Miruvor
ME/CFS Severe → substantialIll for 4 years

Vasopressin/ADH ... My Story

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
4 years
Published
Jun 2012

Summary

Added low-dose vasopressin (half pill twice daily) on top of thyroid medication, cortisol, aldosterone, testosterone and DHEA. Says he stopped over-urinating (previously about twice the volume he drank), fatigue improved, and his bench press rose sharply (from 175 lbs to 395 lbs). He calls himself "cured," though other posters in the thread push back on that word since the gains depend on staying on the medications, and he later notes that running out of the medication causes him to deteriorate again.

Read it in their words

forums.phoenixrising.me

What they credit

Credits Hormones & thyroid, Hydrocortisone / cortisol, Sex hormones (progesterone, estrogen, HCG), Testosterone, Thyroid (T3, T4, NDT).

Similar stories

  • I replace ALL my hormones. This brought me back to life.

    Substantial ME/CFS Severe forums.phoenixrising.me Oct 2020

    thingsvarious systematically replaced testosterone, cortisol, thyroid, growth hormone and aldosterone after years of "nightmare"-level fatigue, largely managing it himself because, in his words, "many endocrinologists are shit." He says his energy moved from…

  • ME/CFS patient substantially improved with spironolactone 100 mg daily

    Full recovery ME/CFS forums.phoenixrising.me Apr 2026

    Poster combined spironolactone 25mg/day with LDN, a GLP-1 agonist and NP thyroid and states plainly "My CFS is cured, yes cured...my health is amazing," while noting he still needs cortisol supplementation. Because several drugs were changed together it is…

  • I replace ALL my hormones (SilverRose88)

    Partial ME/CFS Very severeIll 20 years forums.phoenixrising.me Oct 2020

    SilverRose88, ill since adolescence and previously bedbound, says hydrocortisone, now 15mg down from 25mg, plus 75mcg of thyroxine got her from being bedbound to being able to be upright. She remains largely limited and expects lifelong hydrocortisone,…

  • What worked for me

    Near-full ME/CFS Severe forums.phoenixrising.me Jun 2010

    After 8+ years on Humira, Enbrel, Methotrexate and cortisol shots, switched to desiccated thyroid hormone (Armour, later Erfa) starting in 2003. Says her pain "disappeared," fatigue became "much much better," previous bone density decline reversed, and food…