Story
ME/CFS
Relapsed
Temperature regulationEffect faded relapsed
ME/CFS · Ill 10 years · forums.phoenixrising.me · Jan 2013
yes
ME/CFS
RelapsedIll for 10 yearsBenefit faded or relapsed
Estimate of % of patients who achieve long remission?
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 10 years
- Published
- Jan 2013
Summary
Reached about 85% function after roughly 10 years, well enough to exercise and run around after her children, though still unable to build fitness and with poor temperature regulation and bouts of exhaustion even during that remission; no specific treatment is credited in this post. The remission ended after she took on many commitments and caught measles, leaving her "much sicker this second time...and for longer" than originally.