Miruvor
Long COVID Severe → recoveredIll for 8 months

Antoine

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
8 months
Published
Nov 2022

Summary

Antoine tested positive for COVID in May 2021, then had severe heart pain, electrical sensations and light-headedness on standing; at worst he crawled to the toilet. He credits mental health support from Amy most, with meditation, daily self-talk and gradually pushing his activity. He began improving around the turn of the year and by spring 2022 said he was back to health, running and training his kids in soccer.

This summary is short because we could not read the full page, only the details recorded about it. The original has the rest.

Read it in their words

positivelycovid.org — a recovery advocacy site.

What they tried

Credits Alternative therapies, Brain retraining, Mind-body practices, Pacing, Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust), CBT and psychotherapy, Graded exercise / graded activity, Meditation, yoga, breathwork.

Also tried

Uplifting recovery podcast· HelpedComedy and laughter-track TV· HelpedSelf-help books· Helped

Approaches: Alternative therapies · Brain retraining · Mind-body practices · Pacing

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; the account doesn’t give enough times to place each step. Hover a point to see what happened and what they link it to. Open dots mark a change they link to a treatment, orange ones a setback. 3 steps say too little to place on the scale and are only in the table. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
May 2021Tested positive for COVID, then severe heart painNot stated
—Worst part of long COVID; crawling to the toilet, light-headed on standingSevere
around the turn of the yearStarted improvingNot statedCBT and psychotherapy
March 2022Feeling much more myself; pushing activity little by littleNot statedGraded exercise / graded activity
spring 2022Back to health; running and training kids in soccerRecovered

Symptoms mentioned

Symptoms: Anxiety & low mood, Headaches & migraine, Heart symptoms & palpitations, Neuropathy & tingling, POTS & dysautonomia, Pain & fibromyalgia.

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