My message to all ME/CFS, Fibromyalgia and POTS sufferers is 'don't lose hope!'
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 7 years
- Published
- Mar 2019
Summary
Recovered using ANS REWIRE, a method he developed himself combining brain-retraining techniques, DEEP mindfulness meditation, nutrition and physiological and lifestyle changes to calm and retrain the autonomic nervous system, working with an integrative doctor over about 18 months of a near-seven-year illness. Symptoms began within a week of a chickenpox vaccination and were diagnosed as ME/CFS, fibromyalgia and POTS, with extreme unrelieved fatigue, fevers, gastrointestinal symptoms, night sweats, cardiac symptoms, orthostatic hypotension, allodynia, nocturnal urination, salt cravings and "fibro fog," eventually leaving him bed-bound and unable to work after being ill for just over five years. He describes "some very significant progress in a matter of weeks, but other improvements took many months," crediting a comprehensive plan addressing multiple triggers rather than "the shotgun approach." He now lives a full life, working full-time, exercising, and enjoying wine with his wife and two children without the adverse reactions he used to have. No relapse is mentioned; he has since written the book "CFS Unravelled" and built ANS REWIRE into a program he now teaches to others as part of his advocacy work telling sufferers recovery is possible.
Read it in their words
recoverynorway.org — this page sells a treatment, program or service.
What they credit
Credits Brain retraining, Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust), Meditation, yoga, breathwork.
Symptoms mentioned
Symptoms: Gut problems, POTS & dysautonomia, Pain & fibromyalgia, Temperature regulation.
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