My possible Valcyte miracle!
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Published
- Apr 2013
Summary
Started Valcyte (valganciclovir) 900mg twice daily for three weeks, then dropped to 900mg once daily each morning. Within weeks felt "beyond happy, excited and hopeful," and by 34 weeks declared "LIFE IS GOOD!!!"; by nine months she was driving again after being largely housebound. By 14-15 months, though, she reported being unable to get through the day without a long nap and noted her HHV-6 titers had risen again, suggesting the gain was fading. The thread title itself hedges it as only a "possible" miracle.
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