How it went
Did it last?
- 3 of 15 said the benefit wore off: the 3 who relapsed.
- No one said they needed to keep it up to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 2 | 13% |
| Near-full | 1 | 7% |
| Substantial | 3 | 20% |
| Partial | 5 | 33% |
| Relapsed | 3 | 20% |
| No benefit | 1 | 7% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 1 | 0% | |
| Severe | 10 | 20% | |
| Very severe | 3 | 0% |
1 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
All 15 accounts
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What Does It Mean to Recover From Long Covid?
Credits radical rest and time alone. An unnamed patient was ill 6mo with long COVID and is described as fully recovered. Second-hand: self-employed friend recovered via total rest.
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Radical Rest and Beyond
The author of Encephalogirl (who signs as Michelle) treats her ME/CFS-related dysautonomia and POTS with guanfacine and low-dose Abilify (titrated from 0.5mg down to 0.25mg after migraines, then back up to 0.5mg), an increased dose of low-dose naltrexone, a…
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We need to talk about Long Covid
Credits radical rest, pacing and time alone. Peter Geoghegan was ill 6mo with severe long COVID and is described as fully recovered. Journalist; subsisted on soup and Simpsons reruns while resting.
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Over 2 Years of Long COVID
Credits pacing and radical rest. Felicity was ill 2y with very-severe long COVID and reports a partial improvement. Physiotherapist; 20+ hours bedbound daily.
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Surviving ME/CFS by Russell Fleming - Part 2
Credits time alone, pacing and radical rest. Russell was ill 23y with severe ME/CFS and reports a partial improvement. ME Association piece stresses stabilisation not cure.
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Video: Phil Murray's ME/CFS full recovery story and call for more research
Credits pacing and radical rest. Phil Murray had severe ME/CFS and reports a substantial improvement. "I got better when I gave in"; hosted by paid coaching site.
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Two Steps Forward, One Step Back
Credits radical rest and time alone. Hannah was ill 10mo with severe long COVID, improved, then relapsed. UK physio relapsed after home-renovation exertion.
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Nosediving Solo With Kids
Credits radical rest and occupational health. Sue was ill 8mo with severe long COVID and reports a partial improvement. Single mother; both daughters also fell ill.
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This Is Why I Quit Exercise Therapy
Graded exercise therapy, prescribed by an NHS specialist, started with five minutes of walking a day and increased weekly, reaching six minutes in week two and continuing upward. She had been unwell for roughly five months, with flu-like exhaustion, joint…
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Long Treatment Regimen Reaps Dividends for Irene
Irene, a college teacher, developed severe ME/CFS with active EBV and HHV-6 infections after 2001, with extreme fatigue, migraines, joint pain and memory loss. Over more than a decade she combined Valtrex and Valcyte, Babesia treatment, atenolol, complete…
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Anyone improve from bed/housebound to high level of functionality?
After a year completely bedridden in what she calls a "strange comatose condition" - unable to chew or speak, washed by family - she took megadoses of magnesium, zinc and vitamin C while resting in bed doing nothing, and rose to about level 8 functioning.…
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Anyone improve from bed/housebound to high level of functionality?
With no medication, just strict pacing and aggressive bed rest whenever a crash threatened, she recovered very slowly over roughly 3-5 years from total bedridden severity (about 9 months unable to stand, with periods of unconsciousness) plus fibromyalgia,…
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Stages of Recovery - personal experience
Eliminated all grains in favor of soaked seeds, vegetables and fruit, with only occasional B12, amino acids, coconut kefir and macrobiotic foods, deliberately keeping supplements minimal. A year into this she no longer needs bed rest most days, does "much…
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My complete protocol - recovering well from bad 7 years+ CFS
Ran a broad two-year self-built protocol - high-dose B vitamins, vitamin D3, D-ribose, CoQ10, acetyl-L-carnitine, a sublingual/nasal B12-folate methylation stack, amino acids, Buteyko breathing, infrared sauna and transdermal magnesium - layered onto months…
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Learning to really, truly slow down
Credits pacing and radical rest. Helen had moderate long COVID and reports a partial improvement. Former slow-living Instagrammer forced into real slowness.