List of ME/CFS Recovery and Improvement Stories (thread, page 10)
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Published
- Undated
Summary
batty_ash03 went from housebound and mostly bedbound to mild, with PEM only from cardio exercise, within two months of starting Mestinon 45mg three times a day. By 4-5 months the gains were sustained, and she had added strength training and part-time work from home.
What they credit
Credits POTS medication, Mestinon / pyridostigmine.
Similar stories
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Case Report: mitochondrial insufficiency and cholinergic failure in post-vaccination LC
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Mestinon + Famvir - whoa!
On Famvir 1500mg/day plus Celebrex 200mg twice daily, had "nearly 2 years" of improvement after an initially rough adjustment period, then suffered a "major EBV relapse" in February/March. Offers a longer-horizon counterpoint to BadBadBear's account in the…
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My 4th Year; EBV, ME/CFS, Long Covid; Pacing, HBOT, Vedicinals
Vedicinals-9, taken short-term as a nutraceutical supplement alongside an organic diet. She had been ill for four years at the time of writing, with EBV-triggered ME/CFS overlapping long COVID, managing dysautonomia with pyridostigmine and midodrine plus…
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Health Update #4: Recovery is a %*#*&$@!
Jennifer Brea had been managing severe ME for about 8 years with Valcyte, Valtrex, Mestinon, and fludrocortisone plus mold avoidance, which had only brought her from severe to moderate; in November 2018 she underwent three surgeries over six weeks — a…