Out of the 130 accounts with a clear outcome; 3 more don’t say how it went.
How it went
Did it last?
- 21 of 133 said the benefit wore off (including the 5 who relapsed).
- 12 of 133 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 34 | 26% |
| Near-full | 22 | 17% |
| Substantial | 42 | 32% |
| Partial | 26 | 20% |
| Relapsed | 5 | 4% |
| No benefit | 1 | 1% |
| Outcome unclear | 3 | — |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Mild | 1 | 100% | |
| Moderate | 16 | 50% | |
| Severe | 55 | 47% | |
| Very severe | 31 | 52% |
30 accounts don’t say how ill the person was.
Who published these accounts
32% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.
Specific treatments in these accounts
- TreatmentHow it wentRecoveredFaded
- Meditation, yoga, breathwork43 accounts
58% 14%
- Herbal and Chinese medicine34 accounts
18% 24%
- Pacing and the energy envelope20 accounts
50% 25%
- Mickel Therapy / Reverse Therapy14 accounts
64% 7%
- B12 injections and methylation12 accounts
33% 25%
- Elimination and ketogenic diets12 accounts
33% 0%
- Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)11 accounts
91% 9%
- Trauma work (EFT, EMDR, TRE)11 accounts
100% 0%
- Doxycycline and other antibiotics9 accounts
33% 33%
- Selenium, iodine, minerals8 accounts
25% 12%
- NAC and glutathione7 accounts
29% 29%
- Thyroid (T3, T4, NDT)6 accounts
50% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
Side effects and harms people mentioned
Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about Alternative therapies itself. Read the story before drawing conclusions.
- Blood count problems
Tracy has tried valganciclovir (Valcyte) three times for ME/CFS: a six-month course in 2014 (three weeks of induction at two 450mg pills twice daily, then two pills once daily) cut short by an allergic reaction after switching to a generic mid-course; a second course on the same regimen plus famciclovir (Famvir) that she stopped after about 2.5 months due to anemia-related breathing difficulties; and a current, third course of just one 450mg pill a day, taken selectively on days it wasn't causing weakness, now five months in.
- Side effects
The gains have held over the five months so far, though she says she is not back to normal and remains dependent on supplements to function; her first two courses each brought partial, non-durable improvements before being cut short by side effects.
All 133 accounts
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229: After 26 Years, Dr. David Mickel Says Recovery Starts Here
Credits Mickel Therapy. David had ME/CFS and is listed among the recovery accounts. 26 yrs is his practice tenure, not his illness.
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A muddy intervention: taVNS (Vid)
Vid Nerad Rozej used an inexpensive €70 ($82) TENS setup for vagus nerve stimulation after developing Long COVID in 2022. Before treatment he felt like he was "almost suffocating" roughly 75% of the time, and the stimulation helped reduce his breathing…
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On the road to recovery from Long Covid
Lauren combined nicotine patches at one-eighth of a patch daily through December with a broad daily supplement regimen, including CoQ10 100mg, Ionic Fulvic Acid 1ml three times a day, Hawthorn Leaves 5ml, and products like Adrenal Complex, Adreno Active,…
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My Recovery from Long COVID PEM Part 2: Microclots
Christy was prescribed the anticoagulant apixaban and the antiplatelet clopidogrel in June 2023 (omitting the aspirin normally used in triple therapy due to stomach sensitivity), continuing for 4 to 5 months after microclots and hyperactivated platelets were…
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Does ME/CFS Ever Go Away?
Credits mickel therapy and brain retraining. Amy was ill 4y with severe ME/CFS and is described as fully recovered. Influenced by Gabor Mate's brain-immune work.
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148: The Long Covid Recovery Path (Almost) No One Talks About - Suzy Bolt's Story
Credits yoga and brain retraining. Suzy had long COVID and is described as fully recovered. Known long-covid yoga/recovery advocate.
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128: Dr. David Mickel, MD: Thousands Are Getting Cured Quickly
Credits Mickel Therapy. David had long COVID and is listed among the recovery accounts. Third appearance; expert, not a patient.
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Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits restorative yoga and Optimum Health Clinic. Lisa was ill 40+ years total (3 recent bedbound) with severe ME/CFS and is described as fully recovered. Fluctuating course over decades.
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Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits CFS Health program, yoga nidra and breathwork. Jill was ill 4.5 years with severe ME/CFS and is described as fully recovered. Comorbid POTS.
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Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid
Credits pacing, somatic tracking and yoga. Kate was ill 13 years with severe ME/CFS and is described as fully recovered. Roundup post profiling 20 people; entry 1 of 20.
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Long Covid Healing Resources
Followed a 10-point Mayo Clinic-informed protocol: a TruVaga vagus-nerve-stimulation device for 2 minutes three times a day, guanfacine at 0.5mg twice daily (with room to increase to 1mg twice daily), L-arginine 2000mg twice daily, vitamin C 500mg twice…
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Recovered from ME/CFS after 30 years
She credits Rebecca Tolin's online mind-body course Be Your Own Medicine, taken over about six months at age 70, teaching calming breath work, the physiological sigh, box breathing and Wim Hof breathing alongside emotional and somatic work. Crucially she had…
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Radical Healing with Sara Southgate
Credits trauma and somatic work, reflexology and reiki. Sara had severe ME/CFS and is described as fully recovered. Now coaches women professionally.
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Overcoming Long Covid: Sue's Story
Sue's approach centered on daily Yoga Nidra practice, breathwork classes, and a community program called Rest Repair Recover built around gentle structure, rest and nervous system care, alongside lifestyle changes like setting boundaries and no longer…
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List of ME/CFS Recovery and Improvement Stories (page 14 discussion)
ixikd2025 credited a broad, kitchen-sink regimen spanning stimulant, mitochondrial, antihistamine/MCAS, and lifestyle interventions (meditation, running, acupuncture) for significant improvement. With so many concurrent changes, no single component could be…
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Severe ME/CFS 2013, Remission 2017, Relapse, Remission Dec 2022
Treating what she frames as underlying candida/parasite causes with a long, MD/PhD-supervised rotation of antifungals, antiparasitics and herbs, GlacierBloom reached remission by December 2022 after being severe/bedridden from 2013-2017 and again after a…
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Jackie Baxter's Story
Credits breathing retraining and pacing. Jackie was ill 3y with severe long COVID and is described as fully recovered. Runs The Long Covid Podcast; cold-water swimming.
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How Yoga Therapy Has Helped Me During Recovery
Credits yoga. Nicole had long COVID and is described as fully recovered. Yoga as a recovery tool.
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Melody's ME/CFS, Fibromyalgia and Long COVID Recovery Story
Melody was infected early in the pandemic, hospitalised with double pneumonia, then bedbound for six months and homebound on supplemental oxygen for two and a half years despite thirteen prescription drugs and multiple specialists. She credits a combination…
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Flo Stops the Leaks in Her Boat at Last
Flo became ill with ME/CFS and fibromyalgia after mold exposure roughly thirty-seven years before the post, at her worst unable to watch TV, read or follow conversations, with regular vertigo. Years of craniosacral therapy, PRP injections, hydrogen peroxide…
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Overcoming CFS Relapses: Rebuilding and Shifting Perspectives
Credits the Lightning Process, mickel therapy and CBT or psychological work. Katy was ill 10y with severe ME/CFS and reports a substantial improvement. Says recovery is not permanent without maintained habits.
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Daughter's recovery details
The regimen for Celandine's daughter included daily liquorice root powder and salt in plant milk, weekly-then-tapering Perrin Technique osteopathy (including breast lymphatic massage), the POTS medications ivabradine and midodrine with salt tablets and 2…
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My Recovery Journey from Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
Mediterranean diet was adopted as one strand of a broad, multi-modal recovery program that also included intermittent fasting, low-dose naltrexone, structured pacing and vagus nerve stimulation, with no separate dose or duration given for the diet itself. He…
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Leon Williams
Leon Williams recovered using a mind-body/neuroplasticity approach rooted in Dr. John Sarno's Tension Myositis Syndrome (TMS) framework, practicing somatic tracking meditation, expressive writing, breathwork and general meditation, with gardening as a…
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After 37 Years Flo Finds Her Answer
Flo lived with ME/CFS, fibromyalgia and migraines for 37 years, mostly homebound with severe brain fog, vertigo and light and sound sensitivity. She worked through decades of bodywork, energy and conventional therapies with limited success. EFT tapping and…
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Michelle
Michelle saw more than ten specialists and tried extensive medical treatment: beta blockers, the migraine drug Ubrelvy, meclizine for dizziness, two rounds of prednisone, B12 shots for neuropathy, and Paxlovid taken months after her initial infection, plus…
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Helen
Helen recovered through Mickel Therapy -- weekly hour-long sessions by Skype starting in September 2020 -- alongside the Curable app, meditation, breathwork, yoga, Trauma and Tension Release Exercises (TRE), and daily gratitude-diary journaling; no drugs or…
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Success keeping EBV in check with Tagament and/or a herbal protocol
Used Tagamet against recurring mouth sores and flu-like symptoms, but wary of long-term use over dementia-risk concerns, and describes an herbal stand-in - monolaurin, olive leaf extract, oil of oregano, raw garlic, cat's claw, reishi and andrographis taken…
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Impact of extended-course Paxlovid in established Long COVID (Case 5)
Case 5, a woman with roughly three years of Long COVID since March 2020 causing respiratory issues, fatigue, PEM, brain fog and body aches that had stopped her from exercising daily, took a 10-day extended Paxlovid course in June 2023 while otherwise only…
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Chronic Fatigue Syndrome: one woman's story of recovery
Credits CBT or psychological work, diet, somatic and breathwork. Anaya was ill 2.5y with severe ME/CFS and is described as fully recovered. Mindset shift and somatic breathwork; ran 42km ultra days later.
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Digestive enzymes profound positive effect on me (Mary)
After roughly 20 years of gallbladder and digestive problems, she titrated betaine HCl with pepsin up to 3 capsules per meal, alongside Standard Process AF Betafood, a chiropractor-supervised month-long liver detox, and milk thistle. Her gallbladder problems…
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Chronic Fatigue Gone - After 16 Years Jason Figures It Out
Jason developed ME/CFS after a viral illness in the early 2000s and was ill 16 to 20 years, bedbound for days after any exertion. He systematically tested many therapies and tracked the results in a journal. He credits hydrogen peroxide IVs, nebulised…
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I knew that one of the things that was keeping me sick was my constant focus on my illness
Began weekly hour-long Mickel Therapy sessions over FaceTime in September 2020 with a therapist named Trevor, himself recovered from a 10-year bout of CFS/ME, running for about five sessions over six months and aimed at retraining an autonomic nervous system…
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Robyn Dale
Robyn's treatment combined short courses of propranolol, zopiclone and diazepam early on with medium-term amitriptyline for insomnia, mood and muscle spasms, alongside daily walking, yoga, meditation and graded activity. She crashed severely in December 2021…
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Robyn Dale
Robyn was prescribed short-term propranolol for heart arrhythmia and palpitations, at doses that were increased despite her objections, short-term zopiclone and diazepam to help her rest, and medium-term amitriptyline for insomnia, mood, and to stop cluster…
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A treatment that helps me tremendously
Ill since 2012, this poster built daily direct sun exposure from five minutes to several hours a day over a few years, alongside high-dose vitamin D3. In summer he can do housework, see friends, sail and garden, going from roughly thirty per cent to over…
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Minja
After discovering recovery narratives on the Recovery Norway website, she used a self-directed regimen of breathing exercises with longer exhales than inhales, mindfulness (watching calming videos, counting colors in the room), progressive relaxation via…
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A treatment that helps me tremendously (pamojja)
Over eight winters of tropical sun exposure in India, this poster's swimming capacity rose from about twenty minutes to more than eighty during those sunny periods. A near-infrared lamp gave a smaller but measurable version of the same benefit when real sun…
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A treatment that helps me tremendously (splusholia)
Previously completely bedridden and unable even to sit up or talk, this poster credits hours of direct daily sun exposure as a key factor in improving to a severe-to-moderate level over subsequent years. It is a major but explicitly partial gain rather than a cure.
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Sarah's Story
Sarah tried an extensive list of treatments without full success: many hyperbaric oxygen sessions (costing "thousands" and giving only temporary relief before triggering relapses), acupuncture, kinesiology, diet changes, breathing exercises with osteopaths,…
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Alternative health and mind/body treatments return former aerobics instructor to health
Jodi, a London aerobics instructor, became bedbound with ME/CFS after glandular fever while overworked and stressed. Over several years she improved using kinesiology, acupuncture, reiki, dietary changes, mantras and sound healing, crediting the process…
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Berberine helped me
DrUniverse reports simply taking 5000mg of berberine daily and getting "also improvements," without further detail on what changed or how long it lasted.
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Berberine helped me
After 8 months in a severe state, Elike reports that four weeks of berberine and curcumin brought her back to her "pre-severe" baseline and that she no longer feels constantly in PEM mode. She notes that when she tried to replicate the protocol a few months…
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Some Patients Are Reporting Recovery from Long COVID (Sherri)
Sherri Klipowicz used a plant-heavy, low-gluten, low-dairy diet, restorative yoga, magnesium and glutathione supplements, and ozone therapy, and worked with an insomnia specialist to fix her sleep. She had been sick with Long COVID since March 2020, and…
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Some Patients Are Reporting Recovery from Long COVID
Lana Lynch's Long COVID symptoms improved after her second dose of the Pfizer-BioNTech COVID-19 vaccine in May, the only treatment named in the article. Before that she had months of fatigue and daily headaches and had to carefully ration her exertion.…
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Recovery stories: parasites cleanse
In 2006, took Paragone (an herbal antiparasitic supplement) for a couple of months alongside a very-low-carb diet, and reports it "cut the brain fog I'd grown up with by about 70%." Explicit that this did not touch the underlying ME/CFS, which they attribute…
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Breathing Pattern Disorder
Credits breathing retraining. Caroline was ill 12mo with severe long COVID and reports a partial improvement. ENO Breathe programme; ongoing management still needed.
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Oda Shares Her POTS and ME/CFS Recovery After 10 Years Using ANS REWIRE
Oda's recovery combined daily thyroxine for diagnosed Hashimoto's hypothyroidism with the ANS REWIRE program (daily meditation and "postural rewiring" videos starting July 2017), gentle home yoga via the Yoga Studio app, one session of Thomas Hanna-method…
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From 5 minute walks to a marathon comeback: Chris' CFS recovery story
Credits diet, meditation and cold water. Chris was ill 4y with moderate ME/CFS and reports a substantial improvement. Teacher, 30% functional; Ayurvedic diet, cold water; ran a marathon.
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Severe Chronic Fatigue Syndrome Recovery After Six Years - Vera's Story
Credits trauma and somatic work and ayurveda. Vera was ill 6y with very-severe ME/CFS and is described as fully recovered. Norwegian; Panchakarma plus trauma work, left toxic home.
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3-month IVIG experience
Did two years of IVIG (July 2016 to July 2018) at 82g per infusion cycle, run at a very slow infusion speed of 40 ("but it was the fastest that I could tolerate"), for autoimmunity, MCAS and dysautonomia that included years of muscle weakness and breathing…
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The best thing I have done is to say: no way will I accept my daughter will suffer
Aftur, the then-14-year-old daughter in this account, had four weeks of intravenous antibiotics, a biopath-prescribed supplement regimen taken three to four times daily, a strict no-sugar, no-carbohydrate diet, and acupuncture, before doing a 3-day Lightning…
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Pulsed high dose methylprednisolone + inosine + inositol = cured?
Replying in the same thread, Martin reports moving from "very severe to severe" on a corticosteroid infusion but says the inflammation is "not very easy to keep in check afterwards," requiring ongoing herbal management - an explicitly partial and fading…
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Adrienne Dellwo Shares Her Fibromyalgia Remission Story
Adrienne Dellwo's regimen included low-dose naltrexone at 3mg (compounded, versus a standard 30mg dose per the article), plus rhodiola rosea, L-theanine, vitamin B and D, a custom herbal blend and acupuncture from her rheumatologist, meditation, yoga, a…
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A Nurse With ME/CFS Finds Help in a Surprising Place: Christine's DNRS Recovery Story
Christine Reesor, a registered nurse, was severely ill for about fifteen years, the last four the most severe, becoming wheelchair-bound and hypersensitive to light and sound. A fecal transplant, acupuncture and diet changes gave only partial help. She…
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Red and Near Infrared Light Therapy (LEDs)
Johannes, bed-bound 20-22 hours a day and barely able to walk his dog for 10 minutes twice daily, started whole-body red/near-infrared LED panel sessions (10 minutes front and back, twice daily) in February 2020. Symptoms gradually eased over about six weeks…
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3 Decades of ME/CFS, Fibromyalgia, MCS, Lyme End Fast
Claudia treated chronic Lyme disease from 2012-2015 with three years of low-dose Byron White herbal protocols plus a strict elimination diet, then in 2019 did the three-month ANS REWIRE nervous-system retraining program alongside naturopath adjustments that…
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Jennifer Brea's Amazing ME/CFS Recovering Story: the Spinal Series Pt II
Jennifer Brea, the Unrest filmmaker, had been wheelchair-dependent for nearly all of her eight-year illness, at her lowest with breathing difficulties, flaccid limbs, numbness and speech problems. About six months before this post she underwent spinal…
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Kiki overcomes POTS, MECFS with Chronic Lyme after 10 years of illness
Credits diet, chiropractic and IV therapy. Kiki was ill 10y with severe ME/CFS and is described as fully recovered. Jugular venoplasty surgery plus NUCCA chiropractic.
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Jennifer Brea's Chronic Fatigue (ME/CFS) Recovering Story
Underwent spinal surgeries over several weeks to correct craniocervical instability (CCI) and tethered cord syndrome, wore a neck collar (Philadelphia or Aspen Vista) during recovery, and found the drug Mestinon (pyridostigmine) helpful for symptoms. She had…
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Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though
After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…
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Remission success. How?
Underwent a roughly three-week Ayurvedic panchakarma detox program (escalating ghee oleation, steam, purgation, deep-tissue massage, nasyam, herbal medicines) at a Kerala clinic after about 7 years of ME/CFS. Two days after finishing, reported riding a…
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ME/CFS, Valcyte, and me: Third time lucky
Tracy has tried valganciclovir (Valcyte) three times for ME/CFS: a six-month course in 2014 (three weeks of induction at two 450mg pills twice daily, then two pills once daily) cut short by an allergic reaction after switching to a generic mid-course; a…
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The Man and the Map: Dan Moricoli on His Continuing Recovery
A Phoenix Rising member (fT3g0) highlighted Dan Moricoli's published recovery story crediting a personal exercise-and-yoga approach distinct from standard graded exercise therapy. The underlying Health Rising article was not separately fetched, so duration…
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ANS Rewire Program Works For Bed Bound 11 Year ME/CFS/FM Patient
Peter, a businessman, developed ME/CFS and fibromyalgia after stress and trauma, becoming mostly bedbound for 11 years and running up significant debt on other treatments. He enrolled in Dan Neuffer's paid ANS Rewire course, a mind-body program of…
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Ayurvedic 'second stage trial' success
Spent four weeks in an intensive daily Ayurvedic body-mind treatment program in Kerala for what is described as "quite severe" ME. Says that by day 18-19 they "started smiling again" and became able to walk about 5km and swim without exhaustion, attributing…
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Homeopathy - My Cure after 15 years
Rosco84 developed severe fatigue and brain fog after glandular fever at 17 and struggled for 15 years while still working full-time, trying supplements, antidepressants and acupuncture with little lasting benefit. A homeopath using remedies including…
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Gaps diet put me in direction to recovery
After repeated antibiotic courses over the years triggered his illness, he adopted a GAPS-like diet along with herbs for dysbiosis and probiotics, describing himself as "making good progress" in his recovery without claiming it complete.
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M.E., My Mold, and I: A Story of ME/CFS and Toxic Mold
Over nearly seven years of ME/CFS beginning in late summer 2010, she tried pacing with a heart-rate monitor and many supplements, including herbal antivirals, for about a year, then added neurotransmitter support (dopamine, GABA), an ATP Fuel supplement,…
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Traditional Chinese Medicine Works
After 3.5 years of ME/CFS with respiratory symptoms severe enough that working required "extreme effort," did six months of Traditional Chinese Medicine -- acupuncture plus herbal tea and dietary changes. Reports being able to "breathe freely for the first…
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I feel a lot better after drinking this tea - which ingredient(s) are likely to be responsible?
Two cups a day of a commercial bedtime herbal tea blend left this poster feeling "the most content I've felt in at least 4+ years," with a possible small cognitive lift, taking about 30 minutes to kick in each time. The report comes from very early in the…
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My experience with Mickel Therapy
After 14 years of fluctuating moderate-to-severe ME/CFS (good years able to just manage groceries, bad stretches struggling to move around the apartment), did Mickel Therapy and went, in her words, from "15% to 75% plus functioning": no more flu-like…
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Amy's Story - from Athletic Go-Getter to Homebound and Back Up Again
Amy was an athletic runner working 60-hour weeks whose progressive fatigue, triggered by fevers after long runs, left her mostly home- and bed-bound and unable to work within a year. Dr Lerner treated her with Valcyte and she improved to near-normal daily…
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The Flu That Never Ends Finally Does for Heather
After four years of cognitive trouble, digestive problems, body aches and severe fatigue that diet, yoga, acupuncture, chelation and blood irradiation had not touched, Heather was prescribed Valtrex by Dr. Lerner in 2010. By 2012 she reported being fully…
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Monet finds relief from mind/body practices plus homeopathy
Monet developed ME/CFS and fibromyalgia after a reaction to a vaccination, becoming wheelchair-bound within nine months and mostly bedbound for over a decade. She pursued homeopathy, dietary change, herbal supplements and extensive spiritual and…
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Retraining Puts Linda on the Path to Recovery
Linda, a business owner, became mostly homebound with ME/CFS, fibromyalgia and multiple chemical sensitivities, with crushing fatigue, severe chemical and electromagnetic sensitivity and widespread pain. She credits about 95% recovery to amygdala-retraining…
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Listen to M.E. Part II: Mike Dessin Goes Down Again - A CFS/ME Relapse Story
Mike Dessin had been severely ill for about fifteen years, including a three-year completely bedridden stint so severe his doctor was amazed he was alive, before recovering over about five months through acupuncture, neural therapy and pleo homeopathics.…
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Ketamine gives Stephanie a chance at a life
Stephanie developed severe degenerative disc disease after a back injury at 22, leading to multiple surgeries and a mostly bedbound life with extreme pain that opioids, injections, physiotherapy and acupuncture failed to relieve. Ketamine infusions cut her…
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A Story of Survival: How Diet Saved a Chronic Fatigue Syndrome (ME/CFS) Patient's Life
Naomi narrowed her diet to ten foods she did not react to and stayed on that restricted diet for five years, alongside deliberate stress reduction and faith practice, a later shift to organic food, and unspecified herbs and vitamins. Her pain and migraines…
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Emotional Healing Key for Fibromyalgia Patient
Beth was diagnosed with fibromyalgia in 1987 and was mostly bedbound for close to a decade with severe fatigue, back pain, migraines and insomnia. She pursued Bach Flower Remedies, a candida diet, chiropractic, massage and Reiki alongside addressing…
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successfully treated SIBO with herbals
Tested positive for SIBO in April 2015 with a lactulose breath test so high the test was stopped early at a reading of 100. After a 6-week course of the herbal antimicrobials FC-Cidal and Dysbiocide (2 tablets of each, twice daily) plus rotating high-strain…
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Mike Dessin's Amazing Recovery Story
Mike Dessin was a healthy, athletic college student who developed ME/CFS after a severe flu in 1994 and worsened over 14 years, at his most severe isolated in a dark room unable to tolerate light, sound or touch and about 15% functional. An alternative…
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My Full Recovery By TCM + TCM issues Q&A
After about a year of conventional treatment failed to help CFS-like symptoms (rashes, fatigue, 2-3 hours of sleep a night, photosensitivity, unable to attend school), tried Traditional Chinese Medicine -- herbal formulas and diet changes -- switching…
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Do People Really Recover From ME/CFS and/or Fibromyalgia? An Inquiry (Alice)
Alice commented that after six years of fibromyalgia she felt much better than she had in years for about six weeks after starting a herbal antimicrobial protocol, a mushroom combination, megadose vitamin C, ashwagandha and L-phenylalanine. The improvement…
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Maureen's gradual onset - and her gradual recovery
Maureen developed ME/CFS at 35, waking one day unable to get out of bed with profound exhaustion, followed by recurring exhaustion, rashes, painful joints, constant colds and insomnia. She used Dr Teitelbaum's integrated protocol of diet, vitamins, herbs and…
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From the Bedside to the Outdoors: Green Girl Goes Green Again
An outdoorsy environmental scientist who blogs as Green Girl contracted Ross River virus in 2009 and relapsed severely in 2010, becoming mostly bedbound with fatigue and brain fog so severe she could only read small amounts. She used pacing, graded exercise,…
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Louise Finds One Thing That Turns Life Around
Louise, who had a prior history of anxiety and depression, developed post-viral fatigue after stress-induced poor sleep escalated into flu-like symptoms, severe muscle and joint pain and a sore throat that left her unable to work. Amitriptyline, rest,…
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Spiritual Experience Changes Matt's Life
Matt developed chronic fatigue syndrome after a viral illness in the mid-1990s and by 1998 was severely disabled with fatigue, dizziness, breathing difficulty, muscle pain, night sweats and brain fog that forced him to stop working. He states supplements and…
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Yoga Slowly Coaxes Fiona Back to Health
Fiona, a PR executive, developed ME/CFS in the early 1990s after stress, poor diet and flu, and by 1992 was wheelchair-bound, too tired to hold a conversation and having panic attacks. Gentle yoga focused on relaxation and breathing, meditation and a…
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Doing So Well On Modified Cowden Protocol
Nineteen years after a suspected tick bite left her unable to walk more than 10-20 minutes, a UK woman in her late 60s started a modified Cowden herbal protocol (Banderol/Cumanda, Andrographis 4/day, Japanese Knotweed 12/day for about three months, teasel…
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Stinging Her Way Back to Health
Nancy developed chronic fatigue syndrome in 1994 and experienced a relapse along the way. She credits bee venom therapy, which she says is not a cure but helped her get her life back, together with vitamin B12, hypnotherapy, guided meditation and…
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Reverse Therapy Reverses Four year Illness
Matt, 30, developed severe ME/CFS after a jaw-breaking injury and within four years was sleeping 20 hours a day with a permanent headache, dizziness and overwhelming fatigue. Cranial osteopathy, acupuncture, herbal medicine and kettlebell exercises gave only…
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Adrienne Delwho's Pathway to Remission
Adrienne, a former full-time TV news producer, developed full-blown fibromyalgia in 2006 that knocked her down hard. Over about four years she pursued endometrial ablation, acupuncture, a range of targeted supplements and a CPAP machine for newly diagnosed…
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Mickel Therapy Turns the Corner for Experienced Mind/Body Practitioner
Susie, herself a trained mind-body practitioner, became severely ill in 1991 with energy near zero plus severe pain, having already tried homeopathy, visualisation, acupuncture and CBT without success. About 24 years later she credits Mickel Therapy, built…
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From hospitalization to recovery: Leah's Dr. Lerner ME/CFS Recovery Story
Leah, mostly bedbound and repeatedly hospitalized (weight fell from 115 to 89 lbs) after onset in 1996, was put on Valtrex by Dr. Lerner and recovered to near-normal function for seven years before relapsing and needing a second course. On the second course…
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On the Path: Dan Moricoli's Remarkable Chronic Fatigue Syndrome Recovery Story
Dan Moricoli, 71 at the time, had been severely ill since May 2006, at his worst largely housebound with myoclonic seizures, speech difficulty and comatose-like crashes lasting hours. He credits a carefully graded, heart-rate-based exercise program built…
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Mickel Therapy Does it For Mandi
Mandi went from an active woman holding two jobs to someone so severely fatigued and depressed she could not get out of bed, with repeated relapses including a three-month relapse in 2004 that forced her to stop working. Mickel Therapy brought rapid change:…
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Thirteen years after occupational exposure - Doug is well
Doug developed ME/CFS after occupational exposure to a waterlogged building around 1996-2000, with constant flu-like illness, fever, joint pain and IBS, relapsing three or four times a year during a long partial-recovery phase. Over about thirteen years he…
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How Yoga Can Change Your Life
Index entry credits Celandine with the Perrin Technique (lymphatic drainage massage) for ME/CFS improvement, in the same Daily Mail piece as Sally's yoga story. The page was blocked when fetched, so no further detail on duration of illness, severity, or…
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How Yoga Can Change Your Life
Index entry credits Sally with yoga practice for ME/CFS improvement from a moderate-to-severe baseline. The Daily Mail page was blocked when fetched, so no further detail on duration of illness or durability beyond the index claim is available.
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what has worked for you
Starting from only managing to get dressed once a week, she used an unspecified herbal list, a strict pacing protocol and twice-weekly oxygen therapy at an MS therapy centre. She now works 2.5 days a week doing "easy office stuff," presented as a sustained…
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Interferential current therapy via electroacupuncture: significant benefits / recovery from ME/CFS
After 23 years of illness and roughly 600 practitioner visits, reports "presently having great success" with spironolactone, saying it let her cut all her pain medications by at least half. No dose is given and the post does not describe overall functional…
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The Woman Who Healed Chronic Fatigue Syndrome Naturally
Edie used a wide-ranging natural protocol: topical arnica gel, papaya and devil's claw for inflammation, Cell Food (a liquid oxygen supplement), homeopathic thyroid, adrenal, hypothalamus and pituitary remedies, spirulina, herbal melatonin and 5-HTP for…
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CURED CFS/ME? PLEASE SHARE YOUR STORY HERE.
Unable to work or grocery-shop for about ten years, this poster describes roughly eight years of intensive rest combined with Armour thyroid, herbal hormone support, magnesium and low-dose Effexor, after which she functioned normally for over sixteen years -…
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Has anyone on this site cured him or herself of CFS/ME? Did I?
Used a mix of doxycycline (which finally knocked out a persistent fever), roughly 20 doses of dexamethasone borrowed from a friend (temporary but "phenomenal" relief), Isocort, daily hydrocortisone gel, raw herbal teas, green powders, methylation support,…
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Heart Rate Monitor Based Exercise Program Improves Heart Functioning in Chronic Fatigue Syndrome (ME/CFS)
A 28-year-old woman with ME/CFS, caught in a push-crash cycle and no longer able to work, used a heart-rate monitor set to beep whenever she exceeded her anaerobic threshold as a cue to sit or lie down, combined with gentle flexibility work, lying-down…
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My Air Hunger has improved dramatically !!
Betaine HCl, digestive enzymes and a high-CFU probiotic taken around meals brought an estimated "60-70%" improvement in breathing capacity and a big rebound in appetite, easing air hunger she calls "devastating" and "distressing." Presented as an ongoing…
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Improved (5yr)-sometimes dont notice it -now new baseline
After 5 years of severe illness with autonomic dysfunction, cognitive problems, sleep apnea and spinal compressions needing three surgeries, he combined a broad stack - Adderall, Celexa, omeprazole, dopamine- and adrenal-support supplements, B12, an…
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My Valcyte pilgrimage
About two years into illness with a persistent CMV infection (titer 107 against a normal range of 0-18), severe brain fog, extreme fatigue needing 12+ hours of sleep, and tachycardia and breathing trouble so bad she "felt like I was dying," started Valcyte…
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Dr. success using higher doses of GCMAF
Tried K-Maf, a homeopathic-dilution version of GcMAF, alongside another forum member who had the same reaction. Reports feeling worse while taking it (similarly to a co-poster's night sweats and severe fatigue on the same product), with improvement only…
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I have had good results from acupuncture lately
After increasing community-clinic acupuncture to two-to-three times a week (alongside B12 and apple cider vinegar), says she has been "feeling markedly better" over a couple of months and attributes the change to the acupuncture. Explicitly hedges on…
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Some things that have helped me
A ten-month combination of Lugol's iodine, desiccated thyroid, an elimination diet, monthly liver flushes and an antiparasitic herbal mix brought "much more energy and much less pain" after 9.5 years of CFS/fibromyalgia, with symptoms shifting within a day…
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has anyone stuck religiously to Dr Myhill's protocol and hadsignificant improvements?
Close to a year into combining Dr Myhill's protocol with the Perrin technique, energy work, a methylation protocol and KPU treatment, this poster reports having "improved a lot" and raised her functional level. She stresses "no one person had all the…
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3 Things that Help the Most!!
Credits a low-carb, high-protein diet, hydroxocobalamin B12 injections every 3-4 days, and chiropractic care with eliminating her dizziness and constant thirst. The improvement is specific to those symptoms rather than an overall recovery, stated with clear,…
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Successful Treatment of CFS - Oriental Medicine
After 30 years of illness described as "sheer agony," started a traditional Chinese spleen tonic together with CoQ10 and alpha-lipoic acid. Says that within days she felt "much more energetic" and within one to two weeks felt "the way I'd always thought…
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Anyone improve from bed/housebound to high level of functionality?
Mostly bedridden (occasionally a little more functional) for years after a 1982 onset, she did colonic irrigation, acupuncture and Chinese herbs from 1986-1988 and rose to near-normal activity with only mild symptoms, holding that level for about 15 years…
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Successful Treatment of CFS - Oriental Medicine
After about two years of acupuncture and Chinese herbal treatment (following Giovanni Maciocia's TCM approach), reports being "90% recovered," adding that this level of improvement "stayed that way for most of the next 12 years" - one of the more durable…
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Successful Treatment of CFS - Oriental Medicine
Calls a Chinese herbal mixture "the best medical intervention I have ever taken" for POTS and CFS, but gives no detail on the formula, dose, illness duration/severity, or how large or durable the benefit was, so the claim is notable but thinly documented.
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Diagnosis Unknown - Story of CFS Recovery
Book-excerpt account (from "Diagnosis Unknown") quoted on the forum describing Linda Smith's illness, which had left her unable to walk unassisted, in constant pain, with swollen feet/fingers and largely bedridden after 5+ years. Following an extended…
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What Treatments Have Cured People?
Doug, misdiagnosed for 7 of his 11 sick years before Chlamydia pneumoniae and EBV were identified, took inosine alone for a couple of short stretches with limited effect, then added DMAE about 1.5 years before posting; he described the fog lifting and…
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What treatments HAVE ACTUALLY helped?
Used acupuncture and Chinese herbs and, after 5 years of illness, recovered fully and stayed well for 8 years before later relapsing. She is explicit that she doesn't claim the treatment caused the recovery, noting she personally knows over a dozen people…
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Anyone recovered after discovering residential toxic mold exposure?
After 12 years of mostly-disabling CFS, including a final year spent bedridden 18-22 hours a day, she relocated to avoid mold/biotoxin exposure (living in a tent, then an RV, in the desert) alongside neural therapy, detox and antivirals. She says classic…
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Anyone recovered after discovering residential toxic mold exposure?
A naturopath-supervised candida-free diet plus mold avoidance and herbal supplements left her "almost symptom free" for about two years, "though not cured." Major life stresses then triggered a relapse and she "became horribly ill again," so the substantial…
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Stages of Recovery - personal experience
Followed Dr Myhill's standard protocol (B3, B12, magnesium, CoQ10, 15g/day L-glutamine, 10g/day BCAAs, 1g/day malic acid) starting Nov/Dec 2007, combined with an elimination diet of mainly white rice and chicken, FIR sauna detox, and Buteyko breathing. Went…
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My complete protocol - recovering well from bad 7 years+ CFS
Ran a broad two-year self-built protocol - high-dose B vitamins, vitamin D3, D-ribose, CoQ10, acetyl-L-carnitine, a sublingual/nasal B12-folate methylation stack, amino acids, Buteyko breathing, infrared sauna and transdermal magnesium - layered onto months…
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Listen To M.E.: An ME/CFS Patient Recovers
Credits neural therapy and IV nutrient detox. Mike Dessin was ill 14y with very-severe ME/CFS and reports a substantial improvement. Neural therapy and IV nutrients; comatose to 80% in months.
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Overcoming CFS/M.E.
Credits mickel therapy. Saul was ill 6y with moderate ME/CFS and is described as fully recovered. Founder now sells his own derived Health Recovery Therapy.
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What GcMAF dose?
As a patient of Dr De Meirleir, took weekly injectable GcMAF at 50ng in 2012, which she says "normalized my Nagalase and...improved my general condition," alongside separate antibiotic/herbal treatment for Borrelia and Bartonella co-infections between 2012…
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Dr. David Mickel interview/companion page
Credits Mickel Therapy. David had ME/CFS and is listed among the recovery accounts. MD expert, 25yrs treating others; not a personal story.
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Regaining Energy and Joy: Katja's DNRS Victory Against Long COVID
Credits brain retraining. Katja had severe long COVID and is described as almost fully recovered. EBV plus long COVID; now runs and does yoga.
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Mickel Therapy Turns the Corner for Experienced Mind/Body Practitioner
Credits mickel therapy. An unnamed patient had ME/CFS and reports a substantial improvement. Branded mind-body therapy method.
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Stinging Her Way Back to Health
Credits bee venom. An unnamed patient had ME/CFS and is described as fully recovered. Sting-based therapy implied.
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A Package Deal Works for Clare
The title states that a combination of supplements, diet, yoga and meditation worked for Clare, but only a brief quotation could be retrieved: that to be well she has to put in as much as she wants to get out. Her illness duration, severity, specific regimen…