Miruvor

Headaches & migraine

87 accounts mention headaches & migraine. Here is what those people tried and how it went.

30%
recovered fully or nearly
26 of 87
55%
improved (substantial or partial)
48 of 87
10%
relapsed
9 of 87
5%
no benefit
4 of 87

How it went

Did it last?

  • 21 of 87 said the benefit wore off (including the 9 who relapsed).
  • 11 of 87 needed to keep up a treatment to stay well.

Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.

Outcome describedAccountsShare
Full recovery1922%
Near-full78%
Substantial3237%
Partial1618%
Relapsed910%
No benefit45%

By how ill people were

Severity at worstHow it wentnRecovered
Moderate2124%
Severe3743%
Very severe1145%

18 accounts don’t say how ill the person was.

Who published these accounts

Sells a treatment or program11 accounts
55%
Recovery advocacy site16 accounts
75%
Independent (blog, forum, news)60 accounts
13%

Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.

What people with headaches & migraine tried

Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.

All 87 accounts

  • Jonathan Groves' Story

    Full recovery ME/CFS SevereIll 1.58 years the-recovery-hub.org · sells Jun 2026

    Jonathan practiced Ekadashi Upavasa fasting (fasting on the 11th lunar day) combined with autophagy principles, an elimination diet cutting out all processed food, caffeine, sugar and alcohol, the Silva Method, meditation, breathwork, affirmations and…

  • On the road to recovery from Long Covid

    Partial Long COVID SevereIll 1.83 yearsEffect faded thewellnessaesthetic.substack.com Apr 2026

    Lauren combined nicotine patches at one-eighth of a patch daily through December with a broad daily supplement regimen, including CoQ10 100mg, Ionic Fulvic Acid 1ml three times a day, Hawthorn Leaves 5ml, and products like Adrenal Complex, Adreno Active,…

  • My update to nicotine patch usage for Long Covid recovery

    Partial Long COVID ModerateIll 1.5 years thewellnessaesthetic.substack.com Jan 2026

    Lauren used nicotine patches for Long COVID, starting with half of a 7mg patch (3.5mg) worn intermittently for 7-10 days at a time with a few days off, then shifting in October 2025 to near-daily half-patch use for about two months, before cutting back in…

  • Recovery from ME/CFS

    Near-full ME/CFS Very severeIll 2 yearsEffect faded healthrising.org Jul 2025

    Combined a dedicated FND (functional neurological disorder) treatment program, which she says completely resolved symptoms like one-sided paralysis and speech and walking difficulties with no relapse, with neck physiotherapy that stopped seven years of…

  • Berlin Cures' failed Long COVID clinical trial yields lessons on study design

    Substantial Long COVID Severe thesicktimes.org Jul 2025

    Shayna Bhalla received BC 007 (rovunaptabin) infusions as part of the Berlin Cures Long COVID trial, though the article does not give the specific dose, frequency, or duration of infusions. She had lived with Long COVID for years, with fatigue, headaches and…

  • Treatments. Yes, they do exist.

    Partial ME/CFS encephalogirl.substack.com Jul 2025

    In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…

  • Long Covid Diaries, No. 49: the end.

    Full recovery Long COVID SevereIll 4 years digressionsimpressions.substack.com Feb 2025

    nescio13 credits a beta-blocker ("basic blood pressure reduction medication," no specific drug name or dose given) with ending their migraine-like long covid symptoms, though as a side effect it also brought back their asthma. They had lived with long covid…

  • Biogaia Osfortis (l. reuteri) yoghurt recipe and remission anecdote, unknown author

    No benefit ME/CFS forums.phoenixrising.me Sep 2024

    Bought a Luvele yogurt maker and Osfortis capsules to make homemade L. reuteri yogurt and worked through several batches, after which she began getting migraines for the first time in many months. She reports this as a negative reaction, speculating she may…

  • Radical Rest and Beyond

    Partial ME/CFS Severe encephalogirl.substack.com May 2024

    The author of Encephalogirl (who signs as Michelle) treats her ME/CFS-related dysautonomia and POTS with guanfacine and low-dose Abilify (titrated from 0.5mg down to 0.25mg after migraines, then back up to 0.5mg), an increased dose of low-dose naltrexone, a…

  • Nina Bosselaar

    Full recovery Long COVID SevereIll 3 years longcovidcured.com Nov 2023

    Nina spent about two years trying physiotherapy, occupational therapy, haptotherapy, osteotherapy and a multidisciplinary rehab program without success before shifting to a Tension Myositis Syndrome (TMS) mind-body approach centered on expressive journaling,…

  • Daughter's recovery details

    Substantial ME/CFS SevereIll 2 years forums.phoenixrising.me · sells Jul 2023

    The regimen for Celandine's daughter included daily liquorice root powder and salt in plant milk, weekly-then-tapering Perrin Technique osteopathy (including breast lymphatic massage), the POTS medications ivabradine and midodrine with salt tablets and 2…

  • Leon Williams

    Full recovery Long COVID SevereIll 2 years longcovidcured.com Mar 2023

    Leon Williams recovered using a mind-body/neuroplasticity approach rooted in Dr. John Sarno's Tension Myositis Syndrome (TMS) framework, practicing somatic tracking meditation, expressive writing, breathwork and general meditation, with gardening as a…

  • After 37 Years Flo Finds Her Answer

    Full recovery ME/CFS SevereIll 37 years healthrising.org · sells Feb 2023

    Flo lived with ME/CFS, fibromyalgia and migraines for 37 years, mostly homebound with severe brain fog, vertigo and light and sound sensitivity. She worked through decades of bodywork, energy and conventional therapies with limited success. EFT tapping and…

  • Jennifer

    Substantial Long COVID ModerateIll 1.17 years longcovidcured.com Jan 2023

    Jennifer combined three weeks of lymphatic drainage physiotherapy (started June 2022) with a mind-body/nervous-system retraining approach drawn from Alan Gordon's book The Way Out, the Curable app, Annemarieke Fleming's Dutch fatigue book Je vermoeidheid te…

  • Michelle

    Substantial Long COVID Very severeIll 6 months longcovidcured.com Jan 2023

    Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…

  • Impact of extended-course Paxlovid in established Long COVID (Case 7)

    Relapsed Long COVID SevereIll 11 monthsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 7, a 29-year-old man about 10 months into Long COVID/ME since July 2022 with extreme fatigue, PEM, tachycardia, POTS, persistent headache, brain fog, chest pain and shortness of breath, took a 15-day extended Paxlovid course in May 2023 while also on…

  • Impact of extended-course Paxlovid in established Long COVID (Case 5)

    Near-full Long COVID SevereIll 3 yearsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 5, a woman with roughly three years of Long COVID since March 2020 causing respiratory issues, fatigue, PEM, brain fog and body aches that had stopped her from exercising daily, took a 10-day extended Paxlovid course in June 2023 while otherwise only…

  • Impact of extended-course Paxlovid in established Long COVID (Case 4)

    Full recovery Long COVID SevereIll 6 monthsEffect faded pmc.ncbi.nlm.nih.gov 2023

    Case 4, a 51-year-old man about 6 months into Long COVID with fatigue, daily headaches, brain fog, mental exhaustion, PEM, racing heart, palpitations, tinnitus and visual/sensory disturbances, took a 15-day extended Paxlovid course in March 2023 alongside…

  • Carnivore Diet Reduces Bloating

    Relapsed ME/CFS SevereIll 26 yearsEffect faded forums.phoenixrising.me Oct 2022

    GreenEdge, who had spent the prior 2 years of a 26-year illness increasingly bed-bound, felt "totally normal" after 6 months on a carnivore diet, with better eyesight, brain function, sleep and muscle function, and managed significant physical projects…

  • Immediate positive response to antivirals/immune-modulators, then worse?

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Aug 2022

    Trialed valacyclovir, ranitidine and cimetidine separately, each as single doses and then multi-day courses of up to 4-5 days, with at least a week's break between attempts. Each drug produced "near-complete resolution of fatigue, headache" within about an…

  • Chrissy Zmijewski

    Full recovery Long COVID Moderate longcovidcured.com May 2022

    This page names no specific program, drug, dose, or therapy for her personally; it is a short video-introduction page that frames her recovery within the site's general mind-body approach and points readers to a fuller account on an external blog. She is…

  • Robyn Dale

    Substantial Long COVID Very severeIll 5 monthsEffect faded longcovidcured.com May 2022

    Robyn was prescribed short-term propranolol for heart arrhythmia and palpitations, at doses that were increased despite her objections, short-term zopiclone and diazepam to help her rest, and medium-term amitriptyline for insomnia, mood, and to stop cluster…

  • Amy Engkjer

    Full recovery Long COVID Very severeIll 1 year longcovidcured.com Feb 2022

    She combined a concussion protocol (limiting phone use and conversation), neurofeedback, a five-hour NLP (Neuro Linguistic Programming) session, EMDR, physical therapy, shiatsu, daily cold showers, an anti-inflammatory diet, meditation, and journaling,…

  • List of ME/CFS Recovery and Improvement Stories (page 4 discussion)

    Substantial ME/CFS Moderate forums.phoenixrising.me 2022

    marlunette improved from moderate to mild with mold avoidance, then from mild to remission after adding B12 injections and a B-complex/micronutrient regimen, with a 25-year-old exercise-induced asthma resolving as a bonus. Separately, in the…

  • Bye-Bye Fight or Flight? Stellate Ganglion Blocks (Patient Two)

    Full recovery Long COVID SevereIll 7 months healthrising.org · sells Dec 2021

    This second patient received the same stellate ganglion block procedure, injections on both sides of the neck, after seven months of severe post-COVID cognitive difficulties requiring occupational, physical and speech therapy, along with profound memory…

  • My brain maintained my condition by pondering questions such as: 'How am I doing today, which symptoms are the hardest, and consequently; what will I be doing today?'

    Near-full Long COVID SevereIll 1.5 years recoverynorway.org Oct 2021

    Minja's recovery centred on gradual "baby steps" increases in activity combined with mindfulness, breathing exercises and progressive relaxation (drawing on teacher Rick Hanson), Brené Brown's podcast "Unlocking Us," and therapy she had previously used for…

  • Cusack protocol for EDS—reports from anyone trying it

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Oct 2021

    Maitake mushroom, one component of the Cusack Protocol supplement regimen, was taken by a forum poster with thoracic spinal instability linked to their ME; illness duration is not stated. Within days of starting it they noticed they could stand longer and…

  • Some Patients Are Reporting Recovery from Long COVID

    Full recovery Long COVID Moderate time.com Jun 2021

    Lana Lynch's Long COVID symptoms improved after her second dose of the Pfizer-BioNTech COVID-19 vaccine in May, the only treatment named in the article. Before that she had months of fatigue and daily headaches and had to carefully ration her exertion.…

  • Mysterious Ailment, Mysterious Relief: Vaccines Help Some COVID Long-Haulers

    Near-full Long COVID ModerateIll 11 months npr.org Mar 2021

    The Pfizer COVID-19 vaccine, two doses, is credited with turning around long COVID that had lasted nearly a year. Before vaccination she had headaches, shortness of breath, extreme fatigue and loss of smell, and said she felt like she had aged 20 years. A…

  • The best thing I have done is to say: no way will I accept that my daughter will just lie there and suffer indefinitely, without us being able to do anything

    Substantial ME/CFS SevereIll 2.5 years recoverynorway.org Dec 2020

    Her mother credits a phone consultation and course with Lightning Process coach Live Landmark, alongside a four-week stay, later repeated, at the Catosenteret rehabilitation centre run by Dr Bard Fossli Jensen, for her daughter's recovery from ME. Before…

  • How I solved my neuroinflammation

    Substantial ME/CFS ModerateEffect faded forums.phoenixrising.me Oct 2020

    Built up to pramipexole 2mg nightly over four weeks alongside LDN, as-needed ibudilast, ALCAR and curcumin, reporting about an "80% improvement" in neuroinflammation symptoms -- migraines down from 3-4/week to at most one, and PEM severity/duration cut by…

  • A COVID-19 Long Hauler Case Report Points to Autoimmunity and IVIG

    Substantial Long COVID SevereEffect faded healthrising.org Oct 2020

    Received IVIG at 2g/kg monthly for two months, then reduced to 1g/kg monthly because of IVIG-induced headaches, for post-COVID symptoms that began two weeks after her acute infection resolved: severe leg pain, burning in her feet and hands, blurred vision,…

  • Zinc is reducing my hypersensitivity to smells!

    Substantial ME/CFS ModerateIll 10 years forums.phoenixrising.me Aug 2020

    After roughly 10 years of chemical/mold hypersensitivity following a copper IUD placement, she took zinc at 50mg/day for two months alongside magnesium. For the first time since her mold exposure, her "instant sense of inflammation and headache" from…

  • Since my recovery, I have completed medical school and worked as a doctor – full-time

    Full recovery ME/CFS ModerateIll 9 months recoverynorway.org Jun 2020

    Thomas Overvik, a medical student, attended a three-day Lightning Process course in London in summer 2011 after about nine months of illness that began roughly eight months into medical school in autumn 2010, bringing repeated infections, headaches,…

  • The best thing I have done is to say: no way will I accept my daughter will suffer

    Full recovery ME/CFS SevereIll 8 months recoverynorway.org Jun 2020

    Aftur, the then-14-year-old daughter in this account, had four weeks of intravenous antibiotics, a biopath-prescribed supplement regimen taken three to four times daily, a strict no-sugar, no-carbohydrate diet, and acupuncture, before doing a 3-day Lightning…

  • At last, there was somebody who understood. This is why I was on the phone, crying because of the kindness of these strangers

    Full recovery ME/CFS Very severeIll 3.5 years recoverynorway.org May 2020

    Recovered following a self-owned graded activity plan designed with Hans Petter Fundingsrud, head of department at University Hospital of North Norway (UNN) in Tromso, after the family was connected to him via former footballer Arild Berg and a Swedish…

  • ME/CFS patient goes into remission after taking GDF11

    Near-full ME/CFS SevereIll 15 yearsEffect faded forums.phoenixrising.me Apr 2020

    Ill for fifteen years and bedbound as recently as 2016, this patient self-injected the GDF11 protein subcutaneously every other day alongside an NMN supplement. After about two months he reported feeling one hundred per cent cured, with dramatic resolution…

  • Grape Seed Extract, Thins/Cleans our Blood

    Substantial ME/CFS healthrising.org Sep 2019

    Took Pycnogenol daily for a year in 1995, then switched to ongoing Grape Seed Extract for more than 23 years since. Describes a lifetime of allergy and sinus issues beforehand. Says a lifetime of those issues went away, and by a later update at 82 years old…

  • Fructose Malabsorption

    Partial ME/CFS healthrising.org Aug 2019

    Minimized dietary fructose to trace amounts, such as spinach and kale, after concluding her liver could not process it properly. Illness duration and severity are not detailed. Describes fructose exposure causing nausea, brain fog she calls weight on my…

  • Surprising amazing response to cinnarizine (vasodilator)

    Substantial ME/CFS ModerateIll 6 months forums.phoenixrising.me Jul 2019

    Cinnarizine at half a 25mg tablet twice daily - 12.5mg in total, well under the usual 75mg - produced a response within hours of the first dose, with tingling in the hands, feet and fingers and a sense of life coming back into the body. Pressure in the head…

  • Jennifer Brea's Recovering Story: the Spinal Series Pt II (Mattie)

    Substantial ME/CFS SevereIll 9 years healthrising.org May 2019

    The same post describes Mattie, a web developer in the Netherlands whose ME/CFS began in 2010 with a gradual decline to being mostly bedridden. Three months after craniocervical and atlantoaxial fusion surgery she was no longer mostly bedridden and her POTS,…

  • Rituxan Number Three, Some Improvement, Still Early to Tell

    Partial ME/CFS Severe forums.phoenixrising.me Mar 2019

    Previously bed- and wheelchair-bound with complex neuroimmune disease, EDS, PID, NK-cell deficiency and MCAS, she had two Rituximab infusions in November 2018 and a third by March 2019. By the 3-month mark she reported clearly improved muscle strength and…

  • My daughter's ME recovery story

    Full recovery ME/CFS Very severeIll 2 years recoverynorway.org Mar 2019

    A mother describes her daughter's recovery through two Lightning Process courses, the first in Newcastle in January 2009 and a second about a year later with a different instructor, after a stay at Catosenteret rehabilitation centre during which her…

  • Emil learnt to control his focus by himself, and then things improved very quickly

    Full recovery ME/CFS SevereIll 10 months recoverynorway.org Jan 2019

    Emil did an initial three-day Lightning Process course with a private tutorial, then repeated a second course three months later as an observer, both led by Live Landmark, alongside a parent-led strategy of keeping him engaged in enjoyable activities.…

  • When I read my story today about my illness period, I can hardly believe how bad it was

    Near-full ME/CFS SevereIll 2.5 years recoverynorway.org Jan 2019

    Attended a three-day Lightning Process course in Oslo in September 2017, after eight hours of municipal cognitive therapy had earlier proved "incredibly effective" and helped her avoid a formal ME/CFS diagnosis. She had been severely ill for about 18 months…

  • Oregano Oil Maybe Solved My Anal Itch

    Partial ME/CFS Ill 6 years forums.phoenixrising.me Dec 2018

    Lucky luke, with 6 years of nightly anal itching, took 3 oregano-oil softgels in a single day (targeting suspected SIBO) and got 4 straight itch-free days for the first time in 5 years, though he stopped due to headache and fatigue side effects and had also…

  • Plaquenil for ME/CFS: work for anybody?

    Substantial ME/CFS Moderate forums.phoenixrising.me Oct 2018

    Hydroxychloroquine at 400mg daily, started August 2018, brought substantial improvement within about two months. Before starting, symptoms were borderline mild-to-moderate ME/CFS with POTS-like dysautonomia, frequent GI symptoms, headaches and rashes. After…

  • This Is Why I Quit Exercise Therapy

    No benefit ME/CFS SevereIll 5 months buzzfeed.com Aug 2017

    Graded exercise therapy, prescribed by an NHS specialist, started with five minutes of walking a day and increased weekly, reaching six minutes in week two and continuing upward. She had been unwell for roughly five months, with flu-like exhaustion, joint…

  • Oxymatrine: What to expect with fatigue and how long? (And my on-going journey, info and questions.)

    Substantial ME/CFS SevereIll 8 years forums.phoenixrising.me Jun 2017

    Titrated oxymatrine up to one pill twice daily over 5-6 months, for ME/CFS that had left her housebound on constant bedrest and functioning at "about 35-40%." After an initial worsening (cold sweats, fever, vomiting), reports going "from functioning at about…

  • Success on Valacyclovir at 3.5 Months!! - Plus some Questions...

    Substantial ME/CFS SevereIll 15 years forums.phoenixrising.me May 2017

    Took valacyclovir at 4g/day, reduced to 3g/day after three months, for ME/CFS marked by "sky high titres" to EBV and shingles virus, months-long viral crashes, severe migraines, and being "borderline suicidal at a couple of points" over 15 years. At 3.5…

  • Anyone had remission/significant improvement from exceptional pacing?

    Partial ME/CFS forums.phoenixrising.me Apr 2017

    Months of strict pacing reduced this poster's bad days and brought a run of 20 headache-free days in autumn, but he says overall activity capacity kept declining even as day-to-day symptom load eased - summed up by saying pacing "doesn't lead to remission,"…

  • Objective CPET improvement & remission on ketogenic diet

    Substantial ME/CFS ModerateIll 21 years forums.phoenixrising.me Mar 2017

    Twenty-one years into ME/CFS and on a slow decline, this poster switched to a strict ketogenic diet in October 2016 and six months later reports reactive hypoglycemia, disabling migraines and insomnia resolved, and he can sit upright all day without…

  • Good results from valtrex and valcyte combo

    Partial ME/CFS ModerateIll 5.5 years forums.phoenixrising.me Oct 2016

    Added Valtrex 1g/day, then Valcyte 450mg twice daily a month later, on top of about a year already on Truvada, for CFS present "5 to 6 years" but only diagnosed 3-4 months earlier; self-rated baseline severity "5 or 6 out of 10," never bedridden but with…

  • Verapamil, a calcium-channel blocker, eases my symptoms

    Substantial ME/CFS Moderate forums.phoenixrising.me Sep 2016

    Verapamil ER, a non-dihydropyridine calcium channel blocker, was started at 120mg and later raised to 180mg extended-release, taken each evening for several years by the time of posting. Illness duration before starting is not stated. He reports night sweats…

  • Long Treatment Regimen Reaps Dividends for Irene

    Substantial ME/CFS SevereIll 13 years healthrising.org · sells Aug 2016

    Irene, a college teacher, developed severe ME/CFS with active EBV and HHV-6 infections after 2001, with extreme fatigue, migraines, joint pain and memory loss. Over more than a decade she combined Valtrex and Valcyte, Babesia treatment, atenolol, complete…

  • Recovering from Chronic Fatigue Syndrome and Fibromyalgia: The Lerner Way

    Substantial ME/CFS SevereIll 11 years healthrising.org Aug 2016

    Janet went from a 1 to a 7-8 out of 10 on Dr. Lerner's functional scale on Valtrex, starting at three pills a day and reducing to two after 11 years. The gain requires ongoing maintenance dosing: dropping to a lower dose brings back headache, swollen glands…

  • The Master Cleanse

    Partial ME/CFS ModerateIll 14 years howirecovered.com Apr 2016

    Fourteen years into CFS and CIRS (also citing heavy metal toxicity, mold and Lyme disease), Eric documented a roughly 25-day Master Cleanse of lemon juice, maple syrup and cayenne, adding psyllium and bentonite shakes and continuing some supplements against…

  • Success treating multiple infections with Chlorine Dioxide

    Substantial ME/CFS Very severeIll 15 years healthrising.org Feb 2016

    Followed Kerri Rivera's MMS (chlorine dioxide) protocol for 4.5 months, combined with a raw vegan diet and daily castor oil packs, for CFS/ME diagnosed 15 years earlier and later found to involve Lyme, bartonella, babesia, EBV, mycoplasma and mold. Had been…

  • Rimfaximin seems to have helped my gut

    Substantial ME/CFS Moderate forums.phoenixrising.me Dec 2015

    After years of rolling gut pain, alternating bowel habits and frequent migraines, she took Rifaximin 400mg three times daily for 10 days, followed by five days of Azithromycin plus a probiotic and enzyme/fiber regimen. Following the Azithromycin course her…

  • A Story of Survival: How Diet Saved a Chronic Fatigue Syndrome (ME/CFS) Patient's Life

    Partial ME/CFS SevereIll 5 years healthrising.org Dec 2015

    Naomi narrowed her diet to ten foods she did not react to and stayed on that restricted diet for five years, alongside deliberate stress reduction and faith practice, a later shift to organic food, and unspecified herbs and vitamins. Her pain and migraines…

  • Low Glycemic Diet Eventually Does it For Former Runner

    Near-full ME/CFS ModerateIll 18 years healthrising.org · sells Dec 2015

    Chris, a competitive runner, became severely ill after a trip abroad and a flu-like illness in 1977 and was eventually reduced to part-time work. Over about twelve years on a low-glycemic diet with sugar eliminated, he reached what he calls 99% cured and…

  • Emotional Healing Key for Fibromyalgia Patient

    Full recovery ME/CFS Very severeIll 10 years healthrising.org · sells Dec 2015

    Beth was diagnosed with fibromyalgia in 1987 and was mostly bedbound for close to a decade with severe fatigue, back pain, migraines and insomnia. She pursued Bach Flower Remedies, a candida diet, chiropractic, massage and Reiki alongside addressing…

  • I start to relapse every time I come off equilibrant

    Substantial ME/CFS SevereEffect faded forums.phoenixrising.me Oct 2015

    Equilibrant, a supplement combining shiitake mushroom with selenium, astragalus, sophora flavescens, olive leaf and licorice, was taken daily for over a year, working up to six pills a day. They had a severe bacterial infection that nearly killed them,…

  • Oxygen and Fatigue in Fibromyalgia and ME

    Substantial ME/CFS healthrising.org Apr 2015

    Used a mouth spray marketed to athletes and said to increase oxygen at the cellular level, for about a month by the time of posting. Illness duration and severity are not given. Says she feels so much better, has been able to train again, and her headaches…

  • Doing So Well On Modified Cowden Protocol

    Substantial ME/CFS SevereIll 19 yearsEffect faded forums.phoenixrising.me Apr 2015

    Nineteen years after a suspected tick bite left her unable to walk more than 10-20 minutes, a UK woman in her late 60s started a modified Cowden herbal protocol (Banderol/Cumanda, Andrographis 4/day, Japanese Knotweed 12/day for about three months, teasel…

  • Reverse Therapy Reverses Four year Illness

    Full recovery ME/CFS SevereIll 4 years healthrising.org · sells Apr 2015

    Matt, 30, developed severe ME/CFS after a jaw-breaking injury and within four years was sleeping 20 hours a day with a permanent headache, dizziness and overwhelming fatigue. Cranial osteopathy, acupuncture, herbal medicine and kettlebell exercises gave only…

  • I had Rituxan and I feel amazing

    Substantial ME/CFS Very severeIll 33 yearsEffect faded forums.phoenixrising.me Mar 2015

    Ill 33 years with feeding-tube dependence, orthostatic blood pressure of 58/42, bedbound autonomic dysfunction and photophobia, she received 4 weekly Rituximab infusions (375mg/m2) with methotrexate and steroid premedication at Stanford, finishing mid-March…

  • Mind-body Work and Alternative Treatments Kisses 15 Years of ME/CFS Good-Bye

    Full recovery ME/CFS SevereIll 15 years healthrising.org Aug 2014

    The unnamed subject first fell ill after measles at age 12 and was severely disabled by 1979, losing his balance, unable to stand, with headaches and muscle pain, eventually working part-time before retiring at 50. Over 15 years he pursued self-hypnosis,…

  • Those who have benefited from B12 and methylation treatment

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Jan 2014

    Ran a Freddd-style active methylation stack - L-carnitine fumarate, methylcobalamin, methylfolate and adenosylcobalamin, doses escalated then scaled back to around 2 tablets a day each - in what he called the "very early days" of trying it. He got an initial…

  • High-Dose Selenium Significantly Improves My Fatigue and Brain Fog

    Partial ME/CFS Moderate forums.phoenixrising.me Jan 2014

    Hip is a long-standing, moderately ill ME/CFS forum member and prolific self-experimenter who has never found one cure but has documented dozens of individual n=1 supplement/technique trials, each targeting a specific symptom. Notably, high-dose selenium…

  • Woman's Significant Health Improvements Using Baking Soda - [Sodium Bicarbonate]

    Substantial ME/CFS forums.phoenixrising.me Dec 2013

    About 1/4 teaspoon of baking soda every few days (more after phenol exposure) is credited with ending her headaches entirely, bringing blood pressure and heart rate to "excellent," and restoring energy to "where it was 20 years ago," waking refreshed.…

  • Diet and improvement

    Partial ME/CFS forums.phoenixrising.me Oct 2013

    Followed a strict "Practical Paleo"-book diet for 30 days, then eased off slightly, over about two months total. She reports "significant improvement" - much more energy, headaches and dizziness gone, and anxiety gone (though she notes that "could be from…

  • Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds

    Substantial ME/CFS SevereIll 13 years forums.phoenixrising.me Oct 2013

    After 13+ years of CFS that left her unable to walk well, she added transdermal cyanocobalamin spray and methylcobalamin/methylfolate to her regimen and reported "the first time in over 13 years that my energy has really come back," with markedly improved…

  • Skyline's Journal: Progress & Experiments

    Partial ME/CFS ModerateIll 7 months forums.phoenixrising.me Dec 2012

    About a week into restarting a full methylation protocol (high-dose methylfolate, dual-form B12, folinic acid and potassium alongside L-carnitine and B-vitamins), this poster's self-rated daily tracking shows energy reaching "10," headaches nearly resolved,…

  • My Valcyte pilgrimage

    Substantial ME/CFS Very severeIll 18 years forums.phoenixrising.me Dec 2012

    Eighteen years into illness and previously bedbound, unable to sustain even a five-minute conversation and enduring daily headaches at 7-8/10 severity for up to 15 hours a day, reported that after 18 months on Valcyte they could take frequent 30-45 minute…

  • CFS tension headaches- home ultrasound miracle cure!

    Partial ME/CFS forums.phoenixrising.me · sells Dec 2011

    Had been on permanent analgesics and regular physiotherapy for chronic tension headaches tied to her CFS, then began using a home ultrasound device on her neck muscles. Says it "completely relaxes them" and her headaches are "always completely gone by the…

  • Migraine medicine made me feel slightly better next day

    Relapsed ME/CFS Effect faded forums.phoenixrising.me May 2011

    Took minocycline daily for 6 months and says it cut his migraines by about 90%, a substantial and clearly attributed effect. He had stopped it 4 months before this post and reports the benefit had faded since stopping, and is unsure it's safe to resume…

  • My experience on Famvir

    Substantial ME/CFS ModerateEffect faded forums.phoenixrising.me Jan 2011

    Relapsed with CFS in October 2010 after three months of stress, then started Famvir 250mg twice daily (briefly upped to 500mg twice daily for 5-7 days) combined with Cycloferon; within two to three weeks felt "substantially better," with milder headaches and…

  • ? for those who feel "totally healthy" out of the blue

    Relapsed ME/CFS SevereIll 7 yearsEffect faded forums.phoenixrising.me Nov 2009

    Was prescribed Xyrem as a sleep aid and had a severe adverse reaction -- a manic episode with hallucinations -- but says that once it resolved he "felt like a different person," with pain gone, energy up, and headaches eliminated. The improvement lasted only…

  • Modafinil for Chronic Fatigue Syndrome Reviews

    Relapsed ME/CFS Effect faded drugs.com Jun 2009

    Modafinil, titrated from 200mg up to 300mg and then 400mg daily over time, initially produced significant improvement in fatigue and brain fog, rated 8 out of 10 overall. The reviewer reported that the drug's efficacy diminished over three years of use,…

  • Arginine + Vitamin C for Long Covid

    Substantial Long COVID SevereIll 4 months longcovid411.substack.com

    L-arginine at 1.5g twice daily, modeled on a published arginine-plus-vitamin-C protocol, was started by a long COVID patient who had been unable to work as a programmer since about four months after a March 2022 infection, with severe headaches, chest pain,…

  • Verapamil, a calcium-channel blocker, eases my symptoms

    No benefit ME/CFS Moderate forums.phoenixrising.me

    Verapamil, a non-dihydropyridine calcium channel blocker, has been taken at 360-480mg per day for roughly 30 years, originally prescribed for cluster headaches rather than ME/CFS. Illness duration before this long-term use is not stated. Despite the high…

  • making a PRObiotic chart -- Bifido spp only!!

    No benefit ME/CFS forums.phoenixrising.me

    Bifidobacterium infantis 35624: taken as the Align probiotic brand, starting at one capsule daily for two weeks and then increasing to two capsules daily. She has ME/CFS with symptoms including joint pain, tinnitus and brain fog. The first two weeks produced…

  • AcuPips - Original Ear Seed Specialists

    Partial Long COVID acupips.com · sells

    AcuPips ear seeds (self-administered acupressure), duration of use and placement not specified. She had post-COVID headaches, with no other long-COVID symptoms or overall illness duration and severity stated. She reports relief within about two weeks of use.…

  • Gcmaf-reactions and side effects

    Relapsed ME/CFS Effect faded forums.phoenixrising.me

    Monthly injections of GcMAF at 1/5 dose from a new "blue-top vial" batch produced an unusual immediate headache, and within the following week she "relapsed terribly" with daily severe depression, near-daily adrenal crashes and head inflammation. She…

  • Anna de Vries' Story

    Full recovery Long COVID SevereIll 4 years the-recovery-hub.org

    She recovered from post-viral ME/CFS using Jan Rothney's Reset to Thrive programme, introduced via Rothney's book Breaking Free, combined with trauma therapy, somatic work including Trauma Releasing Exercises (TRE) and haptotherapy, and brain-retraining and…

  • Payton Foeller's Story

    Substantial ME/CFS Very severe the-recovery-hub.org · sells

    She credits low-dose naltrexone (LDN, though she says it "helped somewhat, not a gamechanger"), talk therapy, brainspotting therapy, and mind-body work drawing on Dr. John Sarno's TMS framework, polyvagal theory, trauma-informed yoga and mindfulness,…