How I put ME/CFS into remission....& even better
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 3.5 years
- Published
- Oct 2018
Summary
Cleared gut dysbiosis with antibiotics, then underwent 9-12 encapsulated FMT infusions from his daughter over two months alongside a strict prebiotic diet. Initially estimated "around 65-70% recovered," then reports surpassing his pre-illness baseline -- running 6 miles, doing P90X, swimming, with cognition and sense of smell fully restored. States the gain had held for 6+ months by the time of posting ("the most significant portion of my remission has remained"), though he hedges the original percentage as a rough guess.
Read it in their words
forums.phoenixrising.me
The same story is also published at healthrising.org; it is counted once.
What they credit
Credits Antibiotics, Diet, Other prescription drugs, Doxycycline and other antibiotics, Faecal transplant (FMT).
Similar stories
-
Severe post-Lyme ME/CFS patient achieves full remission after Taymount FMT
Kasia Vermaire, left severely symptomatic with digestive collapse after Lyme disease was declared "cured" by antibiotics, and at one point contemplating euthanasia from desperation, received an FMT at the Taymount Clinic in June 2018. She reported full…
-
I'm normal now. Here's my promised update for y'all
Started with IFN lambda combined with GS-441524 for underlying Enterovirus B infections, which brought about 60% improvement, then moved to a multi-drug antiviral regimen described as molnupiravir, GS-441524, Vermurafenib, ribavirin and pleconaril plus…
-
Dysautonomia and unrefreshing sleep disappearing immediately after nasal application of dexamethasone
Lalique reports that a steroid/antibiotic combination nasal spray dramatically improved her dysautonomia markers within days - lower resting heart rate, disappearing stress readings and full "body battery" recharge on her Garmin, and refreshing sleep for the…
-
Mild NAC success story (godlovesatrier)
During a relapse related to antibiotic treatment, this poster says NAC, built up very slowly from 25mg to 1.2g twice daily, was the main thing allowing him to function and helped him recover from the worst post-exertional crashes. He stresses the importance…