Miruvor
ME/CFS Severe → near-fullIll for 15 years

Jennifer's Story

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
15 years
Published
May 2024

Summary

Jennifer followed an anti-inflammatory diet based on Andrew Weil and Patrick Holford's principles, alongside regular massage therapy, acupuncture, deep relaxation and meditation practices, and a custom-designed graded walk-training program, after early treatment with NSAIDs, a physical rehabilitation stay and an intensive antibiotics course that she says damaged her gut microbiome. She was ill with ME/CFS, fibromyalgia, juvenile arthritis and IBS for over 15 years from age 13, becoming mostly housebound during her final two years of school with severe fatigue, whole-body pain, painsomnia and brain fog. She now says she no longer meets the diagnostic criteria for any of her illnesses except asthma and no longer feels ill, working part-time as a psychologist and taking day trips with her children. She defines her own recovery as being able to walk 5km and work part-time without frequent flare-ups, rather than a complete return to her pre-illness life. She maintains ongoing energy pacing, planning skills and short "exercise snacking" bursts of movement to stay well, so some management is still required rather than the illness being fully behind her.

Read it in their words

the-recovery-hub.org — a recovery advocacy site.

What they credit

Credits Diet, Pacing, Doxycycline and other antibiotics, Meditation, yoga, breathwork, Pacing and the energy envelope.

Symptoms mentioned

Symptoms: Brain fog, Gut problems, Pain & fibromyalgia, Sleep problems.

Similar stories

  • Sirin Gnadeberg Shares How She Cured Her ME/CFS and POTS

    Full recovery ME/CFS SevereIll 5 years cfsunravelled.com · sells Apr 2019

    Sirin Gnadeberg added salt to her drinking water starting in April 2016, which significantly improved her POTS symptoms, then took 16 weeks of antibiotics after a Lyme specialist found elevated antibodies to Bartonella, Chlamydia and Mycoplasma (despite…

  • List of ME/CFS Recovery and Improvement Stories (page 4-5 discussion)

    Substantial ME/CFS ModerateEffect faded forums.phoenixrising.me 2022

    unicorn7 used a De Meirleir-style multi-part protocol (SIBO antibiotics, LDN, B12, subcutaneous immunoglobulin, mesalazine, plus strict pacing) to move from moderate to mild ME/CFS, and reported repeating that same moderate-to-mild recovery a second time…

  • Thirteen years after occupational exposure - Doug is well

    Full recovery ME/CFS ModerateIll 13 yearsEffect faded healthrising.org Feb 2015

    Doug developed ME/CFS after occupational exposure to a waterlogged building around 1996-2000, with constant flu-like illness, fever, joint pain and IBS, relapsing three or four times a year during a long partial-recovery phase. Over about thirteen years he…

  • What Treatments Have Cured People?

    Substantial ME/CFS SevereIll 11 years forums.phoenixrising.me Sep 2010

    Doug, misdiagnosed for 7 of his 11 sick years before Chlamydia pneumoniae and EBV were identified, took inosine alone for a couple of short stretches with limited effect, then added DMAE about 1.5 years before posting; he described the fog lifting and…