How it went
Did it last?
- No one said the benefit wore off.
- No one said they needed to keep it up to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 1 | 25% |
| Near-full | 1 | 25% |
| Substantial | 0 | 0% |
| Partial | 2 | 50% |
| Relapsed | 0 | 0% |
| No benefit | 0 | 0% |
Only 4 accounts. Treat these percentages as anecdotes, not rates.
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Severe | 2 | 50% | |
| Very severe | 1 | 100% |
1 accounts don’t say how ill the person was.
Who published these accounts
25% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.
How often it comes up
Posts that mention Low-histamine diet, per 1,000 posts each year. Hover a point for the count.
Show as a table
| Year | Posts mentioning it | All posts | Per 1,000 |
|---|---|---|---|
| 2009 | 0 | 184 | 0.0 |
| 2010 | 0 | 682 | 0.0 |
| 2011 | 3 | 704 | 4.3 |
| 2012 | 0 | 1,491 | 0.0 |
| 2013 | 2 | 1,708 | 1.2 |
| 2014 | 8 | 2,352 | 3.4 |
| 2015 | 0 | 2,158 | 0.0 |
| 2016 | 5 | 1,431 | 3.5 |
| 2017 | 4 | 3,110 | 1.3 |
| 2018 | 0 | 2,201 | 0.0 |
| 2019 | 0 | 1,075 | 0.0 |
| 2020 | 0 | 2,581 | 0.0 |
| 2021 | 0 | 1,867 | 0.0 |
| 2022 | 1 | 1,166 | 0.9 |
| 2023 | 0 | 1,000 | 0.0 |
| 2024 | 1 | 1,237 | 0.8 |
| 2025 | 1 | 1,019 | 1.0 |
| 2026 (so far) | 2 | 840 | 2.4 |
Posts in the forum threads we archived, 26,806 in all, counted per year. A mention means the post names the treatment, not that the writer took it. These threads all contain a recovery story, so they show what those communities discussed, not everyone with ME/CFS or long COVID. All trends
All 4 accounts
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What is the evidence for histamine as a possible cause of ME/CFS symptoms?
Took diamine oxidase (DAO) situationally before high-histamine meals, plus nettle tea raised from one to six bags a day after a histamine spike, with quercetin and bromelain. Explicitly did NOT follow a low-histamine diet, stating that histamine in food was…
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Karen Wright's Story
Karen started with a low-histamine diet that brought overnight improvement, then moved to a broader anti-inflammatory diet, alongside pacing, Acceptance and Commitment Therapy through the NHS Long COVID service, breathwork, meditation, yoga, counselling and…
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Pepcid and 1 month without an 'episode'
After 36 years with ME/CFS and a period of mold exposure and concussions, began a low-oxalate diet on top of an existing low-histamine diet, plus doctor-prescribed Pepcid and ketotifen fumarate. Describes feeling, before this, like dropping through layers of…
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Nutritional Genomics and My Complete Recovery
Used a nutritional-genomics-guided protocol, using his own genetic testing results to choose specific diet and supplement changes, alongside an ongoing low-histamine diet. Had ME/CFS along with cycling OCD, anxiety and depression severe enough to require two…