Miruvor
ME/CFS Severe → near-fullNeeds ongoing treatment

NIMODIPINE use in M.E. / CFS : A comprehensive guide. S. Parker (MBA, BSc) January 2014

Susan Parkerforums.phoenixrising.me

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Published
Undated

Summary

Nimodipine, a dihydropyridine calcium channel blocker, was titrated from 15mg up to a maintenance dose of 90mg a day (30mg three times daily) over 7-plus years of treatment described in her own guide. She started at just 20-25% of normal functional capacity, a severe level of impairment, though how long she had been ill before that baseline is not stated. By 2013, on the full dose, she reported being 80-90% of well, able to walk 6 miles, drive, and manage intensive projects, with only minor side effects such as transient odor, nausea on dose-increase days, and a slightly elevated liver enzyme. She tapered the dose five times over the years and each time her symptoms progressively regressed, with benefits returning only once she went back to the higher dose, making continued nimodipine a maintenance requirement rather than a cure.

Read it in their words

forums.phoenixrising.me

Read the original ↗ Archived copy

The same story is also published at forums.phoenixrising.me; it is counted once.

What they credit

Calcium channel blockers (nimodipine, amlodipine, verapamil)Nimodipine / tadalafil / vasoactive

Symptoms mentioned

Gut problems

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