Out of the 89 accounts with a clear outcome; 1 more don’t say how it went.
How it went
Did it last?
- 31 of 90 said the benefit wore off (including the 20 who relapsed).
- 9 of 90 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 13 | 15% |
| Near-full | 5 | 6% |
| Substantial | 15 | 17% |
| Partial | 21 | 24% |
| Relapsed | 20 | 22% |
| No benefit | 15 | 17% |
| Outcome unclear | 1 | — |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 5 | 40% | |
| Severe | 24 | 42% | |
| Very severe | 13 | 23% |
48 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- GcMAF, Goleic and Bravo yoghurt45 accounts
9% 22%
- Probiotics and fermented foods11 accounts
0% 27%
- Rituximab9 accounts
22% 44%
- Ampligen8 accounts
12% 50%
- Efgartigimod / Vyvgart8 accounts
0% 100%
- Monoclonal antibodies (casirivimab, Pemgarda)8 accounts
50% 38%
- Lyme / co-infection protocols7 accounts
0% 14%
- Doxycycline and other antibiotics6 accounts
0% 17%
- BC 007 / rovunaptabin5 accounts
40% 20%
- JAK inhibitors (Rinvoq, baricitinib)5 accounts
40% 40%
- Valcyte / valganciclovir3 accounts
0% 67%
- B12 injections and methylation3 accounts
33% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
Side effects and harms people mentioned
Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about Biologics & antibodies itself. Read the story before drawing conclusions.
- Blood count problems
Jen, bedbound 90% of the time for 18 years with severe PEM and dysautonomia, took Rinvoq 15mg daily for 2 months until it was stopped due to a dangerously low white-cell count.
- Side effects
Nik had to stop taking it, though, because of recurrent infections caused by its immunosuppressive effect, so the benefit ended when treatment was discontinued rather than fading on its own.
- Side effects
He now warns others to limit any course to 4 months maximum and get monthly ANA blood tests while using it: a real functional benefit was outweighed by a serious autoimmune adverse event he attributes to the treatment.
- Side effects
Describes it as "not a cure" but beneficial while used; the good effects "began to wear off after a few months," including after she had to stop due to the prohibitive cost, and Enlander's 878 injectable version did not work as well for her.
- Financial cost
He separately paid £150/week for a 3-week trial of Rerum (a Ruggiero-linked GcMAF variant) and felt it "had good effects but couldn't afford it," settling on Bravo yoghurt long-term instead, which he says he still relies on "for maintaining a better level of health."
- Side effects
Later in the protocol she reported benefit similar to another patient's (clearer thinking, less fatigue, better autonomic function) "though not as well," with only minor skin-texture side effects.
- Made symptoms worse
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but improved gradually week-by-week using kinesiology, ivermectin, high-dose probiotics, rotating antibiotic combinations and anti-biofilm supplements, then treated presumed Lyme/Bartonella with antibiotics, a simplified methylation protocol, GcMaf/Bravo probiotic and 1st Line/lactoperoxidase-thiocyanate - which he says had "the greatest effect" - taking his Bell's score from 10 to 50.
- Hospitalisation
Treating Lyme, Bartonella, Babesia and EBV, she reports her body "reacts terribly" to GcMAF, with worsening reactions across multiple injections that came "close to ER trips." She stopped GcMAF on her new practitioner's advice in favor of antibiotics and IV treatment, reporting no benefit and significant harm instead.
- Side effects
Kelvin Lord, "barely able to walk" at the start, took twice-weekly Ampligen infusions for a full year with perfect compliance, enduring about six months of flu-like side effects (tremors, diarrhea, vision loss, depression).
- Side effects
Treatment was discontinued for adverse effects with no benefit described.
- Side effects
On one occasion took 75ng and had a severe adverse reaction, saying "I took 75 ng and felt like I was going to die," showing a narrow therapeutic window where too high a dose caused acute harm rather than benefit.
All 90 accounts
-
Monoclonal antibodies article comments (Chris)
Chris is participating in a Vanderbilt clinical trial of baricitinib for long COVID, having started the drug on October 18, 2025. He reported feeling "the best I have since I got Covid," becoming functional though still limited. As of his comment he was…
-
Monoclonal antibodies article comments
Credits monoclonal antibody. An unnamed patient was ill 4.5y with severe long COVID, improved, then relapsed. Pemgarda gives 8-10 week remission per dose.
-
Three Long-term Long COVID Patients, Three Rapid Recoveries
Pemivibart (Pemgarda), a monoclonal antibody infusion whose effect the article says typically lasts about a couple of months, was given to three long-term long COVID patients. A 70-year-old woman, sick for nearly a year, had her brain fog, breathlessness and…
-
Vyvgart brought us back to life (Clare)
Clare, a nurse previously unable to work because of Long COVID, received Vyvgart (efgartigimod) in the trial, with no specific dose stated, and it significantly improved her tachycardia and lessened her post-exertional malaise. After the trial ended, her…
-
Vyvgart brought us back to life (Michaelene)
Michaelene was on Vyvgart (efgartigimod) for five months in the trial's open-label phase and had improved enough that she no longer met criteria for POTS when the trial was abruptly canceled. She had been severely disabled before treatment. After the trial…
-
Vyvgart brought us back to life (Ellie)
Ellie also received Vyvgart (efgartigimod) in the trial, with no specific dose described. A geologist previously limited by severe Long COVID symptoms, she improved enough on the drug to resume field work without fearing she would pass out. The article does…
-
Vyvgart brought us back to life (Mia)
Mia Delli Gatti took part in the same Vyvgart (efgartigimod) trial, though the article gives no specific dose or schedule for her. As a college student, Long COVID had previously left her unable to maintain a full course load, but on the drug she was able to…
-
Vyvgart brought us back to life (Nicole)
Nicole Barrick, a nurse who contracted COVID while working on a COVID unit, received weekly Vyvgart (efgartigimod) infusions, and after six months in the trial's open-label phase she no longer met the clinical criteria for POTS on tilt-table testing, with…
-
Vyvgart brought us back to life (Judith)
Judith was on Vyvgart (efgartigimod) for five months during the trial's open-label phase, though no specific dose is given. Previously largely housebound, she improved enough to return to work, travel to a friend's wedding, and no longer meet clinical…
-
Vyvgart brought us back to life (Sarah)
Sarah received Vyvgart (efgartigimod) infusions in the same Long COVID trial, though the article does not specify her exact dose or schedule beyond trial participation. She had been bedbound with Long COVID for months before treatment, and on the drug she…
-
Vyvgart brought us back to life, but the Long COVID trial was canceled
Roman White received weekly infusions of Vyvgart (efgartigimod) during the open-label phase of a Long COVID trial; no specific dose is given beyond the weekly infusion schedule. Previously a firefighter left unable to work, he improved dramatically on the…
-
No easy home runs: early Long COVID Paxlovid and monoclonal trials
Amy Engebretson took part in Yale's PaxLC trial of Paxlovid and has continued taking ritonavir, one of Paxlovid's components, because she says it "improved my symptoms quite a bit"; the article gives no specific dose or treatment duration for her. It does…
-
Three clinical trials for Long COVID are testing JAK inhibitors (unnamed)
Credits upadacitinib. An unnamed patient had long COVID and reports a substantial improvement. Other two on the same drug worsened over six weeks.
-
Three clinical trials for Long COVID are testing JAK inhibitors (Jen)
Jen took the JAK inhibitor upadacitinib (Rinvoq) for 66 days starting December 2023 before stopping early due to profound weakness and paralyzing fatigue with no apparent benefit while on the drug. She had suffered from severe myalgic encephalomyelitis for…
-
Berlin Cures' failed trial (Emma)
Emma took part in the same Berlin Cures trial of BC 007 (rovunaptabin), though the article does not specify her dose or whether she received the active drug or placebo, nor how severe or long-standing her Long COVID was. She reported that her symptoms…
-
Berlin Cures' failed Long COVID clinical trial yields lessons on study design
Shayna Bhalla received BC 007 (rovunaptabin) infusions as part of the Berlin Cures Long COVID trial, though the article does not give the specific dose, frequency, or duration of infusions. She had lived with Long COVID for years, with fatigue, headaches and…
-
Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits somatic tracking and emotional expression. Jake was ill 5 years with moderate ME/CFS and is described as fully recovered. Comorbid long covid and POTS.
-
From Severe ME/CFS to Healed: Jen's Remarkable Rinvoq ME/CFS Recovery Story
Jen, bedbound 90% of the time for 18 years with severe PEM and dysautonomia, took Rinvoq 15mg daily for 2 months until it was stopped due to a dangerously low white-cell count. She initially felt no better, but a few weeks after stopping the drug her…
-
From Skeptic to Advocate: Wes Ely, Long COVID and his Baricitinib Trial
Nik took baricitinib for a few months as part of long-COVID treatment; the page does not say how long or how severely Nik had been ill beforehand. The drug worked well, reducing both post-exertional malaise and brain fog. Nik had to stop taking it, though,…
-
Jake (video)
The source names no specific treatment. Jake had long COVID and is listed among the recovery accounts. Video testimonial format.
-
Three Severely Ill Long COVID Patients - Three Rapid Recoveries (patient 3)
The third patient, who had type II diabetes and was overweight, was severely ill with long COVID for about five months. After receiving the casirivimab and imdevimab cocktail the post reports his symptoms disappeared within a week. He was reportedly…
-
Three Severely Ill Long COVID Patients - Three Rapid Recoveries (patient 2)
This patient fell ill with severe long COVID in early 2021, with profound cognitive difficulty and extreme exercise intolerance, and gained only mild relief from vaccination. More than six months later, after testing positive for COVID again, she received…
-
Three Severely Ill Long COVID Patients - Three Rapid Recoveries (patient 1)
This patient developed severe long COVID after a confirmed infection, unable to climb stairs or walk without severe fatigue and with neurological and cardiac symptoms, gaining only mild relief from vaccination. About a year after infection she received the…
-
Jake Corday
This page contains no written personal narrative for Jake Corday; it is a short introduction to an embedded YouTube interview with Dan Buglio, with no program, drug, dose, or therapy named for Jake's own case. Beyond identifying him as a co-founder of the…
-
Berlin Cures? Could BC 007 Help With Long COVID and ME/CFS? (glaucoma)
This long-COVID patient, who also had glaucoma, received a single infusion of BC 007, though the page does not give the dose or infusion length for this case. Her long COVID symptoms cleared up afterward, an outcome that helped prompt Berlin Cures' broader…
-
Berlin Cures? Could BC 007 Help With Long COVID and ME/CFS? (exerciser)
This avid exerciser received a single 75-minute BC 007 IV infusion with three days of hospital monitoring, after long COVID had left the person bedridden with episodes of temporary paralysis and unable to follow conversations. The infusion produced a marked,…
-
Berlin Cures? Could BC 007 Help With Long COVID and ME/CFS? (skier)
This cross-country skier and former Ironman athlete received a single 75-minute IV infusion of the investigational drug BC 007, with three days of hospital monitoring afterward, months after a COVID infection had left him severely debilitated, disoriented…
-
Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)
Ran a long multi-drug protocol: valganciclovir at 450mg twice daily for a year then a lower maintenance dose for another 8 months, repeated after HHV-6 reactivated again; famciclovir 500mg three times daily for 6 months; gammaglobulin infusions every three…
-
3-month IVIG experience
Did two years of IVIG (July 2016 to July 2018) at 82g per infusion cycle, run at a very slow infusion speed of 40 ("but it was the fastest that I could tolerate"), for autoimmunity, MCAS and dysautonomia that included years of muscle weakness and breathing…
-
List of ME/CFS Recovery and Improvement Stories
Kelvin Lord is listed moving from severe to mild after a year of Ampligen infusions, per the compiled list.
-
The Temporary Recovery Stories (Judith)
Commenter Judith described multiple remissions and relapses since childhood, including a Rituximab course that caused complications. She now manages with AHCC, magnesium, Plaquenil and colchicine, and describes the illness as progressive, each relapse…
-
A Town for People with Chronic Fatigue Syndrome (The New Yorker)
LaurelW was on Ampligen for a combined 7 years across two treatment periods and reported the drug "helped me so much." After being dropped from the compassionate-care program in 2016 when it became unaffordable, she maintained her gains for 2.5 years off the…
-
A Town for People with Chronic Fatigue Syndrome (New Yorker) discussion
LaurelW used Ampligen intravenously over a total of seven years across two separate treatment periods, though the thread gives no specific dose or infusion frequency; she was taken off it in January 2016 when the manufacturer discontinued the…
-
Rituxan Number Three, Some Improvement, Still Early to Tell
Previously bed- and wheelchair-bound with complex neuroimmune disease, EDS, PID, NK-cell deficiency and MCAS, she had two Rituximab infusions in November 2018 and a third by March 2019. By the 3-month mark she reported clearly improved muscle strength and…
-
I was cured with GCMAF
Took weekly GcMAF injections for several years, which she says "bumped up my functioning level by a couple of notches" rather than curing her. The benefit was maintenance-dependent — she had to keep injecting to keep it — and a cream version she tried…
-
I was cured with GCMAF
After 9 years ill, severely bedbound and intolerant of touch, light, sound and movement for over 3 years, she injected Goleic (oleic-acid-conjugated GcMAF) every 4 days for just over a year, having tried many other alternative treatments without success…
-
I was cured with GCMAF
Tried Natural Regenesis colostrum-based GcMAF sublingually (held under the tongue about 10 minutes). Experienced increased gut inflammation, similar to a reaction he'd had to GcMAF cream previously, and concluded plainly "GcMAF is not for me" - a…
-
Colostrum Maf
Took bovine colostrum powder mixed into a cocoa drink and reported "feeling better" within just 3 days. She flags the result herself as confounded, since she "also started microdosing psilocybin once every 4 days at the same approximate time, so it might be…
-
Colostrum Maf
Used Dr Enlander's injectable GcMAF and developed nerve pain in his feet, leading him to discontinue. No benefit is reported before stopping; presented purely as an adverse-effect-driven discontinuation.
-
Colostrum Maf
Tried injectable GcMAF for 4 months, then switched to oral Colostrum MAF for another 4-5 months. Reports "no response" from either form after roughly 8-9 months of combined use - one of the clearer null-result accounts among these threads.
-
I was cured with GCMAF
Tried GcMAF in yoghurt (Bravo) form four years into her CFS illness. Reports "a lot of hopes, a lot of money and no effect except of the not unpleasant taste of the yoghurt" - no symptomatic improvement despite sustained cost and expectation, and no…
-
I was cured with GCMAF
Tried GcMAF cream and experienced a severe inflammation reaction, describing herself as "very over reactive to things" when it comes to immune modulators. Avoided further MAF-type treatments after this reaction. No benefit was reported before the reaction…
-
I was cured with GCMAF
Weekly injectable GcMAF (around 25ng, from Saisei Mirai in Japan and earlier other suppliers) used for several years; "responded very well" and functioning improved "a couple of notches" without curing the illness, so continued use was needed to keep the…
-
Norwegian Rituximab Chronic Fatigue Syndrome (ME/CFS) Trial Fails
Credits rituximab. An unnamed patient had ME/CFS and is described as fully recovered. Index Hodgkin's patient: CFS vanished on rituximab; trials later failed.
-
Super Immune Activator - GcMAF by Living Technologies
Used the Living Technologies "Super Immune Activator" kit (homemade raw milk/kefir-grain GcMAF ferment with colostrum, probiotics and vitamin D3/K2, 50ml twice daily) plus GcMAF Plus cream, starting October 2017 for gut/bowel symptoms. Within days he could…
-
Ampligen Does the Trick for Anita
Anita became severely ill at 24 after an infection and was mostly bedbound for 11 years, at her worst losing her sight and hearing and needing liquid nutrition. Dr Peterson prescribed Ampligen and she reached 90% recovery. After stopping the drug she…
-
Bravo GcMAF Probiotic Yogurt
Used sublingual GcMAF for the recommended 6-month period, reporting it "restored immunity and stopped further tooth loss" - but says it also "triggered Systemic Lupus Erythematosis" in him. He now warns others to limit any course to 4 months maximum and get…
-
Bravo GcMAF Probiotic Yogurt
Took Bravo yoghurt for 2 weeks while based in Cambodia and reports it "reduced my CFS 25%ish" - a modest, quantified, partial improvement in that short window rather than a cure, with no longer-term follow-up given.
-
Bravo GcMAF Probiotic Yogurt
Long-term user of Bravo yoghurt who says she "found it to be invaluable in multiple areas of my physiology and life." No specific dose, duration or symptom-by-symptom detail is given, but the framing is of sustained positive benefit from continued use rather…
-
Bravo GcMAF Probiotic Yogurt
Used MAF314 (Bravo) yoghurt and, separately, Dr Enlander's injectable version, responding well to the MAF314 with improved physical functioning and gut symptoms. Describes it as "not a cure" but beneficial while used; the good effects "began to wear off…
-
Bravo GcMAF Probiotic Yogurt
Took Bravo yoghurt and GcMAF cream twice daily (morning before food, night after dinner) for his ME/CFS. Reported increased energy, reduced brain fog, deeper/more vivid sleep and more regular digestion, but says plainly "it is by no means a cure" - benefits…
-
Still doing great since Rituxan !
Self-described severe/very-severe ME, she followed the Norwegian Haukeland Rituximab schedule (1g infusions across day 0 through week 60). One month in she reported a mixed picture — some autoimmune-type symptoms improving, but cognitive impairment and…
-
I had Rituxan and I feel amazing
Ill 33 years with feeding-tube dependence, orthostatic blood pressure of 58/42, bedbound autonomic dysfunction and photophobia, she received 4 weekly Rituximab infusions (375mg/m2) with methotrexate and steroid premedication at Stanford, finishing mid-March…
-
what has worked for you
Over several years of self-experimentation starting from very severe illness (Bell's disability score about 10, housebound 3+ years), he found graded exercise, the Myhill protocol, the Martin Pall protocol and various detox regimens made him worse, but…
-
GcMAF spray and bravo yogurt
The same patient who had a marginal-to-positive response to GcMAF/Bravo products for his ME/CFS found that after later contracting COVID and developing long COVID, the products "would flare up my Cov chest pain/tightness and general inflammation" - a clear…
-
GcMAF spray and bravo yogurt
Used MAF314 (later marketed as Bravo) probiotic yoghurt for about a year, alongside concurrent Lyme treatment. At 6 months Nagalase fell from 3.9 to 2.9 and he felt better; by 12 months he felt "much better." He separately tried a GcMAF spray for 2 months…
-
My Rituximab experience with RA and ME
Completed a full course of 6 Rituximab infusions and got "only a few weeks of CFS/ME symptom remission" before it faded. In a later post about the same OMI-administered treatment she called it "not worth $40k," saying she has since done better with Dr.…
-
Trying Valcyte Again, So Far So Good
niall improved roughly 30% on Ampligen but relapsed about three months after stopping, developing a cough, sore throat and fatigue alongside reactivated HHV-6 and Coxsackie virus. He attributed the relapse partly to under-dosed post-Ampligen antiviral…
-
Tests coming in from Dr. Bradstreet
On ongoing GcMAF injections (plus an added antiviral, Cytomil, and a new antiviral regimen on Dr Bradstreet's recommendation) after 5 years of relapsing illness, including bouts "couch bound for months at a time." Bradstreet reviewed her labs (showing…
-
GOOD things happening!! Am I a responder???
Ill 35 years and largely confined to the couch in a fetal position with severe pain, she had two Rituximab infusions two weeks apart (of a planned eight) and initially became "vertical a LOT more," with flu-like symptoms down 80%+ and able to dine out,…
-
Did KDM's treatment help you or did you get worse?
Treating co-infections including Borrelia and Bartonella with a trial-and-error mix of MAF314, antibiotics, biofilm-reducing enzymes, amalgam removal and chelation, he reports "MAF314 has been working well for me," a partial ongoing improvement achieved only…
-
Did KDM's treatment help you or did you get worse?
Recently starting a KDM regimen of GcMAF, "4ME," lactoferrin, antibiotics, probiotics and B12, she reports "have seen an improvement" early in the course, though her disease "fluctuates a bit" and she remains financially dependent on family to continue.
-
Did KDM's treatment help you or did you get worse?
Treating Lyme, Bartonella, Babesia and EBV, she reports her body "reacts terribly" to GcMAF, with worsening reactions across multiple injections that came "close to ER trips." She stopped GcMAF on her new practitioner's advice in favor of antibiotics and IV…
-
Did KDM's treatment help you or did you get worse?
After 31 weeks of GcMAF injections plus Valacyclovir for reactivated EBV and gut dysbiosis, over more than a year of treatment, he reports "no improvement," a treatment failure in his case.
-
Did KDM's treatment help you or did you get worse?
Under KDM's care for 18 months, six months of rigorous GcMAF use brought "a lot of improvement," but stopping for six months for family reasons was followed by a Lyme diagnosis that KDM was reportedly "almost excited" to find because it explained the case.…
-
Dr. success using higher doses of GCMAF
Became ill with CFS the day after a swine flu infection in April 2010, at times needing a wheelchair in public. Escalating GcMAF from 25ng to 80ng over about 18 months, alongside MAF 878, Heppapressin, daily B12/magnesium shots and taurine, she reports she…
-
Dr. success using higher doses of GCMAF
Injectable GcMAF kept to a very low maximum tolerated dose (0.15ng) after 20 years of illness, due to a strong flare/inflammation response at higher doses. Reports manageable post-injection flare-ups and fatigue at this conservative dose but avoids…
-
Dr. success using higher doses of GCMAF
Tried K-Maf, a homeopathic-dilution version of GcMAF, alongside another forum member who had the same reaction. Reports feeling worse while taking it (similarly to a co-poster's night sweats and severe fatigue on the same product), with improvement only…
-
Anybody improve on gcmaf alone (without hepapressin, nexavir, antivirals)?
Took KMAF, a GcMAF variant, for 2-3 months and reports viral antibody titers dropping to near-equivocal and NK-cell function improving. He is explicitly hedged about causation, writing "success is hard to measure" and that he cannot separate KMAF's effect…
-
Successfull GcMAF Therapy
Reports 5 months of GcMAF (2 months on a Lyme protocol, then 3 months for XMRV) let him come off supplemental oxygen and Lyme medications, wake near noon instead of 4-6pm, cook meals, take short walks and speak/converse better. He identifies himself in the…
-
Successfull GcMAF Therapy
Took 38 full doses of GcMAF and reports "nothing happened," possibly with somewhat worsened brain fog, describing himself as "back to square one." No benefit is reported despite a substantial course of treatment.
-
Successfull GcMAF Therapy
Took GcMAF through Dr. KDM for 8 months and reports "improving slowly" during that period. An inflammatory response forced an 8-week break, during which he relapsed, and after restarting at half dose he was still "not fully out of the bad spell" three weeks…
-
Successfull GcMAF Therapy
Disabled since 1993 with energy at "30% on the Bell scale" and feeling "like a living corpse," he began weekly 100ng IV GcMAF in November 2010. His condition "improved considerably with each injection," nagalase normalized by May 2011, and by September 2011…
-
Learning to Fly Again
Kelvin Lord, "barely able to walk" at the start, took twice-weekly Ampligen infusions for a full year with perfect compliance, enduring about six months of flu-like side effects (tremors, diarrhea, vision loss, depression). He reached roughly 70%…
-
IVIG and Xiflaxan: A Dr. Peterson Patient Improves
A long-standing ME/CFS patient of Dr. Peterson improved markedly after resuming IVIG and taking a course of Xifaxan in late June for leaky gut/bacterial overgrowth, eventually starting full-time law school with only minor symptom-related difficulties. The…
-
List of ME/CFS Recovery and Improvement Stories
carlystar13 is listed reaching remission from severe ME/CFS after about a year of Goleic-brand GcMAF, per the compiled list.
-
List of ME/CFS Recovery and Improvement Stories
LaurelW is listed moving from severe to moderate after roughly 7 years on Ampligen, with gains described as maintained even after the infusions were later stopped.
-
Where to buy GcMAF (KDM's patient)?
As a Dr De Meirleir patient, took IV GcMAF at 100ng weekly for years, holding a "50-70% (variable)" functional baseline on treatment. After stopping, "my baseline has gotten significantly worse" and he became "bedridden 24/7" - a case where the drug appeared…
-
Where to buy GcMAF (KDM's patient)?
Tried three GcMAF formulations: the original UK-manufactured injectable, a Japanese injectable, and GcMAF Plus cream. Benefited significantly from the original UK injectable version; by contrast "the japanese was not very effective for me, the cream gives a…
-
More info on GCMAF...
Injectable GcMAF starting at 100ng twice weekly then reduced to once weekly, using about 3 vials over at least 5 months, with a baseline Nagalase of 2.9. Notes only a "drop in my average daily temp" as an objective change; explicitly states "I haven't really…
-
What GcMAF dose?
As a patient of Dr De Meirleir, took weekly injectable GcMAF at 50ng in 2012, which she says "normalized my Nagalase and...improved my general condition," alongside separate antibiotic/herbal treatment for Borrelia and Bartonella co-infections between 2012…
-
[BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)
Uses a probiotic MAF (MAF 878, roughly $100/month) alongside dietary changes, describing the combination as putting her "into FULL remission... From bed bound to hiking up mountains." The remission is not permanent: she has "gone off and on everything that…
-
Professor Marco Ruggiero on MAF 314 -- video
Took MAF 878 (an oral/probiotic GcMAF product) for about one month, then stopped because of the cost of the product and its shipping. Within 3 days of stopping she "plummeted and am still trying to get back to baseline weeks later" - a sharp relapse on…
-
Gcmaf-reactions and side effects
On MAF (GcMAF) injections, developed a concerning sensation in the kidney area (bloodwork came back normal) plus "bad breast pain and stinging" radiating to the underarm and groin. She asked other patients whether this was a normal reaction; no improvement…
-
Gcmaf-reactions and side effects
Started GcMAF at 1/4 dose IV, then switched to subcutaneous; developed intense lower-back burning/pain about 5-6 days after the first injection, plus sore throat and new light sensitivity. Stopped after 7 injections when insomnia developed, and slept…
-
Gcmaf-reactions and side effects
Monthly injections of GcMAF at 1/5 dose from a new "blue-top vial" batch produced an unusual immediate headache, and within the following week she "relapsed terribly" with daily severe depression, near-daily adrenal crashes and head inflammation. She…
-
Gcmaf-reactions and side effects
Took 4 injections of GcMAF and had a marked exacerbation of pre-existing burning mouth syndrome, describing the sensation as "like chili on my mouth." Labs showed low 25-OH vitamin D but elevated 1,25 vitamin D; the prescribing clinic (KDM) responded by…
-
More info on GCMAF...
Used Japanese (Saisei Mirai) colostrum-based GcMAF for years - six months at a high dose then a maintenance dose - because the original English GcMAF was no longer available. Reports improvements in gait and joint pain beginning around 4 months on the…
-
Where to buy GcMAF (KDM's patient)?
IV GcMAF used "for years with great results" at low doses (around 25ng). On one occasion took 75ng and had a severe adverse reaction, saying "I took 75 ng and felt like I was going to die," showing a narrow therapeutic window where too high a dose caused…
-
Jake Hollis - The Fatigue Psychologist
Credits CBT or psychological work and trauma and somatic work. Jake Hollis had ME/CFS and is described as fully recovered. S4ME calls it survivorship bias.