How it went
Did it last?
- 6 of 11 said the benefit wore off (including the 1 who relapsed).
- 1 of 11 needed to keep doing it to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 1 | 9% |
| Near-full | 0 | 0% |
| Substantial | 4 | 36% |
| Partial | 4 | 36% |
| Relapsed | 1 | 9% |
| No benefit | 1 | 9% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Severe | 2 | 0% |
9 accounts don’t say how ill the person was.
How often it comes up
Posts that mention Sofosbuvir / maraviroc (off-label), per 1,000 posts each year. Hover a point for the count.
Show as a table
| Year | Posts mentioning it | All posts | Per 1,000 |
|---|---|---|---|
| 2009 | 0 | 184 | 0.0 |
| 2010 | 0 | 682 | 0.0 |
| 2011 | 0 | 704 | 0.0 |
| 2012 | 0 | 1,491 | 0.0 |
| 2013 | 0 | 1,995 | 0.0 |
| 2014 | 0 | 2,707 | 0.0 |
| 2015 | 0 | 2,566 | 0.0 |
| 2016 | 0 | 2,023 | 0.0 |
| 2017 | 0 | 3,381 | 0.0 |
| 2018 | 0 | 2,523 | 0.0 |
| 2019 | 0 | 1,637 | 0.0 |
| 2020 | 0 | 3,318 | 0.0 |
| 2021 | 7 | 2,469 | 2.8 |
| 2022 | 0 | 1,871 | 0.0 |
| 2023 | 39 | 2,362 | 16.5 |
| 2024 | 2 | 2,176 | 0.9 |
| 2025 | 2 | 1,349 | 1.5 |
| 2026 (so far) | 1 | 899 | 1.1 |
Posts in the forum threads and blog comments we archived, 34,337 in all, counted per year. A mention means the post names the treatment, not that the writer took it. These pages all contain a recovery story, so they show what those communities discussed, not everyone with ME/CFS or long COVID. All trends
All 11 accounts
-
People with Long COVID turn to online drug markets (Chris)
Chris, in the UK, tried Maraviroc and blood thinners, with no doses, source or duration given, for Long COVID he had had since 2020. He reported only a few improvements in his symptoms despite trying multiple medications, describing the experience as being…
-
People with Long COVID turn to online drug markets (Sofia)
Sofia, in Austria, bought a four-month supply of sofosbuvir for about 200 euros from an anonymous Twitter/X user who had sourced it from India; the article does not say how long she had had Long COVID. On it, she went from 40% to 60% of her previous level of…
-
People with Long COVID turn to online drug markets (Tiff)
Tiff, in the US, took a 10-day course of Paxlovid plus sofosbuvir, a hepatitis C antiviral, that a friend brought back from India, after having Long COVID since 2020. She said she felt like she did before 2020, with her energy back, no PEM crash and no brain…
-
People with Long COVID turn to online drug markets (Rafael)
Rafael, in the UK, bought Maraviroc (Selzentry), an HIV medication, from an Indian seller via WhatsApp, paying about £50-60 for several months' supply and getting monthly liver checks while on it. He had been bedbound with Long COVID since 2021 before…
-
My Personal Story Posts
This index page notes that Christy tried maraviroc and truvada together, which produced "dramatic improvement in 2 days" but caused side effects that made her stop them, calling them "not the right meds for me." The page does not state how long she'd been…
-
Long COVID/ME-CFS Patient Goes into Remission After 3 Weeks on the Antiviral Sofosbuvir
After 2 years of severe, housebound long COVID (POTS, MCAS, brain fog, gut issues, severe weight loss), this patient took standard-dose Harvoni (sofosbuvir/ledipasvir), an antiviral, for 3 weeks and reported the POTS, brain fog and MCAS symptoms resolving to…
-
Two Years Later: Bruce Patterson, Long COVID and the Poll (Kate)
Kate Porter was treated with Bruce Patterson's protocol of maraviroc and pravastatin, which she calls a "game changer" that let her exercise again and gave her life back. A COVID reinfection after vaccination later worsened her symptoms, but going back on…
-
Two Years Later: Bruce Patterson, Long COVID and the Poll (Amy)
Amy was treated with Bruce Patterson's protocol of maraviroc and pravastatin and improved roughly 80 percent over four months, becoming able to work full-time fairly comfortably again and even taking a hiking trip. A stressful week, a near-fatal car accident…
-
Has anyone improved on Dr. Bruce Patterson Protocol for ME/CFS?
Pravastatin, combined with maraviroc under the Patterson long-COVID protocol at an unspecified dose, produced no improvement in ME/CFS symptoms after starting around August of the prior year, by the time of a February 2023 post. The poster did note a small…
-
Has Bruce Patterson Cracked Long COVID?
Sam started Bruce Patterson's long-COVID treatment protocol, though the specific drugs are not named in the comment, after 17 months of illness marked by shortness of breath, rashes, an elevated heart rate and POTS symptoms. The first four to five days were…
-
List of ME/CFS Recovery and Improvement Stories
Warm_Camera_7052 is listed reaching Long Covid remission after 3 weeks of sofosbuvir, per the compiled list; no further detail on severity or durability beyond that point is given.