Miruvor
ME/CFS Moderate → substantialBenefit faded or relapsed

IVIG and Xiflaxan: A Dr. Peterson Patient Improves

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
long-standing
Published
Aug 2009

Summary

A long-standing ME/CFS patient of Dr. Peterson improved markedly after resuming IVIG and taking a course of Xifaxan in late June for leaky gut/bacterial overgrowth, eventually starting full-time law school with only minor symptom-related difficulties. The gains were not self-sustaining, though — IVIG's benefits reportedly "wore off after 2-3 months" when used alone, and the patient felt "quite a bit better" again only after resuming IVIG with a repeat Xifaxan course, indicating the combination needed to be maintained.

Read it in their words

forums.phoenixrising.me

What they credit

Credits IVIG, Biologics & antibodies, Ampligen, IVIG / subcutaneous Ig, Rifaximin / Xifaxan.

Symptoms mentioned

Symptoms: Gut problems.

Similar stories

  • IVIG and Xiflaxan: A Dr. Peterson Patient Improves

    No benefit ME/CFS Severe forums.phoenixrising.me Dec 2009

    With severely swollen intestines, inability to eat or sleep without drugs and severe brain fog, he tried Xifaxan (which caused nausea and dizziness), charcoal tablets, pine cone extract and cat's claw, but reports no improvement and ongoing severe symptoms.

  • IVIG and Xiflaxan: A Dr. Peterson Patient Improves

    Substantial ME/CFS Severe forums.phoenixrising.me Dec 2009

    After a long history of recurrent SIBO culminating in septic shock and 15-20 diarrheal episodes a day, he took Xifaxan 200mg four times daily for 15 days alongside Florastor probiotic. Relief was "dramatic" within about 10 days, leaving no abdominal pain and…

  • List of ME/CFS Recovery and Improvement Stories

    Near-full ME/CFS Severe forums.phoenixrising.me Jun 2020

    Kelvin Lord is listed moving from severe to mild after a year of Ampligen infusions, per the compiled list.

  • A Town for People with Chronic Fatigue Syndrome (The New Yorker)

    Substantial ME/CFS forums.phoenixrising.me Sep 2019

    LaurelW was on Ampligen for a combined 7 years across two treatment periods and reported the drug "helped me so much." After being dropped from the compassionate-care program in 2016 when it became unaffordable, she maintained her gains for 2.5 years off the…