How it went
Did it last?
- 5 of 11 said the benefit wore off (including the 1 who relapsed).
- No one said they needed to keep it up to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 1 | 9% |
| Near-full | 2 | 18% |
| Substantial | 4 | 36% |
| Partial | 3 | 27% |
| Relapsed | 1 | 9% |
| No benefit | 0 | 0% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Mild | 1 | 0% | |
| Moderate | 2 | 100% | |
| Severe | 3 | 0% | |
| Very severe | 2 | 50% |
3 accounts don’t say how ill the person was.
Who published these accounts
27% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.
All 11 accounts
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Relief! I still have CFS but am a MILLION times better, takes a lot of work but worth it
Built an extensive daily regimen around kratom (Green Malay strain), weekly B12 injections, magnesium, psyllium fiber, CPAP therapy, an annual course of Xifaxan and a year-long course of itraconazole, plus NAC, glycine, glutathione and BPC-157, for ME/CFS…
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Relief! I still have CFS but am a MILLION times better
julienl42's own title is his hedge: after 13 years and a long, actively-managed stack of prescription, antifungal, sleep and supplement treatments, he has gone from being in bed all day with 3-4 crashes a month to about one crash every one to two months,…
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Stuart Porter's Recovery Story
Used the ANS Rewire program alongside a paid one-on-one recovery program with two CFS coaches, then built his own RESTAND framework after studying 300+ other recovery stories over 600+ hours; he was also prescribed GTN (glyceryl trinitrate) by his doctor. He…
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Recovery from ME/CFS
Combined a dedicated FND (functional neurological disorder) treatment program, which she says completely resolved symptoms like one-sided paralysis and speech and walking difficulties with no relapse, with neck physiotherapy that stopped seven years of…
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The Temporary Recovery Stories (Judi)
Commenter Judi Warner described three separate temporary remissions from her ME/CFS: about a month after starting CPAP, about three months on low-dose naltrexone, and about a month on low-THC CBD oil. Each faded, and no further detail on severity is given.
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Preventing Sleep Apnea Therapy was Miracle Cure for Me
After roughly 15 years of brain fog, mold sensitivity, daytime sleepiness and exhaustion she attributed to self-diagnosed ME, Mary Jane Reyes began using Provent, an adhesive nasal-valve device for sleep apnea. Within a few nights of use she reports "all of…
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Adrienne Delwho's Pathway to Remission
Adrienne, a former full-time TV news producer, developed full-blown fibromyalgia in 2006 that knocked her down hard. Over about four years she pursued endometrial ablation, acupuncture, a range of targeted supplements and a CPAP machine for newly diagnosed…
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Has anyone recovered from CFS from a C-Pap machine?
After about 8 months of adjusting CPAP settings and trying different masks for sleep apnea, she reports a modest "1 or 2 point" gain on her CFS severity scale and better morning recovery even after a bad night - "I didn't feel like a truck run over me." She…
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Improved (5yr)-sometimes dont notice it -now new baseline
After 5 years of severe illness with autonomic dysfunction, cognitive problems, sleep apnea and spinal compressions needing three surgeries, he combined a broad stack - Adderall, Celexa, omeprazole, dopamine- and adrenal-support supplements, B12, an…
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Just passed six months on the Gupta programme
He followed the Gupta Programme (amygdala retraining) for four of a planned six months, doing daily meditation and the "Stop-Stop-Stop" technique alongside an acting class and other activities. He describes his ME/CFS as relatively mild, following a period…
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Chronic Fatigue Survivor's Blog
Credits pacing, brain retraining and sleep apnea tx. Graham had ME/CFS and reports a partial improvement. Sydney blogger since 2009; now frames CFS as undiagnosed sleep apnea.