Treat ME Survey Results 2
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Jan 2024
Summary
Subcutaneous immunoglobulin (SCIG), given alongside a fecal microbiota transplant, for just over a year at time of report. Before treatment he was severely unwell, underweight at 118 pounds, and unable to attend school, with comorbid POTS and mast cell activation syndrome. His mother reports he has since gained 52 pounds, up to 170, now attends school full-time, and no longer meets diagnostic criteria for POTS or MCAS. Because SCIG was started alongside the FMT, how much of the improvement is attributable to the immunoglobulin alone is not established in the account. No relapse or wearing-off is reported for this case as of the comment date.
What they credit
Credits Faecal transplant (FMT), IVIG / subcutaneous Ig.
Symptoms mentioned
Symptoms: Mast cell (MCAS) & allergies, POTS & dysautonomia.
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