List of ME/CFS Recovery and Improvement Stories (page 10 discussion)
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 7 years
- Published
- 2024
Summary
nolongerdiseased, ill with post-viral ME/CFS from age 12 to 19, progressed from moderate (50% function) to full remission over about 5 months using a 3-month Goldner autoimmune protocol followed by roughly 2 months of low-dose Abilify (0.75mg), with PEM eliminated entirely. The remission held through a subsequent COVID-19 infection, which is notable given COVID's association with triggering or worsening ME/CFS in others.
What they credit
Credits Low-dose naltrexone, Other prescription drugs, Low-dose Abilify / aripiprazole.
Similar stories
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Treatments. Yes, they do exist.
In this follow-up post, Encephalogirl (Michelle) lists an expanded regimen: low-dose naltrexone, low-dose Abilify, guanfacine, about nine months of tenofovir as part of a planned minimum one-year antiviral course, six weeks of low-dose rapamycin at 1mg once…
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Hyperbaric Oxygen Therapy Turns Mathew's Long COVID / ME/CFS / POTS Around
Mathew developed long COVID with ME/CFS and POTS after a COVID infection in February 2020 and cycled through severe crashes for four years, at times 20 hours a day in bed, despite midodrine, low-dose naltrexone, Abilify and Paxlovid. In late 2023 he…
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Drugs Get Mathew Most of the Way and Hyperbaric Oxygen Does the Rest
Dr Mathew Robinson, a university professor, developed long COVID with ME/CFS and POTS after infection in February 2020 and spent 20-22 hours a day in bed. Midodrine, low-dose Abilify and low-dose naltrexone under Bateman Horne Center care brought him to…
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Radical Rest and Beyond
The author of Encephalogirl (who signs as Michelle) treats her ME/CFS-related dysautonomia and POTS with guanfacine and low-dose Abilify (titrated from 0.5mg down to 0.25mg after migraines, then back up to 0.5mg), an increased dose of low-dose naltrexone, a…