Miruvor
ME/CFS Severe → substantialIll for 2.5 years

What Is MCAS Like?

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
2.5 years
Published
Mar 2016

Summary

Hydroxyzine (Atarax), dose not stated, used as a regular and rescue medication; she had been very sick for 2-3 years with severe MCAS at the time of her post. She described it as a miracle drug that lets her safely eat food and controls stage-two anaphylaxis-type reactions, including throat narrowing, itching, phlegm, tachycardia into the 160s, facial flushing, and body shaking. It has let her avoid using an EpiPen altogether. The account describes ongoing reliance on the medication rather than a one-time cure, with continued use implied as necessary and no relapse mentioned.

Read it in their words

forums.phoenixrising.me

Symptoms mentioned

Symptoms: Mast cell (MCAS) & allergies, POTS & dysautonomia.