List of ME/CFS Recovery and Improvement Stories (page 10 discussion)
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Published
- May 2024
Summary
fingers2022 has been on PrEP (tenofovir/emtricitabine, an antiretroviral combination) for 5 years and roughly doubled his weekly training energy expenditure (1,500 to 3,000 kcal), tracked objectively via parkrun and Strava data, with better physical capacity and recovery. He noted deterioration on stopping the medication in the past, indicating the improvement is maintenance-dependent.
What they credit
Credits Antivirals, Tenofovir / antiretrovirals.
Similar stories
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Treatments. Yes, they do exist.
In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…
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Improved on triple anticoagulant therapy, considering adding tenofovir
Five months into apixaban, clopidogrel and aspirin (aspirin eventually raised to 100mg/day) for Long Covid presenting as moderate ME/CFS of over two years' standing, improvements appeared around day 40: ability to tolerate screens "increased manyfold," eye…
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Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)
Started Otezla in autumn 2018, which "made a big difference" within a month, then added valganciclovir, ritonavir and Isentress from January 2019. Had been confined to a dark room, wheelchair-bound and unable to tolerate sound or light after a 2016 crash;…
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Antiretrovirals to treat MECFS
Truvada (tenofovir disoproxil fumarate plus emtricitabine), alternating some months with tenofovir alone, with raltegravir planned as an addition. Illness duration and severity are not stated in the post. Her husband reports she is slowly recovering on the…