Miruvor
ME/CFS Severe → near-full

Please Tell Me Your Valtrex + Valcyte Story

nventor (Roger)forums.phoenixrising.mePublished Nov 2010

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
Not stated
Published
Nov 2010

Summary

Starting from three naps a day and 8-10 hours in bed a night, "barely" able to keep his head up (a week-long Valtrex trial had caused adverse effects, so he avoided it), began Famvir plus Immunovir and started improving after about two months. He then added Valcyte at 1800mg for three weeks, tapering to 900mg, and ultimately rated himself 8.5 to 9 on his wellness scale, able to exercise somewhat and work 12-hour days, while noting the medication regimen "took its toll," implying the gain came with ongoing cost rather than being effortless.

Read it in their words

forums.phoenixrising.me

Read the original ↗ Archived copy

What they credit

AntiviralsFamvir / famciclovir (Pridgen)Valcyte / valganciclovirValtrex / valacyclovir

Similar stories

  • Recovery Story Survey Suggests Some Commonalities

    Substantial ME/CFS Severe healthrising.org May 2015

    Alternates between Valcyte and either Famvir or Valtrex, cycling between antivirals, for ME/CFS complicated by recurrent bacterial and viral infections from immune dysfunction. On a rough 1-10 disability scale, says he has gone from a 3 to an 8, now varying…

  • AV's are working

    Substantial ME/CFS Effect faded forums.phoenixrising.me Mar 2010

    Combined long-term Valtrex and Famvir, and by 18 months in reported reaching roughly "90%" of baseline function, though symptoms returned within about a week whenever he tried stopping, so he cycled on and off every few months rather than quitting. In a…

  • Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)

    Substantial ME/CFS forums.phoenixrising.me 2021

    Ran a long multi-drug protocol: valganciclovir at 450mg twice daily for a year then a lower maintenance dose for another 8 months, repeated after HHV-6 reactivated again; famciclovir 500mg three times daily for 6 months; gammaglobulin infusions every three…

  • ME/CFS, Valcyte, and me: Third time lucky

    Partial ME/CFS Moderate tracyduvall.com Oct 2018

    Tracy has tried valganciclovir (Valcyte) three times for ME/CFS: a six-month course in 2014 (three weeks of induction at two 450mg pills twice daily, then two pills once daily) cut short by an allergic reaction after switching to a generic mid-course; a…