Success keeping EBV in check with Tagament and/or a herbal protocol
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Published
- Jan 2023
Summary
Used Tagamet against recurring mouth sores and flu-like symptoms, but wary of long-term use over dementia-risk concerns, and describes an herbal stand-in - monolaurin, olive leaf extract, oil of oregano, raw garlic, cat's claw, reishi and andrographis taken three times daily with meals - that "do[es] the same job as Tagamet does." Reports measured, hedged success: "I've had success keeping mouth sores and flu like symptoms away lately," describing symptom control rather than any broader CFS recovery. No data on how long the control has held.
What they credit
Credits Alternative therapies, Antihistamines & MCAS, AHCC and medicinal mushrooms (reishi, shiitake, maitake), H2 blockers (famotidine, cimetidine), Herbal and Chinese medicine.
Similar stories
-
I start to relapse every time I come off equilibrant
Equilibrant, a supplement combining shiitake mushroom with selenium, astragalus, sophora flavescens, olive leaf and licorice, was taken daily for over a year, working up to six pills a day. They had a severe bacterial infection that nearly killed them,…
-
Radical Rest and Beyond
The author of Encephalogirl (who signs as Michelle) treats her ME/CFS-related dysautonomia and POTS with guanfacine and low-dose Abilify (titrated from 0.5mg down to 0.25mg after migraines, then back up to 0.5mg), an increased dose of low-dose naltrexone, a…
-
Cusack protocol for EDS—reports from anyone trying it
Maitake mushroom, one component of the Cusack Protocol supplement regimen, was taken by a forum poster with thoracic spinal instability linked to their ME; illness duration is not stated. Within days of starting it they noticed they could stand longer and…
-
List of ME/CFS Recovery and Improvement Stories (page 7-8 discussion)
godlovesatrier, previously almost housebound, credited the same HASD protocol (v3.2, with EGCG and a broader supplement stack) as BrightCandle for progressing to tolerating low levels of exercise, with resolution of a sore throat, neck pain,…