List of ME/CFS Recovery and Improvement Stories
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Jun 2020
Summary
Kelvin Lord is listed moving from severe to mild after a year of Ampligen infusions, per the compiled list.
Similar stories
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A Town for People with Chronic Fatigue Syndrome (New Yorker) discussion
LaurelW used Ampligen intravenously over a total of seven years across two separate treatment periods, though the thread gives no specific dose or infusion frequency; she was taken off it in January 2016 when the manufacturer discontinued the…
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Ampligen Does the Trick for Anita
Took Ampligen (rintatolimod, AMP-511) for 19 years as part of an FDA clinical trial for severe ME/CFS. Says beyond a shadow of a doubt that the medicine works for her, citing laboratory proof and an exercise record as evidence, and calls for wider access to…
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Ampligen Does the Trick for Anita
Anita became severely ill at 24 after an infection and was mostly bedbound for 11 years, at her worst losing her sight and hearing and needing liquid nutrition. Dr Peterson prescribed Ampligen and she reached 90% recovery. After stopping the drug she…
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Trying Valcyte Again, So Far So Good
niall improved roughly 30% on Ampligen but relapsed about three months after stopping, developing a cough, sore throat and fatigue alongside reactivated HHV-6 and Coxsackie virus. He attributed the relapse partly to under-dosed post-Ampligen antiviral…