Story
ME/CFS
No benefit
Severe Independent (blog, forum, news)
Gut problemsPain & fibromyalgia none
ME/CFS · Severe · Ill 20 years · healthrising.org · Nov 2021
ME/CFS
Severe → no benefitIll for 20 years
Enhancing Butyrate and Gut Health in ME/CFS, Fibromyalgia, Long COVID and Allied Disorders
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 20 years
- Published
- Nov 2021
Summary
A butyrate supplement, along with inulin from Jerusalem artichoke, each tried as a single-capsule test rather than a sustained course. He had been ill with severe CFS for about twenty years before this attempt. After just one capsule of either substance he "became extremely sick," reporting the same exact symptoms that had triggered his CFS two decades earlier. This was a clear adverse reaction rather than any improvement, so no benefit, relapse-after-gain, or maintenance dosing applies. He does not describe trying a lower dose or a different formulation afterward in this comment.