I had to retrain the body that it is safe to recover, that I didn't need protecting or to be put into survival mode
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Published
- May 2022
Summary
Credits her own program, Breaking Free, and support from unnamed private practitioners, after being so severely bedbound with M.E. that "crawling to the toilet" was a major achievement. No overall illness duration is given, but she describes being "pretty much passed out for days" after minimal exertion and sleeping at the bottom of the stairs during recovery attempts. She writes that "over many months, my world gradually became bigger" and that "with lots of crashes in between, I did fully recover." She went on to have "a relapse years later" and was "heading for a third relapse in 2008," which she says made her "put my health above all else," and she later turned what she learned into the book "Breaking Free – A Guide to Recovering from Chronic Fatigue Syndrome and Long Covid Symptoms."