Miruvor
ME/CFS Very severe → relapsedBenefit faded or relapsed

Dr Park's 90% Recovery Protocol (LD-IVIG / IV Saline / ART / Nutrition) - What can we learn?

Condition
ME/CFS
At worst
Very severe (bedbound, unable to do basic care)
Ill for
years, completely bedbound
Published
Jun 2017

Summary

Strict Aggressive Rest Therapy -- total silence, no TV or music, complete physical and mental rest -- from a completely bedbound baseline produced full remission lasting 2-3 years: "it was completely gone... I was able to do everything I previously was before I got ME, no issues at all." She later relapsed after resuming normal activity without the same support, and believes restarting ART "would likely" work again but isn't currently doing so -- a rare full-but-temporary remission through behavior alone.

Read it in their words

forums.phoenixrising.me

What they credit

Credits IVIG, Pacing, IVIG / subcutaneous Ig, Pacing and the energy envelope, Salt, fluids and compression.

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