mTor Inhibitor Rapamune Helps 5 ME/CFS Patients in Dallas
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Apr 2017
Summary
Two days into taking Rapamune, wrote "feel much much much better. Finally spent most of the day out of bed," and on day two, "it still seems to be working." Explicitly cautious about reading too much into so little time, noting prior false hope with Famvir and the possibility of a placebo effect; too early in the thread for any information on whether it held.
What they credit
Credits Antivirals, Other prescription drugs, Famvir / famciclovir (Pridgen), Rapamycin / sirolimus.
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