To me ME is no great mystery
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 12 years
- Published
- Jan 2019
Summary
Recovered through one-on-one talks with Dr. Arne Stenstrøm, a Bodø physician who had himself recovered from ME, starting in 2009 after twelve years and, he says, over two million kroner spent chasing treatment from doctors in Belgium, Minnesota, Poland, Germany, Finland, Cyprus and South Africa, plus chiropractic, homeopathy and a Lightning Process course he found unhelpful. He had been ill since 1997 after a football match, unable to keep playing after 2001, losing more than 15kg, withdrawing from social life and moving back to his childhood home while on welfare from his late twenties. Stenstrøm told him ME was inflammation driven by years of stress from forcing himself to perform at football despite not truly wanting to, and had him give up football entirely while starting a graded walking programme of 10 minutes a day, building by about 10% a week to 6-7 hour walks within a year. He says, "After 12 years I was recovered. The pure joy this gave me was enormous," came off welfare immediately, and later ran a real estate company and exercised daily, informally advising about a dozen other people toward recovery. The story reports no relapse of the ME, though an editor's note adds that Berg died in June 2019 after developing an addiction problem in his final years.
Read it in their words
recoverynorway.org — a recovery advocacy site.
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