Desmopressin Does it For ME/CFS/POTS patient
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 4 years
- Published
- Feb 2017
Summary
An unnamed patient with severe ME/CFS and POTS was mostly homebound for several years before starting oral desmopressin under Dr Lucinda Bateman's care, alongside pacing and treatment of sleep, pain and anxiety. Within a year the patient reported complete recovery and was able to taper off the medication. The page notes Dr Bateman's caution that desmopressin needs careful monitoring and works less predictably in patients ill for longer.
Read it in their words
healthrising.org — this page sells a treatment, program or service.
What they credit
Credits POTS medication, Pacing, Pacing and the energy envelope.
Symptoms mentioned
Symptoms: Anxiety & low mood, POTS & dysautonomia, Pain & fibromyalgia.
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