How it went
Did it last?
- 2 of 8 said the benefit wore off (including the 1 who relapsed).
- No one said they needed to keep it up to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 2 | 25% |
| Near-full | 1 | 12% |
| Substantial | 3 | 38% |
| Partial | 1 | 12% |
| Relapsed | 1 | 12% |
| No benefit | 0 | 0% |
Only 8 accounts. Treat these percentages as anecdotes, not rates.
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Severe | 5 | 40% | |
| Very severe | 2 | 50% |
1 accounts don’t say how ill the person was.
How often it comes up
Posts that mention Midodrine, per 1,000 posts each year. Hover a point for the count.
Show as a table
| Year | Posts mentioning it | All posts | Per 1,000 |
|---|---|---|---|
| 2009 | 0 | 184 | 0.0 |
| 2010 | 0 | 682 | 0.0 |
| 2011 | 1 | 704 | 1.4 |
| 2012 | 0 | 1,491 | 0.0 |
| 2013 | 1 | 1,995 | 0.5 |
| 2014 | 0 | 2,707 | 0.0 |
| 2015 | 4 | 2,566 | 1.6 |
| 2016 | 2 | 2,023 | 1.0 |
| 2017 | 0 | 3,381 | 0.0 |
| 2018 | 0 | 2,523 | 0.0 |
| 2019 | 3 | 1,637 | 1.8 |
| 2020 | 0 | 3,318 | 0.0 |
| 2021 | 4 | 2,469 | 1.6 |
| 2022 | 1 | 1,871 | 0.5 |
| 2023 | 3 | 2,362 | 1.3 |
| 2024 | 1 | 2,176 | 0.5 |
| 2025 | 1 | 1,349 | 0.7 |
| 2026 (so far) | 0 | 899 | 0.0 |
Posts in the forum threads and blog comments we archived, 34,337 in all, counted per year. A mention means the post names the treatment, not that the writer took it. These pages all contain a recovery story, so they show what those communities discussed, not everyone with ME/CFS or long COVID. All trends
All 8 accounts
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Hyperbaric Oxygen Therapy Turns Mathew's Long COVID / ME/CFS / POTS Around
Mathew developed long COVID with ME/CFS and POTS after a COVID infection in February 2020 and cycled through severe crashes for four years, at times 20 hours a day in bed, despite midodrine, low-dose naltrexone, Abilify and Paxlovid. In late 2023 he…
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Drugs Get Mathew Most of the Way and Hyperbaric Oxygen Does the Rest
Dr Mathew Robinson, a university professor, developed long COVID with ME/CFS and POTS after infection in February 2020 and spent 20-22 hours a day in bed. Midodrine, low-dose Abilify and low-dose naltrexone under Bateman Horne Center care brought him to…
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Daughter's recovery details
The regimen for Celandine's daughter included daily liquorice root powder and salt in plant milk, weekly-then-tapering Perrin Technique osteopathy (including breast lymphatic massage), the POTS medications ivabradine and midodrine with salt tablets and 2…
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Impact of extended-course Paxlovid in established Long COVID (Case 7)
Case 7, a 29-year-old man about 10 months into Long COVID/ME since July 2022 with extreme fatigue, PEM, tachycardia, POTS, persistent headache, brain fog, chest pain and shortness of breath, took a 15-day extended Paxlovid course in May 2023 while also on…
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My 4th Year; EBV, ME/CFS, Long Covid; Pacing, HBOT, Vedicinals
Vedicinals-9, taken short-term as a nutraceutical supplement alongside an organic diet. She had been ill for four years at the time of writing, with EBV-triggered ME/CFS overlapping long COVID, managing dysautonomia with pyridostigmine and midodrine plus…
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Mayo Protocol plus Venofer Iron Infusion Helps Teenager Recover
A teenager named Jack developed ME/CFS and POTS with an acute flu-like onset and was mostly homebound for about 20 months, as told by his father. Mayo Clinic's POTS rehabilitation protocol, Venofer iron infusions for low ferritin, midodrine, salt and water…
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how did you get out of "bedridden level" ??(even if you are still sick)
Reports going from bedridden to walking a mile and a half the next day after starting Florinef, Midodrine and a beta-blocker for orthostatic symptoms. Frames it as trial-and-error ("the trick is to try things") with no dose, duration or durability detail given.
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3 Things that Help the Most!!
Manages orthostatic intolerance with midodrine, fludrocortisone, time-released potassium, salt tablets, 3 liters of water a day, deliberately reclining to rest, and a folding cane/stool for standing tasks. Says this combination substantially improves her…