POTS & dysautonomia

How it went

What people with pots & dysautonomia tried

• TreatmentHow it wentRecoveredFaded
• Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)24 accounts
  79% 8%
• Low-dose naltrexone11 accounts
  45% 27%
• Salt, fluids and compression10 accounts
  30% 10%
• Pacing and the energy envelope10 accounts
  70% 20%
• Craniocervical fusion / tethered cord9 accounts
  33% 11%
• Meditation, yoga, breathwork9 accounts
  89% 22%
• Midodrine8 accounts
  38% 25%
• IVIG / subcutaneous Ig6 accounts
  17% 33%
• Hydrocortisone / cortisol6 accounts
  17% 17%
• Trauma work (EFT, EMDR, TRE)6 accounts
  67% 17%
• Mold avoidance / CIRS protocol6 accounts
  17% 0%
• Doxycycline and other antibiotics5 accounts
  20% 40%
• Lyme / co-infection protocols5 accounts
  40% 0%
• Efgartigimod / Vyvgart5 accounts
  0% 100%
• Beta-blockers5 accounts
  40% 20%
• Fludrocortisone / Florinef5 accounts
  20% 0%
• H2 blockers (famotidine, cimetidine)5 accounts
  20% 20%
• Triple anticoagulant therapy5 accounts
  0% 40%
• CBT and psychotherapy5 accounts
  100% 0%
• Valcyte / valganciclovir4 accounts
  0% 0%
• Mestinon / pyridostigmine4 accounts
  25% 0%
• H1 antihistamines4 accounts
  75% 25%
• Low-dose Abilify / aripiprazole4 accounts
  50% 50%
• B12 injections and methylation4 accounts
  25% 25%
• Hyperbaric oxygen (HBOT)4 accounts
  50% 25%
• Herbal and Chinese medicine4 accounts
  0% 25%
• Famvir / famciclovir (Pridgen)3 accounts
  33% 0%
• Paxlovid / nirmatrelvir3 accounts
  67% 67%
• Rituximab3 accounts
  33% 33%
• Calcium channel blockers (nimodipine, amlodipine, verapamil)3 accounts
  33% 0%
• PDE5 inhibitors (sildenafil, tadalafil)3 accounts
  100% 0%
• SSRIs and antidepressants3 accounts
  67% 0%
• Selenium, iodine, minerals3 accounts
  0% 0%
• Thyroid (T3, T4, NDT)3 accounts
  33% 33%
• Nattokinase and fibrinolytics3 accounts
  33% 67%
• Vagus nerve stimulation3 accounts
  33% 67%
• Sarno / TMS / somatic tracking / JournalSpeak3 accounts
  100% 0%

Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.