Miruvor
ME/CFS Severe → partialIll for 12 yearsBenefit faded or relapsed

No PEM after weeks on Valacyclovir

Diwi9forums.phoenixrising.mePublished Jul 2021

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
12 years
Published
Jul 2021

Summary

Restarted valacyclovir at 1g three times daily after roughly a year spent bedridden 20-22 hours a day, following a 2009 viral onset, a 2011-2016 quasi-remission, and a hard relapse after a second viral infection in 2016. Just over a month in, reports "increased energy, no PEM, improved sleep regulation" and much less arm numbness and neck/back inflammation; by early August 2021 was doing "pretty intense" aerobic exercise - hiking over an hour, stationary bike, rowing, weightlifting, roller skating - "not crashing." Self-describes as "in partial remission" while "still dealing with symptoms," and had two days of PEM after a stress trigger in mid-August that was "not as severe as in the past," confirming the underlying illness persisted even as the overall picture stayed much improved.

Read it in their words

forums.phoenixrising.me

Read the original ↗ Archived copy

What they credit

AntiviralsValtrex / valacyclovir

Symptoms mentioned

Neuropathy & tinglingPost-exertional malaise

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