List of ME/CFS Recovery and Improvement Stories
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Published
- Undated
Summary
As compiled in Hip's master recovery-story list, OnlyInDreams is described going from moderate ME/CFS to remission on valganciclovir, with the case noting relapse if the drug is stopped - so the remission is presented as continuing only while medicated.
What they credit
Credits Antihistamines & MCAS, Antivirals, Valcyte / valganciclovir.
Similar stories
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Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)
Started Otezla in autumn 2018, which "made a big difference" within a month, then added valganciclovir, ritonavir and Isentress from January 2019. Had been confined to a dark room, wheelchair-bound and unable to tolerate sound or light after a 2016 crash;…
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Björn recovered from severe ME with antivirals (valganciclovir, ritonavir and isentress)
Ran a long multi-drug protocol: valganciclovir at 450mg twice daily for a year then a lower maintenance dose for another 8 months, repeated after HHV-6 reactivated again; famciclovir 500mg three times daily for 6 months; gammaglobulin infusions every three…
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Health Update #4: Recovery is a %*#*&$@!
Jennifer Brea had been managing severe ME for about 8 years with Valcyte, Valtrex, Mestinon, and fludrocortisone plus mold avoidance, which had only brought her from severe to moderate; in November 2018 she underwent three surgeries over six weeks — a…
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Valcyte - Third Time Lucky
After two earlier unsuccessful attempts, a third course of half-dose Valcyte (450mg/day) took her from an estimated 25% of normal capacity to about 50%, from being, in her words, "warehoused" to "working a little," including teaching about two hours forty…