The Case for IVIG Treatment in ME/CFS, Fibromyalgia, SFN and POTS
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Published
- Sep 2018
Summary
Has been on IVIG since May 2014 for an underlying immunodeficiency (CVID), though the page doesn't specify her exact dose or infusion frequency. It took at least a year before she felt better, and she initially got worse as the new antibodies fought off numerous low-grade infections in her system. She eventually improved from about 20% of her pre-ME/CFS functioning to over 70%, sometimes as high as 90%, but remains on IVIG on an ongoing basis, meaning the gains have required continued treatment rather than being a one-time cure.
What they credit
Credits IVIG, POTS medication, IVIG / subcutaneous Ig.
Symptoms mentioned
Symptoms: POTS & dysautonomia, Pain & fibromyalgia.
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