work are Key for Long term Severely Ill Patient
The title identifies a long-term severely ill ME/CFS patient whose improvement involved gut-focused diet changes and mind-body work, but only a brief excerpt could be retrieved. In it the person describes focusing every day on five things they were grateful…
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Anyone on Freddd protocol? (Riddle)
Riddle followed the Freddd protocol starting around 2013-14: sublingual methylcobalamin, sublingual dibencozide (adenosylcobalamin), and methylfolate, all taken daily at first and later alternated every other day, plus HCl betaine for digestion, omega oil…