Do CFS Patients Ever Get TRULY Well?
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 12 years
- Published
- Oct 2009
Summary
Combined a mold-avoidance protocol with cholestyramine taken in low-mold locations, three months of doxycycline for Lyme, Famvir, and then Valcyte started about three weeks before posting. Says she reached full wellness roughly a year before this post, with cognition back to pre-illness level and physical function at "100%" after starting Valcyte, and that mold reactivity dropped sharply during a deliberate break from Valcyte. She calls herself "cautiously optimistic," saying "fingers crossed" the improvement holds, and was planning to resume Valcyte to test whether it was really responsible.
What they credit
Credits Antibiotics, Antivirals, Mould avoidance, Doxycycline and other antibiotics, Famvir / famciclovir (Pridgen), Lyme / co-infection protocols, Mold avoidance / CIRS protocol, Valcyte / valganciclovir.
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