Miruvor
ME/CFS Very severe → substantialIll for 30 years

Feeling generally better

Condition
ME/CFS
At worst
Very severe (bedbound, unable to do basic care)
Ill for
30 years
Published
May 2013

Summary

Thirty years after a mono-triggered onset that left her housebound, unable to drive or cook, with severe vertigo and depression, she layered years of high-dose Famvir and Acyclovir and about two years of Mycoplasma antibiotics with, more recently, roughly 4-5 months of Protandim (which nearly eliminated her vertigo) and 2+ months of nightly 50mg compounded progesterone plus cutting out gluten. On the progesterone she began working out within 3 days and sustained daily exercise for the first time, moved from housebound to working 30 hours a week, her resting heart rate dropped from about 120 to just under 100, and a decade of daily low-grade fevers stopped. She insists it's a combination effect and explicitly says "I do not believe I have been cured," describing herself as "not well...but SO much better," with the improvement holding steady as of her post.

Read it in their words

forums.phoenixrising.me

What they credit

Credits Antibiotics, Antivirals, Hormones & thyroid, Trauma & somatic work, Acyclovir, Doxycycline and other antibiotics, Famvir / famciclovir (Pridgen), Sex hormones (progesterone, estrogen, HCG).

Symptoms mentioned

Symptoms: Anxiety & low mood, Flu-like symptoms.

Similar stories

  • Choose the order: Oximatrine, Olmesartan, Famciclovir, Inosine Pranobex and Cycloferon.

    Partial ME/CFS forums.phoenixrising.me Jun 2018

    Olmesartan, an angiotensin receptor blocker taken as part of a Marshall Protocol approach; he does not give his own exact dose, though he notes a severe ME/CFS patient he knew benefited on as little as 20mg daily within a few months. He reports the drug…

  • My experience on Famvir

    Substantial ME/CFS ModerateEffect faded forums.phoenixrising.me Jan 2011

    Relapsed with CFS in October 2010 after three months of stress, then started Famvir 250mg twice daily (briefly upped to 500mg twice daily for 5-7 days) combined with Cycloferon; within two to three weeks felt "substantially better," with milder headaches and…

  • Do CFS Patients Ever Get TRULY Well?

    Near-full ME/CFS SevereIll 12 years forums.phoenixrising.me Oct 2009

    Combined a mold-avoidance protocol with cholestyramine taken in low-mold locations, three months of doxycycline for Lyme, Famvir, and then Valcyte started about three weeks before posting. Says she reached full wellness roughly a year before this post, with…

  • Japanese Encephalitis Vaccine article comments (Suzanne)

    Substantial Long COVID healthrising.org Mar 2023

    Suzanne received the Shingrix vaccine about a month before her comment and subsequently added acyclovir. She said she was "still coasting on the huge improvement" the Shingrix vaccine gave her, though the page gives no specifics on her prior illness severity…