How it went
Did it last?
- 3 of 14 said the benefit wore off.
- 3 of 14 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 2 | 14% |
| Near-full | 0 | 0% |
| Substantial | 5 | 36% |
| Partial | 6 | 43% |
| Relapsed | 0 | 0% |
| No benefit | 1 | 7% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 1 | 0% | |
| Severe | 6 | 17% | |
| Very severe | 1 | 0% |
6 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
All 14 accounts
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Recovery Protocol Cheat Sheet
Christy's posted recovery protocol lists an extensive regimen: pre-protocol, three months of Eliquis 5 mg daily and clopidogrel 75 mg daily; from February 2024 a "foundation" of nutritional antivirals including matcha green tea, coconut oil, unpasteurized…
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My Recovery from Long COVID PEM Part 2: Microclots
Christy was prescribed the anticoagulant apixaban and the antiplatelet clopidogrel in June 2023 (omitting the aspirin normally used in triple therapy due to stomach sensitivity), continuing for 4 to 5 months after microclots and hyperactivated platelets were…
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My Recovery from Long Covid PEM: Part 1
In summer 2023 Christy Collins began four months of dual anticoagulant/antiplatelet therapy with apixaban (Eliquis) for long COVID PEM; a planned spring 2024 "three-pillar" protocol (mitochondrial and metabolic support, antivirals, and immune stimulants) is…
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People with Long COVID turn to online drug markets (Chris)
Chris, in the UK, tried Maraviroc and blood thinners, with no doses, source or duration given, for Long COVID he had had since 2020. He reported only a few improvements in his symptoms despite trying multiple medications, describing the experience as being…
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Improved on triple anticoagulant therapy, considering adding tenofovir
Five months into apixaban, clopidogrel and aspirin (aspirin eventually raised to 100mg/day) for Long Covid presenting as moderate ME/CFS of over two years' standing, improvements appeared around day 40: ability to tolerate screens "increased manyfold," eye…
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A Positive Update: stopped needing blood thinners
Credits anticoagulants. Christy had severe long COVID and reports a substantial improvement. Tapered off blood thinners.
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The Remission Biome Project: Two ME/CFS Patients Begin a Gut Reset Effort to Regain Their Health
Bifidobacteria: a multi-strain probiotic blend of Bifidobacterium breve, B. bifidum, B. infantis and B. longum together with Lactobacillus rhamnosus and Saccharomyces boulardii, given as one part of a wider protocol that also included mold avoidance, B…
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Preprint: Treatment of Long COVID symptoms with triple anticoagulant therapy
Credits anticoagulants. pbyr had long COVID and reports a partial improvement. Plavix plus baby aspirin helpful over three cycles.
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After taking a nutraceutical called Vedicinals for four months, the oxygen returning to my heart increased by a whopping 56.3%!
Vedicinals-9, taken at full recommended dose for four months from June to September 2022. She had severe long COVID for about twenty-seven months before starting, including lung microclots and resting tachycardia. By testing in late September her venous…
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Microclot results in ME
Lumbrokinase, dose and duration unspecified, was described by an ME/CFS forum member as the best among the fibrinolytic microclot-targeting enzymes they had tried, ahead of alternatives like nattokinase and bromelain. No illness duration, severity, or…
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From ME to MMA
Recovered after a stay at the AiR Rauland rehabilitation centre, which taught mindfulness, energy-pacing (sorting activities into "green" and "yellow" rest zones) and structured daily routines, following a second severe relapse; before that she had seen a…
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Triple Coagulation Therapy Scores in Long COVID: Implications for ME/CFS, FM and POTS
Baby aspirin plus clopidogrel (Plavix), originally prescribed for heart disease and taken on an ongoing basis. Illness duration and severity beforehand are not stated in the comment. She reports the combination helped her ME/CFS symptoms as well as her heart…
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Triple Coagulation Therapy Scores in Long COVID: Implications for ME/CFS, FM and POTS
Aspirin 81mg plus clopidogrel (Plavix) 75mg, taken daily and continuously for five years. Illness duration before starting and severity are not stated in the comment. She reports the combination has not helped her ME/CFS at all after five years of continuous…
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Bad blood? The uncertainty around microclots and Long COVID
Underwent 15 sessions of HELP apheresis and six sessions of plasmapheresis for long-COVID-associated microclots, and remains on anticoagulants years later despite repeated attempts to stop them. He had been severely ill since a COVID-19 infection in late…