More Fatigue with Famciclovir, I Must Continue
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Jan 2019
Summary
Mel9, mostly bedbound with heavy legs and a POTS-type heart-rate response to standing, took 30mg (half a tablet) of Mestinon every four hours and became able to manage a 4km walk plus a further short activity after resting, with reduced POTS symptoms and less severe PEM pain, though this remained a symptom-management effect rather than a cure.
What they credit
Credits POTS medication, Antivirals, Famvir / famciclovir (Pridgen), Mestinon / pyridostigmine.
Symptoms mentioned
Symptoms: POTS & dysautonomia, Pain & fibromyalgia, Post-exertional malaise.
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