Could Craniocervical Instability Be Causing ME/CFS? (Jennifer)
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 8 years
- Published
- Feb 2019
Summary
The same post introduces filmmaker Jennifer Brea, describing severe neurological decline including respiratory-arrest episodes after a surgery-triggered relapse, leading to a diagnosis of craniocervical and atlantoaxial instability. She underwent craniocervical fusion and additional spine surgery; her surgeon cautioned that surgery might help but she should not expect full resolution. As of this February 2019 post she remained largely bedridden but improving, with her POTS in remission.
What they credit
Credits Craniocervical surgery, POTS medication, Surgery & structural, Craniocervical fusion / tethered cord.
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