Lyme Literacy: A 'Chronic Fatigue Syndrome Chronicle' Pt. VI
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 14 years
- Published
- Jul 2013
Summary
Sulfamethoxazole/trimethoprim (Bactrim) was one of several antibiotics she received intravenously, alongside Doxycycline and Azithromycin, under a Lyme-literate physician's care. She had been severely debilitated by chronic fatigue syndrome for about fourteen years, since a flu shot, at the time of this treatment. She reports the regimen did not help at all: "Nothing helped. I continued to be just as debilitated, depressed and anxious as ever." No improvement or benefit specific to Bactrim is described anywhere in the account. She notes uncertainty about whether any symptom changes reflected a Herxheimer die-off reaction rather than a genuine treatment effect, and reports no later relapse since no gain occurred.
What they credit
Credits Doxycycline and other antibiotics, Lyme / co-infection protocols.
Similar stories
-
Does anyone with CFS get back to 100% ever?
uglevod's treatment was the Marshall Protocol (MP, per mpkb.org), an antibiotic-based regimen; the post doesn't give specific drugs or doses, only that it was "brutal," especially in the first 1.5 years, with blood work resembling "mild chemo." The post…
-
Getting Results, increased activity
Returning years after his 2014 ARV thread, describes a newer multi-drug stack - disulfiram (Antabuse) escalated from 125mg to 250mg twice weekly over four months with alpha lipoic acid the following morning, plus clarithromycin/rifampin/minocycline for…
-
Sirin Gnadeberg Shares How She Cured Her ME/CFS and POTS
Sirin Gnadeberg added salt to her drinking water starting in April 2016, which significantly improved her POTS symptoms, then took 16 weeks of antibiotics after a Lyme specialist found elevated antibodies to Bartonella, Chlamydia and Mycoplasma (despite…
-
Severe post-Lyme ME/CFS patient achieves full remission after Taymount FMT
Kasia Vermaire, left severely symptomatic with digestive collapse after Lyme disease was declared "cured" by antibiotics, and at one point contemplating euthanasia from desperation, received an FMT at the Taymount Clinic in June 2018. She reported full…