List of ME/CFS Recovery and Improvement Stories
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Undated
Summary
Keela Too is listed as moving from severe to moderate on tenofovir over 12 months, with the gains described as permanent.
What they credit
Credits Antivirals, Tenofovir / antiretrovirals.
Similar stories
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Treatments. Yes, they do exist.
In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…
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Improved on triple anticoagulant therapy, considering adding tenofovir
Five months into apixaban, clopidogrel and aspirin (aspirin eventually raised to 100mg/day) for Long Covid presenting as moderate ME/CFS of over two years' standing, improvements appeared around day 40: ability to tolerate screens "increased manyfold," eye…
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List of ME/CFS Recovery and Improvement Stories (page 10 discussion)
fingers2022 has been on PrEP (tenofovir/emtricitabine, an antiretroviral combination) for 5 years and roughly doubled his weekly training energy expenditure (1,500 to 3,000 kcal), tracked objectively via parkrun and Strava data, with better physical capacity…
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Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)
Started Otezla in autumn 2018, which "made a big difference" within a month, then added valganciclovir, ritonavir and Isentress from January 2019. Had been confined to a dark room, wheelchair-bound and unable to tolerate sound or light after a 2016 crash;…