Out of the 233 accounts with a clear outcome; 1 more don’t say how it went.
How it went
Did it last?
- 36 of 234 said the benefit wore off (including the 18 who relapsed).
- 18 of 234 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 54 | 23% |
| Near-full | 24 | 10% |
| Substantial | 70 | 30% |
| Partial | 55 | 24% |
| Relapsed | 18 | 8% |
| No benefit | 12 | 5% |
| Outcome unclear | 1 | — |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Mild | 4 | 50% | |
| Moderate | 31 | 42% | |
| Severe | 97 | 44% | |
| Very severe | 25 | 40% |
77 accounts don’t say how ill the person was.
Who published these accounts
25% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- Elimination and ketogenic diets56 accounts
30% 16%
- B12 injections and methylation32 accounts
22% 22%
- Extended water fasting (3+ days)31 accounts
16% 13%
- Meditation, yoga, breathwork29 accounts
62% 10%
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)28 accounts
64% 7%
- Pacing and the energy envelope24 accounts
58% 12%
- Selenium, iodine, minerals21 accounts
24% 19%
- Herbal and Chinese medicine18 accounts
22% 11%
- Probiotics and fermented foods18 accounts
22% 22%
- CBT and psychotherapy18 accounts
56% 11%
- NAC and glutathione16 accounts
19% 31%
- Carnitine, BCAA, amino acids14 accounts
29% 14%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
Side effects and harms people mentioned
Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about Diet itself. Read the story before drawing conclusions.
- Refeeding or deficiency problems
A 73-year-old man with long COVID underwent two separate prolonged water-only fasts with medically supervised refeeding at TrueNorth Health Center; the exact number of days and his pre-treatment symptoms are not given in the available summary.
- Refeeding or deficiency problems
Fatigue and brain fog cleared within the first four weeks, though COVID-type symptoms briefly resurfaced on days 6-8 and during each dry-fasting block, and refeeding brought two days of chest inflammation.
- Made symptoms worse
After a severe EBV flare in February 2017 that made cardiac symptoms - low blood pressure, low heart rate, shortness of breath, "heart palpitations like mad" - much worse on top of 5 years of CFS, started Famvir (titrated up to 500mg twice daily), added quarter-tablet Mestinon four times daily, then Celebrex 100mg twice daily.
- Side effects
A roughly two-week trial of the low-calorie "Blood Sugar Diet 800" eliminated this poster's daily afternoon-to-evening energy crashes, letting him "sit up all day," but he had to stop it because it caused increasing weakness - a genuine but unsustainable partial improvement.
- Gut side effects
After many years of severe nausea and "profound debilitating fatigue" that made eating solid food difficult, switched to 3-4 blended protein shakes a day.
- Refeeding or deficiency problems
Within three weeks of refeeding he had regained the weight, and his old headaches returned once he resumed his glutathione and fenbendazole regimen, leaving the benefit only partly sustained.
- Refeeding or deficiency problems
Refeeding after each fast brought more energy for a while and better tolerance of food within 12-24 hours, a pattern that held across repeated attempts.
- Made symptoms worse
She tried amitriptyline, which eventually made things worse, and used the mind-body practice Autogenics alongside Dr Teitelbaum's hormonal protocol.
- Side effects
As of the post she is trying to fix the gastritis rather than abandon the stack, so the functional gain is real but comes bundled with an unresolved, significant side effect.
- Blood count problems
From a worst point of being bedbound 20 hours a day, she says she now manages 12-hour days that include 1-2 hours of brisk walking, and that her pain resolved and anemia improved.
- Side effects
No symptom benefit is reported, only the adverse reaction that ended the attempt.
- Made symptoms worse
Rather than helping, the fast made things worse: fatigue gradually increased, their PEM threshold dropped sharply, and they were left with a small relapse that lasted three days.
- Refeeding or deficiency problems
Results in the doctor's wider group of about ten patients were mixed: one reached almost full recovery but had to refast every three months to sustain it, while another could not tolerate refeeding afterward, vomited everything and required IV fluids in hospital.
All 234 accounts
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Improvement story
Across several posts spanning 2023-2026, Gzephyr describes climbing out of EBV-reactivation-driven CFS using valacyclovir as a base, adding NAC and intermittent fasting, and finally a tonsillectomy in early 2025. He says he went from severe (~8/10 fatigue,…
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Jonathan Groves' Story
Jonathan practiced Ekadashi Upavasa fasting (fasting on the 11th lunar day) combined with autophagy principles, an elimination diet cutting out all processed food, caffeine, sugar and alcohol, the Silva Method, meditation, breathwork, affirmations and…
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Six Things I Did NOT Do to Heal
Credits trauma and somatic work and JournalSpeak. Ariel was ill 2y with severe long COVID and reports a substantial improvement. Rejected diets, supplements and GET; symptoms mostly gone.
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18/6 intermittent fasting has benefitted me greatly (Mary)
After about two months on a 7am to 5pm eating window, this poster reports a noticeably increased energy envelope and stamina, and that her white blood cell count came back normal for the first time in twenty years. She frames it as meaningful but ongoing…
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Some thoughts on exercise and long covid
Credits trauma and somatic work and somatic meditation. Ariel was ill 2y with severe long COVID and is described as fully recovered. Now runs faster than before the illness.
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Relief! I still have CFS but am a MILLION times better
julienl42's own title is his hedge: after 13 years and a long, actively-managed stack of prescription, antifungal, sleep and supplement treatments, he has gone from being in bed all day with 3-4 crashes a month to about one crash every one to two months,…
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Long COVID/ME-CFS Patient Goes from Moderate to Remission After Just 4 Days of a Water Fast
This moderate-bordering-on-severe long-COVID/ME-CFS patient did a 4-day water fast (not fully strict, with broth and some supplements) and reached near-remission afterward. As of the report, the improvement had been maintained for over two months post-fast,…
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166: This Heals Faster Than Any Protocol - Faith Canter
Credits brain retraining. Faith had ME/CFS and is described as fully recovered. Same Faith Canter as the healwithliz story.
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How I got in remission/cured my ME/CFS
Ali_Mardiyev, disabled for 1.5 years with POTS/dysautonomia/severe fatigue/PEM, layered a stellate ganglion block with beta-blocker, a testosterone course, several psychiatric medications, intermittent fasting and a slow graded-exercise ramp starting April…
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18/6 intermittent fasting has benefitted me greatly (Wayne)
Wayne experienced initial worsening when starting intermittent fasting, then gradually extended the window from twelve hours to sixteen or eighteen over roughly a year, reporting significant benefit after about two years. He eventually needed to reintroduce…
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18/6 intermittent fasting has benefitted me greatly (ilivewithcfs)
This poster reports that sixty per cent of his symptoms are gone on an 18/6 intermittent-fasting schedule, after finding a 16/8 window ineffective. He is cautiously optimistic but adds the hedge that things which work initially often stop working with time,…
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Karen Wright's Story
Karen started with a low-histamine diet that brought overnight improvement, then moved to a broader anti-inflammatory diet, alongside pacing, Acceptance and Commitment Therapy through the NHS Long COVID service, breathwork, meditation, yoga, counselling and…
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136: When You See What Your Brain's Doing, It Rewires Faster (Ariel Garten)
Credits neurofeedback. Ariel had ME/CFS and is listed among the recovery accounts. Muse-headband founder/neuroscientist, not confirmed patient.
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Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits diet, boundaries and brain retraining. Elizabeth was ill 3 years with moderate ME/CFS and is described as fully recovered. Likely site owner Liz Carlson; now has 3 kids.
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Long Covid Healing Resources
Followed a 10-point Mayo Clinic-informed protocol: a TruVaga vagus-nerve-stimulation device for 2 minutes three times a day, guanfacine at 0.5mg twice daily (with room to increase to 1mg twice daily), L-arginine 2000mg twice daily, vitamin C 500mg twice…
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My Epstein-Barr Virus Reactivation Story
Elizabeth Rider, a wellness author with reactivated EBV antibodies (over 40 vs. a normal <9), reported feeling better than she had in years after a blood-ozone (major autohemotherapy) treatment, with lauricidin, echinacea and lemon balm credited per the…
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Recovery from Long COVID Shouldn't be This Exhausting
In this post, Zeest Khan describes using a beta-agonist or steroid inhaler along with unspecified pills, injections for allergic triggers, and steroids — no drug names, doses, or durations are given. In 2021 she was bedbound, unable to stand without nearly…
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Hannah Recovers From Post Viral Fatigue Syndrome (Long-Covid?)
Credits brain retraining and diet. Hannah was ill 14mo with severe long COVID and is described as fully recovered. GP labelled it post-viral fatigue; COVID never confirmed.
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Hannah Recovers from Post-Viral Fatigue Syndrome / Long Covid
Credits brain retraining and diet. Hannah was ill 14mo with severe ME/CFS and is described as fully recovered. Architect; COVID never confirmed by test.
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18/6 intermittent fasting has benefitted me greatly
The same EBV-triggered patient at an earlier stage. He started 18/6 intermittent fasting in September 2024 alongside liposomal glutathione, noticing benefit within a week. Self-rated fatigue improved from 7 out of 10 to 5 and brain fog from 8 to 3 or 4, with…
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Chronic Pain Success Story - Andrea's Journey Back to Health
Credits brain retraining, meditation and diet. Andrea was ill 6y with severe ME/CFS and is described as fully recovered. Content confirms ME/CFS; 15% to 100%.
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List of ME/CFS Recovery and Improvement Stories (page 14 discussion)
ixikd2025 credited a broad, kitchen-sink regimen spanning stimulant, mitochondrial, antihistamine/MCAS, and lifestyle interventions (meditation, running, acupuncture) for significant improvement. With so many concurrent changes, no single component could be…
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Buchinger fasting
Ten years into post-infectious ME/CFS so severe that cleaning their flat or studying was "unthinkable," ilivewithcfs ran themself through repeated unsupervised Buchinger-style fasts of about 200-250 kcal/day from juice and broth (later a 2-day prep, 7-day…
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Diet and nutrition pt. 3, the practical part
Credits diet. Nicole had long COVID and is described as fully recovered. Practical application of the dietary approach.
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Low oxalate diet noticeably improved my fatigue and brain fog after 3 days
Hip started a low-oxalate diet plus calcium-with-meals and daily magnesium and reports significant improvement in fatigue, brain fog and mental/anxiety symptoms appearing within just 3 days. He calls the brain fog and "zombie-like mental vagueness" clearly…
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Diet and Long COVID recovery, pt. 2
Credits diet. Nicole had long COVID and is described as fully recovered. Second installment of the diet series.
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Severe ME/CFS 2013, Remission 2017, Relapse, Remission Dec 2022
Treating what she frames as underlying candida/parasite causes with a long, MD/PhD-supervised rotation of antifungals, antiparasitics and herbs, GlacierBloom reached remission by December 2022 after being severe/bedridden from 2013-2017 and again after a…
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How I used diet and nutrition during recovery Pt 1
Credits diet. Nicole had long COVID and is described as fully recovered. Dietary changes as a recovery tool.
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Battling ME/CFS: a decade-long recovery
Credits NLP, EFT and diet. Amir was ill 10y with severe ME/CFS and reports a substantial improvement. Now coaches others professionally.
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Melody's ME/CFS, Fibromyalgia and Long COVID Recovery Story
Melody was infected early in the pandemic, hospitalised with double pneumonia, then bedbound for six months and homebound on supplemental oxygen for two and a half years despite thirteen prescription drugs and multiple specialists. She credits a combination…
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An overview of my recovery from Long Covid
Credits brain retraining, diet, vagus nerve stimulation and pacing. Nicole had long COVID and is described as fully recovered. Foundational recovery-overview post.
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Jennifer's Story
Jennifer followed an anti-inflammatory diet based on Andrew Weil and Patrick Holford's principles, alongside regular massage therapy, acupuncture, deep relaxation and meditation practices, and a custom-designed graded walk-training program, after early…
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My long covid recovery recap: the timeline and tools
Ariel Conn's recovery centered on mind-body approaches: Claritin as one of only two things that helped in her first 18 months, then somatic meditations, Nicole Sachs' JournalSpeak journaling method starting December 2021, somatic and Internal Family Systems…
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Candida disappearing with Calcium
Calcium citrate initially replicated Hoosierfans' success, stopping his routine sore throat and improving sleep and gut motility. After adding NAC for three months he developed foot pain and agitation, then histamine-type reactions to the calcium itself…
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Relief of Symptoms Associated with Long COVID After Prolonged Water-Only Fasting: A Case Report
A 73-year-old man with long COVID underwent two separate prolonged water-only fasts with medically supervised refeeding at TrueNorth Health Center; the exact number of days and his pre-treatment symptoms are not given in the available summary. He is reported…
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Erfolgsgeschichte von Serafina, 33, Schweiz (Long Covid)
Credits brain retraining, diet and pacing. Serafina was ill 2.5y with very-severe long COVID and reports a substantial improvement. Bed-to-sofa only; now hikes and hits 15k steps a day.
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Candida Disappearing with Calcium
After 17 years of chronic oral thrush resistant to multiple antifungals including nine months of Lamisil, she started calcium citrate 500mg twice daily (later reduced to 250mg twice daily) in October 2023. Her thrush is "practically GONE," with no die-off…
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Efthymios's Artificial Intelligence-Aided ME/CFS Recovery Story
Efthymios became ill in 1999 after stopping a medication and had full-blown ME/CFS by 2004, functioning at about four out of ten. From late 2012 he logged his symptoms, diet and supplements for 434 days and used machine-learning analysis of his own data to…
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Several long-COVID patients report improvements from antihistamines (Emeline)
Trialed loratadine 10mg twice daily plus famotidine 40mg once daily over a 34-day self-trial, more than four years into her illness; she initially dosed in the morning, then moved the famotidine to the evening after two weeks, which subjectively felt like a…
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Several long-COVID patients report improvements from antihistamines (Rich D)
Tried Singulair (montelukast), which produced significant, though not huge, improvement within about a week, while Pepcid (famotidine) and Zyrtec (cetirizine) had no effect for them. They suggest antihistamines are most useful for long-COVID patients who…
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Several long-COVID patients report improvements from antihistamines
Takes cetirizine nightly (dose not specified) since 2021, along with probiotics, for long-COVID symptoms. They describe the antihistamine as the only thing that quiets what they call a constant cytokine-storm reaction, and say it has also calmed…
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Ten Months of Long COVID
Marie Sanchez Nelson describes taking cetirizine, an antihistamine that calms her nervous system "in minutes," and had started nattokinase just three days before this post, which she hypothesizes may help repair blood vessels; no doses or durations are given…
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Amber's Long MCAS, POTS, MCS, ME/CFS Recovery Story
Amber had digestive and allergy problems since childhood that became severe MCAS, POTS, MCS and ME/CFS after a marathon at thirty and a bad flu-shot reaction at thirty-one, leaving her homebound and fainting daily despite seeing more than a hundred doctors.…
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My gigantic story going back to 1996, treatment plan included
Five days into a thiamine/magnesium/potassium-focused protocol after nearly three decades of worsening illness, TexRob reports restored temperature regulation, normalized sweating, resumed GI and urinary function, and reduced brain fog/neuropathic pain,…
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My gigantic story going back to 1996 (YippeeKi YOW)
YippeeKi YOW, bedbound and semi-vegetative for over five years and previously suicidal, says magnesium, potassium gluconate, B-complex, electrolytes, ginger, cinnamon and desiccated liver in tea has partly helped, reached only by adding each in tiny,…
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An ME/CFS Expert Helps a Long-COVID Patient Recover
A nineteen-year-old developed POTS and mast cell symptoms after a mild PCR-confirmed COVID infection, leaving him with a wellness score of 45 out of 100 and out of in-person classes for about fifteen months. Under Dr Peter Rowe at Johns Hopkins he was…
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Michelle
Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…
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Charlotte's ME/CFS Story
Credits diet, functional medicine and pacing. Charlotte was ill 17y with very-severe ME/CFS and reports a partial improvement. Functional medicine and antimicrobials; still not fully well.
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Lucie's Surprisingly Simple Road to Recovery
Lucie had ME/CFS for over a decade, ill enough to cut back to part-time work and give up cycling. Under Dr Rowe's care she combined naproxen taken with salt water, compression stockings and pacing. She reports full recovery with no restrictions, while noting…
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Chronic Fatigue Syndrome: one woman's story of recovery
Credits CBT or psychological work, diet, somatic and breathwork. Anaya was ill 2.5y with severe ME/CFS and is described as fully recovered. Mindset shift and somatic breathwork; ran 42km ultra days later.
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Lucie's Surprisingly Simple Chronic Fatigue Syndrome Recovery Story
Lucie became ill with relatively mild but disabling ME/CFS around 2011, unable to exercise and with her work and social life sharply curtailed. Following pacing advice and an orthostatic-intolerance protocol of high salt and 2.5 litres of water daily, she…
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Carnivore Diet Reduces Bloating
GreenEdge, who had spent the prior 2 years of a 26-year illness increasingly bed-bound, felt "totally normal" after 6 months on a carnivore diet, with better eyesight, brain function, sleep and muscle function, and managed significant physical projects…
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Healing from Long Covid with water fasting
Eleven months into Long COVID with chest pain, breathlessness, anxiety and depression, Luke did a 28-day water-only fast built around three short dry-fasting stretches of 36, 60 and 84 hours roughly a week apart. Fatigue and brain fog cleared within the…
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Healing from Long Covid with water fasting
About a month after a severe bout of COVID that left her hypoxic (93% oxygen saturation), with high blood pressure, fatty liver and high insulin, Michelle began a water fast intended to run 21 days, with some dry-fasting stretches, under a coach's guidance.…
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Full remission after 7 years of ME/CFS - What worked for me
Followed the Golder Autoimmune Protocol for about three months (roughly 3 liters of water and 650g of raw cruciferous and leafy greens daily, plus chia or flax seed, iodine and B12, on about 1500 calories a day), then added low-dose Abilify at 0.75mg daily…
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Amy Engkjer
She combined a concussion protocol (limiting phone use and conversation), neurofeedback, a five-hour NLP (Neuro Linguistic Programming) session, EMDR, physical therapy, shiatsu, daily cold showers, an anti-inflammatory diet, meditation, and journaling,…
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Substantial improvement with strange dietary adjustments
Wonkmonk built a highly specific elimination/adjustment diet after years of downhill CFS. He says he moved from borderline "very severe" to the lower end of "severe" - pain almost gone, able to get up, cook, and walk a few miles - and calls it "very…
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Overcoming long Covid by fasting
Michel Falck, a 60-year-old wine dealer from Strasbourg, had lost his sense of taste and smell, could not concentrate enough to read, had not been able to play piano and struggled with language for two and a half months after a COVID infection. At the…
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Sarah's Story
Sarah tried an extensive list of treatments without full success: many hyperbaric oxygen sessions (costing "thousands" and giving only temporary relief before triggering relapses), acupuncture, kinesiology, diet changes, breathing exercises with osteopaths,…
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Alternative health and mind/body treatments return former aerobics instructor to health
Jodi, a London aerobics instructor, became bedbound with ME/CFS after glandular fever while overworked and stressed. Over several years she improved using kinesiology, acupuncture, reiki, dietary changes, mantras and sound healing, crediting the process…
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Fermented Foods Heal Louis's Gut and Health
Louis had 14 years of ill health with severe gut pain, occasional bleeding and fatigue, though he was never formally diagnosed with ME/CFS and kept working full-time. Multiple doctors could not resolve it. Drinking kefir and adopting intermittent fasting…
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Different recovery stories
Recovered from severe, 6-8-years-mostly-bedridden ME/CFS (out of a 44-year illness history) to "mostly mild" through diet changes, gut treatment, and what they describe only as "a ton of supplements," with no specific doses given. The improvement is…
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Some Patients Are Reporting Recovery from Long COVID (Sherri)
Sherri Klipowicz used a plant-heavy, low-gluten, low-dairy diet, restorative yoga, magnesium and glutathione supplements, and ozone therapy, and worked with an insomnia specialist to fix her sleep. She had been sick with Long COVID since March 2020, and…
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REMISSION! (suspected enterovirus, Dr. Chia treating)
Under Dr. Chia's care for suspected enterovirus, .jm. built up to running 40 miles/week by an April 2021 update (up from an initial "REMISSION!" post 18 months earlier), with insomnia and Raynaud's resolved, while tapering oxymatrine down to a maintenance…
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Recovery stories: parasites cleanse
In 2006, took Paragone (an herbal antiparasitic supplement) for a couple of months alongside a very-low-carb diet, and reports it "cut the brain fog I'd grown up with by about 70%." Explicit that this did not touch the underlying ME/CFS, which they attribute…
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From 5 minute walks to a marathon comeback: Chris' CFS recovery story
Credits diet, meditation and cold water. Chris was ill 4y with moderate ME/CFS and reports a substantial improvement. Teacher, 30% functional; Ayurvedic diet, cold water; ran a marathon.
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List of ME/CFS Recovery and Improvement Stories (page 9 discussion)
Woof! moved from severe to moderate ME/CFS through strict avoidance of a long, specific list of dietary and environmental triggers rather than any single drug or supplement. No further detail on duration of illness or long-term durability beyond the…
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List of ME/CFS Recovery and Improvement Stories (page 7-9 discussion)
BrightCandle went from a self-rated 5% to 60% function (roughly severe to mild) within 25 days of starting "Joshua's HASD protocol v3.2," and in a later update reported reaching 80-85% on the Hummingbird scale, able to do 1.5 hours of resistance training and…
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List of ME/CFS Recovery and Improvement Stories (page 6 discussion)
msf went from mostly housebound to functionally healthy - full-time work, a social life and strenuous exercise with minimal PEM - crediting a combination of KDM-directed treatments, trazodone, a low-FODMAP diet, ALA and Chinese skullcap. No single component…
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Colin's recovery from long-term ME/CFS and MCS using the ANS REWIRE program
Credits brain retraining and diet. Colin was ill 17y with severe ME/CFS and is described as fully recovered. Chicago; now cycles 10-15 miles daily after neural retraining.
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CBT for CFS: Luke Shares His Experience and Recovery
Luke combined self-directed CBT (working through his own negative thought patterns rather than with a therapist) with a methylation protocol developed by Rich Von Konynenburg (B vitamins plus folic acid), guidance from two books -- Kristina Downing-Orr's…
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Preliminary result of furthered improvement obviously leading to health
Following years of self-experimentation with a low-manganese diet plus microdosed vitamins and minerals, percyval577 describes a "rather wonderful summer" (May-September 2020) of being consistently active, calling it tentatively "a cure...though complex." By…
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3-month IVIG experience
Did two years of IVIG (July 2016 to July 2018) at 82g per infusion cycle, run at a very slow infusion speed of 40 ("but it was the fastest that I could tolerate"), for autoimmunity, MCAS and dysautonomia that included years of muscle weakness and breathing…
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The best thing I have done is to say: no way will I accept my daughter will suffer
Aftur, the then-14-year-old daughter in this account, had four weeks of intravenous antibiotics, a biopath-prescribed supplement regimen taken three to four times daily, a strict no-sugar, no-carbohydrate diet, and acupuncture, before doing a 3-day Lightning…
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ME/CFS Patient Goes into Remission After Taking Elixir of Youth (GDF11)
beatsmyth, bedbound for a decade with CFS/fibromyalgia, had already improved his gut and skin issues on an 8-month antibiotic protocol before adding BPC-157 and LL-37 peptides for three months, which he called "absolutely miraculous": remaining stomach…
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Good reaction to Cellfood - may be oxygenating the body, helping immune system, apparently boosted thyroid, now helping stroke patient
Tried Cellfood mineral/enzyme drops after 22 years of ME/CFS marked by recurrent weeks-long sinus infections, starting at 4-5 drops a day and working up over about six weeks to 8-10 drops three times daily. Reports a sinus infection clearing within three…
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Adrienne Dellwo Shares Her Fibromyalgia Remission Story
Adrienne Dellwo's regimen included low-dose naltrexone at 3mg (compounded, versus a standard 30mg dose per the article), plus rhodiola rosea, L-theanine, vitamin B and D, a custom herbal blend and acupuncture from her rheumatologist, meditation, yoga, a…
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The Temporary Recovery Stories (Yvonne)
Commenter Yvonne credited the probiotic VSL#3 along with anti-candida supplements with a substantial recovery, preceded by the same characteristic draining sensation other commenters described. Unlike most cases in this post she reports maintaining…
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The Temporary Recovery Stories (Michael)
Commenter Michael credited the allergy drug Singulair, taken for post-nasal drip, with months of improvement that let him sleep, exercise and do cognitive training. No further detail on illness duration or on what happened after he stopped is given.
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A Nurse With ME/CFS Finds Help in a Surprising Place: Christine's DNRS Recovery Story
Christine Reesor, a registered nurse, was severely ill for about fifteen years, the last four the most severe, becoming wheelchair-bound and hypersensitive to light and sound. A fecal transplant, acupuncture and diet changes gave only partial help. She…
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How fast does improvement take on Immunoglobulin?
On Hizentra subcutaneous immunoglobulin, "saw improvements... in the first couple of months" and says it "definitely helped me" across multiple symptoms, and credits it with preventing further deterioration. Still describes her overall status as "severe/very…
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3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast
Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…
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Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness
Credits diet, chiropractic and IV therapy. Kiki was ill 10y with severe ME/CFS and is described as fully recovered. Jugular venoplasty surgery plus NUCCA chiropractic.
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Sirin Gnadeberg Shares How She Cured Her ME/CFS and POTS
Sirin Gnadeberg added salt to her drinking water starting in April 2016, which significantly improved her POTS symptoms, then took 16 weeks of antibiotics after a Lyme specialist found elevated antibodies to Bartonella, Chlamydia and Mycoplasma (despite…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Remission success. How?
Underwent a roughly three-week Ayurvedic panchakarma detox program (escalating ghee oleation, steam, purgation, deep-tissue massage, nasyam, herbal medicines) at a Kerala clinic after about 7 years of ME/CFS. Two days after finishing, reported riding a…
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Mollie recovers rapidly after 4.5 years of MECFS and POTS
Credits brain retraining and diet. Mollie was ill 4.5y with very-severe ME/CFS and is described as fully recovered. Psychotherapist; same testimonial also on ansrewire.com.
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How I put ME/CFS into remission....& even better
Cleared gut dysbiosis with antibiotics, then underwent 9-12 encapsulated FMT infusions from his daughter over two months alongside a strict prebiotic diet. Initially estimated "around 65-70% recovered," then reports surpassing his pre-illness baseline --…
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Treatments that have worked??
Two weeks into a strict ketogenic diet after 5.5 years of worsening, housebound ME, describes being "currently near remission." He flags it himself as "very early days" and points to a separate thread for details rather than declaring it settled -- a…
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First time in remission with ketogenic diet
After 10 months on a ketogenic diet, reports a "much better state of health" than on a prior Paleo diet, with less PEM, no air hunger, and better coordination and balance. Describes about 10% more energy overall, with the gain holding rather than fading over…
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First time in remission with ketogenic diet
On a ketogenic diet, reports no longer being housebound "after many years" of ME/CFS, though it "took me a lot longer to see results" than other posters in the same thread. Exact dose and duration weren't given, but the improvement is described as…
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First time in remission with ketogenic diet
After more than a year on a ketogenic diet, reports a "very significant improvement" in ME/CFS symptoms: reduced PEM, eliminated air hunger, better coordination and balance, and about 10% more energy and mental clarity. Notes the benefit "tailed off a…
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First time in remission with ketogenic diet
Adopted a strict ketogenic diet after 5.5 years of moderate ME/CFS with escalating weekly crashes: a 48-hour initial fast, under 25g net carbs a day, roughly 75/20/5 fat/protein/carb macros, electrolyte and baking-soda supplementation, and blood monitoring…
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Treatments that have worked??
One to two weeks into a strict Fuhrman-style whole-food plant-based diet plus L-tyrosine, B12 and chlorella, reports sleeping well and exercising daily with "NO PEM, none whatsoever," resuming running and gaining muscle after years of losing it despite…
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Charcoal increased my energy immediately - what does this mean?
Taking 2.5g of activated charcoal daily for a few months to bind gut-derived lipopolysaccharide, he reports "very fast improvement" when he first started and continued slow improvement months later, describing the gain as sustained with ongoing use rather…
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Does Valtrex work this fast?
On Valtrex for comorbid ME/CFS and POTS (dose not given), took about five weeks to see the major effect: crashes became "less severe and did not last long," she was "waking up refreshed," and her POTS "resolved" by the five-week mark. Trajectory beyond that…
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Does Valtrex work this fast?
On Valtrex 1000mg once daily, with high EBV titres, went from six 30-minute naps a day to "one 20 minute nap a day" within three days, with enough energy to "actually do a load of laundry." The first four-month course faded after about five months; on…
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Does Valtrex work this fast?
Only three days into Valtrex 500mg twice daily, reports "I noticed some improvements": neck spasms "milder," neck lymph channels "congested less," and air hunger "less severe and less frequent." Explicitly early and hedged - the thread title itself questions…
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Huge energy today with Grapefruit and Ubiquinol (Coenzyme Q10). We'll see about tomorrow.
Adding fresh grapefruit around ubiquinol 300mg twice daily was followed within days by being able to run errands to two stores in a morning, do housework, and raise treadmill tolerance from 2.8mph/10min to 3.0mph in 30-minute increments, after about a decade…
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KDM - success of fixing the gut
After five years on an unspecified KDM protocol, with some admitted dietary non-adherence, she reports her own leaky gut "is still severe." She knows one other patient whose leaky gut normalized on the same protocol but describes no meaningful improvement in…
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Mestinon + Famvir - whoa!
After a severe EBV flare in February 2017 that made cardiac symptoms - low blood pressure, low heart rate, shortness of breath, "heart palpitations like mad" - much worse on top of 5 years of CFS, started Famvir (titrated up to 500mg twice daily), added…
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Gaps diet put me in direction to recovery
After repeated antibiotic courses over the years triggered his illness, he adopted a GAPS-like diet along with herbs for dysbiosis and probiotics, describing himself as "making good progress" in his recovery without claiming it complete.
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Gaps diet put me in direction to recovery
Adopted the GAPS diet, cutting gluten and dairy, alongside detox and methylation-support corrections. Her nervous system calmed by about 50% within five days of starting, and after five years on the approach "all the noxious symptoms have mostly gone,"…
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Gaps diet put me in direction to recovery
Diagnosed with ME/CFS and fibromyalgia and bedbound by April 2012, she began the GAPS introduction diet with VSL#3 probiotic, enemas, CoQ10, B12 and vitamin C. Within two weeks she started improving slowly, and over roughly two years on the diet she went…
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Gaps diet put me in direction to recovery
After ME/CFS following a Levaquin reaction, started the GAPS elimination diet plus VSL#3 probiotic while mostly bedbound and began "improving slowly but surely" within two weeks. Reached part-time work by two years in, and by five years post-diet was "much…
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M.E., My Mold, and I: A Story of ME/CFS and Toxic Mold
Over nearly seven years of ME/CFS beginning in late summer 2010, she tried pacing with a heart-rate monitor and many supplements, including herbal antivirals, for about a year, then added neurotransmitter support (dopamine, GABA), an ATP Fuel supplement,…
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2 days happiness so far with gut
After peppermint oil failed to help, she tried chewable colostrum for two days and reports her stomach is "much better," with constipation problems seeming to have vanished so far. She also mentions an "oxalate dump" complicating the picture but says she…
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Objective CPET improvement & remission on ketogenic diet
A roughly two-week trial of the low-calorie "Blood Sugar Diet 800" eliminated this poster's daily afternoon-to-evening energy crashes, letting him "sit up all day," but he had to stop it because it caused increasing weakness - a genuine but unsustainable…
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Objective CPET improvement & remission on ketogenic diet
Unable to tolerate a full ketogenic diet, this poster followed a looser low-carb, high-fat approach alongside antibiotic herbs and a course of Rifaximin, reporting energy "way up" and PEM "very much improved." Presented as a straightforward success with no…
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Objective CPET improvement & remission on ketogenic diet
Twenty-one years into ME/CFS and on a slow decline, this poster switched to a strict ketogenic diet in October 2016 and six months later reports reactive hypoglycemia, disabling migraines and insomnia resolved, and he can sit upright all day without…
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My success story. Tons of biotin.
At his lowest, BiotinJunkie says he was "really planning on suicide" before finding that extremely frequent high-dose sublingual biotin, combined with a restrictive diet, gave him stable energy and mental clarity without carbohydrate dependency. He describes…
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Traditional Chinese Medicine Works
After 3.5 years of ME/CFS with respiratory symptoms severe enough that working required "extreme effort," did six months of Traditional Chinese Medicine -- acupuncture plus herbal tea and dietary changes. Reports being able to "breathe freely for the first…
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Incredible improvements with Helminthic Therapy
Used helminthic therapy with Necator americanus hookworms, starting at 5 organisms and increasing to 30 over more than nine months, alongside an autoimmune-protocol diet and Freddd's methylation supplement regimen. Reports going from bed/couch-bound to "an…
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Nutrients from food, paleo 'cheats'. Working for me, at last!!
Reports "good improvement over the past few years" after making large changes to diet, including a nutrient-rich eating pattern, vegetable juices and higher-quality supplements. States explicitly that she is not fully cured; specific supplements and doses…
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Nutrients from food, paleo 'cheats'. Working for me, at last!!
After 5 years of illness, switched to a modified paleo, nutrient-dense whole-food diet and says most of the improvement came from these dietary changes, putting them "way closer to living a normal life." Explicitly says "I'm not cured," and notes symptoms…
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The Flu That Never Ends Finally Does for Heather
After four years of cognitive trouble, digestive problems, body aches and severe fatigue that diet, yoga, acupuncture, chelation and blood irradiation had not touched, Heather was prescribed Valtrex by Dr. Lerner in 2010. By 2012 she reported being fully…
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How I recovered.
Combined a multi-part protocol -- twelve $325 Oxford "homeostasis" peptide shots starting September 2013, a rotary diversified (Theron Randolph) elimination diet, vitamin D, low-dose naltrexone, Remeron, the Gupta amygdala-retraining program, and removing…
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9 Years With ME - Finally Transformed Against All Odds
Credits pacing, diet, CBT or psychological work and sleep hygiene. James was ill 9y with severe ME/CFS and is described as fully recovered. Multilateral lifestyle overhaul: sleep, diet, posture, mindset.
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Liquid Protein Diet = Big Help With Energy + Digestion + Nausea
After many years of severe nausea and "profound debilitating fatigue" that made eating solid food difficult, switched to 3-4 blended protein shakes a day. Reports feeling "much better," an easier time absorbing nutrition, some energy returning, and less…
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The Master Cleanse
Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…
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Monet finds relief from mind/body practices plus homeopathy
Monet developed ME/CFS and fibromyalgia after a reaction to a vaccination, becoming wheelchair-bound within nine months and mostly bedbound for over a decade. She pursued homeopathy, dietary change, herbal supplements and extensive spiritual and…
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Listen to M.E. Part II: Mike Dessin Goes Down Again - A CFS/ME Relapse Story
Mike Dessin had been severely ill for about fifteen years, including a three-year completely bedridden stint so severe his doctor was amazed he was alive, before recovering over about five months through acupuncture, neural therapy and pleo homeopathics.…
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Beat Candida Diet Beats Christine's 10 Year Bout with ME/CFS
Christine suffered years of severe ME/CFS exhaustion and depression after a gradual onset in the early 1990s, at her lowest slumped in a chair with little interest in life. Under a nutritional therapist's guidance she followed a four-week anti-candida…
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Nutritional Genomics and My Complete Recovery
P5P (vitamin B6) was taken occasionally and in low amounts, specifically when lower-back pain or depression flared, as one part of a broader nutritional-genomics-guided supplement stack that also included biotin 5,000mcg two to three times daily, magnesium…
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Possible CFS success story. Got much better after 4-5 years. Here's what has helped.
Never formally diagnosed but self-describing as a mild case, this poster went from an estimated 20% to 70-90% of normal functioning over 4-5 years on a large stack (St. John's Wort, 15g/day D-ribose, melatonin/Seriphos, acetyl-L-carnitine, fish oil) plus a…
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Did Probiotics Cure My Chronic Fatigue Syndrome?
Carol Wolf, who had an autoimmune disease diagnosed in childhood, had been bedridden at times and on eight prescription medications, with MRI evidence of brain lesions, before losing her job to illness. She credits four high-quality probiotics totalling…
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Katie Shares How She Broke the MECFS Relapse Cycle
Credits CBT or psychological work, diet and trauma and somatic work. Katie was ill 8y with moderate ME/CFS and is described as fully recovered. Mindset shift, dropped perfectionism, protein-focused diet.
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A Story of Survival: How Diet Saved a Chronic Fatigue Syndrome (ME/CFS) Patient's Life
Naomi narrowed her diet to ten foods she did not react to and stayed on that restricted diet for five years, alongside deliberate stress reduction and faith practice, a later shift to organic food, and unspecified herbs and vitamins. Her pain and migraines…
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Low Glycemic Diet Eventually Does it For Former Runner
Chris, a competitive runner, became severely ill after a trip abroad and a flu-like illness in 1977 and was eventually reduced to part-time work. Over about twelve years on a low-glycemic diet with sugar eliminated, he reached what he calls 99% cured and…
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Emotional Healing Key for Fibromyalgia Patient
Beth was diagnosed with fibromyalgia in 1987 and was mostly bedbound for close to a decade with severe fatigue, back pain, migraines and insomnia. She pursued Bach Flower Remedies, a candida diet, chiropractic, massage and Reiki alongside addressing…
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Fasting
ChickenBear tried a 3-day modified cleanse of coconut oil and bone broth rather than a strict water fast. It went badly: they developed hair loss, acne and digestive problems and said they felt "like death" afterward, attributing the crash to adrenal and…
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Fasting
ahmo did a 3-day water fast earlier in the year and found it "very helpful for histamines in particular." They subsequently shifted to an alternate-day fasting pattern of roughly 400 calories on fasting days, reporting their body responded well to that…
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Fasting
sillysocks84 did four or five separate 36-to-48-hour water fasts, working toward a full 72 hours, typically getting dizzy on day two and drinking large amounts of water to cope. Refeeding after each fast brought more energy for a while and better tolerance…
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My Full Recovery By TCM + TCM issues Q&A
After about a year of conventional treatment failed to help CFS-like symptoms (rashes, fatigue, 2-3 hours of sleep a night, photosensitivity, unable to attend school), tried Traditional Chinese Medicine -- herbal formulas and diet changes -- switching…
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Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (Sandrine)
Commenting on this inquiry post, Sandrine described about two years of severe fibromyalgia so bad she was once unable to brush her teeth and would scream from pain. She credits essential oils taken internally and topically, liposomal vitamin C, MSM, olive…
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My CFS Recovery
Jocelyn became severely ill with CFS more than 25 years before writing, at one point nearly bedridden for over a year with fatigue, muscle and joint aches, brain fog and near-fainting. Intravenous vitamin therapy and dietary change first let her work and…
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Maureen's gradual onset - and her gradual recovery
Maureen developed ME/CFS at 35, waking one day unable to get out of bed with profound exhaustion, followed by recurring exhaustion, rashes, painful joints, constant colds and insomnia. She used Dr Teitelbaum's integrated protocol of diet, vitamins, herbs and…
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Hitting Rock Bottom Leads To Turnaround for Dan
Dan developed ME/CFS after a chickenpox vaccination during an intensely stressful period, and over six and a half mostly homebound years suffered extreme fatigue, bouts of fever, cardiac issues and brain fog. He attributes his recovery to addressing…
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Diet makes the biggest difference for Alexandra
Alexandra, a 26-year-old nurse when she first fell ill after flu, recovered initially but then relapsed severely for seven years, becoming mostly home- and bed-bound. She tried amitriptyline, which eventually made things worse, and used the mind-body…
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From the Bedside to the Outdoors: Green Girl Goes Green Again
An outdoorsy environmental scientist who blogs as Green Girl contracted Ross River virus in 2009 and relapsed severely in 2010, becoming mostly bedbound with fatigue and brain fog so severe she could only read small amounts. She used pacing, graded exercise,…
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how did you get out of "bedridden level" ??(even if you are still sick)
After roughly two years bedridden, this poster gradually stayed out of bed longer using a very restrictive diet, mineral/amino-acid supplementation and lifestyle changes, with hydrocortisone accelerating progress further; she notes in hindsight she hadn't…
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Diet, Supplements and Pacing Work for Professional Footballer
This page again profiles footballer Alastair Lynch, who developed ME/CFS following a car crash and a family bereavement. His recovery involved strict dietary changes, nutritional and antioxidant supplementation and a doctor-supervised paced exercise program.…
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Spiritual Experience Changes Matt's Life
Matt developed chronic fatigue syndrome after a viral illness in the mid-1990s and by 1998 was severely disabled with fatigue, dizziness, breathing difficulty, muscle pain, night sweats and brain fog that forced him to stop working. He states supplements and…
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Yoga Slowly Coaxes Fiona Back to Health
Fiona, a PR executive, developed ME/CFS in the early 1990s after stress, poor diet and flu, and by 1992 was wheelchair-bound, too tired to hold a conversation and having panic attacks. Gentle yoga focused on relaxation and breathing, meditation and a…
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High Protein, High Fat, Low Carb Diet Makes it for Mike
Mike developed a sudden onset of ME/CFS after losing his job and then his home, becoming depressed while eating mostly junk food. He credits a switch to a high-protein, high-fat, low-carbohydrate diet based on Dr Wolfgang Lutz's approach with restoring both…
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"Clean Energy": Can a Ketogenic Diet Help with ME/CFS and Fibromyalgia?
First diagnosed with ME/CFS as a teenager in 1998 and later in remission, Dr. Courtney Craig relapsed into crushing fatigue, disturbed sleep and muscle weakness. She shifted to a ketogenic diet, getting roughly 80% of calories from fat and monitoring ketosis…
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Multidimensional program is the ticket for Michelle
Tai chi and qigong practice, described as vital for immune function, balance and heart functioning, was one element of a long-term multidimensional program that also included an elimination diet (no dairy, most grains, fermented foods, alcohol, MSG, sugar or…
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Mickel Therapy Turns the Corner for Experienced Mind/Body Practitioner
Susie, herself a trained mind-body practitioner, became severely ill in 1991 with energy near zero plus severe pain, having already tried homeopathy, visualisation, acupuncture and CBT without success. About 24 years later she credits Mickel Therapy, built…
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Jess Goes Raw - and Beats ME/CFS
Jess became ill with fatigue and brain fog at university, and after noticing raw foods made her feel better she gradually shifted to a largely raw diet while cutting processed foods and swapping chemical household products for natural ones. Visualisation…
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20 Years of Fibromyalgia, CFS, PTSD, Depression End
Credits mindset book, EFT tapping and diet. Leah was ill 20y with severe ME/CFS and is described as fully recovered. EFT, anti-inflammatory diet, lost 70lb.
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On the Path: Dan Moricoli's Remarkable Chronic Fatigue Syndrome Recovery Story
Dan Moricoli, 71 at the time, had been severely ill since May 2006, at his worst largely housebound with myoclonic seizures, speech difficulty and comatose-like crashes lasting hours. He credits a carefully graded, heart-rate-based exercise program built…
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Professional Footballer Recovers Health
Alastair Lynch, a professional Australian footballer, had his career threatened by chronic fatigue syndrome for years. He made strict dietary changes, added nutritional and antioxidant supplementation and used a paced exercise program supervised by his…
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Monique finds her rocket fuel
Monique, previously athletic, developed ME/CFS after flu and worsened dramatically after her father's death, by 2004 hardly able to walk and fearing a wheelchair. She pursued an orthomolecular approach, describing two supplements as like rocket fuel,…
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Mickel Therapy Does it For Mandi
Mandi went from an active woman holding two jobs to someone so severely fatigued and depressed she could not get out of bed, with repeated relapses including a three-month relapse in 2004 that forced her to stop working. Mickel Therapy brought rapid change:…
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Combination of Supplements Allows Me to Work and Exercise - But causes extreme Gastritis
Built a roughly 60-item daily supplement stack (B12, NADH, high-dose antioxidants/glutathione, SAM-e, CoQ10, glandulars, ribose, phosphatidylserine and more) over three-plus years of trial and error for CFS, fibromyalgia and Hashimoto's. Says the combination…
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what has worked for you
After 30 years of illness and no luck with supplements or medications, she finds a dairy-free Primal diet keeps her feeling noticeably better, but the effect is strictly diet-contingent - "every time I go back on carbs I feel worse" - so it functions as…
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what has worked for you
Combined a gluten-free, dairy-free paleo diet with Nystatin, an S. boulardii probiotic, a Freddd-style methylation protocol, coffee enemas and gentle 30-minute cold-water swims. She reports these "have helped" enough that she is now "able to work part time…
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A Proven Treatment-Cure for Chronic Epstein Barr Virus
After 19 years of illness including multiple chronic infections, Abdulrahman self-designed an antibiotic course for mycoplasma followed by a supplement-heavy antiviral protocol for EBV, and reports being "95% cured for 2.5 years," functioning better than the…
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Dr. Myhill- outcomes of treatment -good,bad,indifferent (poll)
Following Cordain-style paleo and an elimination diet for food/chemical intolerances (not directly treated by Dr Myhill, but using similar functional-medicine dietary logic), she reports staged symptom resolution over years - buzzing sensations stopped…
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has anyone really benefited ie cured by exercise?
After about ten years of inactivity, this poster describes over three years of gradual improvement - built on diet and supplementation before any exercise was attempted - giving him "glimpses of normal activity." He's clear his body "still does not react…
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Feeling much better avoiding certain foods
After recently cutting out meat and eating mostly vegetables, he reports being able to exercise "with no PEM the next day" - notable since post-exertional malaise is usually the limiting ME/CFS symptom. He is cautious about the finding, saying "I haven't yet…
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The Woman Who Healed Chronic Fatigue Syndrome Naturally
Edie used a wide-ranging natural protocol: topical arnica gel, papaya and devil's claw for inflammation, Cell Food (a liquid oxygen supplement), homeopathic thyroid, adrenal, hypothalamus and pituitary remedies, spirulina, herbal melatonin and 5-HTP for…
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Diet and improvement
Followed a strict "Practical Paleo"-book diet for 30 days, then eased off slightly, over about two months total. She reports "significant improvement" - much more energy, headaches and dizziness gone, and anxiety gone (though she notes that "could be from…
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Diet and improvement
Switched to a strict paleo diet and within two weeks felt an "immediate improvement" strong enough that he thought he "would be cured soon" if it kept up at that rate. It didn't: he reports the improvement "has not continued in this fashion," describing the…
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Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds
After lifelong gastrointestinal problems, she spent about a year working up to a full dose of a Metafolin-containing B-complex alongside a gluten-free diet. She reports "doing a lot better now," with normal T3 thyroid levels "for the first time ever" and…
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Anyone have any success with GAPS?
After 12 years of CFS/Lyme, he combined GAPS with bone broth, high-dose probiotics, yogurt, kefir, coconut oil, glutamine and cod liver oil, reporting "significant improvement" after just one week. He cautions that one week is "too early to claim a…
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Anyone have any success with GAPS?
After 12 years of CFS, six months on the GAPS diet "definitely lifted" his general health and "improved my cognition greatly," to the point he could take up artistic pursuits again. Starting Lyme antibiotics about six months after beginning GAPS "set him…
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Anyone have any success with GAPS?
Just starting the GAPS diet, she reports stomach upset from the bone broth and says she is sure she won't be able to follow the diet "to the fullest," taking breaks and discontinuing the full protocol. No benefit is reported.
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Anyone have any success with GAPS?
After 3.5 years of severe ME, she combined a GAPS/Paleo hybrid diet with aloe vera, glutamine, bone broth, juicing, liver-detox herbs and probiotics. She estimates the diet alone took her from "10% with pain to 40% with no pain," describing it as ongoing,…
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CBS success!
Seven years into ME/CFS with post-exertional fatigue and cognitive dysfunction, she used a CBS-mutation-targeted protocol of activated charcoal, magnesium, molybdenum, manganese and sulfur-food restriction. Cognition "started to clear" within hours of her…
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Simple diet restriction seems to be a successful treatment for sleep disturbance
After 5 years of illness, restricted eating to two meals a day with nothing after 6pm, combined with a gluten-, lactose-, whey- and casein-free bland diet on distilled water only. He says it "makes an incredible difference" for his sleep disturbance, calling…
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My Story - Dan Neuffer's ME/CFS Fibromyalgia POTS Recovery
Dan Neuffer's page gives only general categories of treatment rather than specific drugs or doses: he says he "healed my gut and changed my diet" under a doctor's guidance, used unnamed supplements to support metabolism, detoxification and oxidative stress,…
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NAC helped me sleep?
Started NAC 600mg (alongside B6 begun about a week earlier and eating onions) and got 6-7 hours of straight sleep for three nights running, with 8+ hour totals, less nighttime urination, and an "almost refreshing" quality to the sleep. He flags several…
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Cheap recovery plan
Combined the Klinghardt parasite protocol, auto-urine therapy, fresh garlic juice with tomato juice twice daily, a homemade MAF-style raw-dairy brew, a raw-sauerkraut/enzyme-rich diet, and (until a few months earlier) the Simplified Methylation Protocol. He…
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Some things that have helped me
A ten-month combination of Lugol's iodine, desiccated thyroid, an elimination diet, monthly liver flushes and an antiparasitic herbal mix brought "much more energy and much less pain" after 9.5 years of CFS/fibromyalgia, with symptoms shifting within a day…
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has anyone stuck religiously to Dr Myhill's protocol and hadsignificant improvements?
Close to a year into combining Dr Myhill's protocol with the Perrin technique, energy work, a methylation protocol and KPU treatment, this poster reports having "improved a lot" and raised her functional level. She stresses "no one person had all the…
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3 Things that Help the Most!!
Credits a low-carb, high-protein diet, hydroxocobalamin B12 injections every 3-4 days, and chiropractic care with eliminating her dizziness and constant thirst. The improvement is specific to those symptoms rather than an overall recovery, stated with clear,…
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EECP Treatment is Very Helpful/My Daughter Helped Alot
Had weekly EECP sessions for 5 months alongside a methylation protocol, a Candida protocol and AHCC Gold. After about a month she noticed improved sleep and daytime energy, roughly 20-25% more daily activity, less brain fog and easier waking. She was…
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What treatments HAVE ACTUALLY helped?
Built a regimen around rotating sleep aids (Imovane/zopiclone), Tramal, 5-HTP, Neurontin, lipoic acid, NAC, a low-carb Atkins-style diet and modified weight training, but singles out Famvir as the biggest driver, saying that without it he "would be…
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What treatments HAVE ACTUALLY helped?
Tried a paleolithic-style diet along with a BEMER pulsed-electromagnetic-field device. Reports improved hypoglycemia symptoms and better sleep, describing it as an ongoing, ordinary partial improvement rather than a dramatic turnaround.
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What treatments HAVE ACTUALLY helped?
Eliminated grains and complex starches and added probiotic foods. From a worst point of being bedbound 20 hours a day, she says she now manages 12-hour days that include 1-2 hours of brisk walking, and that her pain resolved and anemia improved. Fatigue…
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What treatments HAVE ACTUALLY helped?
Combined a large stack of B12 injections, CoQ10, Fibroenergy, amino acids, SAMe, magnesium, prescription vitamin D, Synthroid, three years of low-dose Minocin, three months of antivirals, and a gluten-free diet, without singling out one component as key. Now…
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Anyone recovered after discovering residential toxic mold exposure?
A naturopath-supervised candida-free diet plus mold avoidance and herbal supplements left her "almost symptom free" for about two years, "though not cured." Major life stresses then triggered a relapse and she "became horribly ill again," so the substantial…
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Stages of Recovery - personal experience
Eliminated all grains in favor of soaked seeds, vegetables and fruit, with only occasional B12, amino acids, coconut kefir and macrobiotic foods, deliberately keeping supplements minimal. A year into this she no longer needs bed rest most days, does "much…
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Stages of Recovery - personal experience
Followed Dr Myhill's standard protocol (B3, B12, magnesium, CoQ10, 15g/day L-glutamine, 10g/day BCAAs, 1g/day malic acid) starting Nov/Dec 2007, combined with an elimination diet of mainly white rice and chicken, FIR sauna detox, and Buteyko breathing. Went…
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How long did it take before you had benefits from isoprinosine?
Took isoprinosine at the higher "Cheney protocol" dose of six tablets daily, having found the commonly-suggested two-tablet dose insufficient, and reported the immune-modulating benefit came on "almost straight away," helping him fight off infections faster…
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What worked for me
Went 100% dairy-free and grain-free and says she was "completely well and pain free from FM" for three months (July-Sept 2005), but the remission faded and "I've only ever been able to last 3 months" on it. She hedges heavily, noting "that could have been…
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My complete protocol - recovering well from bad 7 years+ CFS
Ran a broad two-year self-built protocol - high-dose B vitamins, vitamin D3, D-ribose, CoQ10, acetyl-L-carnitine, a sublingual/nasal B12-folate methylation stack, amino acids, Buteyko breathing, infrared sauna and transdermal magnesium - layered onto months…
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? for those who feel "totally healthy" out of the blue
Made dietary changes, eliminated food intolerances, and used amino acid supplements, CoQ10 and salt loading (possibly along with Emergen-C or guarana). Experienced repeated episodes of feeling "completely healthy" lasting from hours up to 3 weeks, including…
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Supplements that have helped me
Takes vitamin D ("makes a real difference for me"), B-vitamins, whey protein for GI problems, omega-3 for joint/muscle pain, and topical Traumeel/Lymphagen for chronically swollen throat and ear glands, alongside juicing and a grains/sugar-reduced diet.…
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Dr. Patricia Williams's Client Story
Credits brain retraining, CBT or psychological work and diet. Patricia was ill 15y with severe ME/CFS and reports a substantial improvement. Severe cognitive impairment; no longer housebound.
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List of ME/CFS Recovery and Improvement Stories
MTGA247 is listed reaching remission from moderate Long Covid after a 4-day water fast, per the compiled list, with no further follow-up given.
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Temporary Improvement After Colonoscopy
EddieB experienced near-complete remission for several weeks after a normal-result colonoscopy in the 1990s, with symptoms returning within a year; a second colonoscopy in 2014 after a severe spell produced the same temporary-improvement pattern. He suspects…
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[BBC] GcMAF: Unlicensed HIV drug 'nearly killed patient' (Noakes pleads guilty)
Uses a probiotic MAF (MAF 878, roughly $100/month) alongside dietary changes, describing the combination as putting her "into FULL remission... From bed bound to hiking up mountains." The remission is not permanent: she has "gone off and on everything that…
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Fasting
Creekside attempted a 5-day fast and found it unpleasant to get through. No significant benefit resulted, and no protocol details beyond the five-day length are given.
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Fasting
GrammaLinda, who has ME/CFS along with low blood pressure and atrial fibrillation, did several shorter fasts of 20-36 hours and set out on a planned six-week fasting trial. Instead she developed an erratic heart rhythm, a return of her atrial fibrillation…
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Fasting - specifically practically with ME/CFS and methylation treatment
snowathlete, the thread's starter, did a 34-hour water fast after checking with their GP. They described it as "fine health wise" though "hard mentally," felt they could have continued longer, and were pleased simply to have completed it, without reporting…
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Fasting - specifically practically with ME/CFS and methylation treatment
Mr. Cat did a 9-day Master Cleanse of water, lemon, cayenne and molasses. Hunger disappeared by day two, but energy fluctuated and his thinking felt impaired through the fast, and his digestive symptoms improved only to return "immediately" once he went back…
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Fasting - specifically practically with ME/CFS and methylation treatment
baccarat tried a water-only fast and woke on the third day with a heart rate over 150 bpm and buzzing in their ears. They broke the fast with honey and bread and symptoms gradually resolved, but no illness benefit is reported.
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3 day fasting to reset immune system
Not severely affected by his ME/CFS, borko2100 does 2-to-3-day fasts a few times a year and tolerates them well, getting some short-term relief each time. He doubts fasting offers any real long-term benefit for the illness itself.
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3 day fasting to reset immune system
Cinders66 went three days without food involuntarily rather than as a planned therapeutic fast, more a case of being too unwell to eat than a chosen protocol. No benefit to the underlying illness is reported from it.
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3 day fasting to reset immune system
Before getting ME, andypants had done several 3-to-10-day fasts and felt refreshed by them; the first attempts after falling ill, at up to 44 hours, instead left their muscles "really achey" with mild PEM and seemed to make things worse. Scaling back to a…
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3 day fasting to reset immune system
sb4 went 7 days completely dry, no food or water, then continued 23 more days taking only one or two glasses of water a day, 30 days in total. They felt "horribly sick for the majority of the fast," with nausea, pins and needles, heart palpitations and…
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2 enlightening fasting experiences
taniaaust1 described a history of long water fasts, including one lasting up to 64 days and a separate month-long fast, undertaken partly for spiritual reasons. She reports feeling better while fasting, with only brief hypoglycemia in the first three days…
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2 enlightening fasting experiences
alex3619 described unintentional 2-to-3-day fasts that happened when they could not afford groceries, rather than a chosen therapeutic protocol. Going without food that long gave them a temporary burst of energy to get to the shop, but also brought…
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2 enlightening fasting experiences
cigana, the thread's starter, did two separate 2-day water-only fasts, the second followed by three days eating under 800 kcal. Once ketosis set in their hunger disappeared, energy rose and they said they felt "almost normal," though stomach bloating and…
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2 enlightening fasting experiences
With severe ME/CFS and food intolerances that left her able to eat little beyond rice cakes and vegetables, Countrygirl used repeated 3-day fasts during periods when her illness was worsening. Each fast moved her from bedbound up to being able to sit in an…
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Water fasting - Can I take my meds?
Before starting this thread, stolpioni had completed a 96-hour water fast that "went well," though walking brought on dizziness; the fast ended for unrelated obligations rather than intolerance, with more duration apparently still possible. They then planned…
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Water fasting - Can I take my meds?
JES attempted a water fast that was easy for the first 24 hours, then brought on heart palpitations; by the 40th hour they "felt so weak I could hardly work or do anything meaningful" and stopped. No symptom benefit is reported, only the adverse reaction…
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Water fasting - Can I take my meds?
pamojja had fasted 21 days without problems at age 20, before becoming ill, but a 7-day water fast attempted after developing ME/CFS in their 40s went badly. It left them prediabetic and triggered a severe magnesium deficiency, with painful muscle cramps…
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Fasting - specifically practically with ME/CFS and methylation treatment
parabola did a 3-day water-only fast as a hospital inpatient, with temperature, blood pressure and blood glucose monitored throughout. They "felt much better" while fasting, but experienced an emotional crash once the fast ended, and no lasting symptom…
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Fasting - specifically practically with ME/CFS and methylation treatment
jengonwin had already tried a 5-day water fast that made their CFS worse and a 14-day juice fast that did nothing before attempting an 11-day Buchinger-style fast on about 250 kcal/day of juice and broth. By days 13-14 they described "the strongest spiritual…
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Fasting - full water only variety - has anyone here tried it?
GreenEdge, posting as a recovered ME/CFS patient, combined repeated extended water fasts with a very strict Lion Diet (carnivore). They describe three distinct recoveries, crediting two of them specifically to periods of fasting 5 or more days, during which…
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Fasting - full water only variety - has anyone here tried it?
Eddy M, who has an atypical ME/CFS with debilitating muscular fatigue, neuropathic symptoms and PEM, tried a planned 7-day water fast but abandoned a second attempt after only 8-10 hours. Rather than helping, the fast made things worse: fatigue gradually…
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Fasting - full water only variety - has anyone here tried it?
After six years chasing relief from ME/CFS by cycling between keto and carnivore diets, Bassaur tried a doctor-recommended 3-day water fast with a couple of cups of bone broth. Partway through they reported feeling unexpectedly good: mind clear, emotions…
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Fasting - full water only variety - has anyone here tried it?
Hufsamor did a 10-day water-only fast (with a teaspoon of Himalayan salt per liter) under a doctor's supervision as part of a small group of four ME/CFS patients the doctor was treating with repeated fasts. They were "very, very sick throughout the fasting"…
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Ten Things that Helped Me Heal from CFS/ME
Credits brain retraining and diet. Liz had ME/CFS and is described as fully recovered. Site owner Liz Carlson's own story.
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Karen Burns's Client Story
Credits brain retraining, CBT or psychological work and diet. Karen was ill 14y with moderate ME/CFS and reports a substantial improvement. Cyclic flu-like crashes since 2005; now cycles 800km+.
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Louise's Client Story
Credits brain retraining, CBT or psychological work and diet. Louise had severe ME/CFS and reports a substantial improvement. Couldn't climb stairs or play with her kids.
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Bradley's Client Story
Credits brain retraining, CBT or psychological work and diet. Bradley had ME/CFS and reports a substantial improvement. Condition stated only as fatigue; video-centric page.
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Alison's Client Story
Credits brain retraining, CBT or psychological work and diet. Alison had severe ME/CFS and reports a substantial improvement. Post-viral CFS, unable to work; life turned around.
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Bethany's Client Story
Credits brain retraining, CBT or psychological work and diet. Bethany had severe long COVID and reports a substantial improvement. Mild COVID became debilitating post-COVID fatigue and spasms.
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Eight Years of ME/CFS Disappears in Two Hours
Credits rapid unnamed. An unnamed patient was ill 8y with ME/CFS and is described as fully recovered. Title implies a very fast turnaround.
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Gut and Mind/Body Work are Key for Long term Severely Ill Patient
The title identifies a long-term severely ill ME/CFS patient whose improvement involved gut-focused diet changes and mind-body work, but only a brief excerpt could be retrieved. In it the person describes focusing every day on five things they were grateful…
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Diet, Supplements and Pacing Work for Professional Footballer
Credits diet, supplements and pacing. An unnamed patient had ME/CFS and reports a substantial improvement. Possibly same footballer as another entry.
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A Package Deal Works for Clare
The title states that a combination of supplements, diet, yoga and meditation worked for Clare, but only a brief quotation could be retrieved: that to be well she has to put in as much as she wants to get out. Her illness duration, severity, specific regimen…
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Low Glycemic Diet Eventually Does It for Former Runner
Credits diet. An unnamed patient had ME/CFS and reports a substantial improvement. Low glycemic diet.
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Graded Exercise Therapy for CFS ME and FMS: Friend or Foe
Credits brain retraining, graded exercise and diet. Dan was ill 6y with severe ME/CFS and is described as fully recovered. Argues GET only works paired with nervous-system retraining.
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Unusually Fast Recovery from Long-Term CFS and Fibromyalgia
Credits brain retraining. An unnamed patient had ME/CFS and is described as fully recovered. Title emphasises speed; page fetch errored.
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Lynn Shares Her Thoughts on How to Recover from Fibromyalgia
Credits CBT or psychological work, diet, graded exercise and meditation. Lynn had severe ME/CFS and is described as fully recovered. Hit rock bottom first; 3-5hr daily meditation.
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CFS Recovery: Ted Shares How He Recovered After 8 Years
Credits brain retraining, diet and sleep hygiene. Ted was ill 8y with severe ME/CFS and is described as fully recovered. ANS REWIRE; same Ted cross-posted on ansrewire.com.
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Emotional Healing to Slide into Full Fibromyalgia Recovery
Credits diet, trauma and somatic work and energy healing. Beth was ill 10y with severe ME/CFS and is described as fully recovered. Bach Flower Remedies, shamanic healing, emotional work.
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How She Recovered from Long-Term Fibromyalgia/ME-CFS After 20 Years
Credits candida parasite and holistic. Abigail was ill 20y with severe ME/CFS and reports a partial improvement. Self-rated 85% recovered; candida/parasite treatment.
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There Is No Cure for Fibromyalgia? Interview on Recovery from MCS/CFS/FMS
Evelyn's recovery involved meditation, vitamins, saunas, daily walks, and weekly massage with exfoliation for "toxin" removal, plus diet changes, though the page does not give specific supplement names, doses, or sauna type. She had suffered for years with…