Miruvor
ME/CFS Moderate → no benefit

Verapamil, a calcium-channel blocker, eases my symptoms

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Published
Undated

Summary

Verapamil, a non-dihydropyridine calcium channel blocker, has been taken at 360-480mg per day for roughly 30 years, originally prescribed for cluster headaches rather than ME/CFS. Illness duration before this long-term use is not stated. Despite the high dose and decades of continuous use, the person says they are "not aware" of any CFS improvement from it. No relapse applies since no benefit was ever attributed to the drug, and use has continued for the headaches regardless.

Read it in their words

forums.phoenixrising.me

What they credit

Credits Calcium channel blockers (nimodipine, amlodipine, verapamil).

Symptoms mentioned

Symptoms: Headaches & migraine, Pain & fibromyalgia.

Similar stories

  • the best treatments I've found

    Substantial ME/CFS forums.phoenixrising.me · sells Aug 2023

    Shanti1 credits this vasodilator/oxygen combination with improving brain circulation and says episodes of feeling oxygen-starved, once frequent, are now rare, describing sustained improvement "over time as underlying conditions addressed." No specific doses…

  • A Calcium Channel Blocker for ME/CFS and Fibromyalgia? Nimodipine Pt. II

    No benefit ME/CFS Moderate healthrising.org Jun 2019

    Nimodipine, a dihydropyridine calcium channel blocker, caused a severe adverse reaction in this patient after just two tablets, one per day. Illness duration before the trial is not stated. She experienced paralysis in her arms and legs, which reversed only…

  • Anyone else here have MCS too?

    Near-full ME/CFS Very severe healthrising.org Oct 2017

    Followed the Pall Protocol, a methylation-support supplement regimen, then added dysautonomia treatment with fludrocortisone and verapamil, for severe MCS with CFS. Beforehand had near-syncope events, needed an epipen and sudafed, and was essentially…

  • Verapamil, a calcium-channel blocker, eases my symptoms

    Substantial ME/CFS Moderate forums.phoenixrising.me Sep 2016

    Verapamil ER, a non-dihydropyridine calcium channel blocker, was started at 120mg and later raised to 180mg extended-release, taken each evening for several years by the time of posting. Illness duration before starting is not stated. He reports night sweats…